If I could beg...................... - Peanut Allergy Information

If I could beg......................

Author:
Publish date:

If I could plead , and fall to knees and beg , if reason and hope were always clear , and never lost, I would never have to dream as I do now, and not see his skin and bones so visable with every sigh, never trace with mother- love -filled finger the pattern of blue tinged veins through milk white skin. Not count the mouthfuls that are never eaten,...... to watch him sleep when others play,..... to watch him cry when others still have energy to laugh. Not to fail where other mothers succeed, If I could beg, I would, just one meal william, just one and mummy wont cry.

I guess that today things have really are on top of me, William is going to have blood test for iron levels, and he did not want any more needles ( we have recently been to the allergy clinic) , he is on the 9th centiles for weight and on the 25 for height. People are commenting on his weight and how pale he is, and I can see for myself that things are going down hill. I am sure its because allergy is once again taking more of our energies, (we think he is reacting to cooked egg again) .One of my other sons needs some individual attention and is clearly suffering when williams needs have dominated our family again. I feel that I have been fighting this particular battle for so long now and just when things start to look better , he goes down hill at this time of year again. At times like this I do try to find something to laugh at, it normaly works......perhaps I should put this moment of weakness to PMT,lack of chocolate, or simple self pity. But perhaps in this strange allergy filled world here there are other mothers like me , who have children like my unusual son. sarah

On Mar 12, 2003

Oh Sarah,

I do hope Will gets through this and thrives!

I really hope it's iron...something fixable.

You feel free to pour your heart out, that's a very trying thing your going through.

Big hug to you Sarah!

On Mar 12, 2003

Sending positive energy your way Sarah...

On Mar 12, 2003

Hang in there sarah You can do this. You are STRONG,I know there are times you don't think you are. God has only givin us what he knows we can handle.

My heart goes out to you and your family William is in my prayers.

I to have a little boy that is in the 10 % I know how you feel,when you need to I to will cry with you.

Love this site Synthia

On Mar 12, 2003

Sending love and hugs your way (for you and your family, Sarah) I just know that someday soon you and William will finally turn the corner and never look back. (I just *know*... you have to finish paying your dues at some point, yes?) [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Until that day, cry in the shower (works for me [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ), have a chocolate and then do what you always do and give your family all the love in the world.

Shannon

On Mar 12, 2003

Sarah, you have been the most amazing support for the folks here - I wish there was a way we could repay that support with some real, concrete help for you and William. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

I'm glad to hear the doctors are taking this seriously and are checking his iron. My son was anemic last fall and once his blood levels stabilized the difference in him was like night and day. I was so worried about him... it's gutwrenching to have to live with that day after day. I'm so sorry, Sarah - I know treadmills can be so exhausting. Do you feel like e-mailing me your address so Cayley can send William a drawing to try to cheer him up? I'm at [email]"lonegunmom@hotmail.com"[/email] and Cayley and I would love to hear from you. She's beside me reading this message. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Do they make red wine-filled chocolates? That would be just what this cyber-doctor orders for you. Take 2 whenever necessary. Hugs to you.

Carolyn

On Mar 12, 2003

So sorry to hear how things are going.

I'm sending "robust" vibes out to you and William.

Hugs,

Amy (who concurs with Dr. Cayley's Mom about the chocolate)

On Mar 12, 2003

So sorry to hear how things are going.

I'm sending "robust" vibes out to you and William.

Hugs,

Amy (who concurs with Dr. Cayley's Mom about the chocolate)

On Mar 12, 2003

Sarah my heart goes out to you and your sweet son. I send your doctors all my strength and prayers to find what can help him. Peg

On Mar 12, 2003

I wish I had some magic words to make you feel better! So many times I come to this board and read your posts and they make me laugh out loud! I wish I could do that for you now! Hang in there sister, my prayers are with you and your family! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] kcmom

On Mar 12, 2003

Hey Sarah and William (and the rest of your family),

We're thinking of you from down here. We hope the world looks a bit better tomorrow.

Best wishes & hugs,

Helen and Geoff

On Mar 13, 2003

My heart is with you, My DS is also very low in weight and height we just finished a round of tests so far no word so thats good I hope for the same for you.

Andrea

On Mar 13, 2003

Sarah,

Hi there. My heart goes out to you and you family. Its hard to always be the one pulling the load. I think as mothers we tend to do most of the pulling. And when mom is down the ship starts to go under. That's how it is here. We always rise back to the surface again eventually. I hear you have a great sence of humor. so I'll offer a stroy that had me rolling after the fact.

After allergy shots and 15mo well baby check, we were getting script for more epis filled. It was late and all 3 kids were being nasty. I was really begining to get embarassing. I have my extremyly tall 6yo (looks 10) in the back of the cart and tall 4 yo in front and tring to steer while holding thrashing screeching baby over my shoulder. I would have given up if not for needing the epi's. Kaitlin begins complaining of itchy bumps on chin. Give her a chewable benedryl and procede to bread isle with the screeming bunc of hellions while still waiting for script. Now our family of chos is in line. The cashier begins to make what I believe I overheard were snide remarks about working mothers who drag their poor tired children out to the store, ect. What a hoot I am a sahm just trying to get life saving medicine that my kid apparently needs at this moment. Kaitlin begins to go from bad to worse suddenly(says she has diareha and her speech has started to get very thick, she is itching nose and eyes!) I yell to the cashier " hey, my child is having a possible life threatening allergy attck and I need to pay for this medicine now. Can you check me out or should I go some where else?" she snaps, "What do you want me to do about it! Hurmph snort" what a B***H!. An angel overhears her and directs us to another register. He says I am an EMT let me take a look. I am shaking so badly I can not sign the reciept. He sees the hives beginging all over her arms too. He ofers to help with the epi. I decide that if we can get to allergists they can decide what to do. she is still breathing alright. So I begin pushing the shopping cart with the 2 kids in it back to the truck with epis in hand carrying the thrashing baby. We call the allergist and they say to come right over. They are very close by. Driving over I am now thinking , ok people get out of my way!! I have 5 epi pens with in reach and I am not afraid to use them. Don't mess with me. Kids, if your having trouble, stick a leg up in the front of the truck and we'll fix you right up. Epi pen anyone? By the time we get into the office the benedryl seems to have helped. Thank God she is ok., n. Sometimes I just have to find the humor in all of this insanity or I think I might loose it. Sarah, I hope you are feeling better. You guys are in our prayers. Melody

On Mar 13, 2003

Just wondering how you're feeling today, Sarah? Hope you aren't as despairing. Thinking of you.

Carolyn

On Mar 13, 2003

cayleysmom, william did try to send a e-mail,but it hasnt worked for some reason. will post here later and e-mail you again. sarah

On Mar 13, 2003

Keeping you in my prayers, Sarah.

On Mar 13, 2003

We are all wishing for the best Sarah - hope you are all doing okay today *hugs*

On Mar 13, 2003

Sarah - I was so sad to read your post. You have such a gift for putting your thoughts and emotions in words that I got very emotional reading it. I went upstairs to fix myself a cup of tea to comfort [b]myself[/b]! I looked for my proper Ty-phoo English tea to sip in your honor but couldn't find it - settled for chamomile which always reminds me of Peter Rabbit so it's the closest I could come to Great Britain. My heart aches for you and William - I will trust that he is about to turn the corner and become strong and healthy.

On Mar 13, 2003

Glad to hear you're trying to get in touch, Sarah. Right now I'm listening to voices in the kitchen "How many colours in a rainbow, Mommy?", "Can I make the kitty purple?" and "HANNAH!! William does NOT want slobber on his picture! MOMMEEEEEE!!". It's a regular riot - can't wait to send it. Take care. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Carolyn

On Mar 13, 2003

Sarah- I wish I could brighten your day the way your posts always brighten mine. Hang in there. Big hugs to you and William. Thinking of you! mae [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Mar 13, 2003

THANK YOU for all your wonderful posts, we are going down the usual path with william at times like these. lots of star charts to encourage him to eat, and , rather against my better judgement , the doc has told me to fill him up with any high fat snacks he will eat. |Sadly , as soon as Will realises that he can have a kit kat rather than a sandwich he will hang out (as he is quite used to being hungry and can ignore it for quite some time) for the unhealthy option. We have also been advised to add extra dairy products to his diet, which again I will do on the short term, but hate the idea of flooding an allergic child with a common food. As for me, well my n2 son has been off school with a stomach upset and this evening , the youngest has pebble dashed the carpet. I stink of disinfectant, the sofa is damp, as is the floor, I am really tired and find the idea of spending time coaxing a child to eat almost impossible. William has eaten a little more today, however when I took him swimming, I noticed that his swimming trunks do not stay up very well. So have some way to go to get him to gain the weight he seems to have lost suddenly. Like all children with eczema he does not have the ablity to control his temperature very well and takes a while to warm up after lessons. Off course instant calories are needed before i get him home. As he soon gets almost behond hunger and no longer wants to eat. (if only I was like that in some small way and then I would be nice and slim!) once again , thanks for the support, i REALLY,REALLY needed it. sarah.

On Mar 13, 2003

I just want to let you know that I'm keeping William in my prayers. Cody, (my pa 8 month old) has fallen down the charts too. (.29 % for height, and 12% for weight), so I can understand your frustration. We were told to add 1 tsp of butter to EVERYTHING he eats. (I was even told to pump breastmilk and add butter to that, ewwww) I hope he starts packing on pounds soon! Good luck!

~Steph

On Mar 14, 2003

Our thoughts and prayers are with you and William. It is so hard when your child is sick - especially this time of year when the weather is so dreary. I really enjoy the information and humor in your posts.

I'm sure you've tried many things to help him but here's one more suggestion. My niece Sarah hadn't grown at all for quite some time and the Dr was getting worried. They had her try "Pediasure", it's one of those health drinks that's loaded with everything including calories. It worked, she's grown a bit taller! Perhaps you could try putting some in the blender to make it more fun.

On Mar 14, 2003

oh, we have tried all those drink things in the past, have used it in a powder form to sprinkle and add to food when he is not looking, also have used double cream to boost calories. Often its not the choice of foods, but the small amount he eats. He seems to pick up in the winter and is still growing up(but getting thinner ) during this time. We hit spring and then eating drops of,and he becomes tired , grumpy and very pale. I think its a combination of the tree pollen allergy and the hospital appointments . Which suddenly make william think more about his allergy. Normal life, and allergy management becomes a habit and is not in the forefront of his mind . ( unless of course we find a new food to react to or / or make a small mistake in the form of accidental cross -contam etc!!) It is habit to lug epi pens everywhere . Popping along to hospital and have each arm pricked and covered in 'bubble wrap' is not nice for an adult , let alone a child. Before the needle is lifted out of skin william is telling us that its 'peanut isnt it!!! owwww!' He told us straight away , before the wheals rose which ones were hurting. He was right , the egg, the peanut , dog, the beans etc, all leapt to life as we watched. He is eating his way through a kit kat now and looks tired,but better than yesterday. I am going to buy some more gold stars for his new chart , and hopefully get him to eat over the weekend. thanks sarah

On Mar 14, 2003

I just wanted to say I'm so sorry that your son is feeling poorly and that you are struggling so hard. I sooo understand what you're going through. My son, Ben, is 4. He has many (10) food allergies, and asthm, and is sick a lot. We've been struggling with food allegies since he was born. He is small for his age and is so, so thin. Getting him to eat can be a terrible struggle and I have cried many times trying to get him to eat enough of anything to keep him healthy. The saving grace for us has been a formula supplement. He was on Neocate 1+ until he was 3. From 3 to 3.5 he wasn't on any supplements and he did terribly. He just stopped growing because he just would not eat enough. Finally, his allergist put him back on a supplement. It took months to convince him to drink it but now he loves it and he has grown an inch!! This is a HUGE deal in our house. We use pediatric E028, it's made by SHS, which is actually a british company. It comes in a juice box and is orange/tangerine flavored. It's actually a complete medical food so I feel better knowing that he's drinking it because there is just no other way for us to balance his diet or get enough calories into him. You might want to talk to your doctors about something similar for William. Also, after Ben's last ER trip he didn't eat for weeks and weeks. He was just so afraid to have another bad reaction. If William has been going to the ER a lot anxiety might be playing a role in his unwillingness to eat. We've ended up also using a reward system to get Ben to eat. The sticker charts weren't motivating for him so we started with more immediate rewareds. Things like, if you eat this much food you can watch a special video, or play a special game, etc. It's almost ironic that other parents I know use food as the reward and I'm using rewards to get food into him. You might also want to consider joining an on-line support group that I belong to called POFAK. It's for parents of food allergic kids. Almost all of us on the list have children with multiple food allergies and lots have growth issues. You may be able to find some good advice there. If you want more info feel free to email me at [email]jddreyfus@yahoo.com[/email].

I really hope that William starts doing better soon so that you can too. Jamie

On Mar 14, 2003

So sorry that William is not feeling healthy. Just a word of warning about the high calorie foods-- pay special attention to the tooth brushing. My son was on a high cal diet. The pediatrician said to feed him corn syrup with as many foods as possible. Result: kid is still small but with cavities requiring oral surgery.

Both of my kids have multiple food allergies and are off the charts tiny. A lady yesterday thought they were 1 and 3; they are 3 and 5. ( My husband and I are of normal height.) All tests, except allergy tests, have come back normal. My 3-year old has nasty purple circles under his eyes today because of the extra burden of a cold, but the translucent skin and blue veins are always there.

Some days these allergies are overwhelming. I hope tomorrow is better.

On Mar 14, 2003

I am saying special prayers for you, Sarah and dear sweet William. You are a strong lady and we are all with you and your family in heart.

Sending you huge hugs, Fran

On Mar 14, 2003

Hang in there, Sarah. I remember when Patricia was just over a year that the doctor was concerned that she was underweight. He said to add butter or margarine to everything. Then my friends told me that their pediatricians had recommended peanut butter. And, gee, that's how we ended up finding PA.com! [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

It's a long road, with lots of bumps and hairpin curves. But we've had a lot of laughs so far and a lot of cries. I like the liquor-filled chocolate suggestion. Give yourself a pat on the back. You are a good mother. You've cheered us all up many times.

Big hugs to you and William. I will be thinking of you.

Amy

On Mar 16, 2003

hello! we have had a good weekend with William , he has eaten a good amount of calories . He went to his saturday football club , but found it hard to get stuck in the game , once he came home he ate a good lunch then had a nap. William is quite pleased with his star chart so far , and helps me write a daily list of his food intake to show his doctor. Finally got him to tell us what really has been bothering him . He accused us of making him play 'that egg game' We were puzzled for a moment and then realised that he meant the egg challenge that he had last year. I explained that next hospital visit was just going to be skin prick tests and he was happy. I avoided telling him that there may be a possiblity that he may have to go back for a egg challenge again.

I am going to try and stop worring about Will quite so much ,we went to our local park today . I left him to go and push younger daughter on swing . William was playing football with a couple of friends, when a huge ten yr old( Will is 7) started to call him names and try to grab ball. William marched straight up to him , looked up in to his face and told him very firmly to 'shut up'!!! The boy jumped back and walked off with his friends. Hes a born survivor my son, just as well I think. !! sarah.

On Mar 17, 2003

Glad you weekend went better. I only got to this today, and my heart goes out to you. My dd is very thin, yet tall, at 5th% for weight and 90-95th% height, can count her ribs, and her arms are twigs. She, too, eats like a bird. There are days where she might munch a few pretzels, have a cup of milk, and a cookie until dinner, and then all she eats is chicken nuggets or pancakes(1 0r 2). Yet she is healthy. That is what I try to remind myself. The bigger deal I try to make of it with her, the more she resists trying new things.

We have found limiting snacks, and lots of activity and exercise improve her appetite and seem to make it more likely she *might* try a new thing, like one noodle. She even touched her tongue to a piece of broccoli for a split second last week.

It is very worrisome and I hope he does better. How was his iron? Did it come back? I skimmed, so maybe I missed it. Best wishes and prayers. becca

On Mar 17, 2003

I am so sorry that your son is going through a difficult time. Keep your chin up and remember to take time to catch your own breath. It is difficult to be there for your kids if you don't take time for yourself.

Our DS was pretty small when he was young probably due to his eating habits (or lack thereof). We kept a lot of finger foods on hand as well as meat in small pieces. He would eat small amounts often but did not really eat "meals" for quite sometime.

Hang in there, your family is in our prayers.

On Mar 18, 2003

Hi, I hope things are going better for you. When my DD was a baby/toddler she wasn't on the charts. When she hit the 5th per., we had a party we were so relieved. The ped. even had me call my DH at work to come to her office. She wanted to measure his head. They were so worried because her head was small. They also measured my head. It was a scary time all those tests to see if she was mentally o.k. I didn't think it looked small but the doc. did. I'd get out my tape measure every week and measure her. She'll be 5 soon and very smart. Apparently DH has a small head. As in on his neck.L.O.L. She still is very small(weight/height). Her pa brother looks like I only feed him on Mondays. But, he eats all the time. Hopefully, he will fill out soon. Being a mommy is my greatest joy. Worrying about the little ones is 24/7. I wish we all lived closer together so our kids could play together. Please hang in there, the turning point is around that corner. rj

On Mar 19, 2003

I am so glad that i found this site, I know quite a few food allergic children , and the ones that are Williams age all seem to look healthy compared to William. ( apart from sharing the usual 'allergic shinners') Whats more all of them have asthma and Will does not!! Its nice to know that i am not the only mother with a child who has eating problems and poor weight gain. My hubby and I have had a brief disscussion over Williams blood test. He was meant to go today, but hubby was of the opinon that as William has been eating better over the weekend, and seems to have much more energy etc , that we should delay the appointment. William is going back to the hospital allergy clinic soon ,and he does find this a worrying time. Why put William through the stress of another needle if we can avoid it? I can understand his point, its a valid one, however , I am concerned that even if his iron levels are borderline ,I would be happier having liquid iron supplements on hand to give him when he falls ill. His weight does seem to drop off quickly and takes months to recover . Why , if all my children have a good balanced diet does William have trouble maintaining his weight or iron levels?!!! We have decided to contact our doctor again and ask for advice. Then reassess the situation. William has decided that he would like to be an athlete, and throw the stick thing........he dragged me to the telly and pointed to a woman throwing a javlin, shouting 'i want to be like that man there and throw that stick when i grow up'. I pointed out that the stick was a javelin, but didnt bother to point out that the man , was in fact a woman. He has been around too many women who are mothers and have totally different chests. I pointed out the kind of diet that athletes have to eat , and that he would have to eat a great deal more, and bless him, he is trying hard. His food portions are still small, and he often finds it difficult to finish. I think one of the hardest things a mother can hear is the constant complain of a child being continually hungry ,but feels unable to eat the food offered. I am a sensible woman, i can see that his relationship with food is effected by his allergies, see the battle within him when faced with new foods, the fear of hospitals and the pain of an allergic reaction. I can see the strain of a days filled with tree pollen,and of allergy avoidance throughout the day. Because we are in the UK, avoidance of peanut , must be slightly easier , for a start we dont even grow the b****y things here! But egg avoidance is the hardest thing to avoid. Last friday was a charity day in the UK, comic relief, or red nose day as its called. The school children made lots of iced biscuits and cakes to sell. I had wonderful help from the teachers who went shopping for safe cooking ingrediants for William in their own lunch break, and arranged for him to have someone to watch him closely while he cooked. I felt extremely happy that everyone worked hard to keep him safe and involved in the normal part of school life. The only sad part was after school, when the other children brought the cakes, and ran in the the playground. While I collected the other three children , william ran to play with a friend, who rubbed the bag that had contained cake over his face!!!! Thankfully william twisted his face away and didnt have a reaction. But it is enough to cause a flash of fear streak across him and ruin all the good of the school staff who worked hard to ensure that not only was William safe, but FELT safe during school. This is the daily struggle of our childrens lives, and its so unfair, and cruel, and theres little we can do about it. As i have said before , all the allergy weeks and days , do not push the point that allergy is not just a day, a time of the year.........every single day is a allergy day for my son and others like him. sarah

On Mar 19, 2003

Williamsmummy, I do hope that everything is going a bit better for you. We have had so much going on in this house that i haven't been on the boards in so long. I hope William is better. it is so hard when our little ones are not well. Good luck Sarah. I do hope the Javilin is going well. You were better off not explaining that it was a woman. when i tell my little one the difference he never believes me anyway. take care Claire

On Mar 19, 2003

Sarah, on the iron. Our ped. said there is no harm in giving our dd an iron fortified multi-vitamin(no extra beyond that) since it is clear that she does not eat enough iron rich foods, and milk, even in the small quatities she drinks, is a main staple of her meager diet. Milk reduces the absorption of iron(hence the reason there is so much iron in some formulas and the risk of low iron). The ped said the toxic levels of iron would be from an accidental overdose, like where a child eats adult iron pills or vitamins or their own like candy, more than one a day. So, we give her an iron one every other day, and a regular one every opposite day. Maybe you can ask your doctor about this idea without a blood test, if he generally runs low anyway. Low iron inhibits appetite as well.

Our allergist is so contious of not poking children with needles any more than needed and requests that we actually come back on a seperate day, so the child will not associate the needles with the allergist appt. He will only test if there seems good reson(not to simply confirm obvious reactions) but perhaps to check if there is one outgrown, like eggs, since it might be likely. Then, once he is testing one thing, and the needle is in, he draws all of them, so as not to have to do it on another occasion. They also use an infant's IV needle, tiny, and leave that one for all vials, so there is only one tiny stick. It is a great lab and office. He will not simply track numbers regularly if it means sticking children who are doing well on their diets. I love that about him.

I think it is so nice that you discussed what William is going through and came to a decision together, as a couple and family as to what is best in all areas, emotionally and health wise, since he is doing better eating. Such a great motivator for him, giving him some control over the outcome.

I was always very cautious not to make too big a deal of my dd's poor eating at the peds office for fear of them running all sorts of nasty tests on a very healthy child(not sick, very energetic, just does not eat much or on much of a schedule). I could also look at my husband's family and see they are light eaters(several), thin, and never eat on time. So, it seems part of her makeup.

I, OTOH, become a bear if I miss a regular meal!! Or my evening glass of wine, LOL! So, it is hard to reconcile my body's signals with hers. I also think with multiple allergies, the kids know something does not feel right, even if there is no outward signs and it makes it hard for me to truly force foods dd really is averse to.

I hope things go better. I think the athlete's diet is am awesome motivator! I try such things with my dd(if you eat more of this or that, you can play harder, jump higher, etc...) but she is too young to put it together at present. Best wishes. Hang in there. becca

[This message has been edited by becca (edited March 19, 2003).]

On Mar 19, 2003

Sarah, my 17 yo still has problems eating and keeping weight on. Last summer he lost over 15 pounds. I have to stay on him about eating. We make him eat everything he puts on his plate durning meals. That is a rule here but he was scraping food into the trash. He doesn't have food allergies, but with his heart problems he is limited.

With dd, she has gained almost 25 pounds since last spring. I really think it is the goats milk that she drinks. We buy it fresh from a farmer. Could William try goat's milk? It tastes much better than the canned stuff.

On Mar 20, 2003

William has vitamins that have AC&D , I plan to go back to doc and get a list of 'safe' vitamins.......( so many have peanut traces etc) He does eat iron fortified food , his breakfast cereal and does eat iron rich foods like dark green veg and is a meat eater. Every day there is at least three fresh veg on offer, with a good serving of rice/pasta/potato and sometimes cous cous (which i can smoother in butter for him!) My kids do not have any fizzy drinks,or tea or coffee , because 3 out of four of my children have tendancy to form instant fat tummys! and also because the caffine , and tea and coffee stop the body from absorbing iron. His diet is good, its the times when he stops eating enough, that is causing the problem, his tummy can shrink very quickly. I have started letting William have tablespoons of sugar on his cereal , which causes jealousy from his siblings, likewise the fact that he can have biscuits and crackers with butter , cheese or jam after school. The other children are only allowed fruit. So you can imagine the stress this causes day after day!! The advice of the dietian was to supply endless snacks , it didnt matter what they were , just let him eat what he wanted. Well, I found this advice to be totally stupid. When i let William eat non stop safe snacks , he never ate a decent meal, no meat, no veg, no milk, and when I added up his calorie intake , it was high, but very unhealthy. Ok for short term , but Williams poor eating can go on for months! It also did not get him used to taking the bulk of his calories in a reasonable amount. So , we give him one high fat snack in between meals, if he crys that he is hungry ( as he often does, in fact all the time, but refuses most foods offered on bad day!) I give him fruit. Soon he learnt that not eating a dinner did not get him the kit kat he was after. ! Its like a circle, get a bit poorly, stop eating for two days, then start eating , only find tummy shrunk, eat small amount, leave table, cry for food later, but decide not to bother eating. Play until tummy screams with hunger, wait, until that too has passed. Sleep , take a nap as too tired to bother to eat. persaude parents to give him small high fat snack. Then wait, and not eat until next day and then begin again. All the time becoming increasingly angry during small suger rises in blood then crash out and sleep when energy disappeared. So we re-train him to eat and stretch out that tummy. Three small meals with a mix of his favourite healthy foods, a midmorning snack and an after school snack. milk to drink at breakfast, mid-morning and at bedtime otherwise water with food, or weak fruit juice. We all sit down to eat at the table, every day, they all help me cook every now and then. I wonder how many adults with allergy have weight gain problems? If not caused by the allergies, but caused by the whole stress of food. Of feeling that risk every time you eat? I think that growing up with multiple allergies does increase the likely hood of developing food relationship problems. I would be interested to hear other opinons on this. William is improving .....although the milkshake i made did not go down well,.....spluttered back up over kitchen table......still at least he did try it. thanks, sarah

On Mar 20, 2003

Hi, I know with my pa Ds he is very reluctant to try new foods. I try to make him feel better by calling the manufactor and ofcourse reading labels. If I can get him to try something new he will usually take a small bite and then say I don't like it. He eats good, just the same old stuff. He is so thin. When he takes off his shirt, you would think he hasn't ate in a long time. I'm going to take him to the doc. to make sure everything is okay. I don't think he should look so THIN when he is eating. So yes I think food allergies does play into how he looks at food.rj

On Mar 21, 2003

Sarah, I really hear you on the endless snacking thing! Our Ped suggested the same. Get the calories in however you can with frequent snacks, high fat foods, etc... We soon had a *slightly* heavier child living on low sugar, but slightly fatted shortbread cookies, cheese sticks(before she decided they are yucky), and sugary yogurt tubes, and dry cereal and never eating a full meal!

We have stopped nearly all snacking, other than a light crunchy thing, and she does eat bigger meals. Went to bed last night with only 4 chicken nuggets and some milk for dinner(refusing green beans), and no dessert(the fatty ice cream) since she would not try one bean! She couldn't have cared. Just one piece of toast for breakfast.

I also wonder about the anxiety of eating for the allergic. I actually was not allergic as a child, but had a very nervous stomach. Any stress robbed me of my appetite, and quickly turned a former too chubby child into a very skinny teenager. I can imagine if eating is already encompassed in stress, that any added stress can make something like that out of control. That is why I mostly just put the food down for dd and she eats what she eats, and that is that. Once in a while, as she gets older, we are trying to bargain or encourage her to try new healthful foods, like veggies.

But I still fear maiking too big of a deal out of it. She is only 3, though. I do think we have made some tiny bit of progress. She has sampled a few new food over the past month, after at least a year of not trying anything new.

Good luck with the eating struggles. It is so frustrating. Becca

On Mar 21, 2003

When I was a very young child (up to about 6, if what my mother tells me is correct), I was the World's pickiest eater. She tried for HOURS to cajole me into eating something. She (as she put it) "bust a gut". Then something snapped & she stopped, saying "bl**dy well get on with it, you little 'darling' " and left the food there until I ate it. She tells me that I sometimes ate, sometimes didn't - I ate when I was hungry. I was a scrawny little whippet of a boy until I was about 10. Then, something snapped inside of me. I started to eat anything & everything ... and continued to do that until I developed this darned allergy 3 yrs ago. Apart from nuts & seeds, I still eat anything which is edible food!!

When my sister came along, my mother didn't bother with the cajoling : she just left her to it. She ate pretty well, but is still a little picky now (and she's 40 this year!). As an aside, her two kids (13 & 11) are about the pickiest I have ever seen, preferring to eat crisps / chips & chocolate than a proper meal, although the youngest (the son) will at least TRY new foods - and likes some of the most unusual things [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Ah well.. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

On Mar 21, 2003

Hi williamsmummy I sympathize with you I can't get Matthew(pa) to eat anything, for instance last night I made him Kraft dinner, macaroni and cheese, one of his favorites and my dh had to get mad at him before he would take a bite [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] and not 2 minutes ago I tried to get him to eat dunkaroos (cookies and icing) he said no he wants and apple thats all he wants to eat. The dr. wonders why he is so thin [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

Andrea

On Mar 22, 2003

I have to report that Williams star chart is starting to lose its twinkle. Will found the stickers and slapped on a couple so that the chart would be full of stars , and , so he thought, it would mean that he could ask for that little visit to toys r us! Without the bother of eating. As he picked his way though his meal , he told me that he has changed his mind, his new choice of career is ' to go to football matches with a camara ,then write a little bit of words underneath,and put it in the newspaper' .

He has gone to his saturday morning football stuffed with all things sugar , so he is quite bouncey this morning.

When William eats a good meal , and he starts to jump around burning of the calories instantly, I wish I could tie him to a broom handle and make him lie down for a while. Not in a mean-mad-mother-lets-call-the -police-sort-of-way............more like , keep him still long enough to form a fat cell!!!!

Thanks Nick for your post, perhaps William was always going to be a twig type of child, I wonder if he will look like Rodney from 'only fools and horses'when he is a teenager? !!!! Poor boy!!!! sarah

Related