I need to say this

Posted on: Fri, 09/03/1999 - 5:52am
Jess's picture
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Joined: 03/07/1999 - 09:00

I've been looking at these boards for a while now without posting very much, but now that I've read most of the messages, there's something I have to say. I read messages from kids/parents, talking about how they don't want their kids playing sports or going away to camp or eating ice cream... The list goes on and on. I was very suprised to read this.

I am 17 years old. I am highly allergic to peanuts (I think my rast test came out to 100,000 last time I checked.) I have not had a reaction for over 14 years. I have also eaten at countless restaurants, played sports, gone to school where there are peanuts around, gone to sleepaway camp, kissed boys, had sleepovers, and been to baseball games. I have had what one would consider to be a normal life.

This is not to say I don't take precautions. I always ask questions in restaurants, aviod peanuts at school, and carry my epi-pen wherever I go. If you just ask, you will realize that there are countless things you or your child can do, and that you don't have to worry so much. I don't want to think about what my childhood would have been like if my parents had not let me do things because of my allergy. I'm not trying to bash anyone's parenting, I'm just saying that what my parents did worked. I have had a very healthy and happy life, and I hope all of you do too.

Posted on: Fri, 09/03/1999 - 6:27am
Anonymous's picture
Anonymous (not verified)

pHi Jess,/p
pThank you for posting your feelings. I know my 5 year old is timid and shy because of me being so overly protective of him. I think from watching him experience 3 anaphylactic reactions, it is hard to cut those apron strings but I am getting better at it. Education with this allergy is a huge key factor in dealing with it. I'm still learning to *turn* this allergy over to him and let him handle it, yet be there for him every step of the way. /p
pWhat did your parents say to you regarding your allergy and how do they handle it? Did they *turn* it over to you so it felt like [b]you[/b] had control over it? /p
pRegarding the ice cream issue, do you eat ice cream from parlors or is it store bought? I think this is one of our biggest concerns due to the extreme chance of cross-contamination at ice cream parlors./p
pI am so glad you are such a responsible person handling this allergy in regards to carrying your Epi and always asking questions. /p
pThanks again for sharing. [img]http://client.ibboards.com/peanutallergy/smile.gif[/img]/p
pStay safe./p
p[This message has been edited by Connie (edited September 03, 1999).]/p

Posted on: Fri, 09/03/1999 - 7:46am
Susan K's picture
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Joined: 08/13/1999 - 09:00

pJess:/p
pThe difference is that you can communicate (express to others an allergic reaction) and are aware of your allergy. You can watch out for yourself and know what not to eat. Toddlers grab food from others and can't comprehend what's bad for them./p
pHowever, I must say that your parents raised you to not let the allergy rule your life./p

Posted on: Fri, 09/03/1999 - 10:10am
rebgaby's picture
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Joined: 08/09/1999 - 09:00

pCongratulations on going 14 years without a reaction! I wish I could say the same for myself. Either you are very lucky or you are very careful. Before you kiss a boy, do you ask him what he's had to eat in the last 12 hours? Beware of men with mustaches and beards - they can harbor peanut residue! /p
pAs a 44-year-old PA sufferer, I find there has been a HUGE change in awareness and attitude about PA. When I had my first reaction, in 1956, labelling laws were very lax in the US, epi-pens didn't exist, and very few people had peanut allergy. Most of the reactions I suffered were due to unlabelled peanuts/peanut residue in cookies, etc. Now labelling is much better, restaurants are more aware, and food companies have 800 numbers you can call, and they encourage consumer questions. I think the fact that schools are becoming aware and acting to help PA children avoid disaster is a good thing. /p
pI see a day coming when peanuts and peanut products will not be allowed in schools because, for PA children, they might as well be cynide pellets, and there are more and more PA children out there! The difference is that dying from cynide poisoning might be less unpleasant than dying from PA anaphylaxis./p

Posted on: Fri, 09/03/1999 - 12:24pm
Noreen's picture
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Joined: 01/24/1999 - 09:00

pHi Jess:/p
pYou are to be commended for your positive attitude and accomplishments as a person living with a peanut allergy challenge./p
pWhat precautions do you take? Do you avoid certain kinds of restaurants? Do you avoid bakery products and chocolate? A 14-year streak of no reactions is great and I hope you'll share your winning formula./p
pNoreen/p

Posted on: Sat, 09/04/1999 - 7:17am
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MJ
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Joined: 07/25/1999 - 09:00

pThanks for your post, Jessbr /
Realize that many of us who have children with allergies are raising them just as you were raised so that they are aware of their allergy but live a normal life with as few restrictions as possible. Thanks for reminding everyone that this is possible!/p

Posted on: Mon, 09/06/1999 - 12:03pm
EILEEN's picture
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Joined: 04/06/1999 - 09:00

pJess, congratulations!br /
PLEASE, PLEASE, PLEASE ask your parents to post their feelings, advice comments etc. Their succssful management of your pn allergy could help us all./p

Posted on: Thu, 09/16/1999 - 2:56am
Mich's picture
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Joined: 09/16/1999 - 09:00

pI think it is great that you have had such a "normal" life living with PA. I too live with it and haven't had a reaction for 15 years but have found my allergy becoming much worse in recent years and realize that I should be more diligent. My daughter lives with the allergy too and just started kindergarten. Our whole world has been in an upheaval. I never worried that much about her because at home there was no peanut anything to worry about but now... The school board and school are fantastic. A nurse came to our house to develop a plan with us and then taught every staff member in the school what to do. Things sure have changed since I went to school.br /
We are having a problem getting her to wear her fanny pak because she doesn't want to be different than the other kids. Any suggestions?/p
p My daughter starting school made me realize that I should be more cautious with her than I am. I also know that she can do things that other kids do ie. sports, ballgames,etc. I did and things worked out fine./p

Posted on: Tue, 09/21/1999 - 1:06am
Mel's picture
Mel
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Joined: 09/21/1999 - 09:00

pJess,br /
I understand your need to not let your allergy control your life. My husband is PA and I to have been reading all the letters from parents about their children. My husband was the same way you are right now. My husband spent a long time in a coma because of eating at a resturant that said they don't use or have peanuts. We will never know what he ate that contained it, but it was in something. I don't have to tell you that it only takes a little amount.br /
I would hate for you to have a bad expeince. Be careful. He does not eat at any restaurants and I do not eat anything my husband can't eat. I wouldn't want to expose him. I pray you never go thru what I saw my husband go through.Again Be Careful and Enjoy Life /p
p------------------/p

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