i cant take it anymore

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nobody knows what to think. i defy everything written on food allergies. now im up to 12, 6 just developing in the last few mos. my reactions sometimes have 12hr delays and linger in my system for several days. at this rate, i will be completely out of foods to eat by age 35. some months it happens a dozen times. happened today and may have cost me my job. i know theres nothing anyone can do and no one can even find reasons for the irregular reactions or acquisition. (im 29, for petes sake and had no severe food allergies as a child). i cant do it anymore and its not like theres any hope. i dont know what to do. i really just give up. one of these days itll just be fatal. i dont even know why i shared. there isnt any help out there. i defy all the common beliefs in the field and its not like anyone thinks adults are really worth treating in any meaningful research way anyhow. shrug.

oh, incidentally, continental arena in rutherford, nj sells unshelled peanuts at their concerts. just fyi.

On Jan 11, 2004

Hang in there. We all get discouraged at times. I know it isn't easy. My son is PA and I am sure he gets it from my side of the family. I had terrible ezcema as a child and am currently dealing with it again for the first time in 30 years. I can't believe it is back. I am also having other symptoms to indicate some kind of allergic reactions.

Let's hope the upcoming vaccine will help PA individuals. There is light at the end of the tunnel!

On Jan 11, 2004

Hi sillyfeline. I've been wondering about you - I remember your posts from a few months back. I'm so sorry to hear your situation is not improving. Please try to stay strong and keep seeking answers and support. Take care

------------------ Jana

[url="http://www.seattlefoodallergy.org"]www.seattlefoodallergy.org[/url]

On Jan 11, 2004

My heart goes out to you!!! Have you considered contacting the doctor's that are conducting the Tanox studies? Perhaps you can participate and get some protection from the injections...or perhaps your doctor can help figure out a way to prescribe it for you. Do you have asthma as well? I think that the US doctors can prescribe one or another of these medications that seem to inhibit the food allergic reactions...It seems that perhaps you it would be helpful to find a new allergist that really will take an interest in what is going on with you and be willing to "think outside the box", to find some way to help you!

On Jan 11, 2004

Know this is a long shot but have you had your B12 levels checked? I know of a friend who kept developing sensitvities and late reactions to many many foods and it turns out that she wasn't processing B12 and currently takes a shot once a month? or week? and can eat most foods again. She was sensitve to some type of eye drops that played into all this was happened 10 plus years ago.

Hope this helps and that you figure out what's trigging this situation of more allergies.

Blair

On Jan 11, 2004

I'm so sorry to hear you sound so sad today. Please stay strong. I don't know if it will help but here are some suggestions I thought of. Maybe you could look into Xolair, which is the anti-Ige drug that is approved for Asthma. Also, I've heard of people with multiple food allergies going on a rotation diet to try to prevent additional allergies. Maybe a new allergist could help. Or maybe even a counselor with experience with people with chronic illnesses.

On Jan 12, 2004

Hi SillyFeline! I too, was wondering how you have been since I hadn't seen your posts for so long. Sorry that you had another reaction and that your allergies are not improving. Do you see an allergist regularly? What are your food allergies? Have you tried any Alternative Medicine Doctors as well as Western Medical Doctors. What about seeing a Nutritionist? Sorry about so many questions but my DD 3 1/2 and myself have a lot of food allergies as well as PA/TNA. We see an Allergist, Alternative Medicine Doctors a Regular Medical Doctor and a Nutritionist about once a month - in addition to our Allergy Meds we also take Supplements and Vitamins. We have seen great improvement in our allergies and our health. You have other options if one Dr. isn't able to help you see if you can find someone who can. A lot of people that post here have children with food allergies but there are a lot of adults that have them as well. So we do understand and maybe we can offer you advise, ideas or whatever you need. I know that it can be very frustrating especially when you foods are limited and your hungry and want something different. You can always contact me at my e mail [email]toomanynuts@att.net[/email] and I'd be happy to give you information on the safe foods that we have found as well as Dr's and some supplements that may help. I like you have a hard time trusting manufactures and can get very frustrated with allergies and not finding safe foods. But I know that there are options and you will be okay! Stay safe and don't stay away from the boards for so long. Lots of people here care about you too!

On Jan 12, 2004

sillyfeline, please check your e-mail. The address listed in your profile.

And take care.

On Jan 12, 2004

Maybe if you try a new allergist? Some allergists do care about adults. Sounds like you've had some bad experiences. Good luck. Maybe someone on this site who lives in your area (NYC??) can recommend a good allergist for you.

On Jan 13, 2004

I've been to other allergists. Most are horrid and condescending and tell me that since I don't fit the paradigm it must not be happening. My allergist now is the only one who actually figured out the soy issue 2yrs ago. i commute to upstate to see him. NYC healthcare is unforgivably AWFUL. It's about money and fame and the standard of care is lower than I ever thought possible. The only person I've liked in this city in 4yrs of chronic illness and injury is my back surgeon. As for the studies, I've never heard of any that don't want to induce anaphylaxis, which I just won't consent to. And the other dozen allergies usually exclude me. At this point, I genuinely think some of my reactions may be IgG not IgE. And I think it IS hopeless. In the last 6mos alone, I've managed to develop allergies to egg, wheat, cheese, tomato, apple, orange, coconut, and sweet potato. Thats on top of the others (peanut, nuts, soybean, peas, carrots, etc). Almost all my reactions affect my breathing now, onset delays of up to 12hrs, and not completely passing for 5days. Often they just recur. After I had back surgery, I had an entire month of reactions followed by a raging unidentifiable stomach bug (and boy arent CT scan contrast dye reactions fun), and now a whole host of new allergies all at once. I don't remember being healthy anymore. Only upshot is I'm down almost 30lbs. I don't think new doctors are in any way helpful. I've been to WAY too many to believe that hope exists of a decent allergist in NYC. And I think I just burned the only thing in my house I could've eaten. I half hope this does just kill me.

On Jan 13, 2004

Could you get to Mount Sinai School of Medicine to see Dr. Sampson or Dr. Sicherer?

On Jan 13, 2004

Why bother?

On Jan 13, 2004

You guys do realize that they do not even see adults, right?

On Jan 13, 2004

There should be good allergists in NYC who see adults. I know there are several good allergists here in Toronto that see adults. Maybe try going to a hospital affiliated with the university (taeching hospital) as they may have younger and better trained allergists as well as older and more experienced allergists.

On Jan 14, 2004

I was not aware that Drs. Sampson and Sicherer don't see adults, but I'd bet they know someone good who does. Good people tend to know other good people.

I don't blame you for being frustrated, but please don't give up!

Amy

On Jan 14, 2004

I think doctor Sampson will see you even though you are an adult-- just explain your situation. You may have to wait several months for an appointment but it's worth. Like Going Nuts said, if Dr. Sampson will not see you (which I highly doubt) then he will definitely be able to refer you to someone.

On Jan 14, 2004

Maybe you've already seen this resource for allergists but you can search your state at [url="http://www.aaaai.org/physref/State.asp"]http://www.aaaai.org/physref/State.asp[/url] and enter food allergy or anaphylaxis for the specialty. It might be worth a call to some their offices to see if they have experience with adult onset anaphylaxis. Adult onset is certainly not unheard of and there must be physicians in a huge populous of NY that can treat you. I know it must be frustrating when you don't have the energy to persist but I know you can find wellness if you keep at it.

------------------ Jana

[url="http://www.seattlefoodallergy.org"]www.seattlefoodallergy.org[/url]

On Jan 14, 2004

I can't remember who, but there is at least one adult on this forum that sees Dr. Sampson. He may have children as the largest part of his practice, but, it isn't all of it.

sillyfeline, my sister also has delayed reactions - and like you they tend to last up to a week (occasionally longer). It not only is totally aggravating to be itching/swelling/whatever for such a long time - but with the delay in the reaction, it is also much harder to figure out when a *new* allergy pops up.

Many miles, and a boarder between us - but I really wish I could do something (anything) to help you.

On Jan 14, 2004

I don't know why you all seem so hell bent on me seeing more quacks. I more than exhausted the resources in this cesspool of a city 2 years ago. I'm not waiting months to pay money I can't afford to be told that the pediatric dept isnt for grown ups. THERE ARENT ANY ALLERGISTS HERE WHO I DIDNT TRY. HELP DOES NOT EXIST HERE. I HAD TO COMMUTE 40 MILES TO FIND SOMEONE GOOD. AND HE IS. Help does not exist. I have the epipens, the pills, the inhalers. What I don't have is any hope left. Theyre all just overpriced quacks and I cant spend any more time or money on their abuse. But it seems like nobody hears that. I don't know. Maybe I should just stop coming again. It doesn't seem to much matter.

On Jan 14, 2004

But hey, thanks for deciding that the only allergist who ever helped me at all must not be good. Cuz that was really helpful.

On Jan 14, 2004

You know what? I have tried everything and this place just makes me more upset. Everyone needs to believe that there is hope for everyone or they might see this as what could happen to them. So they blame; it must be my doc or something i didn't try, when the truth is it's all been done and there just is nothing. And now I just feel less understood and more isolated than ever. Reaching out is wrong. I need to learn to stop this.

On Jan 14, 2004

You sound very depressed. I know it must be very frustrating to have multiple food allergies, and to have them increasing. You almost have to grieve for the loss of your good health. Food isn't everything. You can still have a very full life. Even with a bland diet. There is a lot of hope for treatments in the next few years.

On Jan 14, 2004

Quote:

Originally posted by sillyfeline: [b]THERE ARENT ANY ALLERGISTS HERE WHO I DIDNT TRY. You know what? I have tried everything and this place just makes me more upset. So they blame; it must be my doc or something i didn't try, when the truth is it's all been done and there just is nothing. And now I just feel less understood and more isolated than ever. Reaching out is wrong. I need to learn to stop this.[/b]

You didn't try everything. Some people suggested you should try Dr Sampson (one even mentioned an adult friend of theirs went to him) but you said "why bother".

You said all allergists are quacks. Many of us have had very positive experiences with our allergists and we are just trying to encourage you. I don't think it will accomplish anything being hostile and blaming us and saying we don't understand you. We are all trying to help each other here.

Quote:

Originally posted by sillyfeline: [b]You know what? I have tried everything and this place just makes me more upset. Everyone needs to believe that there is hope for everyone or they might see this as what could happen to them. So they blame.[/b]

We are not blamong you for anything. We are just trying to help the best we can, yet you seem to blame us for trying. People here are trying their best to help and your comments will just duscourage others from posting in this thread. We are trying to help and I don't understand why you are upset with us. A positive attitude goes a long way to helping cope with life. Whne handed lemons, make lemonade.

[This message has been edited by erik (edited January 15, 2004).]

On Jan 15, 2004

You're in a really rough patch right now. It's so bad you can't even recognize that that are more than a dozen people who tried to think of something they could say to try to ease your desperation. I recall a few months ago that you felt the same way - that none of us had anything of merit to say in your particular situation. I think I understand now that you just need a place to vent and be heard - I will offer my support to you but I get it now that you don't desire any suggestions I can offer. It's been the experience of this bulletin board when someone posts, they are looking for ideas from others who have "been there". When someone says they "can't take it anymore" it is a natural response by others to offer ideas - so please try to understand where we are coming from and as we get to know you better, we will understand what you want us to say to you.

------------------ Jana

[url="http://www.seattlefoodallergy.org"]www.seattlefoodallergy.org[/url]

On Jan 18, 2004

i wish there were suggestions, but most, like erik just keep repeating how i should insist on seeing a pediatric specialist who wouldnt see me. sigh. people are so insensitive and dense sometimes. they refuse to even listen. this is helpful how?

On Jan 18, 2004

Have you tried looking outside on NYC? Maybe the enviroment you live in is contributing to these allergies. NYC has some strange things. I use to live there.

On Jan 18, 2004

Quote:

Originally posted by dmbb: [b]Could you get to Mount Sinai School of Medicine to see Dr. Sampson or Dr. Sicherer?[/b]

Quote:

Originally posted by sillyfeline: [b]Why bother?[/b]

Quote:

Originally posted by AnnaMarie: [b]I can't remember who, but there is at least one adult on this forum that sees Dr. Sampson. He may have children as the largest part of his practice, but, it isn't all of it.[/b]

Quote:

Originally posted by sillyfeline: [b]i wish there were suggestions, but most, like erik just keep repeating how i should insist on seeing a pediatric specialist who wouldnt see me. sigh. people are so insensitive and dense sometimes[/b]

I see. So we are all spending our valuable time trying to help you and all you can do is say that we are [b]so insensitive and dense[/b]. Would you have preferred that we had all ignored you and you had zero replies in this thread??? How do you think name calling will help you in your situation? I don't see how. All it will do is prevent anyone else from wanting to post suggestions to you as they will anticipate the possibility of a hostile response.

We really are trying to help you here, but I will refrain from posting further in this thread as my suggestions seem not to have helped. I hope others will be able to assist you in a better fashion and best wishes.

[This message has been edited by erik (edited January 18, 2004).]

On Jan 18, 2004

Okay, I just have to look at the list of allergens, just to figure it out inside my head and I'm doing it in the thread:-

egg, wheat, cheese, tomato, apple, orange, coconut, and sweet potato. (peanut, nuts, soybean, peas, carrots, etc).

What is the etc.?

If cheese, does that mean cheese only or milk really?

So most or all of the eight major allergens and although I don't know the cross-reactives very well, probably the others are cross-reactives.

Under Living with PA, I raised a question about the whole list of allergies people were dealing with. There has been a LOT of response in that thread (heck, sillyfeline, you may have even responded in it), and there are people dealing with a LOT of food allergies, not solely PA or PA/TNA here.

Stupid question again - when was the last time you had allergy testing done? I don't even know if you can test for every food on the planet or not or what groups of foods one tests for, my PA son has never "officially" been tested for PA.

sillyfeline, I honestly think that you received wonderful response in this thread. I also think that you kinda went SNAP in the thread somewhere. I only know because I've done the same thing in other threads. I was feeling whatever I was feeling - angry, vulnerable, depressed, upset and someone very kindly posted something but ONE word just set me off and I went SNAP and that was the end of it. And he**, it's not even me with the PA, it's my son. But SNAP and I'm outta here.

But what I have learned, and I did say this in your other thread, is that this is the ONLY place where I have found compassion, caring, encouragement, understanding and information. The ONLY place. Not in my *real* life. Chrikey, even in Off Topic, people show more concern (and all of the other qualities I mentioned) about whatever I post than I get from people in *real* life, even those who would/could/should be concerned (and all of the other qualities I mentioned).

This is a wonderful group of people and having just been through two months of personal he**, do you know where I came to find solace? PA.com. I know. I'm quite strange. I find comfort in coming here, either asking a question, helping someone out hopefully, or just entering a discussion.

Step back and take some time if you need it, certainly, or do leave PA.com forever, but please know that everyone here does care and we're all just trying our best to help one another out.

Personally, I suggest you move to Canada, socialized medicine and all where you can get treatment by top allergists here as well and not be out of pocket. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jan 19, 2004

Hello sillyfeline,

I have just sat down and listed all the foods my son is allergic to, and it came to the total of 15. Which is rather a lot IMO.

Shall I tell him now that its not worth living with? , That the doctors cant help him?

Tell him that its not worth bothering to find any good advice or support, because he is not going to grow out of most of his allergies, so its not worth the bother?

So, my child has my support, which you as an adult do not get, but.......... you DID get some advice and support, and even if it was not helpful IYO , it did show that others are thinking of you.

There is still a lot of problems for those with severe food intolerances , and there is a growing number of those with both types of food allergies. I do not have much experience with intolerance allergies, but one mistake with a food that you are intolerant too can take a long time to clear up any symptoms.

I met an adult with many more IGE allergies than you, a young woman who grew up to develop allergies the year she started uni, a whole childhood without any allergies , and boom! anaphylactic to many ordinary foods. But there she was in the houses of parliment lobbying MPs, which I may add was full of foods at the buffet that all had the potential to kill her. I hoped that day , that my son would grow up to be like this girl. A true fighter, someone who would grasp life and get the most he could out of it.

I wish you luck sweetie , I really do, but sometimes you just have to help yourself.

sarah

On Jan 19, 2004

Brilliant post, Sarah, just brilliant!!

On Jan 19, 2004

It is sad when someone feels helpless and sounds depressed and ready to give up.

Sillyfeline, check out [url="http://www.yeastconnection.com"]www.yeastconnection.com[/url] I posted about this under "Books"

Maybe this therepy will help you with your food sensitivities...just a thought

On Jan 19, 2004

Please know that you are not alone. I understand how difficult this is because I am currently nusing my 18 month old son and have to follow his very limited diet. He has over 20 known food allergies and probably alot more.He is also allergic to latex. He is so allergic he reacts to the special amino acid formulas Neocate and Elecare. I can't tell you how many times I would go to the grocery store and wander the aisles and come home in tears.Everything I would give him he would become allergic to. I have struggled very hard to understand why this was happening and believe me one day I plan on writting a book about my experiences and what I have learned. Along the way I have met people like you or who know someone who as an adult has developed severe food allergies .Factors I believe that may play a part in the development of allergies besides a genetic component are antibiotics, vaccinations, steroids, diet, additives in foods, stress,overuse of antacids and more.A great book I just read by a truly outstanding doctor is "Detoxification and Healing- The key to Optimal Health" by Sidney MacDonald Baker M.D. (the new revised edition , copyright 2004).Hang in there-never give up !!!

[This message has been edited by researching mom (edited January 19, 2004).]

On Jan 19, 2004

Prayers coming your way, sillyfeline, whether you are or are not the religious type.

My three year old practically lives on oatmeal cookies made with oat flour, oats, and dairy free margarine; hamburgers (no bun) and vitamins. He either cannot or will not eat any of the foods on your list. Tell me if you would like the cookie recipe.

On Jan 19, 2004

Quote:

Originally posted by williamsmummy: [b] I met an adult with many more IGE allergies than you, a young woman who grew up to develop allergies the year she started uni, a whole childhood without any allergies , and boom! anaphylactic to many ordinary foods. But there she was in the houses of parliment lobbying MPs, which I may add was full of foods at the buffet that all had the potential to kill her. I hoped that day , that my son would grow up to be like this girl. A true fighter, someone who would grasp life and get the most he could out of it.

I wish you luck sweetie , I really do, but sometimes you just have to help yourself.

[/b]

[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum23/HTML/000117.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum23/HTML/000117.html[/url]

On Jan 19, 2004

SF, sorry, was going to ask earlier, restrained myself for whatever reason, will ask now. Do you believe that food sensitivities and food allergies are one and the same? Or, from what sillyfeline has posted do you think that what she has posted as being allergic to (foods) are actually sensitivities instead?

To extend that further and only so I can be really clear in my mind, do you consider PA to be a food sensitivity or a food allergy?

BTW, I do understand where you're coming from and did read the book 20+ years ago, but as I said in your book thread, although the book may help people with a host of health problems, I don't believe it can help with PA. I'm not even clear that it could help with any of the other foods that sillyfeline has mentioned.

Also, I did mention something about this within the last few days on the board somewhere (but who knows where with Anthony LaPaglia haunting my brain [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] ) that I had a friend who was not allergic to wheat, but had a lot of health problems associated with her eating wheat. I can't remember what health problems they were even. But I remember her going on her wheat free diet. This was in the early 1990's and it is somehow connected to the same theories in The Yeast Connection.

But again, that's talking food sensitivities, not food allergies. As far as I could tell from what has been posted, sillyfeline is ALLERGIC to the foods she posted about.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------

On Jan 20, 2004

Quote:

Originally posted by Alternative to Mainstream: [b]Also, I did mention something about this within the last few days on the board somewhere [/b]

[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001289.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001289.html[/url]

On Jan 20, 2004

Alternative To Mainstream:NO!! I do not believe that food sensitivities and food allergies are one and the same.

PA is an allergy!

I mentioned the book to help sillyfeline since he/she sounds so desperate and sad...just trying to give another option, I think the book has recipes and possibly other books or contacts listed...

And yes, the book does discuss the foods that sillyfeline has mentioned, eggs, wheat, fruits, sugars etc.

Just trying to help...

On Jan 20, 2004

i keep coming back out of desperation and a lack of self-control. i do feel a bit safer knowing erik will not be bothering me further. more doctors is not an option, period. if you don't like that, then ignore me. i have 30k in medical debt from this year and limited mobility and ive already gone that road both in the city and the suburbs. i have a doctor already and no means to keep torturing myself with others (my case is so unusual most just call me crazy). i had no food allergies at all until i was 21. i am 29 now and have over a dozen, 6 in the last couple months alone. its already cost me 30lbs and a massive digestive failure this time around. at this point, its peanuts, tree nuts, soybeans, eggs, wheat, all dairy, beef, apples, orange, coconut, carrots, peas, sweet potatoes. probly a couple i dont know and a couple i forgot to name. i go back for more testing again this weekend. no one can explain the adult onset, the speed and number i'm accumulating them, or why the reactions have such variable onset and duration. i can't find any support groups that aren't for parents (which is a very diff set of concerns) or any vaccine studies for adults that don't require induced anaphylaxis. as it is im commuting 40 miles without a car to see the only good allergist i found in all that trying. i should just shut up and go away probly, but i have allergic reactions pretty much every day no matter what i eat. last time that happened i stopped eating althogether unless i was able to be with someone (which really isnt often and with delays that long, really wouldnt help much)and im trying not to do that again. im in the city that never made eye contact or spoke english and the truth is i dont even call ambulances cuz it takes at least half an hour to get one (cars wont pull over) and the wait in an ER is usually at least 12hrs at which point it's usually over and then i need another loan for the bill. i think if there is any hope at all, id need to magically have the money to move out of the city and poof, people who are willing to live with me and put up with the restrictions that come with it. it'll never happen. id like to believe that hope is out there but i imagine ill be on iv glucose by 35 and really i know people mean well by naming the names theyve seen in headlines but nobody wants a freaky adult case. i think i have the only allergist in the tristate area who even tried, and that was 2 years an 9 foods ago. shrug. he was the one that figured out the soybean. i carry everything he tells me to and do all the right things and im just a freaky case. there isnt really any way to "be safe" when u develop new allergies every week or so. shrug.

On Jan 20, 2004

sillyfeline, my heart truly goes out to you. It must be horrible to have such a huge number of foods that are causing severe reactions. I would be an absolute wreck. Could you possibly be having some medical problem (other than "just" food allergies) that is causing all of these problems? I don't know much about any of this, but I have heard of people developing serious food allergies when they have Chronic Fatigue Syndrome or Epstein Barr Virus (if they are not one in the same). I am sure you have probably checked that out already, considering how much medical care you have already gotten. Still, I figured it may be worth a mention.

I hope you will not carry a grudge against anyone who has tried to offer help and support, here. From reading through this thread I honestly do feel that each person who has responded has honestly only wanted the best for you. I think it must be human nature - when someone has a problem - to try to help make it better.

Take care of yourself, and please don't go away. I am worried about you and would like to know how you are doing.

HUGS}}}

Miriam

On Jan 20, 2004

Hi Sillyfeline - you most certainly have a lot to shoulder right now. I'm glad you are continuing with a doctor you feel most comfortable with - I'm sorry it's such a pain to get to. I was wondering with my teen if any of the multiple meds he's on could cause depression - I just thought I'd mention that in case you wonder the same thing and you might want to ask you doctor about that. Yes, you definitely have a lot to be upset about (anybody would) but maybe you want to make sure that some of these meds might be contributing to your desperation. I suspect you wouldn't want to remove anything in your treatment regimen since it might make you feel even sicker but maybe knowing some (maybe rare) side effects might make coping with your feelings make more sense. (That probably made no sense!) I continue to support you in your quest for good health!

------------------ Jana

[url="http://www.seattlefoodallergy.org"]www.seattlefoodallergy.org[/url]

On Jan 21, 2004

Sillyfeline:

You seem to be totally overwhelmed and depressed. Which anyone could understand how this could happen under the circumstances. So...you gotta get yourself to a place where you can see a clearer future or at least have the energy to proceed forward. Talk to your doctor about being depressed and totally stressed out.

It seems this is as pressing as the rest at this time. It is hard to have hope and to generate the energy needed to deal with all of this, when you feel the way you do right now. So please just stop and get some help. This doesn't mean it's your fault. I am sure you know this. You just need to get to a place so you might have a more objective view.

So please, and I hope this helps some,,,just stop, pick up your phone, and call your doctor for help. You gotta start here. Depression makes everything a million times harder to deal with. There are two things going on here. Get help for the depression and strees first (by seeking help from your doctor) and the hope and stamina needed to address the other will follow. Believe this.

K

On Jan 22, 2004

SF, sorry, I just had to ask for clarification and I well understand your answer. Sorry, I didn't mean to offend, especially in a thread that has gone so awray (so much so that I can't even spell the word).

California Mom, I believe The Yeast Connection book, although I'm not 100% sure, although deals with Chronic Fatique Syndrome and I'm like you, I'm not sure if Epstein Barr isn't one and the same or an extenstion thereof. Just like Fibromyalgia is an extension and inclusion (if that makes sense) of Chronic Fatique Syndrome.

So, SF, no, sorry, I just had to ask for me, personally, but I didn't mean to sound as though I was coming down on you or anything for suggesting the book to sillyfeline. It is a *good* book IMHO which might actually be helpful to her.

sillyfeline, I don't know if you're still reading or not because I haven't been following the board in the last couple of days (sick myself) but I understand, as best as I can, with a different set of health problems than you have, but problems regardless, how betrayed by your body you must feel. I totally understand that. This week I had to explain my body's betrayal yet again to my two children. Some days yes, I would love to be shot and put out of my misery. I had to explain to the kids why Mommy couldn't help with homework this week or why a *nicer* dinner we were supposed to have last night was being made tonight instead (and only hopefully last night when I told them). It's bloody hard.

I'm not dealing with multiple food allergies. I'm dealing with the litany of complaints I've posted about in Off Topic and a heckuva lot of other stuff too. If you'd like to e-mail me, if you think I could help in any way, contact me at [email]cin42ca@hotmail.com[/email]

In the two threads that I read, I really honestly say people simply trying to help you. But, as I posted in one of them, I could also see the SNAP that happened with you. I understand that. I've done that. Everyone here knows I've done that.

We are, I think, a very accepting lot here and we can all have our bad days and still continue to receive support and everything else that is so great here. People chalk it up to what it is, you having a bad day, week, month or he** even year.

I'd like to say, don't turn your backs on the people that are so willing to help you, even if they are saying things that you feel you're heard a million times.

One night, a few years ago, I was up in the middle of the night in pain. I e-mailed one member of PA.com and I e-mailed another friend of mine. I told them both what was going on with me and why I was up at 3:00 a.m. writing to them (and probably posting on PA.com). Do you know the next morning, I received e-mails from both of them suggesting to me what was possibly *wrong* with me? And you know what? They were right!

I'm not sure in the anti-depressant/anti-anxiety meds thread whether there are any PA adults taking meds because of their PA. I'm not even sure if any of the PA parents were taking the meds as a direct result of their child's PA.

I'd talk to your doctor and maybe see, aside from sorting out the food problem (I'm not sure what word to use that would be okay for you), if you could also take some type of anti-depressant/anti-anxiety med to get you over what seems to be this incredible hurdle.

As williamsmummy posted, her child is dealing with a long list of allergies. He's still young. Should she tell him to run out on the road and get hit by a car, that life's not worth living? NO!

I also understand pity parties (haven't we had one here before - I'll start a thread if not, because I feel like having one when I'm not pretending to be on a beach right now) and that's cool too.

But it's not resolving anything for you.

I do beg to differ that a well known allergist wouldn't want a *freak* (your words) with adult on-set allergies. I think it might actually look *good* on their resume, don't know why. Personally, I don't think you're a *freak*. I think your body has betrayed you and you're rightfully angry.

Please let us help. Honestly. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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On Jan 24, 2004

Sillyfeline, I'm just now newly registered at peanutallergy.com because I wanted to share my story with you in the hopes that you might know that (1) you are not alone in adult-onset peanut and other allergies, and (2) frustrated as I also get at times, I do maintain strong hope for getting better in the future. If you are open to *nontraditional* medical approaches and opinions (which I hope you are since you have also had no luck with traditional doctors and allergists), then please do read on.

My food allergies (peanut most severely; also now developing stronger allergies to wheat and soy) started just under a year ago when I was 30, after *treatment* for severe acid reflux with a certain medication that blocks the stomach from producing acid. Only later, through online research after developing the anaphylactic peanut allergy, did I come to understand that in stopping my stomach from producing acid, I was allowing undigested food particles into my bloodstream, which my immune system then identified as *allergen* and launched a strong attack against. (why has the human body even developed an immune response that threatens the life of the human??? seems very strange in a survival-of-the-species sort of way... ;-) ) I stopped the *medicine* immediately. Despite these increasingly severe reactions to peanut in particular, though, my western-thinking regular doctor and allergist have remained skeptical as to the cause and offered NO HELP whatsoever. They refuse to believe this medicine could possibly be the cause of my peanut allergy; they even refuse to acknowledge my allergy exists as I've tested negative on both the skin test and blood test. (though I'm beginning to understand that this may be because I've got an IgG reaction, not the traditional IgE reaction...anyone out there clear on this?)

Anyway, sorry for the rambling, but I am hoping my story will help you too. After being totally frustrated with my doctors, who now want me to go in for an appointment where I eat peanut and they watch me react - NOT LIKELY - I went in search of other courses of action for help. What I have found could be construed as off-the-wall and pretty radical, and I myself have only just begun to follow their lessons for treatment, but I truly hope you may find some help AND HOPE in these resources as well. I will break down months of online research and book reading for you here:

1. Allergies are the symptom and not the cause; the underlying cause could be any of a number of things often tied to colon and liver health, including overgrowth of candida yeast in the colon, saturation of toxins in the liver, and undergrowth of "friendly" bacteria in the colon. There may be other causes as well (reaction to some medications, long treatment with antibiotics), but these I have found to be the most commonly documented. 2. If you can buy that, then I recommend finding yourself a naturopathic physician - a registered ND will be able to run some tests for you to determine the cause of your troubles (for me - acid medication troubles combined with almost no "flora" in the colon, leading to "leaky gut syndrome"; more down below) He or she will also offer advice for treatment. For a list of available NDs in New York, try here:

[url="http://www.nyanp.org/main/listing/index.php"]http://www.nyanp.org/main/listing/index.php[/url]

Naturopaths look at the whole person and offer dietary advice, herbal treatments, homeopathic remedies, and other treatments (some swear by NAET allergy elimination techniques, but I remain skeptical. Ask the ND about it.)

One note here - yes it's more money and yes it's more doctors, but if you can commit yourself to wanting to at least try to reverse your increasing reactions, then this is the way I would recommend to do it.

3. Leaky Gut Syndrome - sounds nasty, but what it really means is that undigested food particles are crossing the intestine barriers and getting into the bloodstream. Many online resources exist here; do a web search, and especially go to the yahoo leaky gut support group at:

[url="http://health.groups.yahoo.com/group/LeakyGut/messages/1"]http://health.groups.yahoo.com/group/LeakyGut/messages/1[/url]

You can read the messages without becoming a member; they've got tons of great advice on foods to eat, foods not to eat, and what supplements have helped people control their allergic reactions. I myself am now following a dietary and herbal supplement protocol outlined by Gloria Gilbere ND in her book "I was poisoned by my body." This I got from amazon.com for like $15. I've only just started the last couple of weeks, and I expect it to be at least several months of recovery, but the sooner one starts, the sooner one can get better.

4. Some people have had good luck controlling allergy symptoms with acupuncture; I haven't tried it yet myself, but I just wanted to pass that along.

I feel I've gone on long enough here; some of this may seem radical but really, I do feel radical is what's needed in our situations. I hope you are able to find help in one of these resources, as I believe I have; first and foremost, though, I hope that you are able to find interest in helping yourself. There can be a brighter future for you out there, but of course it's up to you to take action and make it.

Best of luck to you, Sillyfeline - Andromeda

On Jan 24, 2004

Silly Feline:

At around age 27, I, too, developed multiple food allergies.

About a year later, I had my gallbladder out and the increase in allergies stopped.

I have seen other people post on here whose food allergies also started around the time they had gallbladder problems.

The liver etc. has a lot to do with allergies...it creates enzymes etc. that break down food proteins so they are not absorbed into your blood stream through your intestine.

Anyway, it might be worth looking in to.

At the time, I couldn't tolerate peanuts, peas, coconut, peaches, black pepper, tomatoes, berries.

I am no longer allergic to peaches, black pepper, coconut and the tomatoes.

On Jan 24, 2004

Silly Feline:

At around age 27, I, too, developed multiple food allergies.

About a year later, I had my gallbladder out and the increase in allergies stopped.

I have seen other people post on here whose food allergies also started around the time they had gallbladder problems.

The liver etc. has a lot to do with allergies...it creates enzymes etc. that break down food proteins so they are not absorbed into your blood stream through your intestine.

Anyway, it might be worth looking in to.

At the time, I couldn't tolerate peanuts, peas, coconut, peaches, black pepper, tomatoes, berries.

I am no longer allergic to peaches, black pepper, coconut and the tomatoes.

On Feb 20, 2004

Sillyfeline, I am so sorry to hear you are feeling terrible. I know what you are going through. Your post WAS ME!! I went down to 91lbs. I started to become allergic to many foods very quicky, and after 8 months I was only able to eat BEEF, RICE, and BROCCOLI. Nothing else!! My doctors, friends, family, thought I was crazy also.

I started to take N.A.E.T. treatments from a Naturalpath dr. Withing days, I was able to eat an "Egg". It doesn't sound like such a big deal to most people, but It was like eating an icecream sundae for me!! NAET introduces foods back to you "one at a time". and it works! Within 3 months I was off all my puffers, and was able to eat many foods again.

What is happening to you is your immune system is braking down, and it reacts to anything that you want to eat.

Please, check out naet. It saved my life, and my sanity. Email me if you want. [email]hockey01@sympatico.ca[/email]

P.S. What are your reactions you get when you eat the foods?

On Feb 21, 2004

I came back in after an e-mail from Sandy asked me to read her post, but the truth is I'm really not comfy here anymore.

I know it's not my gallbladder, because that was removed in 1993 and I had no food allergies at all until 1996.

And I know I'm depressed. I have always been depressed. I am a double depressive, have been since childhood, and there's nothing they can do about that either. I'm allergic to every antibiotic and psych med ever given to me, and couldn't even tolerate the anesthesia for ECT or post-surgical muscle relaxants. I tried treatment for about a decade, and exhausted all options. My system just isn't medication friendly, never was (drug allergies since infancy).

As for more alternative doctors, that would be nice. But I have borrowed more money already than anyone ever should have lent me. My insurance company denied all appeals and paid absolutely nothing toward my back surgery. My medical expenses were more than my incomelast year, and I have no family or friends to help. I just can't lay out anything out of pocket anymore; I have noplace left to borrow from. My insurance company covers my current allergist with a $40 co-pay, and my allergy meds with a $50 copay. Nothing at all toward anything more. And I work 2 jobs to almost make a living without the full cost of surgery on 3 disks.

I did have accupuncture when I was 21 for something else tho. I was chronically ill from what turned out to be a carbon monoxide leak in my home. I was going for the sinus problems and the vertigo I was having. One evening I went in wheezing (didn't know I had a peanut allergy yet and it was developing). The symptoms did get a little better from the treatment. Unfortunately, the cost of accupuncture is prohibitive.

The cost of everything, it seems, is prohibitive. I'm just trying to keep myself fed and housed and pay off my surgery and rehab costs, with inconsistent success. I wish I had the money for other routes; I just don't. But thank you for not further battering me down with the same thing again and again.

At this point, I am avoiding all nuts, all legumes (including peanuts, soybeans, peas, beans), eggs, wheat, dairy, beef, sweet potatoes, white potatoes, tomatoes, carrots, apples, oranges, coffee, wine, and I'm testing positive to a few things I never ate before (turkey, cherries) which doesn't make sense. I've been lucky enough to sidestep the meds problems the last few months. The only perk to all this is the weight loss; at least they stopped nagging about that. I don't know. It's a catch-22: it seems I'll never be well enough to afford the doctors to get well.

On Feb 23, 2004

.

[This message has been edited by deegann (edited March 15, 2004).]

On Feb 27, 2004

sillyfeline, i was happy to see you back on the boards again - your posts in this thread have really affected me and i was quite worried. i'm so sorry you've had such a difficult time, and can only send my hope that your road from here will be one of recovery and improvement. also, i can empathize completely with your money troubles - i'm paying off three years of graduate school (and three lost years of any income whatsoever), and barely breaking even every month now. i do have some thoughts for you, though -

one, any possibility of changing your health insurance to a plan offering better coverage? i'm not sure if you have a choice for which health plan you have (if your work is paying or not), but it sounds like your copayments are very high and your benefits are very low. it may be that depending on how often you are paying these copayments you could get yourself some better coverage for a similar amount every month. (maybe research at webmd.com; i found some decently-priced individual health insurance with blue cross there a few years ago, when i wasn't working.)

two, i'm interested to know what you are able to eat, and what if anything you enjoy eating (sometimes it's better to focus on the positive side?). my diet right now is also extremely restricted, but i try to enjoy what few tastes and pleasures i can [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

three, it could be that your increasing allergies are a result of undigested foods passing into your bloodstream; i know this is what is happening to me, and over the last month i've been successful in at least not *adding* any new allergies to my list. i've done this by supplementing my diet with digestive enzymes and apple cider vinegar at every meal (to help make sure i'm breaking down all my food), and through taking some "good gut flora" acidophilus every day. is there any medicine you are on or protocol you are following from after having your gall bladder removed? i don't know much about the role the gall bladder plays in digestion, but it must do something; what did your doctors tell you?

i am interested in hearing more from you, if only to know that you are still with us [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] adult-onset allergies are extremely difficult to deal with; it helps to know that we're not crazy or alone.

do take care of yourself, andromeda

On Feb 29, 2004

I have no say whatsoever about my insurance coverage. I was told by multiple doctors that it is unsafe to take any supplements BECAUSE of the allergies, i.e. can't have cider vinegar for the apple allergy, can't have yogurt for the dairy allergy, can't have vitamin e for the soy allergy, can't have garlic supplement for sulfa allergy, blah blah blah.

On Mar 9, 2004

Dear Sillyfeline,

I am truly sorry about what you're going through.

I think it must be so much harder to develop allergies as an adult than to have always had them as a child...

I can relate (believe me I know it's just a tiny bit) to your situation. Fifteen years ago my husband inexplicably developed allergies to all foods. I mean all foods. He didn't have anaphalaxis, but he would develop horrible hives and itching. His allergist prescribed a lamb and rice only diet, and then he could add one thing to his diet a week. (I mean one thing, like a tomato...) Nothing helped. It was such a horrible period for both of us. I felt guilty that I could eat anything, and my husband was so miserable..not a happy time.... Then, out of the blue, as a 30 year old, he came down with a bad case of chicken pox...After his illness, his food allergies disappeared. We think that somehow this caused his immune system to kick back in (correctly) and he never had a problem with food after his illness...

The Doctors never could explain what happened...To this day they look at us like we are crazy when we try to explain this period.

A few years ago I met Dr. Sampson at a Food Allergy meeting. I asked him what would be the chance that my son, who is extremely PA, could outgrow his peanut allergy? He shook his head and said "highly unlikely, highly unlikely." When he saw that I had tears in my eyes, he very quickly said "but remember...there is always hope."

I know I can't possibly know what you're going through, but if you can, please remember that there is always hope. One does not know the future...Who would have thought that my husband would be ok now with his food allergies? You do need to find validation for your real medical problem, and I think you can find that here. I hope that I don't sound cavalier about your condition, or am trying to give you unwanted advice. But I do think that there is always hope. I hope you get the good medical attention that you deserve. We are all rooting for you here and want the best for you.

Sincerely, KD

On Mar 21, 2004

Hi again Sillyfeline,

One last try for something that may help, or at least lessen the probability for your developing allergies to even more foods. Have you done any research or gotten any advice on setting up a rotation diet?

I'm only starting to research this for myself now (in light of recently developed ana to eggs in addition to peanuts), but basically you formulate a plan where if you eat a certain food one day, you can't eat it again for at least four days. For people with many and severe sensitivities, a seven day rotation is even more effective.

Hard to do when one's "safe" foods are limited, I know, but maybe worth a look. I found this site and link intriguing if nothing else:

[url="http://www.specialfoods.com/rotationdietexample.html"]http://www.specialfoods.com/rotationdietexample.html[/url]

Wishing the best for you, Andromeda

On Mar 10, 2005

sillyfeline, I don't know if you are getting notification for his topic, or still lurk here at all. Just wanted to let you know I was thinking about you and I hope you are doing ok.

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