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Posted on: Thu, 06/23/2005 - 10:54pm
mommyofmatt's picture
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Joined: 03/12/2004 - 09:00

MB,
Do you think that being a nurse and seeing all you do helps you in your perspective on allergies and other medical issues?
I've dealt with some medical issues...with myself or family members, but I still struggle with allergies, more perhaps than I should. Maybe I should go back to school and get my nursing degree [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Meg

Posted on: Thu, 06/23/2005 - 11:36pm
samsmommy99's picture
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Joined: 06/07/2005 - 09:00

I've always said that if there was one thing I'd change about my son it was him NOT having the peanut allergy.......I wouldn't even want the autism gone, it won't kill him, just to have the peanut allergy to not worry about would be the best thing in the world. I can't have anymore kids and Sam is my only one, so I'm obviously a bit more protective than your average mom, especially because he is non-verbal and has so many other health issues, the stupid peanut allergy just makes me so scared all the time, ya know??
------------------
Mother to a 5YO PA, soy, gluten and wheat allergic child who is also autistic. ( non-speaking autistic child who can't tell anyone who he is or what he can eat or not eat!!! scary stuff!!)

Posted on: Fri, 06/24/2005 - 12:43am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by mommyofmatt:
[b]MB,
Do you think that being a nurse and seeing all you do helps you in your perspective on allergies and other medical issues?[/b]
don't know if it [i]helps[/i] my perspective, but it probably sure changes it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I'm sure there are many other undertakings, [i]paid[/i] or not, that accomplish this. Motherhood (Fatherhood) probably being the most common. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]
If I were single and had never had children, I'd probably be on a medical mission, or somewhere on a Navy hospital ship, or spinning clay. (go figure [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] )
Quote:[b]I've dealt with some medical issues...with myself or family members, but I still struggle with allergies, more perhaps than I should. [/b]
Honestly? I think I struggle with just about *everything* perhaps more than I chould. (Ask hubby) I absolutely can neurose something into the ground. But maybe there is purpose in that. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]
Quote:[b] Maybe I should go back to school and get my nursing degree [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] [/b]
[i]you sound like my husband[/i]. he's been looking into it. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Fri, 06/24/2005 - 12:51am
Adele's picture
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Joined: 01/31/2005 - 09:00

My heart goes out to all of you that are parents trying to keep your PA kids safe. Sam'smommy you've got a doubleburden having to deal with a non-verbal child and PA who can't help to protect himself.
I feel self-centered griping about my PA when I read what some of you are going through. Hopefully the PA vaccine is not far off.
Cheers, Adele

Posted on: Fri, 06/24/2005 - 12:57am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by samsmommy99:
[b]I've always said that if there was one thing I'd change about my son it was him NOT having the peanut allergy.......I wouldn't even want the autism gone, it won't kill him, just to have the peanut allergy to not worry about would be the best thing in the world.[/b]
Would your child agree with you? (question from my original post. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ) Would your child choose keeping PA over, for instance...........[i]speaking[/i]?
Quote:[b]I can't have anymore kids and Sam is my only one, so I'm obviously a bit more protective than your average mom, especially because he is non-verbal and has so many other health issues, the stupid peanut allergy just makes me so scared all the time, ya know??
[/b]
even tho I have two cubs (both with on the asperger's--a form of "autism" since everything *has* to have a label [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img](they are extrememly [i]lovely, loving, intelligent, compassionate, humane children[/i]---oh, and [i]adorable[/i]--I've posted some of their pictures), again, even tho I have two cubs, I'm probably [b]just as protective[/b]. I'm called "overprotective" on a daily basis. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] (I must be doing something right)
I don't know how old your cub is, but my oldest is going to be ten next month. He's never been around the block alone. Ever. He is also [i]very verbal[/i]. Aside from school, [i]he's never been anywhere without us[/i]. Assume the same for my youngest. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
[i]And PA has a whole lot less to do with it.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
No advice, just relating my own personal, highly individual, and unique situation. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

Posted on: Fri, 06/24/2005 - 1:03am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by samsmommy99:
[b]I wouldn't even want the autism gone, it won't kill him, [/b]
In *both* my cubs instances, [i]I'm not ready to assume this[/i].

Posted on: Fri, 06/24/2005 - 1:16am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by MommaBear:
[b]He is also very verbal. [/b]
now my youngest...............[i]he didn't speak until the month of his *fourth* birthday[/i]. I was told this was [i]outside the "norm" [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img][/i] and he was placed in an "Early Childhood" program for two years, then one year of "At Risk" and this fall: "Full Day Kindergarten". His instructors are simply taken with him.
PS, I realized later you posted the age (5YO) in the signature. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 06/26/2005 - 4:03am
samsmommy99's picture
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Joined: 06/07/2005 - 09:00

I just meant that IF I had to choose which I would want gone, it would be the PA. I love my son just the way he is.....life would just be so much easier without all the food allergies added in. We chose to not have anymore after he was DXed in 2002, plus, I got sick with cancer last year and had to have a radical hysterectomy, so more kids were just not a possibilty. I think that sammy was given to me for a purpose, someone up there must have known that I could deal with all this........I just wish that there was no such thing as a fatal reaction to foods........I have asked many of our friends the same question about this subject, and they all agree that it would be much nicer to have the PA gone because sammy is such a unique little guy that having him any other way would be so strange. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
Mother to a 5YO PA, soy, gluten and wheat allergic child who is also autistic. ( non-speaking autistic child who can't tell anyone who he is or what he can eat or not eat!!! scary stuff!!)

Posted on: Sun, 06/26/2005 - 6:54am
Peg541's picture
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Joined: 12/29/2002 - 09:00

I just found out there is a trial group for Xolair being conducted in Beverly Hills, not far from me.
My son is 20 and said he would like to try to get into the trial. He understands he would have to be exposed to peanuts and previously this scared him too much but now he said he would.
So he's finally said yes, we finally found a study [b]AND he's going to study in Scotland from September till January which will probably not let him into the study.[/b]
So my son who has lived with PA for 20 years has chosen to go to Scotland instead of possibly getting rid of his PA. His decision, not mine. I went into my room and cried when he said no.
Peg

Posted on: Sun, 06/26/2005 - 1:02pm
Adele's picture
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Joined: 01/31/2005 - 09:00

Hi Peg, I understand why you cried at your son's decision, but his decision says a lot for him! It would reduce your anxiety level if he agreed to participate in the study, but it sounds like a new adventure won out over the chance of eliminating PA.
If I were you, I'd be patting myself on the back. Sounds like he's got his head on straight and that PA isn't dominating his life.
Cheers, Adele

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