I\'m confused!! (re: IgE stuff)

Posted on: Sun, 02/29/2004 - 3:04am
KarenH's picture
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Joined: 09/21/2002 - 09:00

Okay...

I got my IgE tested. The doc said it was very low, and that I'm not allergic to peanuts, just sensitive.

However, yesterday I told him about my Oral Allergy Syndrome (which I have not been diagnosed with, I just believe I have it), he was then sort of on the fence. I think I've confused him! LOL. At any rate, he prescribed ATIVAN for the next time I have a real bad reaction, and wants me to tell him what happens. I have never heard of taking Ativan for something like this...?

Does anyone have experience with this? My theory is that the peanut reactions are from my Oral Allergy Syndrome. Even yesterday, DS was eating pb on toast and I was sitting beside him...I got a really sore throat and an instant headache. I moved, took and antihistimine, and felt fine about 1/2 hour later. I generally avoid peanuts and have done pretty well with it.

Has anyone else had a really low IgE and still been allergic to Peanuts?

Posted on: Sun, 02/29/2004 - 1:32pm
nikky's picture
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Joined: 11/14/2000 - 09:00

Karen,
One thing our allergist told us was that oral allergy syndrome can turn anaphylactic at any time without any warning. Not that it will, but it [i]can[/i]. So I would continue to avoid the peanuts just in case.

Posted on: Mon, 03/01/2004 - 3:22am
darenberg's picture
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Joined: 01/24/2004 - 09:00

Quote:Originally posted by KarenH:
[b]Okay...
I got my IgE tested. The doc said it was very low, and that I'm not allergic to peanuts, just sensitive.
However, yesterday I told him about my Oral Allergy Syndrome (which I have not been diagnosed with, I just believe I have it), he was then sort of on the fence. I think I've confused him! LOL. At any rate, he prescribed ATIVAN for the next time I have a real bad reaction, and wants me to tell him what happens. I have never heard of taking Ativan for something like this...?
Does anyone have experience with this? My theory is that the peanut reactions are from my Oral Allergy Syndrome. Even yesterday, DS was eating pb on toast and I was sitting beside him...I got a really sore throat and an instant headache. I moved, took and antihistimine, and felt fine about 1/2 hour later. I generally avoid peanuts and have done pretty well with it.
Has anyone else had a really low IgE and still been allergic to Peanuts?[/b]
I think the Ativan is a bad idea. It is a sedative/anxiolytic, and I would recommend a second opinion from another allergist. I am a physician, and wonder what your doc meant by "Sensitive but not allergic". My guess is that your RAST test was negative, and if so...that is good news. The RAST is most helpful when negative, especially in adults, in whom false positive tests are VERY common. (This is why your doctor wants to know the history of the reactionsyou may have experienced. It is impossible to interpret the RAST in the absence of such knowlege).

Posted on: Mon, 03/01/2004 - 2:24pm
KarenH's picture
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Joined: 09/21/2002 - 09:00

I don't think the doc did a RAST. He said that they only checked my IgE level, and that it was very low. He said that this meant that my immune system hadn't been stimulated, so I couldn't be allergic.
However, just from the very SMELL of peanuts I get an immediate headache, sinus pain, plugged ears, sore throat, and sometimes a heavy chest. I'm hesitant about taking the Ativan too.
[This message has been edited by KarenH (edited March 02, 2004).]

Posted on: Mon, 03/01/2004 - 10:41pm
darenberg's picture
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Joined: 01/24/2004 - 09:00

Quote:Originally posted by KarenH:
[b]I don't think the doc did a RAST. He said that they only checked my IgE level, and that it was very low. He said that this meant that my immune system hadn't been stimulated, so I couldn't be allergic[/b]
I don't know that he should state you are not allergic without a peanut-specific RAST or a skin test. The only problem with these tests in an adult is the occurrence of false positives (which increase in prevalance as you get older).

Posted on: Tue, 03/02/2004 - 2:33pm
KarenH's picture
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Joined: 09/21/2002 - 09:00

Well, he suggested that, but then in the next breath asked if I still carried my epi pen, which I do.
What do you reccomend? No matter what I do, I can't seem to convince a doc to just test me for peanuts.

Posted on: Tue, 03/02/2004 - 8:33pm
LaurensMom's picture
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Joined: 05/23/2001 - 09:00

Karen,
Please do not go by the IgE level alone!!
I've learend from experience. Labs do not have the same method for calibrating their equipment for these IgE tests. A level 1 in one lab could equate to a level 4 in another!!
Is there any way you can force the issue harder? Find a new doctor?

Posted on: Tue, 03/02/2004 - 10:54pm
mary beth's picture
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Joined: 01/10/2004 - 09:00

Wow! The info. about exercise-induced allergic reactions could answer a major mystery! I'm usually posting about about my dd, but in this case it's me. I have no known allergies. However, last summer I played soccer one evening, and that night, my whole face swelled up, became intensely itchy, with tiny bumps all over it.
I was visiting my parents, and went to their MD. He diagnosed it as an allergic reaction, gave me oral steroids, and directed me to take benadryl. It was HORRIBLE! It lasted for days! It happened to me one other time. I could NOT imagine what it could be, although over the past few years, I have had seasonal allergy symptoms.... Thanks so much for the info!!! Mary Beth

Posted on: Tue, 03/02/2004 - 10:57pm
mary beth's picture
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Sorry - somehow my post re. another thread got posted here.... please disregard it here! Mary Beth

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