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Posted on: Sun, 09/15/2002 - 11:46pm
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Cam's Mom, banned from the PA.com site because of long-winded posts? NEVER! Not going to happen! I am proof positive that it will not happen, dear woman! And my posts even go into babble mode and still I have not been banned. This, of course, does not mean that there aren't members out there complaining about me, but what the heck?
I would like to address the guilt you're feeling re your son's first reaction. First of all, you did do something that helped to save his life by administering the asthma medication. So, pat yourself on the back for that and then get rid of the rest of the sh** you're feeling. You can't carry that with you and let it eat you up or destroy you. How do I know and how do I have the nerve to say that to you?
I almost lost Jesse 3 years ago because of my husband's complete denial of his son's allergy and because I was uneducated about PA. I knew Jesse was PA and had even taken him to the doctor previously when he had an anaphylactic reaction. I had an Epi-pen. However, I didn't know a heckuva lot of things that I SHOULD have known to ensure the safety and actually life of my son.
I have told my story countless times here and I will continue to tell it only so that other people will learn from my terrible mistakes that I made that night. My baby almost died because of the stupidity/denial of his parents. So now you're saying, okay, it sounds like you're still beating yourself up as well so why tell me to stop?
I'm not. What I have done is remember what happened that night and remember the mistakes that we did make so that we will never make the SAME mistakes again. I learned as much as I could about PA. I continue to educate myself re PA by using this website and raising any question that should pop into my head.
However, I have also used that guilt of what happened that night to help other PA parents and I think I do okay with that as well.
Turn your guilt around and use it to your advantage and to the advantage of other members of PA.com. Tell your story of what happened with the reaction and what you would do differently now. Don't let your mistakes be made by someone who is a member here (we can't help the non-members). But lose the guilt as far as something that weighs you down and does no one any good. Seriously.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
I think you know what I'm trying to say. That's why I'm here as often as I am. I get further education continually re PA and I get support, caring, concern and encouragement particularly at this time of year when I always seem to be having a hard time with the schools and I also hope that I provide some of those same things to other members.
You too, can do the same. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 09/16/2002 - 5:32am
Isaiahs mom's picture
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Joined: 04/30/2002 - 09:00

Isaiah was 18 months when he had his first and only(knock on wood) anaphylaxis reaction. He had eaten peanut products before. What still puzzles me is that since 2months of age he would always wear hives,around his mouth and on his arms. They would go away and come back. I remember taking him to er because his face looked as if someone had beaten him; red, swollen,hives about 6months of age. They thought he was having contact reaction to washing powders or soap;Was told that I may never figure out what was causing it. So made appt. with regular dr. and was told it was just meaness! That when he got mad or upset it triggered the hives and that he would outgrow it. I wonder on hindsight if it was(peanut)in similac? We didn't even know for sure until 2years of age that it was pn that caused reaction at 18 months. Thank God for a new dr. in office that said she wouln't have part in playing russian roulette with his life and sent us to allergist. Sorry so long ,still makes me mad to think I listened to his doctors.

Posted on: Mon, 09/16/2002 - 6:23am
CVRTBB's picture
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Joined: 11/23/2001 - 09:00

Hmmm... Rebekah, my pa daughter will be 6 on October 3rd, (who is on the verge of outgrowing the pa YEAH!!) has never had a peanut reaction. (May have had one mild cramping one but unsure). Timmy, my pa son will be 7 on Sunday (9/22). Lets see, his first bad reaction was to petting a bunch of kittens. His eyes swelled shut and wheezing and hives all over. I gave him benedryl and rushed him to the ER and they gave him steroids and several breathing treatments. His second reaction he was staying with a friend and held his cat. The little boys parents couldn't get ahold of me (I was vacuuming and didn't hear my son knocking on the door) and they took him to a RODEO!! Needless to say I have never trusted them with him since!! Benedryl helped with that reaction. He's had many hives and eye swelling and wheezing reactions to peanut dust/contact/cross contamination. The most severe reactions were a series of reactions the first month or so of kindergarten last year. We finally realized that it was his dust allergy at nap time, he was having a near anaphalactic reaction daily! Once we realized what was causing it (after his pediatrician told me I needed to seriously consider homeschooling) we got him a little cot for naptime that kept him off the floor and not another reaction the rest of the year at school! This year he had a severe reaction to a bunny rabbit at show and tell, we didn't know he was allergic (ended with a trip to pediatrician) he had benedryl and steroids but should have really had the epi with several of these but they were mostly when I was not with him. I am much more careful about letting him out of my sight now and I now carry a beeper so that I can be reached any time he is in school.
As for me, I had an anaphalactic reaction a week ago Sunday at church! I had a bad headache and pressure behind my right eye and asked a friend if she had any Tylenol. She said no, another lady that heard me ask said that she had some Alieve and that it was similar to Advil/Motrin which I don't have a problem with so I thought that would be fine. She gave me 2 so I thought it was like Motrin so that would be fine... well, I'm highly allergic to Naprosen and that is what Alieve is and I took double the dose!! My whole face went numb and my speech was real slurred. It was horrible!!! My dh tried to talk me into letting him give me the Epi but I wouldn't let him. (He even said "What if this was Timmy, would you give it to him?" Well yes, but I'm not Timmy [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] At the ER the Dr tried to say that it was not an allergic reaction because I didn't have any hives, it was mainly a neurological reaction. Even though my throat had started to close off at home it was doing a lot better by then because the benedryl that was left that I hadn't thrown up was starting to kick in by then. The Dr gave me a shot of Demerol trying to say that the whole thing was caused by the headache (which was gone btw)! Anyway, he finally admitted that it could be an allergic reaction but sent me home with a prescription for a painkiller and a diagnoses of a headache! [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img] !
Sorry about the life history [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Valerie

Posted on: Mon, 09/16/2002 - 12:27pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Cindy,
Thanks for the uplift, I actually have let go of some of the guilt, although occassionally it comes back full force. For a long time after it happened I questioned my judgement as far as medical issues go with my children. My 10 yr old was never sick, he had a double ear inf. @ 6 mos. and scarlet fever at 4 1/2 other than checkups that is all I've ever had to take him to the Dr. for...Now Cameron, he has been to the Dr. enough for all of my children w/asthma, PA, and the various EA's.
Well, I appreciate the pep talk, we all need it once in awhile, and I do hope to help other people the way everyone has helped me here. If it wasn't for the things posted here on this site, I would be in the dark re: PA...All I knew before this site (for almost 3 yrs) was to avoid Pnuts, read labels and some of the various hidden names.
So a big hug and thank you to everyone who post!
Thanks again, Cindy [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
And thank goodness that I won't be banned anytime soon!
Oh and Valerie, hope you are feeling better, and don't you just love them ER Dr's!
[This message has been edited by Cam's Mom (edited September 16, 2002).]

Posted on: Tue, 09/17/2002 - 12:34am
mae's picture
mae
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Joined: 07/12/2002 - 09:00

Hi - son will be 8 at the end of the year and has had one serious reaction. Didn't use the epi-pen, but should have - he had just been diagnosed and we weren't sure if he was choking/having a reaction. Cam's mom - I know the guilt you felt as we didn't take him to the ER, having thought that he got it out of his system. Dumb, dumb, dumb.... But I've learned so much here that I wouldn't hesitate to use the epi pen now.
DS has had 4-5 minor reactions ( he usually complains of his throat feeling "funny", then starts throwing up) - shortly after eating - could have been cross-contamination in a couple of these instances.
Take care,
mae [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 09/17/2002 - 3:16am
Grateful's picture
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Joined: 04/10/2002 - 09:00

My son is 6 and had his only 2 reactions at 11 mos. old, the 1st time I gave him pb he got a contact rash on his face and the second time, about a week later, (when I tried it again just to make sure it was caused by the pb) a more severe contact rash and maybe a messy diaper. No medication either time. No reactions since, even though he tests >100 on the CAP RAST and 4++ on the skin test and just started his 4th year of school in a non-peanut-free classroom/school! He recently passed a contact challenge (done before we got the latest test results, of course!) where he had a large glob of pb on the back of his hand for 20 minutes with no reaction whatsoever.

Posted on: Tue, 09/17/2002 - 5:16am
nicoleg's picture
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Joined: 03/30/2001 - 09:00

Son, Jack, now 2.5 had one and only reaction at 11 months. Hives, vomiting, and listlessness. Currently waiting "patiently" for results of last week's blood test.

Posted on: Tue, 09/17/2002 - 11:00am
LilMansMom's picture
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Joined: 03/14/2002 - 09:00

Manuel is 3 and was diagnosed in Aug. of last year. But we knew a few months before the 'official diagnosis' when I gave him a pb cookie. This first reaction was anaphylactic. The second was from picking up a pb&j sandwich crust off the floor that had fallen from the garbage. Lots of hives and wheezing, but allergist said it fell just short of anaphylactic. We have been reaction free for a year now!
------------------
Little Man's Momma
a*k*a Kendra

Posted on: Tue, 09/17/2002 - 12:36pm
iansmom's picture
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Joined: 07/26/2001 - 09:00

Ian is almost 2 1/2, and has had 2 reactions. His first reaction was at 14 months to a tiny bit of PB on a cracker. He had itchy, watery eyes, drooling and a very runny nose, and perhaps a little bit of facial swelling (hard to tell because his face was so chubby at the time). Within 30 minutes, we were on our way to the ER. I told the admitting desk that it appeared to be an allergic reaction to PB, and they had us wait 10-15 minutes to be seen. Then we sat in an exam room for the better part of an hour. All they did was take his vitals, and send us home with a Rx for steroids and have us pick up some Benadryl. They never actually treated him. They did tell us to call our ped the next day to let him know about the reaction. I'm still very angry about the way this was handled by the ER staff, but didn't know any better at the time. His reaction resolved by the time we left the ER, fortunately.
His second reaction happened this past May, right around the time of his second birthday. He'd been playing with some other kids in the morning, and then had labored breathing while napping that afternoon. FYI, I was at work and my MIL was babysitting him. She's very aware of his allergy, and quite vigilant and cautious. She didn't call to tell me about his breathing, though, thinking that maybe he was catching a cold. She told me about his breathing when I arrived to pick him up at the end of the day. And she mentioned that he'd had a wonderful time playing with the other kids (kids of a friend of hers, plus a couple of kids that her friend watches). I mentioned to her that she should make sure that other kids wash their hands and faces well before playing with Ian, and watch out for debris on clothing as well. After I left, she started thinking about the possibility that Ian had had a reaction to one of the kids, and called her friend. Her friend was also aware of Ian's allergy, and said she'd made sure that her kids hadn't eaten anything peanut prior to coming over. She did find out that the other kids that she watched *had* eaten PB sandwiches just prior to being dropped off with her for the day. We (and our allergist) assume that this was the culprit in his contact reaction.
All in all, we've done pretty well in our first year dealing with this allergy. Here's hoping that the next years are even better.
Nancy

Posted on: Thu, 09/19/2002 - 5:55am
Connielynn's picture
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Joined: 08/27/2002 - 09:00

Dd is 12 and she has had around 30 reactions, most were anaphlyatic. It is very depressing, I feel I can not keep her safe. It doesn't help when eveyone thinks you are crazy.
[This message has been edited by Connielynn (edited November 28, 2002).]

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