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Posted on: Sun, 06/26/2005 - 1:23pm
Peg541's picture
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Joined: 12/29/2002 - 09:00

Adele,
I agree 100%. He's planned for Scotland for so long. He can't let PA stop him.
Peg

Posted on: Sun, 06/26/2005 - 11:02pm
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Anonymous (not verified)

Peg, as an adult with PA, I looked at your son's choice a little differently then you posted it (although, you might actually be seeing what I'm seeing, I'm not sure).
Your son chose to live his life - rather then live a pipe-dream. It would be so disappointing to give up this trip, and not have any improvement from the medicine.
**********
I think it's great that he's willing to try it though. I truly think that most adults that would go through it are doing it at least 50% to help other people. He may get another chance some day. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 06/26/2005 - 11:45pm
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Joined: 11/21/2004 - 09:00

Well my dd has the seizure's and ds has febrile seizure's so I'm quite experienced in that area. I think that I could say that yes a seizure disorder like dd has wouldn't affect ds nearly as severly as his pa.

Posted on: Mon, 06/27/2005 - 12:11am
Peg541's picture
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Joined: 12/29/2002 - 09:00

Quote:Originally posted by AnnaMarie:
[b]Peg, as an adult with PA, I looked at your son's choice a little differently then you posted it (although, you might actually be seeing what I'm seeing, I'm not sure).
Your son chose to live his life - rather then live a pipe-dream. It would be so disappointing to give up this trip, and not have any improvement from the medicine.
**********
I think it's great that he's willing to try it though. I truly think that most adults that would go through it are doing it at least 50% to help other people. He may get another chance some day. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img][/b]
I agree 100% AnnaMarie. Sometimes I see him as a kid who has unlimited time to do anything but this is his chance to go to Scotland. This is a dream of his and he worked so hard to get there.
Peg

Posted on: Mon, 06/27/2005 - 4:36am
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Joined: 03/26/2002 - 09:00

hello Peg, St marys hospital are still looking for people to volunteer.
Its a long way from scotland to london every two weeks, but its worth considering.
And , must add selfish mother that I am, that we considered this when we were offered it, But would rather have it once its been tested by others.
We can ,still, dream and hope that this cure will come our way soon.
sarah

Posted on: Thu, 09/08/2005 - 3:37am
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Joined: 09/23/2002 - 09:00

reraising. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Thu, 09/08/2005 - 7:38am
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Joined: 08/24/2005 - 09:00

I just was browsing -- I'd keep the food allergies. My question, along these lines, would be what would you be willing to give up so that others would get it? I asked my husband a week or so ago what he would give up so that our neighbor, who has a daughter in my son's class, would feel what it was like to walk in our shoes for the day? I also asked him what he'd give up to have one day that you didn't have to worry through. The thing you give up has to be something good - and forever - no giving up things like brussel sprouts.

Posted on: Thu, 09/08/2005 - 10:01am
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Anonymous (not verified)

gvmom, being an adult with food allergies - I would honestly have to say - nothing. I don't really care if other people get it or not. I'm sure I would feel very differently if it were my child. Out of necessity I would then care.
But, I have to tell you when I first read your post I misunderstood and was shocked. Then, when I realized my misunderstanding I started to laugh out loud. When you said "what would you be willing to give up so that others would get it?" I thought you meant so that others would get pa. And I thought - how mean, I wouldn't ever wish this on anyone. But, then I realized what you meant and I laughed.

Posted on: Fri, 09/09/2005 - 5:24am
gvmom's picture
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Joined: 08/24/2005 - 09:00

LOL! I know that some people think I'm mean, but yeah, I wouldn't wish this on anyone -- okay maybe one person. I think it would just be nice if there was a way for people to truly understand (get it)-- especially the emotional toll it takes.

Posted on: Fri, 09/09/2005 - 6:16am
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Joined: 09/03/2002 - 09:00

I wouldn't trade the allergy. I had plenty of scares with other things. It is amazing what God gives us.
One in particular was when Emily was born, she was given an antibiotic and kept in the N.I.C.U. for a few days. When Em was 5 days old, the doctors said "Oh! By the way. NOW you need to have her hearing checked."
Apparantly, the medicine has a HIGH rate of making infants deaf. I thought at the time that I couldn't handle anything like that. We found out from the test that Emily had no side effects. I thanked God, and went on with my life.
Then.... here comes the allergy. I thought "Ha Ha God!" Here I was thinking that I had a daughter with no problems, and He gives us this??? Later I realized that He doesn't give us more than we can handle.
Many think of Em's allergy as a curse. I think of it as a gift from God. I may never know why he bestowed it on Em. He knows, and He did give it to her.
Emily is the most caring child I have met. She helps other children that aren't "normal". I have never instilled in her that she has a disability, because she doesn't.
What I have told her is that everyone is different. She has a food allergy, Suzy needs glasses, Bobby needs a wheelchair, and Billy and Chelsea may look and act "normal" but they are really hurting inside.
I just keep reminding Emily and myself that Phl 4:13 says "I can do all things through Christ which strengthen me."

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