HUGE decrease in RAST score

Posted on: Mon, 09/18/2000 - 3:06am
san103's picture
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I did post this under another thread already, but I did not receive any responses, and I am hoping for some feedback.

Over a 6 month period son's CAP RAST scores went from 4.58 (conventional level 3) 638 (modified level 4) to 0.42 (conv. level 1) 111(barely a modified level 2). I was shocked by such a huge decrease. The 0.42 is barely an allergy (.35 is the cut off). Our son has never been exposed to peanuts (he has had hive reactions from being touched by people who touched walnuts...six months ago his walnut RAST scores were higher than his peanut, but we did not redo the nut ones).

Had anyone else had such a big decrease? Did it stay low, or jump back up on the next tests?

Like everyone else I hope this means that my son may grow out of his peanut allergy. I know decreasing RAST scores do not mean that he will, but I know most of you understand, it does make us hope!

Posted on: Mon, 09/18/2000 - 4:16am
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Anonymous (not verified)

What did the allergist think about the difference in scores? Does he/she think that he will outgrow it? I do not remember if you mentioned the age of your son but I am curious.

Posted on: Mon, 09/18/2000 - 5:24am
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My son was a 4 on his first RAST and the last two he was a low 2. We went today to a new allergist and he did a skin test on him and he tested negative, so I am not really sure what to think. The doctor said its safe to give him peanuts. I might have them do it in the office first. He never had anything with peanuts in it before. This new doctor said he does not count on those blood tests. Even though he tested negative I am still nervous.

Posted on: Mon, 09/18/2000 - 6:25am
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My son is 13 months. His first CAP RAST was at 6 months, and his second at 13 months. I called the doctor again this am. He said that RAST tests will flucuate (we knew this), and he agreed to retest our son. Several low tests, or consistently lowering scores MAY indicated a decrease in severity. He said we could test now, or wait 6 months. I think that we will wait.
Our son has never had a reaction to peanuts. He has had skin reaction to walnuts (after being touched by someone who had just touched walnuts).
I am trying to manage my expectations. I hope he grows out of this, but I do not know if he will. We also did do several alternative NAET treatments with him -- we were skeptical, but maybe that played a role in his lower scores.
San

Posted on: Mon, 09/18/2000 - 6:55am
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JAN, I WOULD BE VERY INTERESTED TO KNOW HOW YOUR SON REACTS TO EATING PEANUT BUTTER FOR THE FIRST TIME IF YOU DECIDE TO LET HIM TRY AT THE DOCTORS. MY SONS ALLERGIST SEEMS TO THINK HE MAY ALSO GROW OUT OF THIS ALLERGY BUT I HAVENT FOUND MUCH SUPPORT FOR THAT TOPIC ON THIS SITE. PLEASE POST THE RESULTS AS I MAY BE IN YOUR SITUATION SOON. THANKS AND GOOD LUCK !
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Posted on: Mon, 09/18/2000 - 8:55am
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Anonymous (not verified)

My son's traditional CAP RAST's have changed in the 4 times he has had the tests sometimes dropping 2 to three points. However, the last time they all shot up higher- sesame seed jumped from 12 to >100, egg from 20.2 to >100. He now has seven that are >100 on traditional CAP RAST. It's amazing that he has been kept safe, so far.
I'm not holding out on these coming down but we will retest next May. In the meantime, we keep EpiPen with him at all times- just like folks with child with low positive test scores on one food and monitor his diet the best we can.
JanBP
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Posted on: Mon, 09/18/2000 - 8:56am
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Nancy,
Thank you, I will let you know. At least we know it will not be a bad reaction if he does have one, which the doctor doesn't think he will. I've been holding him off sending him to preschool so now I think the decision will be easier. I just hope he grows out of his milk allergy which is really bad. I'll keep you posted on the peanuts.

Posted on: Mon, 09/18/2000 - 10:04pm
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I am absolutely thrilled here! My second son is No longer allergic to milk. He just got re-tested yesterday and his score was 0. Absolutely no reaction, and he was at a 3. AND get this..his previous score on shellfish was a 4+ and was anaphylactic to shellfish. ABOSULTELY no reaction yesterday! YIPPEE. He tried his first taste of shrimp in an eggroll and loved it and had no problem whatsoever! His allergy to peanut was and still is severe at a 5. The down side: He scored a 4 to cats, to dogs and to grass. (We have two dogs) I'll take it though, one less life-threatening allergy to deal with. Considering since the age of six months he has scored high on peanut, I don't see that allergy changing at all, but we can handle that. Kicking up our heels here [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 09/19/2000 - 4:59am
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mkruby and Jan, Congrats on your good news. Jan, please let us know if you have your son challenged. I would be afraid to do it at home too, but neg RAST AND neg skin sounds great!

Posted on: Tue, 09/19/2000 - 12:58pm
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CONGRATS to MKruby!!!!! That's excellent news! Did that weight on you just get a little bit lighter? :-)

Posted on: Tue, 10/17/2000 - 1:11pm
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JAN,
Please let me know if you've had the oral challange. I'm still really interested. Since discovering this site I've made a new appointement with a different allergist and am going in the morning. I've even insisted that my husband go with me. This is important because I've become much more paranoid since finding this site. I'm praying my son will be negitive but can't imagine what I'd do if he were. If I told people he tested negative but, still kept him peanut free, I wonder if someone else might let their gard down. Please post on your progress. thanks I hope your still peanut allerge free!!!!!

Posted on: Tue, 10/17/2000 - 1:13pm
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JAN,
Please let me know if you've had the oral challange. I'm still really interested. Since discovering this site I've made a new appointement with a different allergist and am going in the morning. I've even insisted that my husband go with me. This is important because I've become much more paranoid since finding this site. I'm praying my son will be negitive but can't imagine what I'd do if he were. If I told people he tested negative but, still kept him peanut free, I wonder if someone else might let their gard down. Please post on your progress. thanks I hope your still peanut allergy free!!!!!

Posted on: Wed, 10/18/2000 - 7:41am
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Hi Nancy,
No I haven't brought my son back yet but I do want to before halloween. We did go out for dinner the other night and they said they cook in peanut oil so we ordered him a plain piece of chicken but my other son gave him a couple of fries and he did just fine.
I will let you know, every day I say I am going to call and its been so busy!!

Posted on: Thu, 10/19/2000 - 12:36pm
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Hi Jan,
We brought my son for restesing yesterday and to this doctors amazement it was negitive. we had the skin test also. The doctor ordered a blood test to confirm. We asked if a blood test ever came back with a positive in this situation and he said he's never seen one that did. My son has had two positive skin tests before. The first was after he reacted with full body hives after eating peanut butter. His welt was huge and appeared immediately. The second test was before starting preschool. This time the welt was much smaller and didn't appear until almost the full 15 minutes allapsed. He had one accident where he ate a bite of a small reeses cup where I immediately gave him benedryl and rushed him to the doctor. He never reacted. The doctor has advised me that if his blood test confirms the negitive result our next step is to challange him in the office with peanut butter. I'm so relieved yet still nervous. I'll let you know the results.
Thanks for responding

Posted on: Fri, 10/20/2000 - 7:47am
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Hi Nancy,
That is great news!!!I made my son's appointment for Tuesday. The nurse said I will have to stay there for about an hour or longer. Let me know how you make out and I will too. Have a great weekend.

Posted on: Sat, 10/21/2000 - 5:49am
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Jan- I read your note about taking your child to a restuarant and giving him some fries cooked in peanut oil, there was no problem....BUT BEWARE>>> as I understand it there are two type of peanut oil, hot and cold pressed...Hot pressed is processed with heat and can kill off the protien that causes a reaction.... He may still react to Peanuts even if not to peanut oil. Also, My son had a recent RAST test that showed he was no longer allergic to shellfish...on both of his previous skin tests he reacted with a level 5 highly allergic. I understand that the rast is just measuring the level of antibodies .. and since he has not had seafood in 4 years..this may be the only reason his scores went down. I would be very careful even if rast scores go down. This could just mean that the level of antibodies the body has produced has decreased because of a long period of time between exposure to the alergin and the rast test. I still do not feed my son seafood, because I am not sure that his body wouldn't react immediatly upon exposure again.

Posted on: Sat, 10/21/2000 - 11:41am
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My son had an anaphylactic reaction to peanuts at 7 months. He was given a RAST test at 13 months. His score was 1650. The allergist said this was high but he'd seen higher. This test was done many years ago.
I noticed in the post that many people were mentioning scores that looked lower than my son's so I'm not sure I'm understanding his results. Can anybody help?
Does anyone else's child have asthma? My son developed this after his peanut reaction and they told me that this put him at high risk so I'm kind of nervous about it.
Thanks!

Posted on: Sun, 10/22/2000 - 11:05pm
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Gabrielle,
My son skin tested negative. His last RAST test was about 6 months ago and his numbers had dropped alot. He is going in tommorow to be challenged. Even if he does not react to the peanuts I am still going to keep him away. We can relax a little when he starts school.

Posted on: Fri, 10/27/2000 - 11:03am
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Hi Nancy,
My son went to his doctors appointment on tuesday, first they did another skin test and he tested negative again then they gave him a cracker with peanutbutter and he didn't want it so they gave him a peanutbutter cup and then he ate half of his cracker and he had no reaction from it!!!I am so thrilled!! I can't believe it. I am not sure if its from doing NAET or if he out grew it but I was told at the beginning he would not out grow it. We are so happy. HOw did you make out? Have a great weekend.

Posted on: Fri, 10/27/2000 - 12:16pm
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Anonymous (not verified)

Jan-
Your news is soooo encouraging for us all. That must be great for you and will help you to relax a little! I couldn't imagine not having to deal with this (don't get me wrong-I am glad it is JUST this). Congratulations!

Posted on: Sun, 10/29/2000 - 6:04am
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Jan that is icredibly great news!! How about the dairy allergy? Did he get skin tested for Dairy also or just the peanuts? My son has several allergies, milk being one of them.
Thanks Bonnie

Posted on: Sun, 10/29/2000 - 12:42pm
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Anonymous (not verified)

Jan-
A few questions for you...I wasn't sure if I understood you (its late and I read this post quickly), but did your child ever have a reaction to peanuts? Or did you just have him tested for the allergy years ago? I was curious b/c it sounded as if he grew out of this and I wanted to know if he had had an actual reaction to peanuts/peanut butter when he was young and then did in fact grow out of it. Alot of times kids are tested and test positive when they are young for PA(and have not been exposed) and then when they are older test negative. Then they have "grown out of it", but I want to hear a case of someone that had a bad reaction and then later on in life grew out of the allergy...Is this your case???? It would give so much hope if this is so...Lastly, did your child have either excema or asthma or both??? My PA child had a slight case of excema under 1 year and is now developing exercised induced asthma (18 months old)...I unfortunately don't have much hope for her growing out of the PA...Any help from you??
Thanks

Posted on: Sun, 10/29/2000 - 11:07pm
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Kathryn and Bonnie,
My sons dairy allergy is still pretty bad. He even had a reaction to something last night. We were at a birthday party and he grabbed someones milk. We gave him some Zyrtec and that seems to help him.
He is going to be three soon and when he was a baby up until he was over a year old he had very bad excema. His face was a mess!! He still has the scars. He never ate peanutbutter but he did have an airborne reaction when he was a year old. There was peanuts in the house in a bag
and he broke out in rash and we didn't know what it was from until we got rid of the bag his rash went away. The doctor thought it was from that. When he was first blood tested his RAST score was a high 4. As of right now and hopefully it will stay this way he does not have asthma. When we first found out about his allergies, he was allergic to everything-wheat, corn, soy, eggs, peanuts, beef, dairy and few others. Now its just beef, milk, and penecillian. Hopefully some day his milk allergy will be gone. Have a good day.

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