I\'m so upset....my son had a reaction the other night

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I'm so depressed now. My PA son had a reaction the other night to miso soup. I didn't know that miso is made from soybeans (obviously, from the legume family). My son has always eaten it before with no problems and the other night he ate just a little and his lips started to swell. I watched him like a hawk all night and when he woke up the following morning, his eyes were swollen. Fortunately, it didn't get so bad that we had to use the epi. He has been reaction free for quite a while now and I was really hoping that he might have outgrown the allergy and was thinking about having him retested. Has anyone out there who has never reacted to other legumes in the past all of a sudden have a reaction? I normally keep him away from all legumes because I've always worried that he would be exposed, but like I said earlier, I didn't realize that miso is made from soybeans. This allergy is so frustrating!

On Mar 11, 2002

My son has also had a reaction to miso soup, but not to other soy. My pediatrician and allergist both said it was a difficult one to isolate. Miso soup may have tofu (soy) chunks and dashi. The dashi(broth mixture) may contain bonito flakes (fish flakes), seaweed, etc. Also, the miso is fermented soy paste.

He does not react to other products containing soy. The doctors said it could be a threshold (more concentrated source) issue or cross contamination. It happened twice, so we just gave up on it. He does not react to other legumes.

Other products you might want to avoid - tofu, tempeh, seitan. Avoid the vegetarian "meats" like the veggi dog, etc. as they usually are a soy product.

On Mar 11, 2002

I can't answer this on behalf of the purely PA... but I can tell you that my husband's soy allergy is generally at "nuisance" level (ie soy oil and margarines don't make him feel good- but he eats french fries and popcorn anyway [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img].... but he can be pretty sick if he eats tofu, miso, or more than a trace of soy sauce. Exactly- its the concentration of the soy protein is our thought about it. (PS- lots of PA kids are also soy allergic, but not truly "cross-reactive"... that is, the allergy is not severe like the PA.)

On Mar 11, 2002

Thanks for your replies. Everytime I think I have a handle on this allergy something crops up to surprise me. I've heard that everytime a person is exposed to a peanut allergen they decrease the chances of outgrowing it. I wonder if his being exposed to soy in the miso would be considered an exposure (since it's in the same family as peanuts)? Any ideas on that?

On Mar 12, 2002

I am just wondering what Miso soup is? I never heard of it before. Thank you and I am glad your son is ok suz-a-loo. Claire

On Mar 12, 2002

Suz-a-loo,

Glad to hear your son's OK! Good luck getting it all straightened out.

Tammy

On Mar 12, 2002

One thing I forgot. If the soup uses a commercial or prepackaged dashi, there may be a sizable amount of MSG in the broth. If your child is sensitive to MSG, it is possible that is what is bothering him.

If you get a headache or flushed face after a dish of chinese or other asian food it can be MSG added into the dish. Some people can be so sensitive it can cause nausea and vomiting.

On Mar 12, 2002

I'm with Claire, What is Miso soup?

On Mar 12, 2002

More than you want to know about miso-

Miso soup is a staple Japanese food. There are a bunch of little variations- miso soup w/seaweed, w/spinach, +tofu, +little crispy onion rings, +etc.

The broth is clear and the miso paste is cloudy. The miso tends to settle in the broth so the soup becomes cloudy when stirred.

This soup is commonly served in the US in Japanese restuarants before the meal or with a bento box.

Miso is a fermented soybean product that comes is a few different varieties- red, white, etc. It is very salty and concentrated, and is also aged a bit.

Soy products are kind of like cheese equivilants to a western diet- they are in a lot of dishes and sometimes in very concentrated form.

These foods had a lot of press in two books popular about 20 years ago, called I think- "The Book of Miso" and "The book of Tofu". They go into the nitty gritty of how these foods are made along with "spiritual commentary". Very 70's. My college roommate had both of them.

On Mar 12, 2002

CVB in CA,

Thanks for the info.

Sorry to hear about your son's reaction Suz-a-loo but thanks for sharing this. It just adds more credibility to the fact peanut allergic children have reactions to soybean as well.

The listed foods to avoid if you have a soy allergy are: Hydrolyzed soy protein Miso Shoyo sauce Soy flour Soy grits Soy nuts Soy milk Soy sprouts Soy protein concentrate Soy protein isolate Soy sauce Tempeh Textured vegetable protein (TVP) Tofu

[This message has been edited by smack (edited March 12, 2002).]

On Mar 12, 2002

Thanks for all your kind thoughts. I'm so grateful my son's reaction wasn't severe enough to require the epi or a trip to the hospital. CVB - that was a great description about miso. It's so strange that he never reacted before, but I suppose it's because there wasn't enough of the allergen to cause a reaction when he ate it before. We are part asian and deleting any type of soy product from our diet is going to be difficult. He won't even touch rice without soy sauce on it. It just seems like our list of safe things to eat is getting smaller and smaller by the day. Smack, thanks for the list of soy products to avoid. Unfortunately, we have been consuming some of the items on your list and it looks like that's history now.

On Mar 12, 2002

I just noticed the other day that one of the big frozen vege companies (Bird's Eye, I think) now has a mixed vegetable combination with "sweet soybeans". I think I'll go back to boiling my own veges.

On Mar 12, 2002

suz-a-loo, try experimenting with mixtures of warm to hot water with molasses and vinegar... this (steeped with a little fresh ginger root) makes a pretty passable "mock soy sauce" that your little one might like just as well on steamed rice! The water temperature and type of molasses may make a big difference- we've had good luck with water about 140 degrees and dark molasses, but I have other friends that like the bite of blackstrap molasses.

On Mar 12, 2002

Corvallis Mom - thanks for the mock soy sauce recipe. I'll have to give it a try. We're not big molasses people, but maybe mixed with the water and vinegar, it might just work. Thanks again!

On Mar 13, 2002

I know it sounds really weird...(ok- really *really* weird [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) I was skeptical at first, but I LOVE soy sauce and we have always eaten a lot of Asian food. (I sure miss the pork and cabbage dumplings a friend of ours used to make in grad school!!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ) It isn't a spot-on match taste-wise, but it has the right color and it tastes *similar*... You may need to add a little extra salt, too, since molasses isn't naturally salty.

On Mar 14, 2002

Hi! We stopped going to our favorite Thai restaurant as a family after our 3 yr old son Max was diagnosed with PA and our 5 year old daughter Hannah was diagnosed with cashew allergy. Our son had a reaction just sitting in a high chair at the restaurant! Now we just get take out (for both Thai and Chinese) and have it at home where he and his sister can be safe. By the way, my PA son is also allergic to soy.

On Apr 5, 2002

Hi, sorry to hear of the miso reaction, I love soy things and one of my irrational (well, maybe not SO irrational) fears is that I'll develop an allergy to that as well as peanuts et al. Just to let you all know that tempeh is often cooked with nuts! It can also turn up in vegetarian wraps etc...

On Apr 5, 2002

Shannon-- I've been wishing for a soy sauce substitute for quite a while -- so I was quite pleased to read your post.

What sort of vinegar do you suggest? Could you give us a rough idea of the molasses/vinegar/ginger/water ratio?

Thanks! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Sue

On Apr 5, 2002

No problem.. its mostly been trial and error, and its pretty sensitive to atmospheric conditions, so you've been warned! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] 1/4 c warm water (hotter water changes taste- so feel free to try a few things) splash (1/2 tsp?)balsamic vinegar (but other types work too) about 1 tsp dark molasses stir and taste, then add salt and ginger to taste.

On Jul 1, 2002

Raising this thread per request!

Sue

On Jul 3, 2002

Here you go!

On Jun 15, 2004

Reraising for kstreeter.

On Jun 15, 2004

Sorry to hear about your son. I have been a severe suffer of PA all my life. I have never been able to come around the smell of peanut butter and had to raise my three children in a household that did not include peanut butter. I try to spread the message to other people that I have always had a problem with certain soy products. I can eat foods with soy sauce, but cannot eat tofu (which is in miso soup). I also have reactions to snack cakes which contain soya. There were alot of foods as a child that I would tell my parents that I did not like (these were foods that most kids would normally ask for such as little debbie cakes and ice cream sandwiches). As an adult, I have found that I was allergic to those items, though they contained no peanuts, or peanut butter, they did contain soy. I hope this will help some of you when your children just state that they don't like a particular food, it could be that they have had a negative reaction that even they do not understand.

On Jun 16, 2004

ryan's mom - thanks so much!

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