I\'m so upset....my son had a reaction the other night

Posted on: Mon, 03/11/2002 - 3:34am
Suz-a-loo's picture
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Joined: 10/19/2001 - 09:00

I'm so depressed now. My PA son had a reaction the other night to miso soup. I didn't know that miso is made from soybeans (obviously, from the legume family). My son has always eaten it before with no problems and the other night he ate just a little and his lips started to swell. I watched him like a hawk all night and when he woke up the following morning, his eyes were swollen. Fortunately, it didn't get so bad that we had to use the epi. He has been reaction free for quite a while now and I was really hoping that he might have outgrown the allergy and was thinking about having him retested. Has anyone out there who has never reacted to other legumes in the past all of a sudden have a reaction? I normally keep him away from all legumes because I've always worried that he would be exposed, but like I said earlier, I didn't realize that miso is made from soybeans. This allergy is so frustrating!

Posted on: Mon, 03/11/2002 - 4:08am
CVB in CA's picture
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My son has also had a reaction to miso soup, but not to other soy. My pediatrician and allergist both said it was a difficult one to isolate. Miso soup may have tofu (soy) chunks and dashi. The dashi(broth mixture) may contain bonito flakes (fish flakes), seaweed, etc. Also, the miso is fermented soy paste.
He does not react to other products containing soy. The doctors said it could be a threshold (more concentrated source) issue or cross contamination. It happened twice, so we just gave up on it. He does not react to other legumes.
Other products you might want to avoid - tofu, tempeh, seitan. Avoid the vegetarian "meats" like the veggi dog, etc. as they usually are a soy product.

Posted on: Mon, 03/11/2002 - 8:34am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I can't answer this on behalf of the purely PA... but I can tell you that my husband's soy allergy is generally at "nuisance" level (ie soy oil and margarines don't make him feel good- but he eats french fries and popcorn anyway [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img].... but he can be pretty sick if he eats tofu, miso, or more than a trace of soy sauce. Exactly- its the concentration of the soy protein is our thought about it.
(PS- lots of PA kids are also soy allergic, but not truly "cross-reactive"... that is, the allergy is not severe like the PA.)

Posted on: Mon, 03/11/2002 - 2:28pm
Suz-a-loo's picture
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Joined: 10/19/2001 - 09:00

Thanks for your replies. Everytime I think I have a handle on this allergy something crops up to surprise me. I've heard that everytime a person is exposed to a peanut allergen they decrease the chances of outgrowing it. I wonder if his being exposed to soy in the miso would be considered an exposure (since it's in the same family as peanuts)? Any ideas on that?

Posted on: Mon, 03/11/2002 - 8:02pm
Claire's picture
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Joined: 04/19/2000 - 09:00

I am just wondering what Miso soup is? I never heard of it before. Thank you and I am glad your son is ok suz-a-loo. Claire

Posted on: Mon, 03/11/2002 - 10:06pm
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Joined: 05/28/2009 - 16:42

Suz-a-loo,
Glad to hear your son's OK!
Good luck getting it all straightened out.
Tammy

Posted on: Tue, 03/12/2002 - 12:40am
CVB in CA's picture
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One thing I forgot. If the soup uses a commercial or prepackaged dashi, there may be a sizable amount of MSG in the broth. If your child is sensitive to MSG, it is possible that is what is bothering him.
If you get a headache or flushed face after a dish of chinese or other asian food it can be MSG added into the dish. Some people can be so sensitive it can cause nausea and vomiting.

Posted on: Tue, 03/12/2002 - 12:45am
smack's picture
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Joined: 11/14/2001 - 09:00

I'm with Claire, What is Miso soup?

Posted on: Tue, 03/12/2002 - 12:54am
CVB in CA's picture
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Joined: 10/15/1999 - 09:00

More than you want to know about miso-
Miso soup is a staple Japanese food. There are a bunch of little variations- miso soup w/seaweed, w/spinach, +tofu, +little crispy onion rings, +etc.
The broth is clear and the miso paste is cloudy. The miso tends to settle in the broth so the soup becomes cloudy when stirred.
This soup is commonly served in the US in Japanese restuarants before the meal or with a bento box.
Miso is a fermented soybean product that comes is a few different varieties- red, white, etc. It is very salty and concentrated, and is also aged a bit.
Soy products are kind of like cheese equivilants to a western diet- they are in a lot of dishes and sometimes in very concentrated form.
These foods had a lot of press in two books popular about 20 years ago, called I think- "The Book of Miso" and "The book of Tofu". They go into the nitty gritty of how these foods are made along with "spiritual commentary". Very 70's.
My college roommate had both of them.

Posted on: Tue, 03/12/2002 - 1:12am
smack's picture
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Joined: 11/14/2001 - 09:00

CVB in CA,
Thanks for the info.
Sorry to hear about your son's reaction Suz-a-loo but thanks for sharing this.
It just adds more credibility to the fact peanut allergic children have reactions to soybean as well.
The listed foods to avoid if you have a soy allergy are:
Hydrolyzed soy protein
Miso
Shoyo sauce
Soy flour
Soy grits
Soy nuts
Soy milk
Soy sprouts
Soy protein concentrate
Soy protein isolate
Soy sauce
Tempeh
Textured vegetable protein (TVP)
Tofu
[This message has been edited by smack (edited March 12, 2002).]

Posted on: Mon, 03/11/2002 - 4:08am
CVB in CA's picture
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Joined: 10/15/1999 - 09:00

My son has also had a reaction to miso soup, but not to other soy. My pediatrician and allergist both said it was a difficult one to isolate. Miso soup may have tofu (soy) chunks and dashi. The dashi(broth mixture) may contain bonito flakes (fish flakes), seaweed, etc. Also, the miso is fermented soy paste.
He does not react to other products containing soy. The doctors said it could be a threshold (more concentrated source) issue or cross contamination. It happened twice, so we just gave up on it. He does not react to other legumes.
Other products you might want to avoid - tofu, tempeh, seitan. Avoid the vegetarian "meats" like the veggi dog, etc. as they usually are a soy product.

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