How many of you were the \'first 504 for food allergies\' in your school district?

Posted on: Sat, 03/10/2007 - 11:58am
JacksonsMom's picture
Joined: 07/21/2002 - 09:00

I was really surprised to find out that there are NO other kids with 504 plans in our school district for food allergies. Luckily I am not (so far, fingers crossed) being met with any resistance for initiating one. My DS is starting kindergarten this fall , and supposedly the school has "many" PA kids. I have spoken with the school nurse and they seem to have a good idea on what it takes to keep him safe. But from reading through all of the info here I am not letting him set one foot in that school without a signed 504 plan in place! I am meeting with the assistant principal next week to schedule a "child study" to determine eligibility.
Any advice from others who have been in a similar situation would be great.

Posted on: Sat, 03/10/2007 - 8:09pm
anonymous's picture
Joined: 05/28/2009 - 16:42

I believe I was the trailblazer in our district for being the first one to have their food-allergic child covered under Section 504. It was a lot of *necessary* work, but well worth it for the others behind me that will be able to take advantage of what has been accomplished.

Posted on: Sat, 03/10/2007 - 10:13pm
seanmn's picture
Joined: 10/01/2003 - 09:00

Quote:Originally posted by ryan's mom:
[b]I believe I was the trailblazer in our district for being the first one to have their food-allergic child covered under Section 504. It was a lot of *necessary* work, but well worth it for the others behind me that will be able to take advantage of what has been accomplished.[/b]
Same here. Now there at least 3 others in a class below my ds's that are using the format we did. The principal was very greatful for having this information and the outline to make it a smooth process with future students.

Posted on: Sun, 03/11/2007 - 12:34am
chanda4's picture
Joined: 12/14/2006 - 09:00

I am in the process(I'm sure you've read my posts, tons of questions, lol!!!) Often I wish one of you(who have 504's) lived here to help me through this....but I do have some other moms that are curiously watching to see how my process goes. So even though I am the first, I know I won't be the last.
I just had the eligibility meeting, it was very informal, just me and the assistant prinicipal. But I gave the letter from the allergist, that was very important, and copies of all his scratch tests and caprast tests(I had about 10 pages of testing over the last 5yrs) I also gave a picture of one of his scratch tests...I think *visually* seeing the reaction on his back was least it drove home a serious point(many have not seen these tests, so they have no idea). I also gave a list of reactions over the last had about 15 reactions. I just wrote what he came in contact with and what happened, I was adviced not to note how it was handled because we've never used the Epipen or gone to the hospital(although looking back, there were about 5-6 reactions I should have).
Now I am writing up my own outline. I have been using Rhonda's and then looking at all the other 504's and adding bits and pieces from them. I have a feeling the school will probably use the outline for others wanting 504's for food I want to make very sure I get everything. Plus since they've never done it, they have no advice for me...I wish the school was the one with all the info and were giving it to me, but I guess that would be the easy way out, I am learning alot from having to do it myself. Anyways...good luck at your meeting, mine was very easy and relaxed...the next one I am nervous about though, that is with the 504 team! HUGS
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Sun, 03/11/2007 - 1:08am
Gail W's picture
Joined: 12/06/2001 - 09:00

We were . . . the first to request a Section 504 designation for PA.
We were also the first to be [i]denied a 504 evaluation [/i]for PA, the first to receive an IHP for PA, and then (finally) the first to receive a 504 for PA.

Posted on: Sun, 03/11/2007 - 1:57am
mistey's picture
Joined: 01/18/2004 - 09:00

My ds will be entering kindergarten in the fall as well. I have been told that they have had students before with pa, but no 504s for them. Was told that they were "very cautious. We keep the Epi Pens locked in the nurses office nice and tight. And if there is a peanut butter cookie on the lunch tray that day, your son will be given a chocolate chip one instead."

Posted on: Sun, 03/11/2007 - 6:03am
Jenna's picture
Joined: 07/09/2000 - 09:00

As far as I know, we were the first ... (which explains a lot of the resistance.)

Posted on: Sun, 03/11/2007 - 10:03am
anonymous's picture
Joined: 05/28/2009 - 16:42

We have been the first in our district to request a 504 plan for FA, and right after we were found eligible, the district got into high gear and is finally working on a district-wide food allergy policy. Coincidence? [img][/img]
I know that my child is not the only severely FA student in the district...

Posted on: Sun, 03/11/2007 - 3:05pm
Nutternomore's picture
Joined: 08/02/2002 - 09:00

We were certainly trailblazers....not sure if we were the first with a 504 for PA in our district, but most likely the first one at our elementary school. And most definitely the 1st [b]comprehensive[/b] 504 the district had ever seen...
[This message has been edited by Nutternomore (edited March 12, 2007).]

Posted on: Sun, 03/11/2007 - 11:08pm
anonymous's picture
Joined: 05/28/2009 - 16:42

Well our first phone call to the elementary school principal left me in tears. I was told that because they "LOVE THEIR STUDENTS" that DD would be just fine at the school without a 504 plan.
They had never dealt with another PA. So after receiving my certified letter requesting an eligibilty meeting, with the allergists quote that "this allergy is life threatening and severe" we are.
We have a 504 plan. DD started kindergarten in the fall. We have had a few meetings to make changes. They were not great on writing EVERTHING down, because they wanted both of us to have the freedom to discuss things.
The nurse was our main player. And she is awesome!!!! She gets it!!!! Other than feeling like a pain sometimes (which I am ok with), making some emergency phone calls on mornings where I heard food was coming in, etc....things have gone well. AT least so far. We also have the best kindergarten teacher ever!!!!!
I think that the more knowledge you share with the the better. I went in prepared. I had about a 2 inch manual with LOTS of laws, examples, messages from this board, and was ready for anything. And I barely needed to use any of it.
Good luck!!

Posted on: Mon, 03/12/2007 - 1:10am
anonymous's picture
Joined: 05/28/2009 - 16:42

From what I understand, there were other kids who were PA, but "not as severe" (School's words) as my son.
So, with regard to all the accomodations, yes, we were the first for our Elem. school.
For middle school - coming up very soon - again, there have been PA kids through the school (I just met one a week ago), but none with the "severity" of my son. (Again, "severity" is the term used by the school.)
I don't know if the school keeps referring to the severity because no one else with PA has ever sat down and explained it thoroughly or asked for accomodations before.
Regardless, we've made an impact (without being nasty), and the school has been wonderful about it so far. Very conscientious about it. We're incredibly grateful.


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