I got the EpiPen and now....

Posted on: Fri, 07/21/2000 - 1:51pm
chasie's picture
Joined: 07/20/2000 - 09:00

I'm scaried to death. I was told to only use it if he was short of or stoped breathing. But my fear is, that I may not give it the right way or at the right time! I'm starting to fell so weird about all of this. I mean could I just be over reacting if his allergy dr. didn't give me one? I mean he has eating peanut stuff before and I haven't seen anything happen. His reactions seem to be real bad rashes on his bottom, and non stop watery like BM's. And he has had that since me was about 4 mths. I didn't breastfeed him so I don't know how peanut would mess w/ him at that age! I'm just starting to think that I'm the one, maybe cause I have been pushing for anwsers about him, they just tested real fast to shut me up! I just don't know what to do, I'm just really mean at this allergy dr. for not telling me anything! Thanks for leting me vent. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

Posted on: Sun, 07/23/2000 - 6:46am
Anonymous's picture
Anonymous (not verified)

I know how you feel! Sometimes I still feel like I am overreacting but then the picture of my childs last reaction appears in my head and I know that I am doing the right thing. My 4 year old son never had a severe reaction for a few years. We would try to sneak it to him but he always HATED peanuts/pb. He never actually swallowed a peanut anything but would always have terrible coughing/gagging attacks afterwards. I thought he was overly dramatic. Then a couple of months ago he took one bite of a peanut butter cracker, spit it out, and ran home screaming that his throat hurt and saliva was pouring from his mouth. Well, the pediatrician told us to stay away from peanuts but never mentioned tree nuts to us. Then about two months ago he ate three small pieces of cashews and experienced an anaphylactic reaction. I just wanted to tell you that not every reaction is the same. The medical evidence is that the next time may be worse then the last or better then the last. You never know! Don't be afraid to use the Epi. You will know when to if you trust your gut instincts! It is better to use it then not to. You can reverse the affects of the Epi but you can never reverse death!

Posted on: Sun, 07/23/2000 - 9:57am
redtruck's picture
Joined: 01/23/2000 - 09:00

Hi Chasie,
ditto to what Naomi said. better to use it than not use it. Use it at any sign of a anaphyalaxis and follow up with a visit to the emergency room. Dont wait til his eyes are all swollen and cant breath. Of course its a fine line, and i suppose if you see a minor hive or two and thats it, you may just want to go to the emergency room without injecting the epi, but if there are more clear signs, if in doubt, use the epi. keep it with him/you at all times, even if just going to the playground or for a walk.
And get a better allergist, one who will sit and talk to you about it and answer your questions. Our first one didnt say much, so we got another a month later and after the testing we sat and chatted for close to an hour with him about everything. Dont let them intimidate you, get one youre comfortable with!
P.S. you dont have to start a new topic everytime you want to post, just post a reply! No big deal, except those who didnt read your original post may not know the storyline!

Posted on: Sun, 07/23/2000 - 10:51am
Anonymous's picture
Anonymous (not verified)

Chasie, everything will be okay. You've already had some really good advice in this post. You'll be able to TRUST YOUR GUT INSTINCT. You will know. My son has had 3 reactions to peanut products - one at 18 months, very slight, the 2nd at 2-1/2 anaphylactic and the 3rd and most severe at just over 3 anaphylactic and almost died. The 1st time the epipen was administered by the dr at the medical centre right next door to us. The 2nd time, it was administered by my husband so I've never actually had to do it and I know you could get really worked up at the thought of having to do it, but I also think that it just clicks in your brain that this is something that has to be done. Also, we were never told that you administer epipen and then dial 911. That's really important. We learned this by our son almost dying. Trust your gut instinct. You will know when your child is reacting past the point of giving them a dose of benadryl and having symptoms disappear and when epipen is required. Believe me, YOU WILL KNOW. You've found the right site to ask questions and stuff but always remember, no matter what the advice, always trust yourself first and foremost. It is your child. I have carried an epipen around in my purse for what, 3 years now and I'll be doing it until I'm comfortable enough to let my son do it for himself. You will be okay and so will your child.

Posted on: Sun, 07/23/2000 - 12:29pm
chasie's picture
Joined: 07/20/2000 - 09:00

Thank you all for the info. What should I make sure to ask the dr. I have been reading and writting alot of stuff down. I just don't want to miss anything that I sould ask!
And how did ya'll get over the fear of letting your little ones go off with someone, say Dad or grandmothers ?

Posted on: Sun, 07/23/2000 - 3:52pm
Anonymous's picture
Anonymous (not verified)

Chasie, your last ? is REALLY good. I'm going to have to think really hard about it to try to give you an answer. As it is with me, my son has never really been anywhere without me until a birthday party recently where I knew absolutely everything was safe (it was at my best friend's and she has really educated herself re PA). Does your child's father and the grandparent in question know the possible severity of the allergy? Is there ANY doubt, that you can detect, in their minds about the potential severity of the allergy? I have one personal story that I have posted on this board and will post again later to you re this, but there simply has to be NO question in their minds WHATSOEVER about the allergy. Do you know what I mean? I will relate personal story later when I'm not so tired and can type better, but it is a really good question you've asked and I hope you get a lot of responses. I know that redtruck has suggested that you don't have to post each question on different threads, but this is a really GOOD question that perhaps requires separate posting. Best wishes.

Posted on: Sun, 07/23/2000 - 4:07pm
Anonymous's picture
Anonymous (not verified)

Chasie, I started a new thread on what I thought was your very GOOD question re the fear of letting your child go with their father and or grandmother. Please check it every once and awhile. I have not asked for e-mail notification on this one so I won't know when someone answers, but I'm hoping that you'll get some really useful feedback. I simply thought it was a really GOOD question and needed separate posting.

Posted on: Sun, 07/23/2000 - 4:21pm
Anonymous's picture
Anonymous (not verified)

Chasie, this is the personal story that I told you I would relate at a later posting. My son has had 3 reactions to peanut products each reaction worse with less exposure to peanut products. His 2nd and 3rd reactions were anaphylactic and his 3rd reaction he almost died. His 1st reaction was very mild, hives and lips turning blue. By the time his father and I got him to the hospital, the symptoms had almost gone away but they were able to tell us at the hospital that peanuts were the likely cause of this because it was the only new thing he had eaten that day at 18 months old. I was prescribed an epipen jr. immediately. His 2nd reaction was at 2-1/2 and his father was not here to see it. He went into anaphylactic shock and since I live right beside the medical centre, they administered the epipen there and benadryl and watched him for an hour. Both his father and his grandmother questioned this. Are you sure? On and on. They did not believe that he was this severely allergic to peanuts. That is why I have asked you the questions I asked you in an above post. For his 3rd reaction, where he went into anaphylactic shock, I knew RIGHT AWAY that there was something wrong, but his father refused to believe it. He was vomiting because he had eaten too much candy. He was coughing because he was running around too much (asthmatic). His list went on and on, past the point of discussion and where our child should really have been administered the epipen. I don't know what it took, but I finally got his father to administer the epipen. Meanwhile, I could KILL myself for having let it go on as long as it did because I tell you, and this is why I've told you that you will know and to trust your instinct, I KNEW THE MINUTE THE PRODUCT TOUCHED HIS LIPS, HE WAS GOING INTO ANAPHYLACTIC SHOCK! Then, the doctor had not told us to use the epipen and then dial 911. So, I finally got his father to administer epipen and we didn't know to dial 911. 20 minutes later he started to "go" again at which time I got him to the hospital. My husband came home with our daughter so he still has to experience the actual sight of his son at the hospital (which I pray he won't), but until it finally clicked in his head and he had to administer the epipen, he did not believe that our son was severely allergic to peanuts! Now, of course, his mother may still question it, I am not sure. I could trust my husband now, should we be in the situation where he would be taking Jesse from me every couple of weeks or whatever to be really careful because of that experience, but before that, no way. He simply did not get it. I'm wondering if there is some literature or something that you could give them that would have it click for them. Or, people on this site have highly recommended a video called "It Only Takes One Bite". Perhaps if people that your child is going to be staying with with or without you saw it, it would help. Again, I have posted this as a separate question and I'm really hoping that you get good response despite my name being on the title post. I think now you'll understand why I asked you the questions I asked you above. I know for my husband, he actually had to see his son almost die before he believed what we had been told and what I had told him after his 2nd reaction. Great, eh? Best wishes as you deal with this, but again, as I've said in many posts to you now, you and your child will be fine!

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