I am in tears here,,,,just like the first day

Posted on: Thu, 01/31/2008 - 2:20am
Dunpun's picture
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Joined: 01/26/2004 - 09:00

Tell me it will be ok.....my ds is now 8 and hasn't had a reaction in over 4 years, he outgrew his milk allergy last year and his peanut numbers have been going down every year. Last year was 1.95, today i called hoping it has gone down again.

Now it's 8.59. (edited)? I know it could be worse and I know many of your kids have worse numbers but I am crushed. Are these stupid tests even acurate? We are going on a huge trip this year to Europe...now what a mistake that is. I can't believe this is making me cry.....nothing has changed we still avoid why the crying????

Thanks if you read
Linda

Posted on: Thu, 01/31/2008 - 2:42am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

First let my say I'm sorry to hear your results and can empathize with your disappointment. However, as you have said you have have four years with no reaction so you have been living with his allergy very diligently.
As for your trip I would not consider that a mistake as many have travelled just fine with proper precautions.
Go easy on yourself. Disappointment is very hard especially when it comes to our children. Take care.

Posted on: Thu, 01/31/2008 - 5:47am
CorinneM1's picture
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Joined: 06/20/2002 - 09:00

I echo skymom's comments. I would not take traveling to Europe as a mistake. You would need to take the same precautions whether he was low on the scale or high...right?
Please go easy on yourself. Did the allergist seem concerned that there was a jump in the numbers? What was the doctor's thoughts on this?

Posted on: Thu, 01/31/2008 - 7:58am
Dunpun's picture
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Joined: 01/26/2004 - 09:00

Thanks, I do feel a little better now. I know that everything is the same, we still avoid, still carry epi....we will be ok. I have been getting a little relaxed with him because he's had no reactions in 4 years. Maybe this is what I needed, a new reminder of the seriousness of his allergies.
The doctor did call me back and say not to worry too much as nothing will change with what we are doing and he has seen numbers jump like that and then go back down. So, did they make a mistake or are these tests not too accurate after all.
Thanks
Linda

Posted on: Thu, 01/31/2008 - 8:28am
Kanji's picture
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Joined: 01/30/2008 - 16:26

I think we all secretly hope our kids will outgrow, no matter how much we know the actual probabilities, so your reaction is totally understandable.
I'm no expert, but Its my understanding the numbers can change without any necessary known stimulus. I also believe the numbers do not totally correlate to the likelihood nor severity of an allergic response.
Hopefully someone better informed can jump in and correct me, or fill in the gaps (chasms!!?!)

Posted on: Thu, 01/31/2008 - 10:00am
sidni's picture
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Joined: 08/28/2004 - 09:00

Don't worry. Europe is a very safe and easy place to travel with food allergies; there are so many varieties of restaurants and ample access to your own groceries (some might be familiar/imported from the US and Canada, but otherwise there is of course tons of fresh produce and things like pastas and meats which are generally safe); medical facilities are fantastic in most/many European countries, and be vigilant! Your son is not really in any danger if you are careful. You are not going to Thailand or somewhere with a heavily nutty cuisine and a completely different alphabet, right? It will be ok.
Be safe, chin up :)

Posted on: Thu, 01/31/2008 - 11:10am
TRexFamily's picture
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Joined: 11/30/2004 - 09:00

We lived in Italy (& travelled throughout Europe)for 4 years. I think it's easier to avoid peanuts in Europe than in the States. Tree nuts are harder to avoid than peanuts in Europe.
Where are you going in Europe?
I did not find many American products in Italy, and the few they imported were expensive. If you're not avoiding tree nuts, his diet will be fairly easy to manage.
Sorry to hear about the test results! It's so tough when we don't get the news we're hoping for.
Anne

Posted on: Thu, 01/31/2008 - 11:44am
Krusty Krab's picture
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Joined: 04/20/2007 - 09:00

You're right, nothing has changed. So why the crying? Because we all have that small part inside each of us that hopes our child will be the lucky one to outgrow such an allergy. We have that hope and when it's testing time again, we spend maybe only a fleeting moment letting ourself hope. It is good to hope, it feels good to hope, that's why we do it. But the test results didn't go your way today and you feel crushed. That's ok, too.
I'd feel the same way. And I'm sorry the results weren't what you were hoping for. Yes, the up side is that nothing has changed, is also the bad side. That's tough for anyone to deal with.

Posted on: Thu, 01/31/2008 - 2:07pm
hopechapel's picture
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Joined: 12/11/2005 - 09:00

This touches on my fears. Our RAST #'s have been going steadily down. 1.95. But, we just flunked the SPT. So, My hope is for the next one.
I cannot even fathom the diappointment I'd feel at that 8 whatever score.
It seems that it should just keep getting better. It should not just spring up w/o rhyme nor reason. Allergy is just wierd, isn't it? I am sorry. These disappointments hurt badly.
The above are right about Europe. Medical care there is far superior to the US. No reason not to enjoy that trip. You'll just have to do your usual -- and I've seen foreign language allergy cards. Focus on planning that great European trip.

Posted on: Fri, 02/01/2008 - 2:12pm
mamakasper's picture
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Joined: 08/23/2007 - 09:00

We just spent 3 weeks in London, and like the PPs have said, tree nuts were all over the place. (not so great for us since DS is TNA). I was on high-alert the whole time, averting reactions a few times when well-meaning cousins tried to share their candy and cookies with him that had hidden nut creams... Thankfully, in the end, we only had to deal with 2 contact reactions...
But, no peanut butter at all. (think nutella instead). What a great place to go with a peanut allergy! You still have to be diligent of course, watching for hidden peanuts, but the good news is that with so many countries participating in the EU now, food labeling practices are better regulated. Even food imported from Eastern European EU countries is labeled for made-in-a-facility manufacturing. And most labels I saw were translated into many languages, which could mean that you would have access to English labels in a non-English-speaking country.
Good luck, and do go on your trip to Europe! It will be great.
Shannon
ds. ana TN, coconut, age 4

Posted on: Sat, 02/02/2008 - 6:13am
lmw's picture
lmw
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Joined: 11/12/2005 - 09:00

DD is a young adult now, but we did two weeks in Spain last spring, flying and taking the train to at least six different cities.
We went to Scotland in the summer, and toured around for almost two weeks there.
Spain was a little harder, because we none of us speak Spanish, but we read what labels we could, and I had a couple of copies of her allergens translated into spanish, and how to say things like 'She is having an allergic reaction to...' She is PA/TNA(all).
We had only one slip-up, a chocolate bar package she thought I had already cleared, but I hadn't yet. It contained hazelnuts, she took some Benedryl right away, and was fine, but I was a little worried.
In one of the grocery stores in Madrid, we found Canadian nut-free Dare cookies - but they were the maple ones - which she doen't like!
Get translator cards, and use them. And have fun.

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