I NEED HELP!!!!!!!!!!!!!!!

Posted on: Fri, 09/05/2003 - 11:14am
JOHNTYLERS MOM's picture
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Joined: 08/29/2001 - 09:00

I know many of you responded to my post under the new member section but things have gotten pretty bad! My sons school just does not get it! There is peanut butter everywhere! As many of you know the second day of school all the kids were given buckeye candy (peanut butter rolled in cho.) to kick off the Ohio State Buckeye football season. That is 850 children walking the halls with peanut butter candy!!!!!!! The school nurse is a total joke. She tried to get me to sign a form called the "major minor plan for food allergys". Basically giving her the right to decide if the reaction warrents an epi-pen or not! I tried to tell her in my sons situation there is no minor reaction! Its all or none. I have cried every day this week praying that my son will be OK. My sons physician told me not to sign that form and he is in the process of writing the school a letter about the serious nature of PA. Where do I go from here? Some of you know about student rights and the laws and I NEED YOU NOW!!!!!

Posted on: Fri, 09/05/2003 - 11:41am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

I dont know much about the laws, there is a good site with lots of 504 info, I cant remember it offhand but I will raise my 504 thread in this forum for you.
If you are really this concerned maybe you should consider keeping him home until it gets straightened out.
Good luck.

Posted on: Fri, 09/05/2003 - 11:45am
momma2boys's picture
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Joined: 03/14/2003 - 09:00

The site is [url="http://www.allergysupport.org"]www.allergysupport.org[/url]

Posted on: Fri, 09/05/2003 - 12:46pm
MommaBear's picture
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Quote:Originally posted by JOHNTYLERS MOM:
[b]She tried to get me to sign a form called the "major minor plan for food allergys". Basically giving her the right to decide if the reaction warrents an epi-pen or not! I tried to tell her in my sons situation there is no minor reaction! Its all or none. [/b]
Is this the form (major/minor) you are referring to?
[url="http://www.foodallergy.org/actionplan.pdf"]http://www.foodallergy.org/actionplan.pdf[/url]
[This message has been edited by MommaBear (edited September 05, 2003).]

Posted on: Fri, 09/05/2003 - 12:55pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

As a licensed RN, ALL my actions (or lack of) related to my profession have to agree with my nurse practice act, appropriate education, training, and laws pertaining to or governing my actions. And be within my scope of practice. Regardless of whom the request/order comes from. Of course, critical thinking weaves throughout the course of the above, but is largely based upon and related to the same.

Posted on: Fri, 09/05/2003 - 1:50pm
Dawn's picture
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Joined: 02/22/1999 - 09:00

MommaBear, we have been down the school nurse road before, you and I, and I think that you do not realize or are intentionally ignoring the fact that you seem to be either more intelligent, more compassionate, or both or whatever, than many school nurses. Your philosophies, ideas, tenents, whatever you would call them (common decency?!) are wonderful, but not everyone lives by them. Just because a nurse is [b]supposed[/b] to follow certain protocol, procedure, what-have-you, does [b]not[/b] mean they do! I have met school nurses who just DO NOT GET IT. I have met doctors who do not get it. I have dear friends who are doctors (albeit not allergists) who don't understand anaphylaxis. There are some nurses who will not listen to a mere layperson who might know more about pa than she/he does. If my childrens' school had a nurse, I would want her to be you, methinks.
JohnTyler'sMom, I am so sorry you are going through this. It has got to be truly frightening. I think you are on the right path. Do NOT sign that ridiculous form, wait for your dr's letter, and stick with this site and Rhonda's site regarding 504's. You will gain extremely valuable info that I don't think you can get anywhere else.
I'm sorry, but I forget which grade your son is in...is it 1st? Personally? (Not that you asked [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) I would seriously consider keeping my child out of school until they made some attempt at understanding the seriousness of this. I don't know what your work or stay-at-home situation is, but it sounds like there are a bunch of yahoos at his school and they are just not worth risking his life! I, myself have been very fortunate. My preparatory work was ugly, but then we moved, and it's been blissful ever since. So I do not speak from experience regarding a bad school situation. There are people here who have had bad experiences and will help you though, I'm sure.
Hang in there!!

Posted on: Fri, 09/05/2003 - 2:19pm
LaurensMom's picture
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Joined: 05/23/2001 - 09:00

I'm so sorry to hear all that you are going through!
Do you have a 504? If so, I strongly recommend getting a copy of FAANs School Food Allergy Program and as part of your 504, have each person in the the school, such as the 504 coordinator, the nurse, the principal, son's teacher and maybe even the superintendent, sign a paper stating they have read it (or at least sections of it you've highlighted). It is hard not to "get it" after reading it. We have relied heavily on this for training and I just can't say enough about it. Something about seeing it in black and white.
And, I agree with what Dawn said 100%. But don't forget, section 504 from the Americans with Disabilities Act states that "reasonable accomodations" must be made. Certainly what they have done is and what they are asking you to do is not reasonable accomodations. They're risking federal funding. You actually have the right to request a full-time nurse or a tutor for at-home paid for by the school if reasonable accomodations are not made. I had a friend who, with her attorney who now specializes in food allergy cases after all he's learned about food allergies, went this route until they worked things out with the school.
Seems you've got a bit of a battle ahead but you can do it. Wish I could be of some help. My heart aches for what you are feeling right now!
Let us know how things progress.
Andrea

Posted on: Fri, 09/05/2003 - 3:29pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by LaurensMom:
[b]
If so, I strongly recommend getting a copy of FAANs School Food Allergy Program and as part of your 504, have each person in the the school, such as the 504 coordinator, the nurse, the principal, son's teacher and maybe even the superintendent, sign a paper stating they have read it (or at least sections of it you've highlighted). It is hard not to "get it" after reading it. We have relied heavily on this for training and I just can't say enough about it. Something about seeing it in black and white.
[/b]
I posted the link to something from FAAN's site in one of my posts in this thread. I wondered if the form is the one JohnTyler's mom is referencing.
?

Posted on: Fri, 09/05/2003 - 3:39pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Dawn:
[b]MommaBear, we have been down the school nurse road before, you and I, and I think that you do not realize or are intentionally ignoring the fact that you seem to be either more intelligent, more compassionate, or both or whatever, than many school nurses. Your philosophies, ideas, tenents, whatever you would call them (common decency?!) are wonderful, but not everyone lives by them. Just because a nurse is [b]supposed[/b] to follow certain protocol, procedure, what-have-you, does [b]not[/b] mean they do! I have met school nurses who just DO NOT GET IT. I have met doctors who do not get it. I have dear friends who are doctors (albeit not allergists) who don't understand anaphylaxis. There are some nurses who will not listen to a mere layperson who might know more about pa than she/he does. If my childrens' school had a nurse, I would want her to be you, methinks.
[/b]
I couldn't think of a better compliment myself. (Except if you said "You are a wonderful mother".) [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
I completely understand your sentiment. In another thread, awhile back I was asked:
[i]"If you were a school nurse/or are a school nurse.
What would you do Mommabear if you were a school nurse?"[/i]
I responded:
[i]"Disclaimer: I am not offering advice in any manner or form.
I personally would be strongly influenced by
Any Professional Regulatory Bodies Governing my Profession.
The Position Statements of my Professional Organization.
The Nurse Practice Act Specific to my License.
Any Laws or Regulations Governing My Professional Practice and Actions.
Ethical and Moral Considerations Governing my Practice and Actions.
Policy, Procedure, Protocol and Standards of Care (also strongly influenced by the all of above)
(If none existed, I would request the existence of such (out of necessity) to be brought into being through appropriate channels.)
I also would:
Fullfill any Continuing Education Requirements that my employer, professional regulatory body, professional organization, or I deemed appropriate.
Carefully read my "Job Description" and examine for any conflict in all of the above. Also to delineate expectations on both sides of my terms of employment and to make sure any "technical" responsibilities were fullfilled. ie: health physical, licensure requirements, continuing education requirements, maintaining a "current license", etc."[/i]
Disclaimer: I am not offering advice in any manner or form
thread quotes taken from:
[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001008.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001008.html[/url]
Personally, I thought it was a [i]good[/i] thread. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

Posted on: Wed, 11/12/2003 - 9:47am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

reraising to coalesce and morph with some other threads in an attempt to brainstorm for JOHNTYLER'S MOM.
edit to correct a glaring spelling error i just couldn't ignore. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by MommaBear (edited November 12, 2003).]

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