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Posted on: Mon, 01/19/2004 - 3:59am
researching mom's picture
Joined: 07/06/2003 - 09:00

Please know that you are not alone. I understand how difficult this is because I am currently nusing my 18 month old son and have to follow his very limited diet. He has over 20 known food allergies and probably alot more.He is also allergic to latex. He is so allergic he reacts to the special amino acid formulas Neocate and Elecare. I can't tell you how many times I would go to the grocery store and wander the aisles and come home in tears.Everything I would give him he would become allergic to. I have struggled very hard to understand why this was happening and believe me one day I plan on writting a book about my experiences and what I have learned. Along the way I have met people like you or who know someone who as an adult has developed severe food allergies .Factors I believe that may play a part in the development of allergies besides a genetic component are antibiotics, vaccinations, steroids, diet, additives in foods, stress,overuse of antacids and more.A great book I just read by a truly outstanding doctor is "Detoxification and Healing- The key to Optimal Health" by Sidney MacDonald Baker M.D. (the new revised edition , copyright 2004).Hang in there-never give up !!!
[This message has been edited by researching mom (edited January 19, 2004).]

Posted on: Mon, 01/19/2004 - 4:41am
nancy023's picture
Joined: 12/12/2002 - 09:00

Prayers coming your way, sillyfeline, whether you are or are not the religious type.
My three year old practically lives on oatmeal cookies made with oat flour, oats, and dairy free margarine; hamburgers (no bun) and vitamins. He either cannot or will not eat any of the foods on your list. Tell me if you would like the cookie recipe.

Posted on: Mon, 01/19/2004 - 5:37am
MommaBear's picture
Joined: 09/23/2002 - 09:00

Quote:Originally posted by williamsmummy:
I met an adult with many more IGE allergies than you, a young woman who grew up to develop allergies the year she started uni, a whole childhood without any allergies , and boom! anaphylactic to many ordinary foods. But there she was in the houses of parliment lobbying MPs, which I may add was full of foods at the buffet that all had the potential to kill her.
I hoped that day , that my son would grow up to be like this girl.
A true fighter, someone who would grasp life and get the most he could out of it.
I wish you luck sweetie , I really do, but sometimes you just have to help yourself.

Posted on: Mon, 01/19/2004 - 11:25am
Anonymous's picture
Anonymous (not verified)

SF, sorry, was going to ask earlier, restrained myself for whatever reason, will ask now. Do you believe that food sensitivities and food allergies are one and the same? Or, from what sillyfeline has posted do you think that what she has posted as being allergic to (foods) are actually sensitivities instead?
To extend that further and only so I can be really clear in my mind, do you consider PA to be a food sensitivity or a food allergy?
BTW, I do understand where you're coming from and did read the book 20+ years ago, but as I said in your book thread, although the book may help people with a host of health problems, I don't believe it can help with PA. I'm not even clear that it could help with any of the other foods that sillyfeline has mentioned.
Also, I did mention something about this within the last few days on the board somewhere (but who knows where with Anthony LaPaglia haunting my brain [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] ) that I had a friend who was not allergic to wheat, but had a lot of health problems associated with her eating wheat. I can't remember what health problems they were even. But I remember her going on her wheat free diet. This was in the early 1990's and it is somehow connected to the same theories in The Yeast Connection.
But again, that's talking food sensitivities, not food allergies. As far as I could tell from what has been posted, sillyfeline is ALLERGIC to the foods she posted about.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 01/19/2004 - 6:01pm
MommaBear's picture
Joined: 09/23/2002 - 09:00

Quote:Originally posted by Alternative to Mainstream:
[b]Also, I did mention something about this within the last few days on the board somewhere [/b]

Posted on: Tue, 01/20/2004 - 4:34am
SF's picture
Joined: 06/06/2002 - 09:00

Alternative To Mainstream:NO!! I do not believe that food sensitivities and food allergies are one and the same.
PA is an allergy!
I mentioned the book to help sillyfeline since he/she sounds so desperate and sad...just trying to give another option, I think the book has recipes and possibly other books or contacts listed...
And yes, the book does discuss the foods that sillyfeline has mentioned, eggs, wheat, fruits, sugars etc.
Just trying to help...

Posted on: Tue, 01/20/2004 - 11:31am
sillyfeline's picture
Joined: 03/28/2001 - 09:00

i keep coming back out of desperation and a lack of self-control. i do feel a bit safer knowing erik will not be bothering me further. more doctors is not an option, period. if you don't like that, then ignore me. i have 30k in medical debt from this year and limited mobility and ive already gone that road both in the city and the suburbs. i have a doctor already and no means to keep torturing myself with others (my case is so unusual most just call me crazy). i had no food allergies at all until i was 21. i am 29 now and have over a dozen, 6 in the last couple months alone. its already cost me 30lbs and a massive digestive failure this time around. at this point, its peanuts, tree nuts, soybeans, eggs, wheat, all dairy, beef, apples, orange, coconut, carrots, peas, sweet potatoes. probly a couple i dont know and a couple i forgot to name. i go back for more testing again this weekend. no one can explain the adult onset, the speed and number i'm accumulating them, or why the reactions have such variable onset and duration. i can't find any support groups that aren't for parents (which is a very diff set of concerns) or any vaccine studies for adults that don't require induced anaphylaxis. as it is im commuting 40 miles without a car to see the only good allergist i found in all that trying. i should just shut up and go away probly, but i have allergic reactions pretty much every day no matter what i eat. last time that happened i stopped eating althogether unless i was able to be with someone (which really isnt often and with delays that long, really wouldnt help much)and im trying not to do that again. im in the city that never made eye contact or spoke english and the truth is i dont even call ambulances cuz it takes at least half an hour to get one (cars wont pull over) and the wait in an ER is usually at least 12hrs at which point it's usually over and then i need another loan for the bill. i think if there is any hope at all, id need to magically have the money to move out of the city and poof, people who are willing to live with me and put up with the restrictions that come with it. it'll never happen. id like to believe that hope is out there but i imagine ill be on iv glucose by 35 and really i know people mean well by naming the names theyve seen in headlines but nobody wants a freaky adult case. i think i have the only allergist in the tristate area who even tried, and that was 2 years an 9 foods ago. shrug. he was the one that figured out the soybean. i carry everything he tells me to and do all the right things and im just a freaky case. there isnt really any way to "be safe" when u develop new allergies every week or so. shrug.

Posted on: Tue, 01/20/2004 - 2:19pm
California Mom's picture
Joined: 07/14/2000 - 09:00

sillyfeline, my heart truly goes out to you. It must be horrible to have such a huge number of foods that are causing severe reactions. I would be an absolute wreck. Could you possibly be having some medical problem (other than "just" food allergies) that is causing all of these problems? I don't know much about any of this, but I have heard of people developing serious food allergies when they have Chronic Fatigue Syndrome or Epstein Barr Virus (if they are not one in the same). I am sure you have probably checked that out already, considering how much medical care you have already gotten. Still, I figured it may be worth a mention.
I hope you will not carry a grudge against anyone who has tried to offer help and support, here. From reading through this thread I honestly do feel that each person who has responded has honestly only wanted the best for you. I think it must be human nature - when someone has a problem - to try to help make it better.
Take care of yourself, and please don't go away. I am worried about you and would like to know how you are doing.

Posted on: Tue, 01/20/2004 - 2:39pm
Jana R's picture
Joined: 02/09/1999 - 09:00

Hi Sillyfeline - you most certainly have a lot to shoulder right now. I'm glad you are continuing with a doctor you feel most comfortable with - I'm sorry it's such a pain to get to. I was wondering with my teen if any of the multiple meds he's on could cause depression - I just thought I'd mention that in case you wonder the same thing and you might want to ask you doctor about that. Yes, you definitely have a lot to be upset about (anybody would) but maybe you want to make sure that some of these meds might be contributing to your desperation. I suspect you wouldn't want to remove anything in your treatment regimen since it might make you feel even sicker but maybe knowing some (maybe rare) side effects might make coping with your feelings make more sense. (That probably made no sense!) I continue to support you in your quest for good health!

Posted on: Tue, 01/20/2004 - 11:43pm
k's picture
Joined: 09/22/2001 - 09:00

You seem to be totally overwhelmed and depressed. Which anyone could understand how this could happen under the circumstances. So...you gotta get yourself to a place where you can see a clearer future or at least have the energy to proceed forward. Talk to your doctor about being depressed and totally stressed out.
It seems this is as pressing as the rest at this time. It is hard to have hope and to generate the energy needed to deal with all of this, when you feel the way you do right now. So please just stop and get some help. This doesn't mean it's your fault. I am sure you know this. You just need to get to a place so you might have a more objective view.
So please, and I hope this helps some,,,just stop, pick up your phone, and call your doctor for help. You gotta start here. Depression makes everything a million times harder to deal with. There are two things going on here. Get help for the depression and strees first (by seeking help from your doctor) and the hope and stamina needed to address the other will follow. Believe this.


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