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Posted on: Sun, 10/22/2006 - 5:21am
Walshie's picture
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Joined: 10/18/2006 - 09:00

Hello. I just received an e-mail from Dr. Sampson of Mount Sinai School of Medicine in New York. He said to forward my son's records and make an appointment. I'm hoping this works. As for his nebulizer..... His regular Dr. and Allergist both have agreed that this is a side effect. I still say NO WAY. I have had him (spelling on these) albulterol, xoponex, pulmocort and one other. I also had him on the oral albulterol. All with the same results. No he is not allergic to latex. So as far as I can tell the medication must react on him. *** When I had my daughter who is older, my Dr. gave me a pers. for me to stop producing milk. I got so dizzy and passed out on the bathroom floor. I have no known allergies. I have never reacted to anything like that before. I also never take anything either. I'm one that figures it will just take it's time and go away....
I'm not saying that I don't take an advil pill once or twice a year but that's about it.
One of the mothers at Cub Scouts takes her son's to this place and suggest it highly. I have tried in the past to contact them but this is the first response I ever received from them. I sent an e-mail to Dr. Sampson.
I have an appointment with Sean's allergist tomorrow and will see if I can get his records tomorrow and I'll call his ped. and see if she will get them for me too.
I'll keep you posted.
Oh and buy the way I do know spelt is wheat. I said that to many people. But as per his allergist and ped., he may tolerate it. In very small doses. I don't really agree but he is so limited that I do sneak it in once a month. Then I throw it out or give it to my daughters class. She loves that one.
Thanks again.
Alice

Posted on: Sun, 10/22/2006 - 7:07am
LisaM's picture
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Joined: 11/04/2005 - 09:00

You are very fortunate to be able to see Dr. Sampson! While I don't know what he is like as a doctor, he is certainly a well known researcher.
I have no idea about what to say about the nebulizer--he must need the meds, but his reaction is concerning. You might want to get a list of all the non-medicinal ingredients in the medications and then research them (it is amazing how many things have corn in them!) Then I'd suggest asking Dr. Sampson about it--hopefully he will have some answers.
It is possible to get medications made specially at a compounding pharmacy . . . but I have no idea whether they would make asthma meds. I suspect not.
Let us know how the appointment goes! In the meantime, don't hesitate to ask us any questions. Best wishes to you and your family.
[This message has been edited by LisaM (edited October 22, 2006).]

Posted on: Mon, 10/23/2006 - 1:51am
Walshie's picture
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Joined: 10/18/2006 - 09:00

Hello. I just got off the phone with Dr. Sampson's office. The earliest date for Sean to get an appointment is January 3, 2007. I'm hoping for a great visit. I'll keep you posted on his updates.
Thanks,
Alice

Posted on: Mon, 10/16/2006 - 2:28am
joeybeth's picture
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Joined: 09/01/2006 - 09:00

hi kathy!

Posted on: Mon, 10/16/2006 - 6:49am
April in KC's picture
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Joined: 08/28/2006 - 09:00

Hi and welcome! This is a great site--I only found it earlier this year, and my son with PA is five years old. I wish I'd been reading this all along.
How did you find out your child was peanut allergic?
April
[This message has been edited by April in KC (edited October 16, 2006).]

Posted on: Mon, 10/16/2006 - 8:56am
KathyM's picture
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Joined: 10/16/2006 - 09:00

Thanks for replying. My son has terrible seasonal allergies and some behavior problems. I wanted to see if he was allergic to any food because I have read that sometimes food can affect behavior. The allergist did a skin test on him for over 25 different things (food - based on what I told him he ate, as well as outdoor allergens). Peanut came up as an allergy. I was very surprised because he had never had a reaction. Then I realized he did have hives around his mouth one time before he was tested (and two more times since being tested). We now carry Benadryl and 2 epi-pens.

Posted on: Mon, 10/16/2006 - 11:07am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Hi Kathy! I'm new too, as of a little less than a week ago. My 2-1/2 yo daughter was just diagnosed 1-1/2 weeks ago and came up with a "strongly positive" allergy to peanuts. She had just been diagnosed with a severe egg allergy also. Blood test in Sept showed extremely high egg and marginal wheat and milk. Skin test showed the Peanut and egg not wheat or milk. (gained in one area- lost in another!!)But our experience sounds similar. We were very surprised to find the peanut allergy. We think that is the cause of her behavoiral problems and stomach problems and she too had a few cases of hives around her mouth. Eggs are a bigger issue at this point. Anyway, sorry for the length, I was happy to see someone with a "surprise" diagnoses. We also carry the benadryl and epi's. Do you also have to eliminate Tree nuts and shellfish? My daughter can't have those etiher.
in any case
welcome!!
Kara

Posted on: Tue, 10/17/2006 - 11:33am
KathyM's picture
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Joined: 10/16/2006 - 09:00

Kara,
Our allergist did not say anything about avoiding tree nuts or anything else. But I have read that people with a PA also avoid tree nuts too. So we pretty much avoid them also. What exactly do you think was causing the behavior problems? Did the behavior improve once you eliminated it? Just curious. I've been reading a lot about food and behavior.
Kathy

Posted on: Tue, 10/17/2006 - 1:03pm
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Kathy, I apologize if this reply stops making sense at some point. I just took my sleeping pill!! Anyway, we first started having problems with our daught at about 18 months, about a year ago. She would get in to what I could only describe them as is fits. She would throw herself onto the floor and arch and scream and moan sometime lasting over an hour, We tried to pick her up and hold her we tried to put her in her room, nothing worked. It got so difficult even getting her up after naps. These fits were often not sibling induced either. Finally in Nov. we took her in for a CT and some blood test and everything showed up negative on those. except then they found a very large sinus infection. So three round of antibiotics later, still sleepless night, still throwing fits (some times just because you said her name.)She would wake up screaming several times a night and we practically had to slap her out of it. I t was kind of scary. Then when she turned 2 in March her behavior seemed to be getting a little better but then we start noticed we would eat and hives would show up around her mouth and somtimes on her tongue. By this time she jsut started having such terrible belly cramps. She would just choose to lay down and she'd writhe for a while and then it would be over. very frustrating.
Brought her in for blood draw beginning of Sept. Severe allergy to egg, and the skin test reaffirmed that along with giving us the result of her peanut test which was "strongly posititve" Anyway, we look back now and think, it must have been somewhat related. When she was old enough to understand that her stomach hurt, she told us and the fits have gottn much better. Just a week or two befor the last result, my daught had peanuts at my mom and dads and she totally lost control. we could figure out what the problem was. No one could touch her comfort her or soothe her. She just screamed. So we have eliminated these things for only a short time so far, but she does not complain about her tummy hurting and if she does she does go lie down.
It has been a long winding road- but now I think we have some answers or at least we are finally on the right road to finding them.
She excepts the things we tell her she can't eat because it makes her tummy hurt. We know that if she wasn't in that much pain she probably would not be so compliant with this new diet. I hope she keeps feeling better and never has other reactions. But our allergist there is a chance it could get worse.
She also has had reactions to somekind of additive or preservative that gives her hives and today she said her tongue hurt and when I looked - indeed it was red and bumpy all aroung the edges. Scary. With hives on her face. Benadryl seemed to work well.
I guess that is our experience. The elimination so to an extent seemto bee helping her mood and behavior- of course we have to remember that she has a 4 yo sister and a 16 month old brother and another baby coming in 4 weeks or less. (not to mention they all now have ecxema which until 1 week ago my FA daughter did not have!!)
Sorry about the rambling....
what has your experience been like???
Kara

Posted on: Wed, 10/18/2006 - 6:07am
KaraLH's picture
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Joined: 10/11/2006 - 09:00

Hi Kathy, it's me again.
Sorry about that last post. I was so tired. I re-read it just now and noticed what a horrible job I did!! Hope you understand most of it. Anyway, still anxious to hear about your experience.
Kara

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