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Posted on: Thu, 01/22/2004 - 8:02am
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Anonymous (not verified)

SF, sorry, I just had to ask for clarification and I well understand your answer. Sorry, I didn't mean to offend, especially in a thread that has gone so awray (so much so that I can't even spell the word).
California Mom, I believe The Yeast Connection book, although I'm not 100% sure, although deals with Chronic Fatique Syndrome and I'm like you, I'm not sure if Epstein Barr isn't one and the same or an extenstion thereof. Just like Fibromyalgia is an extension and inclusion (if that makes sense) of Chronic Fatique Syndrome.
So, SF, no, sorry, I just had to ask for me, personally, but I didn't mean to sound as though I was coming down on you or anything for suggesting the book to sillyfeline. It is a *good* book IMHO which might actually be helpful to her.
sillyfeline, I don't know if you're still reading or not because I haven't been following the board in the last couple of days (sick myself) but I understand, as best as I can, with a different set of health problems than you have, but problems regardless, how betrayed by your body you must feel. I totally understand that. This week I had to explain my body's betrayal yet again to my two children. Some days yes, I would love to be shot and put out of my misery. I had to explain to the kids why Mommy couldn't help with homework this week or why a *nicer* dinner we were supposed to have last night was being made tonight instead (and only hopefully last night when I told them). It's bloody hard.
I'm not dealing with multiple food allergies. I'm dealing with the litany of complaints I've posted about in Off Topic and a heckuva lot of other stuff too. If you'd like to e-mail me, if you think I could help in any way, contact me at [email]cin42ca@hotmail.com[/email]
In the two threads that I read, I really honestly say people simply trying to help you. But, as I posted in one of them, I could also see the SNAP that happened with you. I understand that. I've done that. Everyone here knows I've done that.
We are, I think, a very accepting lot here and we can all have our bad days and still continue to receive support and everything else that is so great here. People chalk it up to what it is, you having a bad day, week, month or he** even year.
I'd like to say, don't turn your backs on the people that are so willing to help you, even if they are saying things that you feel you're heard a million times.
One night, a few years ago, I was up in the middle of the night in pain. I e-mailed one member of PA.com and I e-mailed another friend of mine. I told them both what was going on with me and why I was up at 3:00 a.m. writing to them (and probably posting on PA.com). Do you know the next morning, I received e-mails from both of them suggesting to me what was possibly *wrong* with me? And you know what? They were right!
I'm not sure in the anti-depressant/anti-anxiety meds thread whether there are any PA adults taking meds because of their PA. I'm not even sure if any of the PA parents were taking the meds as a direct result of their child's PA.
I'd talk to your doctor and maybe see, aside from sorting out the food problem (I'm not sure what word to use that would be okay for you), if you could also take some type of anti-depressant/anti-anxiety med to get you over what seems to be this incredible hurdle.
As williamsmummy posted, her child is dealing with a long list of allergies. He's still young. Should she tell him to run out on the road and get hit by a car, that life's not worth living? NO!
I also understand pity parties (haven't we had one here before - I'll start a thread if not, because I feel like having one when I'm not pretending to be on a beach right now) and that's cool too.
But it's not resolving anything for you.
I do beg to differ that a well known allergist wouldn't want a *freak* (your words) with adult on-set allergies. I think it might actually look *good* on their resume, don't know why. Personally, I don't think you're a *freak*. I think your body has betrayed you and you're rightfully angry.
Please let us help. Honestly. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------

Posted on: Sat, 01/24/2004 - 4:38am
andromeda's picture
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Joined: 01/24/2004 - 09:00

Sillyfeline, I'm just now newly registered at peanutallergy.com because I wanted to share my story with you in the hopes that you might know that (1) you are not alone in adult-onset peanut and other allergies, and (2) frustrated as I also get at times, I do maintain strong hope for getting better in the future. If you are open to *nontraditional* medical approaches and opinions (which I hope you are since you have also had no luck with traditional doctors and allergists), then please do read on.
My food allergies (peanut most severely; also now developing stronger allergies to wheat and soy) started just under a year ago when I was 30, after *treatment* for severe acid reflux with a certain medication that blocks the stomach from producing acid. Only later, through online research after developing the anaphylactic peanut allergy, did I come to understand that in stopping my stomach from producing acid, I was allowing undigested food particles into my bloodstream, which my immune system then identified as *allergen* and launched a strong attack against. (why has the human body even developed an immune response that threatens the life of the human??? seems very strange in a survival-of-the-species sort of way... ;-) ) I stopped the *medicine* immediately. Despite these increasingly severe reactions to peanut in particular, though, my western-thinking regular doctor and allergist have remained skeptical as to the cause and offered NO HELP whatsoever. They refuse to believe this medicine could possibly be the cause of my peanut allergy; they even refuse to acknowledge my allergy exists as I've tested negative on both the skin test and blood test. (though I'm beginning to understand that this may be because I've got an IgG reaction, not the traditional IgE reaction...anyone out there clear on this?)
Anyway, sorry for the rambling, but I am hoping my story will help you too. After being totally frustrated with my doctors, who now want me to go in for an appointment where I eat peanut and they watch me react - NOT LIKELY - I went in search of other courses of action for help. What I have found could be construed as off-the-wall and pretty radical, and I myself have only just begun to follow their lessons for treatment, but I truly hope you may find some help AND HOPE in these resources as well. I will break down months of online research and book reading for you here:
1. Allergies are the symptom and not the cause; the underlying cause could be any of a number of things often tied to colon and liver health, including overgrowth of candida yeast in the colon, saturation of toxins in the liver, and undergrowth of "friendly" bacteria in the colon. There may be other causes as well (reaction to some medications, long treatment with antibiotics), but these I have found to be the most commonly documented.
2. If you can buy that, then I recommend finding yourself a naturopathic physician - a registered ND will be able to run some tests for you to determine the cause of your troubles (for me - acid medication troubles combined with almost no "flora" in the colon, leading to "leaky gut syndrome"; more down below) He or she will also offer advice for treatment. For a list of available NDs in New York, try here:
[url="http://www.nyanp.org/main/listing/index.php"]http://www.nyanp.org/main/listing/index.php[/url]
Naturopaths look at the whole person and offer dietary advice, herbal treatments, homeopathic remedies, and other treatments (some swear by NAET allergy elimination techniques, but I remain skeptical. Ask the ND about it.)
One note here - yes it's more money and yes it's more doctors, but if you can commit yourself to wanting to at least try to reverse your increasing reactions, then this is the way I would recommend to do it.
3. Leaky Gut Syndrome - sounds nasty, but what it really means is that undigested food particles are crossing the intestine barriers and getting into the bloodstream. Many online resources exist here; do a web search, and especially go to the yahoo leaky gut support group at:
[url="http://health.groups.yahoo.com/group/LeakyGut/messages/1"]http://health.groups.yahoo.com/group/LeakyGut/messages/1[/url]
You can read the messages without becoming a member; they've got tons of great advice on foods to eat, foods not to eat, and what supplements have helped people control their allergic reactions. I myself am now following a dietary and herbal supplement protocol outlined by Gloria Gilbere ND in her book "I was poisoned by my body." This I got from amazon.com for like $15. I've only just started the last couple of weeks, and I expect it to be at least several months of recovery, but the sooner one starts, the sooner one can get better.
4. Some people have had good luck controlling allergy symptoms with acupuncture; I haven't tried it yet myself, but I just wanted to pass that along.
I feel I've gone on long enough here; some of this may seem radical but really, I do feel radical is what's needed in our situations. I hope you are able to find help in one of these resources, as I believe I have; first and foremost, though, I hope that you are able to find interest in helping yourself. There can be a brighter future for you out there, but of course it's up to you to take action and make it.
Best of luck to you, Sillyfeline -
Andromeda

Posted on: Sat, 01/24/2004 - 8:04am
cathlina's picture
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Joined: 06/29/2001 - 09:00

Silly Feline:
At around age 27, I, too, developed multiple food allergies.
About a year later, I had my gallbladder out and the increase in allergies stopped.
I have seen other people post on here whose food allergies also started around the time they had gallbladder problems.
The liver etc. has a lot to do with allergies...it creates enzymes etc. that break down food proteins so they are not absorbed into your blood stream through your intestine.
Anyway, it might be worth looking in to.
At the time, I couldn't tolerate peanuts, peas, coconut, peaches, black pepper, tomatoes, berries.
I am no longer allergic to peaches, black pepper, coconut and the tomatoes.

Posted on: Sat, 01/24/2004 - 8:10am
cathlina's picture
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Joined: 06/29/2001 - 09:00

Silly Feline:
At around age 27, I, too, developed multiple food allergies.
About a year later, I had my gallbladder out and the increase in allergies stopped.
I have seen other people post on here whose food allergies also started around the time they had gallbladder problems.
The liver etc. has a lot to do with allergies...it creates enzymes etc. that break down food proteins so they are not absorbed into your blood stream through your intestine.
Anyway, it might be worth looking in to.
At the time, I couldn't tolerate peanuts, peas, coconut, peaches, black pepper, tomatoes, berries.
I am no longer allergic to peaches, black pepper, coconut and the tomatoes.

Posted on: Fri, 02/20/2004 - 10:22am
Sandy's picture
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Joined: 05/27/2002 - 09:00

Sillyfeline,
I am so sorry to hear you are feeling terrible. I know what you are going through.
Your post WAS ME!! I went down to 91lbs. I started to become allergic to many foods very quicky, and after 8 months I was only able to eat BEEF, RICE, and BROCCOLI. Nothing else!! My doctors, friends, family, thought I was crazy also.
I started to take N.A.E.T. treatments from a Naturalpath dr. Withing days, I was able to eat an "Egg". It doesn't sound like such a big deal to most people, but It was like eating an icecream sundae for me!! NAET introduces foods back to you "one at a time". and it works! Within 3 months I was off all my puffers, and was able to eat many foods again.
What is happening to you is your immune system is braking down, and it reacts to anything that you want to eat.
Please, check out naet. It saved my life, and my sanity. Email me if you want. [email]hockey01@sympatico.ca[/email]
P.S. What are your reactions you get when you eat the foods?

Posted on: Sat, 02/21/2004 - 11:07am
sillyfeline's picture
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Joined: 03/28/2001 - 09:00

I came back in after an e-mail from Sandy asked me to read her post, but the truth is I'm really not comfy here anymore.
I know it's not my gallbladder, because that was removed in 1993 and I had no food allergies at all until 1996.
And I know I'm depressed. I have always been depressed. I am a double depressive, have been since childhood, and there's nothing they can do about that either. I'm allergic to every antibiotic and psych med ever given to me, and couldn't even tolerate the anesthesia for ECT or post-surgical muscle relaxants. I tried treatment for about a decade, and exhausted all options. My system just isn't medication friendly, never was (drug allergies since infancy).
As for more alternative doctors, that would be nice. But I have borrowed more money already than anyone ever should have lent me. My insurance company denied all appeals and paid absolutely nothing toward my back surgery. My medical expenses were more than my incomelast year, and I have no family or friends to help. I just can't lay out anything out of pocket anymore; I have noplace left to borrow from. My insurance company covers my current allergist with a $40 co-pay, and my allergy meds with a $50 copay. Nothing at all toward anything more. And I work 2 jobs to almost make a living without the full cost of surgery on 3 disks.
I did have accupuncture when I was 21 for something else tho. I was chronically ill from what turned out to be a carbon monoxide leak in my home. I was going for the sinus problems and the vertigo I was having. One evening I went in wheezing (didn't know I had a peanut allergy yet and it was developing). The symptoms did get a little better from the treatment. Unfortunately, the cost of accupuncture is prohibitive.
The cost of everything, it seems, is prohibitive. I'm just trying to keep myself fed and housed and pay off my surgery and rehab costs, with inconsistent success. I wish I had the money for other routes; I just don't. But thank you for not further battering me down with the same thing again and again.
At this point, I am avoiding all nuts, all legumes (including peanuts, soybeans, peas, beans), eggs, wheat, dairy, beef, sweet potatoes, white potatoes, tomatoes, carrots, apples, oranges, coffee, wine, and I'm testing positive to a few things I never ate before (turkey, cherries) which doesn't make sense. I've been lucky enough to sidestep the meds problems the last few months. The only perk to all this is the weight loss; at least they stopped nagging about that. I don't know. It's a catch-22: it seems I'll never be well enough to afford the doctors to get well.

Posted on: Mon, 02/23/2004 - 10:49am
deegann's picture
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Joined: 07/27/2003 - 09:00

.
[This message has been edited by deegann (edited March 15, 2004).]

Posted on: Fri, 02/27/2004 - 1:56pm
andromeda's picture
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Joined: 01/24/2004 - 09:00

sillyfeline, i was happy to see you back on the boards again - your posts in this thread have really affected me and i was quite worried. i'm so sorry you've had such a difficult time, and can only send my hope that your road from here will be one of recovery and improvement. also, i can empathize completely with your money troubles - i'm paying off three years of graduate school (and three lost years of any income whatsoever), and barely breaking even every month now. i do have some thoughts for you, though -
one, any possibility of changing your health insurance to a plan offering better coverage? i'm not sure if you have a choice for which health plan you have (if your work is paying or not), but it sounds like your copayments are very high and your benefits are very low. it may be that depending on how often you are paying these copayments you could get yourself some better coverage for a similar amount every month. (maybe research at webmd.com; i found some decently-priced individual health insurance with blue cross there a few years ago, when i wasn't working.)
two, i'm interested to know what you are able to eat, and what if anything you enjoy eating (sometimes it's better to focus on the positive side?). my diet right now is also extremely restricted, but i try to enjoy what few tastes and pleasures i can [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
three, it could be that your increasing allergies are a result of undigested foods passing into your bloodstream; i know this is what is happening to me, and over the last month i've been successful in at least not *adding* any new allergies to my list. i've done this by supplementing my diet with digestive enzymes and apple cider vinegar at every meal (to help make sure i'm breaking down all my food), and through taking some "good gut flora" acidophilus every day. is there any medicine you are on or protocol you are following from after having your gall bladder removed? i don't know much about the role the gall bladder plays in digestion, but it must do something; what did your doctors tell you?
i am interested in hearing more from you, if only to know that you are still with us [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] adult-onset allergies are extremely difficult to deal with; it helps to know that we're not crazy or alone.
do take care of yourself,
andromeda

Posted on: Sun, 02/29/2004 - 1:50am
sillyfeline's picture
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Joined: 03/28/2001 - 09:00

I have no say whatsoever about my insurance coverage. I was told by multiple doctors that it is unsafe to take any supplements BECAUSE of the allergies, i.e. can't have cider vinegar for the apple allergy, can't have yogurt for the dairy allergy, can't have vitamin e for the soy allergy, can't have garlic supplement for sulfa allergy, blah blah blah.

Posted on: Tue, 03/09/2004 - 12:06am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Dear Sillyfeline,
I am truly sorry about what you're going through.
I think it must be so much harder to develop allergies as an adult than to have always had them as a child...
I can relate (believe me I know it's just a tiny bit) to your situation. Fifteen years ago my husband inexplicably developed allergies to all foods. I mean all foods. He didn't have anaphalaxis, but he would develop horrible hives and itching. His allergist prescribed a lamb and rice only diet, and then he could add one thing to his diet a week. (I mean one thing, like a tomato...) Nothing helped. It was such a horrible period for both of us. I felt guilty that I could eat anything, and my husband was so miserable..not a happy time.... Then, out of the blue, as a 30 year old, he came down with a bad case of chicken pox...After his illness, his food allergies disappeared. We think that somehow this caused his immune system to kick back in (correctly) and he never had a problem with food after his illness...
The Doctors never could explain what happened...To this day they look at us like we are crazy when we try to explain this period.
A few years ago I met Dr. Sampson at a Food Allergy meeting. I asked him what would be the chance that my son, who is extremely PA, could outgrow his peanut allergy? He shook his head and said "highly unlikely, highly unlikely." When he saw that I had tears in my eyes, he very quickly said "but remember...there is always hope."
I know I can't possibly know what you're going through, but if you can, please remember that there is always hope. One does not know the future...Who would have thought that my husband would be ok now with his food allergies? You do need to find validation for your real medical problem, and I think you can find that here. I hope that I don't sound cavalier about your condition, or am trying to give you unwanted advice. But I do think that there is always hope. I hope you get the good medical attention that you deserve. We are all rooting for you here and want the best for you.
Sincerely,
KD

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