I need help FAST........

Posted on: Tue, 08/28/2007 - 12:24am
Gwen 5's picture
Joined: 01/24/2003 - 09:00

The school nurse wants my plan to change to read:

I have a concern about the way L's plan is written. It needs to be changed to say that Benadryl is given first, followed immediately by an Epipen injection and a call to 911 in all instances. I do not feel it is appropriate for school staff to make a medical decision as to when to give an injection. They are trained every year and are quite knowledgeable, but it is too difficult for them to try to sort out all the potential symptoms, and I do not think it is right to ask them to conduct this kind of medical decision making. As Mary Ann and I discussed, if there is enough suspicion that an exposure may have occurred to administer Benadryl, then the Epipen will be used as well because that is what is safest for L.

I had in my plan that UNLESS it is a known exposure or she is having any difficulty breathing the Epi should be used, but only if one of these 2 occurs.

What do you all think??

Thanks so much!

Posted on: Tue, 08/28/2007 - 12:30am
Donni's picture
Joined: 11/06/2000 - 09:00

What does your doctor say?

Posted on: Tue, 08/28/2007 - 12:44am
caryn's picture
Joined: 11/20/2002 - 09:00

our plan is very specific i think i printed it off from FAAN and then filled it in appropriately -- i went with benedryl then call me for itchy mouth and flushing or a few -- (small, not many) hives -- i said epi for increasing hives, tightness of throat, vomiting etc. or any known ingestion regardless of symptoms -
now granted my son has never had a major reaction and we have never used the epi
i would be wary that they would be using the epi a lot!!
check with you DR sounds like a great place to start!

Posted on: Tue, 08/28/2007 - 1:14am
saknjmom's picture
Joined: 04/02/2003 - 09:00

This is exactly the reason that delegates have been disallowed any time a child's protocol from the dr says give benadryl for itching/hives, proceed with epi pen if symptoms persist. This is State of NJ's previous interpretation.
They feel that that laypeople shouldn't have to make a decision between epi pen and benadryl. If your order says epi pen and no benadryl is involved, the layperson can use epi pen.
I think that your school nurse MUST follow your doctor's instructions. I have struggled with this scenario of a delegate not knowing whether to use epi or benadryl. I don't have a good answer for you. You should speak with your doctor.

Posted on: Tue, 08/28/2007 - 1:31am
McCobbre's picture
Joined: 04/16/2005 - 09:00

The school needs to follow the doctor's orders. Our doctor has a checklist that is really easy for the school to follow. It's a table that lists the symptoms then has two columns--one for epinephrine and one for antihistamine (50mg of benadryl is specified). He has checked off the medication for each symptom, whether to just give benadryl or give Epi and benadryl.
The symptoms:
[list][*]If food allergen has been ingested but [i]no symptoms[/i][/*:m][*]Mouth--itching, tingling, or swelling of lips, mouth, tongue[/*:m][*]Skin--Hives, itchy rash, swelling of face or extremeties[/*:m][*]Gut--nausea, abdominal cramps, vomiting, diarrhea[/*:m][*]Throat+ --tightening of throat, horaseness, hacking cough[/*:m][*]Lung+ --Shortness of breath, repetetive coughing, wheezing[/*:m][*]Heart+ --Weak or thready pulse, low blood pressure, fainting, pale, blueness[/*:m][*]If reaction is progressing (several of hte above areas), give:[/*:m][/list:u]
+Potentially life-threatening. The severity of symptoms can quickly change.
I think this table is extremely clear and leaves no question.
You are right--it's not up to the school to decide protocol; it's up to your doctor. I imagine ours would be pretty upset if a school decided to override that and possibly endanger our child's life.
Fatalities occur when the Epi isn't given or isn't given soon enough. I would think the school would be concerned with this fact.
[This message has been edited by McCobbre (edited August 28, 2007).]

Posted on: Tue, 08/28/2007 - 3:36am
lilpig99's picture
Joined: 12/22/2005 - 09:00

yes I would say any change to any standing medical plan must be initiated by the MD responsible for treating the child in question. The school changing a doctor's orders would be a huge no-no, to say the least.

Posted on: Tue, 08/28/2007 - 4:55am
Gwen 5's picture
Joined: 01/24/2003 - 09:00

My concern is that I don't want a teacher to over-react.
Occasionally my dd will complain of an itchy-mouth and Benadryl will help right away.
Is the school nurse saying that if Benadryl is used they must follow with the Epi??
I think I would only want a "lay person" sopmeone at school to use the Epi if my dd showed any signs of difficulty breathing, facial,mouth lip swelling,heavy wheezing or a known ingestion. Anything that she seemed in distress- I am scared that if she says she has a tummy ache they will go to the extreme of using Epi.
Everything needs to be assessed... what do you say to others that is different?

Posted on: Tue, 08/28/2007 - 9:46am
lilpig99's picture
Joined: 12/22/2005 - 09:00

You know, I explained it to our teacher as 'an event'. An anaphylactic reaction being an 'event' as opposed to a single random hive, or a runny nose, what have you. At least based on my DD's history, I felt we were safe in explaining it as such.
Not sure if that helps...but if you are really struggling, I think it is worth discussing with your child's doctor.

Posted on: Tue, 08/28/2007 - 10:30am
TwokidsNJ's picture
Joined: 05/28/2005 - 09:00

The current Food Allergy Action Plan from FAAN ( [url="http://www.foodallergy.org)"]www.foodallergy.org)[/url] has the symptom checklist and you choose if you want Benadryl, Epi, or Both.

More Community Posts

Peanut Free and Nut Free Community

create a new community post
Latest Post by penelope Mon, 10/14/2019 - 12:56pm
Comments: 0
Latest Post by penelope Mon, 10/14/2019 - 12:52pm
Comments: 1
Latest Post by Italia38 Tue, 10/08/2019 - 12:19pm
Comments: 3
Latest Post by Italia38 Tue, 10/08/2019 - 12:18pm
Comments: 1
Latest Post by penelope Mon, 10/07/2019 - 7:19pm
Comments: 2
Latest Post by penelope Mon, 10/07/2019 - 7:16pm
Comments: 10
Latest Post by penelope Mon, 10/07/2019 - 7:13pm
Comments: 13
Latest Post by penelope Mon, 10/07/2019 - 7:10pm
Comments: 9
Latest Post by mom2two Mon, 09/16/2019 - 1:03pm
Comments: 18
Latest Post by desmond Mon, 09/16/2019 - 1:00pm
Comments: 1
Latest Post by desmond Mon, 09/16/2019 - 12:58pm
Comments: 19
Latest Post by TeddyCan Mon, 09/09/2019 - 4:32pm
Comments: 10
Latest Post by DTurner Mon, 09/09/2019 - 4:31pm
Comments: 5
Latest Post by B.M.18 Mon, 09/09/2019 - 4:30pm
Comments: 3
Latest Post by abolitionist146 Mon, 09/09/2019 - 4:28pm
Comments: 2
Latest Post by nutfreenyc Mon, 09/09/2019 - 4:19pm
Comments: 4
Latest Post by AllergicTeen2 Mon, 09/09/2019 - 4:18pm
Comments: 2
Latest Post by PeanutAllergy.com Fri, 09/06/2019 - 1:52pm
Comments: 1

More Articles

You might have wondered if small amounts of an ingredient can be added to a food product without being declared on the food’s label. The FDA...

Is it possible to eat your way to a food allergy cure? Scientists think it’s...

There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...

Not all oils are created equal. Some oils are high in saturated fats or in trans-fatty acids – not good for general health. Some are partially...

It may never be safe to begin feeding peanut butter to your baby or toddler if you have peanut allergies in your family. If either parent or one...

More Articles

More Articles

What is a peanut allergy? It is a reaction that occurs in the body after eating peanuts or peanut...

For those with severe food allergies, flying can be a stressful process. Here are...

Approximately one out of 13 children under age 18 are allergic to at least one food, though many of them will outgrow their allergy by the age of...

Fact 1: Over a third of food allergy reactions happen after the first known oral...

The reason why some people are affected by allergies while others are not begins in their genes. Allergies are passed down from generation to...

Here’s a tip that might someday save your life, or that of a loved one: two to four times a year, review the proper way to use your epinephrine...

Lactose intolerance is the inability to process lactose, a sugar found in milk, caused by the lack of a needed enzyme. Those with lactose...

Food Allergen Labeling and Consumer Protection Act (FALCPA)

An important part of peanut allergy awareness was enacted on January 1, 2006...

Tomato allergies are very rare. They are a "type 1 allergy," which means a contact allergy. When a person with this type of allergy touches a...

Milk allergies are becoming more common, especially in babies and small children. There is some confusion about what is an allergic reaction and...

Recognizing food allergy in babies or toddlers is not always easy, but there are specific risk factors and signs that parents and other caregivers...

Burlap bags are often used to store and ship coffee beans, potatoes, rice, seeds, nuts, and peanuts. They can be one of the disguised...

People with pollen allergies need to stay away from some foods. If you have allergic rhinitis in the spring or fall, you may not realize that you...

Of course, everyone knows that if you have a peanut allergy that you should avoid peanuts, peanut butter, peanut butter cookies and foods that...

Eating at a nut-free lunch table in school is a safety precaution that causes some students to feel isolated from their peers. Unfortunately,...