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Posted on: Mon, 08/21/2006 - 8:32am
mommyofmatt's picture
Joined: 03/12/2004 - 09:00

Hey Ree!! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
We're in a similar boat. My ds just had his CAP RAST repeated at age 4.
Peanut, which had been going down for two years, jumped up from 20 to a lovely 47 [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]
Egg has climbed steadily for 2 years, and is also in the 40's.
Milk is around the same, very low (some good news)
My allergist, whom I do like and for the most part agree with, the same guy who once told me...he'll outgrow milk and egg by 3, now says....with kids around 4 who are still allergic, the #s go up before they go down and we'll know better around 6 or 7. JOY! OH JOY!
As far as I know, 1 peanut exposure last year (the whole sippy cup thing), but I don't relate it to that for some reason. And no egg reactions. We too eat Barilla pasta with no problems and I did ask him about this if we should stop eating it. He didn't feel it was necessary, and I'm not ready to go to rice pasta, so we're sticking with it for now.
I'm really starting to buy into Jason's theory of how the wind blows may be equally as accurate as these d@#$ tests, but it did bum me out with the results.
Hope everything else is well and baby is good! Meg

Posted on: Mon, 08/21/2006 - 9:05am
Corvallis Mom's picture
Joined: 05/22/2001 - 09:00

DD is now 7yo. [i]He[/i] says "almost all of them outgrow..." but he's starting to use a much more half-hearted tone... DD actually pretty much snorted at him the last time he said that to her.
Her allergy to eggs has always been severe-- she's NEVER ingested anything but well-cooked traces, and that only a few times. We probably should have used Epi two of those times.
Anyway-- I have a theory as to why some kids outgrow and others don't... it is only sort of scientifically tested, though. My hypothesis is that with egg allergy, there are people who recognize the "native" form of the protein (as it comes in raw egg) and are only truly allergic to undenatured protein found in raw or lightly cooked eggs... so they readily tolerate eggs well-cooked in baked goods or in pastas. That kind of thing. The other type of egg allergy is sequence specific, so just killing the protein with heat doesn't do any good. Your IgE recognizes a certain ten amino acid sequence that is exposed on the native protein, but hey- it's [i]still there when you cook it[/i]. Egg allergy is unusual because people can have either type of allergy, though the former is most common in children. Most food allergens tend to elicit one type or the other. Here's the hypothesis part-- my feeling is that the latter type are much less likely to be outgrown. It just seems like anecdotally the kids who outgrow egg are the ones who mostly had trouble with it raw.
But hey-- maybe it just depends on the tides. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Posted on: Mon, 08/21/2006 - 12:12pm
Ree's picture
Joined: 12/31/2004 - 09:00

Hey Meg! Good to hear from you on this post! I'm sorry about your results... [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] I like what your allergist had to say. It still gives me hope. And the baby's great, thanks for asking! He makes me want another one! [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]
Corvallis Mom - I like your hypothesis. It sounds right to me. 2 years ago I was at a conference where Dr. Sampson spoke and he mentioned people working on RAST or SPT for cooked vs. raw egg. Is it available yet? He gave a great explanation on how proteins & mast cells work and talked specifically about how the egg protein changes it's characteristics when cooked...very interesting. If I knew then what I'd be up against, I'd have paid more attention and taken notes! [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]
I'm starting to believe it's out of our hands. I thought strict avoidance would help them outgrow it, or at least quicker, but not I'm not so sure. My ds had 2 pretty major milk ingestions and his levels didn't increase at all. He had no egg exposures (we're an egg-free house) and his levels skyrocketed! I'm with Jason on this one...

Posted on: Mon, 08/21/2006 - 1:06pm
AlwaysAvoidAnaphylaxis's picture
Joined: 06/23/2001 - 09:00

a well known allergist said that an exposure to an allergen (ie during a food challenge) does not decrease the chance of outgrowing that food. Although, we stopped SILK soymilk products after i found out that they run the soymilk on a dairy line and test the milk every 15 min for dairy and ever since, DS eczema is basically gone and his milk CAP RAST is going down down down (started at 25 and went down and then back up to 14 in 2003 and now slowly back down to 1.8 and he may actually outgrow it!)
DS just outgrew his egg allergy a week ago. He will be 8 in a week or so. He is also TNA and MA. His egg CAP RAST has been zero for about 4 years though and has failed two prior egg challenges even with zero CAP RAST due to concurrent asthma and eczema(last challenge was 2 years ago) but passed it last week. He has since eaten egg in baked goods every day as we were told to do and has had pancakes and today had another french toast without a problem. so we are pushing egg every day for the next 6 months before we let up. he may be so tired of egg by then! i actually like all of our food recipes without the egg in it better! Egg CAP RAST at age 1 was 18 and has gone down since then.
MA is down to 1.8 which is awesome and all TNA are now negative except for brazil nut down to 3.4, and pecan and walnut down to 0.5. we were so incredibly happy for DS when we got this info back in july. he is not PA and we re-introduced peanuts in july and have been pushing that daily as well. not sure what is right but wesley burks at duke is doing a study giving small amounts of the food allergen orally each day and finding that larger doses can then be tolerated but daily small doses are a necessity. interesting.
hang in there. i suspect when our kids are around 20 , there will be a solution to these crazy food allergies.

Posted on: Mon, 08/21/2006 - 11:27pm
saknjmom's picture
Joined: 04/02/2003 - 09:00

Corvallis Mom, I like what you said about the egg allergy. Makes sense. I always wondered why DS could have a baked good with eggs, but if he touched the whites of a raw egg, he got pretty itchy.
He did outgrow eggs according to rast and skin test, but if he touches raw whites, he still becomes a bit itchy. One day after he outgrew, he ate a lot of scrambled eggs and got the hives around his mouth.
This was a bit confusing. I just figured he ate too much at once?

Posted on: Wed, 08/23/2006 - 1:49am
kat925's picture
Joined: 08/23/2006 - 09:00

My DS now 4, had his PA RAST shoot through the roof. It went from a 44 to >100 in 2 years with strick avoidance of all peanuts and tree nuts. The allergist seemed stymied by this and could offer no answers. I am now completely freaked out.

Posted on: Wed, 08/23/2006 - 4:43am
stephbillalec's picture
Joined: 02/22/2006 - 09:00

My dd, who will be 4 in a couple of weeks, just got her RAST results back. Her PA # is now >100, up from 27.8 last year. We have had no reactions, accidental exposures, NOTHING. Also, to make matters worse, last year her allergy to cashews was "outgrown", a ZERO!! I had them retest it this year and she's allergic again along with pistachios. UGH. No exposure to tree nuts in the past year either.
I give up!!!!!!!!!!!! We'll be a peanut/tree nut family for life!
[This message has been edited by stephbillalec (edited August 23, 2006).]

Posted on: Wed, 08/23/2006 - 5:21am
jtolpin's picture
Joined: 05/28/2003 - 09:00

Quote:Originally posted by stephbillalec:
We'll be a peanut/tree nut family for life!
What's wrong with that?
[b]* Obsessed * [/b]

Posted on: Fri, 08/25/2006 - 12:45am
stephbillalec's picture
Joined: 02/22/2006 - 09:00

[quote]Originally posted by jtolpin:
What's wrong with that?
It has nothing to do with actually having peanuts/tree nuts for a food choice. It's the whole fear of accidental exposure that I can't stand. I would have no problem being peanut/tree nut free if we were not allergic!

Posted on: Tue, 08/29/2006 - 9:51pm
Ree's picture
Joined: 12/31/2004 - 09:00

We're back from the allergist and I had her answer a ton of questions. For the most part, I feel pretty good. She said to ignore the numbers, that there's more gray than black-and-white. She's had Class 5's outgrow allergies and Class 1's never outgorw them. Since his milk and egg SPT were pretty much the same, she would think that his reactions would be similar, but can't guarantee anything. She thinks he is more likely to outgrow the milk sooner than the egg (if he outgrows them).


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