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Posted on: Thu, 04/03/2003 - 6:39am
Sarahfran's picture
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Joined: 06/08/2000 - 09:00

I wouldn't trade it for anything on that list. Although PA requires constant vigilance, it doesn't affect quality of life or daily activities in quite the same way as mental or physical disabilities. Some learning disabilities are more serious than others, but all of them are a constant, everyday struggle. My DH is seriously dyslexic--he scored 1580 on the SAT's but has dealt all his life with people who think he's stupid. I get frustrated with him because he gets lost all the time and can't remember birthdays or phone numbers. PA is much easier than that.
I think one reason I have such a relatively casual approach to my DD's PA is because I grew up in a house with a sister who had a genetic condition called xerodermapigmentosum (XP for short). When we were young, we were always just told that she was allergic to the sun, which was all that was really the case when she was young. Peanuts are EASY to avoid in comparison to the sun! ;-) But the long-term repurcussions of her condition are far more serious even than just a sun allergy--it's a degenerative nervous system condition that started with loss of hearing around age ten, a curtailing of her mental development at around the same age, then a gradual loss of motor skills over time. At this point she can hear almost nothing, has the mental capacity of a young child, and is essentially confined to a wheelchair. PA doesn't even enter into the same category as what my sister deals with.
Sure, my DD could die from PA, but in all likelihood she won't. We're cautious and prepared at all times. I'd be interested in seeing some probability statistics regarding her long-term chance of death or serious injury/illness from her allergy as compared to, say, from a car accident, other disease, etc. I wonder how it ranks?
Sarah

Posted on: Thu, 04/03/2003 - 7:19am
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Joined: 09/23/2002 - 09:00

Sarafran,
Interesting link [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
[url="http://www.ucolick.org/~de/AltTrans/risks.html"]http://www.ucolick.org/~de/AltTrans/risks.html[/url]
entitled:
"Risks, Relative and Absolute
Some Resources for the would-be Risk-Avoider"
**************************************
In this interesting link:
[url="http://www.niaid.nih.gov/factsheets/allergystat.htm"]http://www.niaid.nih.gov/factsheets/allergystat.htm[/url]
entitled:
'Allergy Statistics'
(a fact sheet from [i] National Institute of Allergy and Infectious Diseases * National Institutes of Health [/i] )
this quote is found:
"Penicillin is a common cause of drug allergy. One clinic found 2.5 percent of their study group reacted to penicillin allergy skin tests (IgE antibodies).[16] Anaphylactic reactions to penicillin cause 400 deaths annually among Americans, making penicillin allergy a more common cause of death than food allergy.[7]"
Disclaimer: I do not guarantee the accuracy or content of the links in this post.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Thu, 04/03/2003 - 7:38am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Sarafran,
another member posted this link in the "Media" board:
[url="http://www.mi-reporter.com/sited/story/html/126905"]http://www.mi-reporter.com/sited/story/html/126905[/url]
in it is found this quote:
"Food allergies account for an estimated 30,000 emergency room visits and 200 deaths per year, with half that number from accidental exposure to the allergen."
Disclaimer: I do not guarantee the accuracy or content of the link in this post.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Thu, 04/03/2003 - 9:22am
becca's picture
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Joined: 05/22/2001 - 09:00

I will try to do a search, but there was a sort of fun/interresting post on a compilation of chances of dying in....fill in the blank, basically. Not sure of its accuracy, but it actually gave me some perspective. I will try to find it and raise it.
editing to say I tried and cannot find it, but it was very similar to one of MB's links above, just alot more things on it. becca
[This message has been edited by becca (edited April 04, 2003).]

Posted on: Thu, 04/03/2003 - 1:40pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by California Mom:
[b]Oh well
[This message has been edited by California Mom (edited April 03, 2003).][/b]
a [i] perfect example [/i] of why one might quote an entire post when replying to someone. Continuity thing. (Especially if one removes a significant portion of, or possibly, an entire post.) LOL [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
MommaBear

Posted on: Thu, 04/03/2003 - 1:50pm
California Mom's picture
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Joined: 07/14/2000 - 09:00

Momma Bear, can you believe the irony that the [b]one[/b] time I deleted my post was the very [b]one[/b] [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] time you didn't quote me [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] O.K., for those of you who missed it: I complimented Momma Bear for her wittiness and acknowledged that I wanted to recognize the positive since I have most recently focused on the negative. (or something to that effect) I deleted my post in haste because I thought I got flamed for it. By the time I realized I may have acted too hastily I couldn't remember what I had originally posted. Sorry for the confusion! This post will stay. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

Posted on: Thu, 04/03/2003 - 2:14pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by California Mom:
[b]Momma Bear, can you believe the irony that the [b]one[/b] time I deleted my post was the very [b]one[/b] [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] time you didn't quote me [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] O.K., for those of you who missed it: I complimented Momma Bear for her wittiness and acknowledged that I wanted to recognize the positive since I have most recently focused on the negative. (or something to that effect) I deleted my post in haste because I thought I got flamed for it. By the time I realized I may have acted too hastily I couldn't remember what I had originally posted. Sorry for the confusion! This post will stay. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam[/b]
Flamed? I was thanking you. ie: "wink, thank you, I would offer you a seat and refreshment, but I've assumed a state of supplication and am awaiting enlightenment from 'He Who Moderates'." [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
I found hardwood floors really hard about 4 hours ago and decided getting enlightened wasn't nearly as important as another pot of coffee or the strawberry pie whispering my name from behind the bag of 2 for 1 ruby red grapefruit I purchased earlier this week. I also encountered an [i] unopened [/i] can of chocolate whip creme during my forage. Needless to say, it HAS BEEN ONE PRETTY FANTASTIC AFTERNOON. :P

Posted on: Thu, 04/03/2003 - 2:23pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Miriam,
Speaking of compliments, I had complimented Becca on her wit as well. Got knocked right off my chair, I did. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Enough gushy stuff. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
MommaBear

Posted on: Fri, 04/04/2003 - 12:18am
Sarahfran's picture
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Joined: 06/08/2000 - 09:00

Thanks for the links! I'm going to go check them out (to see just what I should be afraid of!).
Last night, in the interest of checking whether I'd rather stick with PA just because it's "the devil I know," I asked DH if he'd trade his dyslexia for a peanut allergy and he said no, he'd rather stay with the dyslexia. Interestingly, he gave the EXACT same reasons that I gave for preferring PA--doesn't affect everyday life, sure it was difficult as a child, but he's learned to compensate, etc. I pointed out all the problems he still has with dates, numbers, directions, etc. and we realized that our respective responses really were a desire to stick with the devil we know. DH says that it doesn't bother him that he gets lost, can't remember dates and phone numbers, etc. because he's never been able to do these things and doesn't realize what he's missing, but facing the possibility of taking away something he's taken for granted (his ability to eat anything in the world) is really difficult. I'm the same way with PA--over the past four years, I've learned to deal with my DD's PA and it's gotten to the point where it's no big deal. But the idea of all of a sudden not being able to read words properly seems too much to me--way more difficult than avoiding peanuts.
A couple of years ago I had a boss who was allergic to chocolate. I asked him if that was really hard for him, having to avoid something that is so good, and he very wisely pointed out that if everytime you've eaten a particular food you've gotten horribly ill, then regardless of how the rest of the world feels about that food, you're absolutely not going to miss it or crave it!
Sarah

Posted on: Fri, 04/04/2003 - 12:33am
Sarahfran's picture
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Joined: 06/08/2000 - 09:00

OK, so according to the links above, about 3,000,000 people in the US have peanut/tree nut allergies, and about 100 die annually as a result of the allergy. So that makes the risk of death for an allergic person about 1 in 30,000? Am I doing the math right?
And also according to those links, there is a 1 in 20,000 chance of dying in a fall, and a 1 in 40,000 chance of dying from being hit by a car while walking. So fear of my child's death from peanut allergy ranks somewhere within those other fears (that I also take precautions to avoid!), although it's still far more likely that she'd die in a car wreck (1 in 5,000).
Interesting. And I think I'll stick with taking the bus to work!
Sarah

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