How Many Reactions Have You/Your Child Had Where an Epi-pen Had to Be Administered?

Posted on: Sun, 03/25/2001 - 8:45am
Anonymous's picture
Anonymous (not verified)

pHow many reactions have you or your child had where an Epi-pen had to be administered? In asking this, I will also ask, how many reactions have you/your child had where an Epi-pen perhaps SHOULD have been administered, but for whatever reason wasn't (it is not necessary to give the reason)./p
pMy son has had three reactions. Out of those three reactions, two were anaphylactic and he required an Epi-pen shot./p
pBest wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p
p------------------/p

Posted on: Sun, 03/25/2001 - 3:01pm
rebekahc's picture
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Joined: 12/02/1999 - 09:00

I've had epi administered twice. Once when I was 2 years old and once when I was 15. Both times it was an injection at the doctor's office. I can think of 2-3 other times when, knowing what I know now, I should have had epi.
Logan had a reaction in Sept. to sesame seeds where I SHOULD have administered his epi, but chickened out and took him to the hospital where he received sub-standard care (NO epi, NO monitoring, and I had to request Benadryl!) I learned my lesson and am thankful he pulled out of the reaction on his own.
In Oct. Logan had a reaction to his allergy shots and received epi at the doctor's office.
In Nov. Logan had a reaction to pistacios and I did administer the epipen (yea me!) and proceded to the hospital (a different one) and again received less than adequate care. This time they congratulated me on saving Logan's life, gave him pediapred and Benadryl, and sent us home with NO monitoring [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img].
In Dec or Jan (so many reactions I've forgotten the exact date) Logan had a mystery reaction which included throat tightening, hives and vomiting. While discussing his symptoms on the phone with his allergist, she told me to administer the epipen and monitor him at home. After Logan vomited, he began to immediately improve so I chose not to give him the epipen - again, with the approval of his doctor. I did give him the same huge dose of Benadryl he would have received at the hospital.
Whew,
Rebekah

Posted on: Sun, 03/25/2001 - 3:48pm
Anonymous's picture
Anonymous (not verified)

Rebekah, I'm actually upset that you received improper or incomplete care at two hospitals.
The first time that Jesse was administered the Epi-pen, it was done at the Medical Centre next door to me. We were monitored for an hour and given no instructions for when we were sent home (also given Benadryl and a prescription for Pedi-pred). This was before I knew that a reaction could occur again up to 8 hours later.
The last reaction he had, where he experienced every symptom of anaphylaxis due to the stupidity of his parents, we did receive excellent care at a small town hospital close to us. We had to stay in intensive care overnight and were not allowed to leave until our family doctor (who was on rounds there that morning) had checked Jesse and sent us home with a prescription for Pedi-pred again and a Epi-pen renewal prescription. I consider the care we received that night excellent.
I actually think that we would receive the same care at that same hospital even if Jesse hadn't been close to death. For some reason, they just seem to "get it". It really disturbs me to hear that some hospitals don't. What happens if.....
I am so sorry.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 03/26/2001 - 1:42am
MattsMom's picture
Offline
Joined: 09/17/2000 - 09:00

Matt has had 2 reactions. Neither one received an epipen, but had we already been to the ped allergist, after talking with her and getting epipens, both of those reactions WOULD have received epipens. Did that make sense?

Posted on: Mon, 03/26/2001 - 4:27am
Anonymous's picture
Anonymous (not verified)

Matt's Mom, yes, your post did make sense!
Silly woman! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 03/26/2001 - 9:09am
DMB's picture
DMB
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Joined: 02/22/2001 - 09:00

Evan had one anaphylactic reaction at 18 months which required a trip to the ER and the gave him a shot there. We did not have an epi yet.

Posted on: Wed, 03/28/2001 - 12:08am
katiee's picture
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Joined: 05/09/2001 - 09:00

Wade had one "mild" reaction shortly after Halloween when he was 18 months old. He broke out in hives around his mouth after DH gave him a piece of chocolate from a Snickers bar. I knew next to nothing about PA at the time and the hives subsided on their own. A couple of days later, after eating a couple of peanut butter filled Ritz crackers, he had a full blown reaction. I panicked, called our Dr. who is a 2 minute car ride away, was told to throw him in the car, don't even dress him (it was Nov), and when I got there he was having trouble breathing. They grabbed him from me and administered adrenaline and Benadril. We were at the allergist's office two days later and received a RX for the pens.
Never had to give him the Epi myself (except in to an orange which freaked me out so I can only imagine what I would be like having to give it to Wade), he reacted to a brand of soya sauce a while ago, large hives all around his neck. I gave him Benadril and they went away. Probably should have given him the pen but I hesitated. Hopefully I'll do the right thing if, God forbid, he ever has another reaction.
Regards,
Katiee (Wade's mom)

Posted on: Wed, 03/28/2001 - 1:52pm
Anonymous's picture
Anonymous (not verified)

Katiee, I've never had to administer the Epi-pen myself either. The first time it was done at the medical centre by a doctor and the second time it was done by my DH. It's a terrible thing to say, but I actually hope, should Jesse have another reaction, that my DH is here because he is much more comfortable with these types of things than I am. However, I do believe because I can recognize a reaction with pure gut instinct immediately that I would get myself together and do what needed to be done.
I remember three years ago, I guess, Jesse was in emergency with an asthma attack. There was another wee girl there who had pneumonia and she had to have blood drawn for some reason. Her Mother freaked out and ran out of the room leaving the poor wee thing on her own. I was totally disgusted. For some reason, I just think that whatever discomfort we think we may have, when push comes to shove, we will actually "buck up" and do it.
Now, in commenting about the Mother above, I must also say that the first time Jesse had to have blood drawn (to see if he was processing beta-carotene properly), I wasn't able to watch. However, my DH was with us and he went in with Jesse. It's not like I let my little guy go through it alone.
With his second asthma attack, my DH wasn't with me and I did have to deal with it on my own, including having to leave him at the hospital at night to bring my six month old daughter home to make bottles for her. We left as late as we could and got there as early as we could for the two days he was there.
With his anaphylactic reactions, his Father was not here when he had his first one. But I immediately knew what was wrong. When I called the Medical Centre right next door, I was very calm and not freaked out. I told them that I had an Epi-pen here and was ready to administer it. They told me to bring him in and they did it.
Then, his second anaphylactic reaction, with his Father in total denial, I knew immediately that he should be given the Epi-pen, as soon as the darn pb rice krispie square touched his lips. But I very stupidly listened to my DH instead. Finally, after he had experienced every symptom of anaphylaxis except coma, I convinced my DH that he needed the shot. He then administered it. It was absolute chaos. I will never forgive myself.
It is from this experience that I do believe I will be able to administer the Epi-pen myself. I was willing to during the first anaphylactic reaction and I was calm. It was because of the argument my DH and I were having during the second anaphylactic reaction that I was not as calm and ready to use the Epi-pen.
Someone may wonder why I just posted all of that very personal information yet again on this board when I could have left it at the first couple of paragraphs. I will tell you.
I do not want ANY parent of ANY PA child to EVER experience the near death of their child because of denial and stupidity.
Somehow the other night, Jesse's last reaction was being discussed and I could tell that even his Father carries the same guilt as I do about how both of us acted that night. Again, I will never forgive myself and I will keep posting this over and over again so that no one else makes the same mistake. Trust your gut instinct, do not argue with ANYONE, including your child's other parent, and get that pen out!
Katiee, I'm sure you'll be fine! What I was really trying to say to you is that I think we all think in the back of our heads, will I be able to do it if and when the time comes.
I strongly believe the answer is yes, especially if you have had any reactions previously where you perhaps should have but didn't (which you said that Wade had had).
My whole story of Jesse's second anaphylactic reaction should be written as a cautionary tale for every PA parent to read. My son almost died.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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