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Posted on: Thu, 08/23/2007 - 2:53am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

ohhhhhhhhh.... gvmom. That is NOT GOOD.
But really-- we were seen in the ER and left with only instructions to give DD [i]benadryl[/i] for the next 24 hours. She was almost entirely unresponsive during the initial portion of that reaction, and this is the advice we were given. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]
No epipen, no nothing. We were [i]LUCKY[/i] that our then pediatrician had just recently come from an ER stint in Kansas City-- he KNEW what we were describing. He had the [i]sense[/i] to call a board certified allergist to ask for immediate advice. MANY PEDIATRICIANS DON'T. All this to say that I don't know that AAAAI is at fault there. Because it probably wasn't one of their members that did it. Just a GP who didn't know enough to know what he doesn't know.
I'm definitely not unconcerned about an obviously PA child without an epipen. But frankly, I'm MUCH more concerned about how difficult this is going to make things FOR YOU. (I already [i]know[/i] you... so it's personal, you know?)
And FWIW, I have a favorites folder on my computer that says "allergy info" and the first folder inside it? "OCR complaints."
I [i]fervently HOPE[/i] I will never need it. But I am not so naive as to think that it [i]can't[/i] happen to me. Or anyone else. (Well.... Cindy excepted... she can't contact OCR, being one of them there Candadians, eh?)
Just {{hugs}} gvmom. That is so awful that I am having trouble processing it, too. (right along with cupcakes brought into PE) [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]

Posted on: Thu, 08/23/2007 - 2:54am
Anonymous's picture
Anonymous (not verified)

And yes, how the changing of school administration can have a profound effect on what happens. (I hate starting sentences with and).
As an example, I finally got the IEP process started for my son when he entered Grade 4. What happens? The person in charge, at the school, is the vice principal. We have a new vice principal each and every year.
That first year, what it meant was the request for one particular assessment was lost. When I asked about it, things had to be started from square one again and that really meant a one year longer wait for that one assessment. We finally got it done this year (Grade 6) and have to work out the ramifications of that assessment (the school's request for a couple of specialists' appointments, etc.) for this coming year. Lost in the shuffle. Back to square one. While my child suffers (to some degree).
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

Posted on: Thu, 08/23/2007 - 2:58am
Adele's picture
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Joined: 01/31/2005 - 09:00

gvmom.....all the more reason then, for you to keep on your path. You have the opportunity to educate the principal while you're at it and maybe save her child in the process.
Full steam ahead. Hang in there!

Posted on: Thu, 08/23/2007 - 3:03am
McCobbre's picture
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Joined: 04/16/2005 - 09:00

[quote]Originally posted by Corvallis Mom:
[b] All this to say that I don't know that AAAAI is at fault there. Because it probably wasn't one of their members that did it. Just a GP who didn't know enough to know what he doesn't know.[/b]
I wouldn't bet on it. The kiddo who lived across the street from us had PA, "oh, but not very bad--she only gets diarrhea and throws up a little." Her ALLERGIST told her mom the same blasted thing. Same thing: she may be able to eat peanuts--should probably try some every now and then. I recommended my allergist. I fantasized about leaving an Epi there after DS came home so she'd have one on hand just in case (didn't--although anther neighbor friend's house had permanent Epi Kit there---oops, still there [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] ). The standards of care in our country are [i]all over the place.[/i] It weakens our credibility--and more importantly, it increases the risk for all children--even ours.
[b]
I'm definitely not unconcerned about an obviously PA child without an epipen. But frankly, I'm MUCH more concerned about how difficult this is going to make things FOR YOU.[/b]
Just echoing this--couldn't have said it differently but just wanting to offer my support here.
[This message has been edited by McCobbre (edited August 23, 2007).]

Posted on: Thu, 08/23/2007 - 3:04am
Anonymous's picture
Anonymous (not verified)

Oh, GGA, gvmom. I was posting at the same time as you were about your new principal with the PA child.
Okay, since I'm Canadian (Corvallis Mom, in my Province, I contact The Ontario Human Rights Commission [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] ), how much a part of your 504 Process is the principal?
I had been thinking that perhaps one of the reasons I have been relatively fortunate (relatively being the key word - please remember that Fun Fair - an again, I'm a wimp), is that my principal has a bee sting allergy and does have an Epi-Pen. So, she kinda (kinda) "gets it".
My thoughts and prayers (atheist as they may be) are with you and your family because all I can think right now is GGA.
Although, I do agree with Adele.
{{{{{BIG HUGS}}}}}
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

Posted on: Thu, 08/23/2007 - 3:09am
Anonymous's picture
Anonymous (not verified)

McCobbre, I agree about the allergist. Look at what the allergist had to say to Jesse and I when he tested positive to tree nuts. A well reputed, long practicing allergist.
gvmom, no wonder you feel like puking. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

Posted on: Thu, 08/23/2007 - 3:14am
Anonymous's picture
Anonymous (not verified)

Corvallis Mom, separate kinda from the topic at hand, but in Grade 3, that's what pi$$es me off, I had each and every thing documented on the computer - dates, incidents, etc. I had the paperwork sent to me to file the complaint. Then, I never filed it. TO THIS DAY, I am angry with myself for not filing it.
My reasoning at the time? Oh, we're leaving this town anyway and hopefully going back to a city with more PA *customers* that will be more understanding.
I wish I had filed the complaint, regardless of us leaving that school district, just so that no other PA child would ever have to experience what my son did in 3rd Grade.
I had everything ready to go. I even had a year to file the complaint. I didn't do it. I am ashamed and angry to this day - three years later.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

Posted on: Thu, 08/23/2007 - 3:22am
Adele's picture
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Joined: 01/31/2005 - 09:00

quoting myself:
[b] gvmom.....all the more reason then, for you to keep on your path. You have the opportunity to educate the principal while you're at it and maybe save her child in the process.
Full steam ahead. Hang in there! [/b]
gvmom - I suspect I am very naive about these matters.
{{{{{{{ BIG HUG }}}}}}}}}}
[This message has been edited by Adele (edited August 23, 2007).]

Posted on: Thu, 08/23/2007 - 3:25am
notnutty's picture
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Joined: 03/15/2004 - 09:00

gvmom: Gosh...not even sure what to say to help...perhaps there is nothing. But [i]know[/i] that we are all pulling for you and sending you good luck.
Nothing worse than someone who [i]thinks[/i] they are experts when it comes to your child's allergy.
Just know you are on the right path to doing what is fundamentally [i]right[/i].
[This message has been edited by notnutty (edited August 23, 2007).]

Posted on: Thu, 08/23/2007 - 3:46am
Anonymous's picture
Anonymous (not verified)

Quote:Originally posted by notnutty:
[b]Just know you are on the right path to doing what is fundamentally [i]right[/i].
[/b]
As gvmom herself might say, "worth repeating".
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
------------------
There but for the Grace of God, go I.

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