Hi everyone, My son(5) was diagnosed with a PA in March. I've been reading a lot of messages on this great website, but this is the first time I'm writing. I just thought I would introduce myself. I'm sure I will have a lot of questions in the near future. Thanks.
On Oct 16, 2006
On Oct 16, 2006
Hi and welcome! This is a great site--I only found it earlier this year, and my son with PA is five years old. I wish I'd been reading this all along.
How did you find out your child was peanut allergic?
[This message has been edited by April in KC (edited October 16, 2006).]
On Oct 16, 2006
Thanks for replying. My son has terrible seasonal allergies and some behavior problems. I wanted to see if he was allergic to any food because I have read that sometimes food can affect behavior. The allergist did a skin test on him for over 25 different things (food - based on what I told him he ate, as well as outdoor allergens). Peanut came up as an allergy. I was very surprised because he had never had a reaction. Then I realized he did have hives around his mouth one time before he was tested (and two more times since being tested). We now carry Benadryl and 2 epi-pens.
On Oct 16, 2006
Hi Kathy! I'm new too, as of a little less than a week ago. My 2-1/2 yo daughter was just diagnosed 1-1/2 weeks ago and came up with a "strongly positive" allergy to peanuts. She had just been diagnosed with a severe egg allergy also. Blood test in Sept showed extremely high egg and marginal wheat and milk. Skin test showed the Peanut and egg not wheat or milk. (gained in one area- lost in another!!)But our experience sounds similar. We were very surprised to find the peanut allergy. We think that is the cause of her behavoiral problems and stomach problems and she too had a few cases of hives around her mouth. Eggs are a bigger issue at this point. Anyway, sorry for the length, I was happy to see someone with a "surprise" diagnoses. We also carry the benadryl and epi's. Do you also have to eliminate Tree nuts and shellfish? My daughter can't have those etiher. in any case welcome!! Kara
On Oct 17, 2006
Kara, Our allergist did not say anything about avoiding tree nuts or anything else. But I have read that people with a PA also avoid tree nuts too. So we pretty much avoid them also. What exactly do you think was causing the behavior problems? Did the behavior improve once you eliminated it? Just curious. I've been reading a lot about food and behavior.
On Oct 17, 2006
Kathy, I apologize if this reply stops making sense at some point. I just took my sleeping pill!! Anyway, we first started having problems with our daught at about 18 months, about a year ago. She would get in to what I could only describe them as is fits. She would throw herself onto the floor and arch and scream and moan sometime lasting over an hour, We tried to pick her up and hold her we tried to put her in her room, nothing worked. It got so difficult even getting her up after naps. These fits were often not sibling induced either. Finally in Nov. we took her in for a CT and some blood test and everything showed up negative on those. except then they found a very large sinus infection. So three round of antibiotics later, still sleepless night, still throwing fits (some times just because you said her name.)She would wake up screaming several times a night and we practically had to slap her out of it. I t was kind of scary. Then when she turned 2 in March her behavior seemed to be getting a little better but then we start noticed we would eat and hives would show up around her mouth and somtimes on her tongue. By this time she jsut started having such terrible belly cramps. She would just choose to lay down and she'd writhe for a while and then it would be over. very frustrating. Brought her in for blood draw beginning of Sept. Severe allergy to egg, and the skin test reaffirmed that along with giving us the result of her peanut test which was "strongly posititve" Anyway, we look back now and think, it must have been somewhat related. When she was old enough to understand that her stomach hurt, she told us and the fits have gottn much better. Just a week or two befor the last result, my daught had peanuts at my mom and dads and she totally lost control. we could figure out what the problem was. No one could touch her comfort her or soothe her. She just screamed. So we have eliminated these things for only a short time so far, but she does not complain about her tummy hurting and if she does she does go lie down. It has been a long winding road- but now I think we have some answers or at least we are finally on the right road to finding them. She excepts the things we tell her she can't eat because it makes her tummy hurt. We know that if she wasn't in that much pain she probably would not be so compliant with this new diet. I hope she keeps feeling better and never has other reactions. But our allergist there is a chance it could get worse. She also has had reactions to somekind of additive or preservative that gives her hives and today she said her tongue hurt and when I looked - indeed it was red and bumpy all aroung the edges. Scary. With hives on her face. Benadryl seemed to work well. I guess that is our experience. The elimination so to an extent seemto bee helping her mood and behavior- of course we have to remember that she has a 4 yo sister and a 16 month old brother and another baby coming in 4 weeks or less. (not to mention they all now have ecxema which until 1 week ago my FA daughter did not have!!)
Sorry about the rambling....
what has your experience been like???
On Oct 18, 2006
Hi Kathy, it's me again. Sorry about that last post. I was so tired. I re-read it just now and noticed what a horrible job I did!! Hope you understand most of it. Anyway, still anxious to hear about your experience.
On Oct 18, 2006
kara and kathy: not sure if this is related in any way or not but i have a neighbor who claims her son is allergic to peanuts. although he has no anaphylactic symptoms or visible symptoms such as hives, swelling, redness, etc.; they claim it causes immediate and extreme behavior problems for him. when he was younger they say they had to restrain him around other children, for example, if he had ingested peanuts/peanut butter. i never really took thier comments into consideration because what they were describing in no way relates to what my two PA daughter's deal with when exposed to peanut products. in fact, i was kind of annoyed at her description of their "peanut allergy" because it made no sense to me and even made me worry that others in our community might not take the potential for anaphylaxis serious if they heard what this family had to say about peanut allergy. maybe there is something to that though....or maybe there is something else in peanut butter, other than peanut protein, that causes these behavior issues. at any rate, our symptoms have never been behavioral in nature but i guess what you two are saying and what this family has said might be something to consider. hope this helps.... joey
On Oct 18, 2006
Joey, I can understand your concern with your neighbor. I'm sure it is frustrating to hear of people with such a different reaction. I would have never believed it except to see the test results myself. Just to re-itterate (is that how you spell that?), our allergist did say symptoms and reactions could change/worsen the more she is exposed. Believe me, my husband and I take this very seriously considering the stories and experiences we have heard about. This is my fear, that because my daughters reaction has not been anaphalactic in nature yet or may never be, that we won't be taken seriously either. My daughter also has a severe allergy to eggs and problems with somekind of preservative or additive. Also just to let you know, my daughter was having "fits" not just problems playing with her sister or with other children, but times that she laid on the floor and screamed as she arched her back so violently, and her eyes rolled back in her head. This sometimes went on for an hour or more. We thought she might be having seizures. Thus the reason for her CT scan and other tests. So even though she has never had problems with breathing or things like that, we have been scared to death also. I'm sorry if I repeated myself from my previous post! And I hope I didn't come across as rude. Just want you to have a better understanding. Thanks for your response.
On Oct 18, 2006
HI Kara and everyone else, Thanks for all of the info. and personal experiences. My son actually has a few issues going on. He has been receiving speech therapy due to a speech disorder called apraxia and occupational therapy because he has sensory issues. Also, in July we found out he has ADHD. All three of these sometimes can occur together. So I guess that is where the behavior problems were coming from - his inability to communicate so he would get upset because we couldn't figure out what he was saying. He is doing much better now, but still will need speech and OT. We have decided not to medicate for the ADHD. He only just turned 5 and is in half-day kindergarten. I've been reading about the Feingold "diet" which eliminates artficial colors, flavors,and preservatives, as well as certain fruits and vegetables. Many people who follow this truly believe it helps their children with ADHD and other disorders. Sorry this is so long, but that is our background. Since eliminating peanut products, maybe there has been a slight improvement in behavior, but that could be also because he is getting OT and is maturing. We still need to do more to help him behave and feel better.
On Oct 18, 2006
i understood what you were saying. i think i just wasn't effective in conveying what i meant to say. my neighbor believes her son's behavior after eating peanuts/peanut butter is caused by some sort of reaction or physical something going on that often causes him to lash out if other kids happen to be around when it happens. if i remember correctly, he does have episodes like what you were describing also...not just behavior with other children. i wasn't clear about that. i just always wondered if it wasn't an additive in the pb or something, rather than peanuts...in light of the fact that the child has no anaphylactic symptoms at all (and no milder symptoms like hives or anything like that either).
On Oct 19, 2006
Thanks Joey. I think I understand too. The only thing that my allergist could tell us about the preservatives and additives is that those are sensitivities, not true allergies. And my daughter did test positive for a peanut allergy. There is no testing (currently) available for preservative and additive sensitivies. He told us in order to figure those out for my daughter, it would be a lot of "detective" work. Admittedly, my daughter did not wield a 10mm flare on her skin test for peanut(that was more her egg!) but she was diagnosed as a class 3. I don't know if that helps? Anyway, thanks for your response. Kara
On Oct 26, 2006
If you get a minute, please go to the Off Topic section of the boards and look for the NonVerbal Learning Disability (NVLD) thread. It's long, but the first couple pages should be enough for you to decide if your child fits into a similar situation. Many of us here have kids with sensory issues, speech problems, and the like. I hope you'll check it out. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
On Nov 3, 2006
I have a friend whose child does not have food allergies, but sensory problems and was given diagnosis of ADD last year. He is a great kid, my friend has done a lot to help him. It will be okay. She said once she understood the sensory issues, she was better able to help him and understanding the problems made it easier for her to deal with his behavior and other things that come with sensory issues. As far as the tree nuts, you should avoid for a couple of reasons in my opinion. Many times nuts and peanuts are processed on shared equipment---this means a xcontamination problem. Also, many people with food allergies also run the risk of reacting to tree nuts. Take care...Welcome