Illinois

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Illinois

------------------ Stay Safe

[email]"Chris@PeanutAllergy.Com"[/email]

On Nov 29, 1999

Anyone out there from Illinois? I am a college student, but my permanent home is in Champaign/Urbana. I'd love to help start a support group there or in Chicago.

Katie

On Mar 15, 2000

I live in Chicago, Illinois and am interested in meeting another parent of a pa child in the area. Please respond if you live in Illinois and would like to for a support group.

On Apr 10, 2000

We live in a northwest suburb of Chicago. My son just turned 3 last week and is PA. Please email me if you'd like to get together! [email]bann23@gateway.net[/email] Thanks!!

On Apr 11, 2000

Yes there are support groups in Ill. Iknoe because I am part of one and I also help the leaders take off some of the slack. In fact I run the dinner group which meets every other month and I help calling the 95 members for reminders and any other imformation we have to give. Where are you located ther are three different MOCHA groups we are MOCHA north. Please feel free to Email me at [email]D_M_A_L@prodigy.net[/email] Thanks I hope I can help my support group has been wonderful, my son not only has allergys ,but also many other medical problems.

On Apr 12, 2000

Hi Megan! As Megan knows, I'm also in the MOCHA North support group, and I have found it to be very helpful. The dinner meetings, where we can eat food that is usually off-limits in our homes - are great. My two-year-old son is PA, and I'd be interested in arranging some "safe" playdates. I also have a six-year-old non-allergic daughter.

I'm currently developing a questionnaire for MOCHA members about school/daycare safety plans. We hope to compile all the questionnaires in such a way that parents could show their own school/daycare what others are doing to implement safety plans. We hope this would be a useful tool in safety-planning discussions with school staff. If any non-MOCHA members would be interested in filling out a questionnaire, I would be happy to fax or email it to you, so that at a later date, it could be available to any interested parents of food-allergic children. You can e-mail me at [email]yhoffman@aol.com[/email]

------------------

On Apr 12, 2000

Hi Megan and Yonit! It's great to hear that there is already a support group formed in northern IL. I will email both of you. Thanks for posting the info!

On May 16, 2000

Looking for parents in the marion area of southern illinios

On Jun 10, 2000

Dear Katie,

For free help in starting a parent group in the Champaign-Urbana area, call Sharon at the Self-Help Center there at (217)352-0099. She is a terrific woman and would be glad to help you.

If you call her, please say "hi" for me (she was kind enough to host an international meeting of local self-help group clearinghouses on campus there two years ago). Her website is [url="http://www.prairienet.org/selfhelp"]www.prairienet.org/selfhelp[/url]

For those in other areas of IL, interested in listing your existing group with a clearinghouse (or getting help in starting a group), you can call Dr. Daryl Isenberg at the Illinois Self-Help Coalition at Wright College in Chicago at (773)481-8837. She works as a volunteer advisor part-time there, so you will probably have to leave a message and be patient. Her website is at: [url="http://www.selfhelp-illinois.org"]www.selfhelp-illinois.org[/url] - ed in NJ

On Jul 5, 2000

My eleven year old daughter would love to meet with other children near or at her age who have peanut allergies. We live in west suburban Chicago. If you're interested, please e-mail me at [email]fozstock@aol.com[/email]

On Jul 28, 2000

My seven month old son just received his scores on the RAST test. He has level 6 antibodies of peanuts. Turns out of the twelve things he was tested for he turned up with 4 or above for egg whites, milk, soy, and wheat. I live in Glenview and would be very interested in joining a support group, as I am currently just trying to get my hands around what all of this means. It has definately been a shock. Also does anyone use Neocate formula? Have you been able to get your insurance to cover the cost? Melinda

On Feb 20, 2001

Hi, all, I'm delighted to hear there are support groups out there. I'm in Oak Park, and have just emailed some of you and am hoping to hear back about info. Need help getting my school informed before my son starts 1st grade next year (with the oh-so-scary lunchroom!). Please call me if you'd like 708-383-8571 or email at [email]slicendice@earthlink.net[/email]. Thanks!

Update - have decided to start support group myself, since no response from folks in my area. Anyone near Oak Park who wants to join, lemme know!

[This message has been edited by SLICE (edited April 02, 2001).]

On Mar 14, 2001

We just relocated to the western suburbs of Chicago. Is anyone aware of a group in the Naperville area? I have a four year old son who is pa/tna. Thanks

On Mar 14, 2001

Looks like you're in luck! My issue of Chicago Parent lists the Severe Food Allergy and Anaphylaxis Support Group which meets quarterly in Naperville. Call 630-933-5552.

On Oct 4, 2001

Anyone near Oak Park, Illinois: Parents of Children Having Allergies (POCHA)meets the 2nd Monday of each month, 7-8 pm at the Dole Branch of the Oak Park Public Library, 255 Augusta. For more info, call 708-383-8571.

[This message has been edited by SLICE (edited February 12, 2002).]

On Aug 30, 2002

Hello. I live in Peoria, IL. I am 23 and have been diagnosed with a P.A in this last year. My life has been flipped upside down. I would love to meet someone who is functioning with this allergy. I think talking to someone who actually understands would be very theraputic. Thanks Kimberly [email]kimberlykelley23@yahoo.com[/email]

On Oct 14, 2002

I'm in the south chicago suburbs.

Anyone interested in a support group, let me know!

[This message has been edited by MommaBear (edited July 07, 2007).]

On Nov 20, 2002

I would like to start a support group in the Westen Suburbs of Chicago. Anyone interested in this area?

On Jan 4, 2003

Quote:

Originally posted by ashley'smom: [b]I live in Chicago, Illinois and am interested in meeting another parent of a pa child in the area. Please respond if you live in Illinois and would like to for a support group.[/b]

I know this was on older post and you have likely resolved this, but I live in Chicago and I am looking for a support group...Thanks -- Mary

On Jan 4, 2003

Wow! (again) my email address was NOT CORRECT in my prior post above. It should be right in my profile.

*removed* [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I am still interested in a support group in the Chicagoland area.

Take care! Feel free to contact me by email.

[This message has been edited by MommaBear (edited July 07, 2007).]

On Jan 12, 2003

I am still interested in a support group. We have a 15 month old PA child and we live in the western suburbs.

I already emailed Mother Bear. Feel free to email me at [email]KitKatGirl00000@yahoo.com[/email].

Thanks, Cori

On Jan 13, 2003

Cori,

I know this is a leap..................could you email me your number and I could call you? I am very interested in a support group. I ramble and am a motor mouth. I could not possibly put every thing into just ONE email. LOL. What exactly is a "western suburb". You are probably thinking "What exactly is a 'south suburb'"?

I am tollway phobic. But there are exceptions. HEHE. Of course, I am only recently becoming comfortable with the "Dan Ryan". Maybe it is because my car is so old.

MotherBear

On Jan 13, 2003

Hi. I am out in the Western suburbs too - we have a PA/TNA five year old. Please let me know if a group is forming.

On Jan 16, 2003

We are thinking of getting together in Naperville soon. Email me if you would like more information.

[email]KitKatGirl00000@yahoo.com[/email]

Thanks, Cori

On Jan 21, 2003

There is a group called POCA that meets in Naperville. Call 630-852-4050 for more info. The next meeting is Monday, Feb. 10th, 2003 at 7:30 p.m. They meet every 3 months and have been meeting for about a year now.

------------------ Mary Kay

On Jan 21, 2003

Thank you for the information. Given all of the children in Naperville, I thought there had to be an food allergy support group already established. Thanks again.

Cori

On Jan 26, 2003

so, are we still forming a support group? or meeting at the one already established in Naperville?

On Jan 26, 2003

I am going to call POCA in Naperville on Monday. Let's try to meet with their group first and then decide if we'd like to have additional get togethers. Hope to meet you soon.

Cori

On Mar 26, 2003

I just registered to attend the next POCA meeting, May 5th. And I registered to go to the FAAN conference in Rosemont on May 3rd. Hope to meet some of you there.

Jean

On Apr 21, 2003

Quote:

Originally posted by Nutty Mama: [b]I am going to call POCA in Naperville on Monday. Let's try to meet with their group first and then decide if we'd like to have additional get togethers. Hope to meet you soon.

Cori[/b]

Did anyone ever go to the meeting?

On Apr 22, 2003

Oak Park, IL support group meets 2nd Monday of each month 7-8 pm. email me if anyone's interested.

On Apr 22, 2003

Quote:

Originally posted by MommaBear: [b] Did anyone ever go to the meeting?[/b]

Cori did, MommaBear. I am going for the first time to the next one, May 5th.

------------------ Jean ** 3-year-old son with PA ** ** fretting myself crazy over PA since 2000 **

On Apr 23, 2003

Are there any groups that meet Northwest of Chicago?

On Apr 26, 2003

The next POCA (Parents Of Children with Allergies) meeting will be on Monday, May 5th at 7:30 p.m. It will be held at The Good Samaritan Professional Bldg. in Naperville. Please call 630-852-4050 for exact address. The guest speaker is a man from Lettuce Entertain You Restaurants, speaking on Dining Out Safely. The group is run by two local Allergists, Dr. Sakina Bharani and Dr. Asya Segalene. We try to get guest speakers for each meeting, but if not, one of the Allergists speaks on a pertinent topic. Hope to see you there.

------------------ Mary Kay

On Apr 26, 2003

anyone going?

On Apr 26, 2003

can we schedule a "chat" (Under Main Discussion you will find the link) to find out who all from pa.com is going? [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

On Apr 26, 2003

Is anyone here from the Crystal Lake/Cary area? Any groups out this way?

On May 1, 2003

Quote:

Originally posted by MommaBear: [b]can we schedule a "chat" (Under Main Discussion you will find the link) to find out who all from pa.com is going? [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img][/b]

Weekdays are better for me for chat.

------------------ Jean ** son with PA **

On May 3, 2003

Hi - I attended the last POCA mtg in Naperville and it was very informative. I also went to the FAAN conference today and feel so encouraged! What a great group of people!! I hope to meet some of you on Monday. We may have even met today and not realized it. See you on Monday.

On May 3, 2003

Quote:

Originally posted by Mary Kay: [b]The next POCA (Parents Of Children with Allergies) meeting will be on Monday, May 5th at 7:30 p.m. It will be held at The Good Samaritan Professional Bldg. in Naperville. Please call 630-852-4050 for exact address. The guest speaker is a man from Lettuce Entertain You Restaurants, speaking on Dining Out Safely. The group is run by two local Allergists, Dr. Sakina Bharani and Dr. Asya Segalene. We try to get guest speakers for each meeting, but if not, one of the Allergists speaks on a pertinent topic. Hope to see you there.

[/b]

I'll be going Monday. Is there anyone comming from Palos Park or the area surrounding it?

On May 6, 2003

I went to the POCA meeting last night. It was a very interesting lecture about eating out. It was not, however, a support group meeting. No free time to ask general questions or just talk. I had to leave right at the end of the lecture, because it ran late and I had to get home, so I didn't really get a chance to talk to anyone.

I think Naperville could still use a PA group. I'd love to hear what restaurants other PA families have braved, and how they are handling their schools with PA.

------------------ Jean ** son with PA **

On May 6, 2003

Hi Jean,

I was glad to read that you made it to the meeting. I am sorry you did not think it was a support group. The meetings have always had either a guest speaker, or one of the Doctors speaking on a relevant topic. The organizers are looking for suggestions, so I would hope that you voice your opinion. I heard one of the suggestions was to start at 7:00 for networking and talking and then the actual meeting start at 7:30. The support group that started in Naperville in about 1995 disbanded because there were not enough new parents joining. Everyone's child was growing up and the need was not there. But having a topic and a speaker at the meetings really add value. The support groups that actually are successful, do have topics of interest and are not just a meeting place for parents. I hope you will try the group again. I have been asked to get a Psychologist for the next meeting. And please do contact the organizers with your opinion. Everyone's opinion is important.

------------------ Mary Kay

On May 7, 2003

Quote:

Originally posted by Mary Kay: [b]The support groups that actually are successful, do have topics of interest and are not just a meeting place for parents. I hope you will try the group again. I have been asked to get a Psychologist for the next meeting. And please do contact the organizers with your opinion. Everyone's opinion is important.

[/b]

Thank you. I agree that a topic and speakers are useful; I would just like to see an opportunity for general discussion. I did fill out their questionnaire. Unfortunately, I had to run at the end, and there was nowhere obvious to leave it, so it ended up round filed. Who are the organizers that I would contact? Is it the allergists who were present?

By the way, how about getting the school Superintendent of 204 to speak? :-D

------------------ Jean ** son with PA **

On May 7, 2003

Quote:

Originally posted by Mary Kay: [b]Hi Jean,

I was glad to read that you made it to the meeting. I am sorry you did not think it was a support group. The meetings have always had either a guest speaker, or one of the Doctors speaking on a relevant topic. The organizers are looking for suggestions, so I would hope that you voice your opinion. I heard one of the suggestions was to start at 7:00 for networking and talking and then the actual meeting start at 7:30. The support group that started in Naperville in about 1995 disbanded because there were not enough new parents joining. Everyone's child was growing up and the need was not there. But having a topic and a speaker at the meetings really add value. The support groups that actually are successful, do have topics of interest and are not just a meeting place for parents. I hope you will try the group again. I have been asked to get a Psychologist for the next meeting. And please do contact the organizers with your opinion. Everyone's opinion is important.

[/b]

------------------ Jean ** son with PA **

On May 7, 2003

Hi Jean,

Please email me at [email]mkbee@attbi.com[/email] and I will give you the phone numbers for the coordinators of this group. I am hesitant to give it over the Internet.

We had the Head District Nurse from #203 at our November meeting (sorry I am from #203 and had the connection). She was very informative. I would love to get someone from #204 because they do not have a district wide policy. I have to tell you, another parent and I wrote the district policy for #203 so I know it works. We have been talking about distributing it to #204 since they are a school by school allergy district.

We also had Denise Bunning from MOCHA at our August meeting. If you went to the FAAN conference, she was one of the speakers. Her group meets up in the Evanston area.

Please contact me, because we really would like to make this a group that parents can find information and support.

------------------ Mary Kay

On Aug 14, 2003

Here's the link to MOCHA that meets in Highland Park Hospital [url="http://www.mochallergies.org/"]http://www.mochallergies.org/[/url]

I don't see an updated schedule though. Anyone have it?

Thanks! Pamela

On Sep 3, 2003

The Oak Park support group meets Sept. 8 at 7 pm. Dr Tobin will speak on school and pre-school allergy issues and safety.

Oct 13, Dr. De Vera will speak on atopic dermatitis.

All meetings are at the Dole Branch, 255 W. Augusta Ave. Feel free to email me w/ questions.

On Jul 7, 2007

meant to edit, not reraise.

[This message has been edited by MommaBear (edited July 07, 2007).]

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