135 posts / 0 new
Last post
Posted on: Sun, 01/19/2003 - 12:53am
becca's picture
Offline
Joined: 05/22/2001 - 09:00

I will keep the allergies, thankyou. I will even take a few on myself in trade for avoiding heart disease, seizures and diabetes!
It is manageable, if difficult at times, but all of the others are also. Diabetes, seizure disorders, and other diseases would most definately limit life expectancy, and I agree that the LD would actually be harder on a person emotionally and functionally. becca

Posted on: Sun, 01/19/2003 - 3:26am
Sandra Y's picture
Offline
Joined: 08/22/2000 - 09:00

I am another one who thinks that, from that list, I would rather stick with PA. I might might might trade it for celiac. Maybe for an LD. Diabetes? Hmmm, I'd have to do more research on that!
My PA son was born with a birth defect. He has a cleft lip and cleft palate. It affects his appearance, requires many surgeries throughout his lifetime, and is a struggle all by itself. If I could choose between PA and the cleft, I would take the cleft. I think PA is worse because of the fear and uncertainty, and the limits it places on some activities.
But I think one reason we're all sticking with PA is because it's a "known quantity." We know how to deal with it. When you know something better, you fear it less. My friend's daughter has diabetes so I almost feel I could trade PA for diabetes, and LDs can be managed successfully, so I can almost see my way clear to taking an LD instead of PA. Blindness, deafness, CP...no way!! Those disabilities affect every aspect of a child's life and severely limit their opportunities. I wish my son didn't have PA, but it's not the worst thing possible, not by a long shot.

Posted on: Sun, 01/19/2003 - 9:32am
AJSMAMA's picture
Offline
Joined: 06/12/2002 - 09:00

I would never trade it for anything you mentioned. I HATE myself for admitting this, but if I am out and see a baby/child with a severe disability or learn of a child suffering from disease I internally thank God for giving me a child who "only has" food allergies.

Posted on: Mon, 01/20/2003 - 4:29am
Anonymous's picture
Anonymous (not verified)

MommaBear, I've thought about this very carefully (thus the time it has taken me to answer) and I wouldn't trade Jesse's PA for anything else that you mentioned or comparable to what you mentioned. Now, if I could trade it for something as simple as him needing glasses or something, well, that would be a different story, but no, wouldn't trade it for anything else mentioned or comparable. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Wed, 01/22/2003 - 12:40am
Gail W's picture
Offline
Joined: 12/06/2001 - 09:00

My 3rd grade dd (PA, TNA) is "dyslexic". Although we've suspected that for years and she's been receiving help at school by a reading specialist, the confirmation (actual testing and diagnosis) came just a few months ago. It's certainly been a struggle for her. Which one would I choose over the other? I'm still not sure...but probably PA.

Posted on: Sat, 02/01/2003 - 7:15am
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Extremely thought-provoking question. Hmmmm... I wouldn't trade PA for any of the other "conditions" you mentioned. Whether 5-year old Cayley would trade it remains to be seen, as she learns to deal with it on her own. I asked my adult PA/TNA friend, Kim, and she would stick with her allergy, too, thanks anyway.
On the other hand, I wouldn't imagine deaf people would be lining up to hear in exchange for a life-threatening food allergy. The devil you know, and all that...
Carolyn

Posted on: Sat, 02/01/2003 - 12:42pm
Renee111064's picture
Offline
Joined: 07/05/2001 - 09:00

Momma Bear,
My magic wand would find a cure for PA and all other diseases.
If I had to choose, I'd also rather my child have pa. I'd rather have to control his eating then control everthing else. Especially medically.
I know two children with CF (cystic fibrosis), the little girl that lives across the street from me has down syndrome.
I count my lucky blessings every day that my Drew only has "food allergies".
It is not always easy but it is easier than dealing with children with diseases. Another friend's son died at 7 years old from a brain tumor. That was two years ago already.
It is not always easy dealing with pa but it is much easier than watching your child suffer daily.
Renee

Posted on: Sat, 02/01/2003 - 2:58pm
KarenH's picture
Offline
Joined: 09/21/2002 - 09:00

I worked with a little girl once with Cerebral Palsy, PA, egg allergy, who was tube fed, had life threatening seizures, and was in a wheelchair.
She is a beautiful child who I'm SURE her mother would trade everything else for the PA.
Don't feel bad AJS Mamma about saying that you thank God every day that your child only has food allergies. I come home from work every day and am thankful that my son is the way he is. Parents of special needs children are very special people-they have those kids 24 hours a day, seven days a week-I only get them for 5 hours at school and it's sooooo exhausting. I have the utmost admiration and respect for them.

Posted on: Tue, 02/25/2003 - 9:03pm
MommaBear's picture
Offline
Joined: 09/23/2002 - 09:00

Thought about this today. Would we trade our child's PA allergy for a behavior disorder? A severe behavior disorder? One that is triggered by common ingredients in our food supply: (ie dyes, lactose, sugar, etc?)

Posted on: Wed, 02/26/2003 - 12:24am
kcmom's picture
Offline
Joined: 12/18/2001 - 09:00

If PA is the worst we will ever be handed I will take it! I too find myself thanking God everyday that my child can run and play and sing and laugh and say "I wuv you mommy!", as there are so many other kids who can't! And so many parents who will never hear their child say 'i love you'. I had my tears about PA and my time of feeling sorry for my child and myself, but I am over that now! Not that I don't have my moments, but all I have to do is think how worse it could be and I snap myself right out of it!
I also sometimes think that maybe this was handed to us to make me a better person! I have so much more compassion for other people's situations now. Not that I was not compassionate before, but I think I am more now. I don't like to think so but I probably never would have realized the seriousness of food allergies before PA, and maybe I would have been one of these people that just "doesn't get it". Pa has taught me a real sense of being sympthathetic to other people's situations, and that I need to give more of myself to people and be more aware if I expect to get the same back. I guess what I am trying to say is, even though PA stinks, I think it has made me a better person in a sense! I like to think that if dd did not have PA and it was a friend of her's who did, that I would do my best to understand and keep her safe, but that is easy for me to say now, maybe I would have had a bit of a 'not my kid, not my problem' type attitude. I hope I would not, but you never definetly know how you will feel about a situation until it happens to you.
Don't get me wrong, there is not a day that goes by that I don't wish for a cure, but even if that happens or even if dd outgrows her PA, I will forever carry with me what I have learned. I will never forget the people I have had a chance to talk with and get to know, such as yourselves. You have all restored my faith that there are people out there who care about other people too, not just themselves. You are all a great group of people and have helped me so much and I will always remember that! Thank you!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
kcmom

Pages

Forum

Click on one of the categories below to see all forum topics.

Peanut Free Store

More Articles

Halloween can be treacherous for a child with a peanut allergy and a parent who is trying to stay...

What kid doesn't love dressing up in a costume and going door to door on Halloween night, and collecting a bag full of candy? Unfortunately, this...

Are you looking for peanut-free candies as a special treat for a child with...

For those with peanut allergies, baked goods present a serious risk. Many baked goods do not appear to contain peanuts, yet were baked in a...

Do you have a sweet tooth and more specifically a chocolate craving? Those with peanut allergies must...