How do you respond?

Posted on: Mon, 04/24/2006 - 1:37am
RastaPasta's picture
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Joined: 04/05/2006 - 09:00

I've noticed in the past couple of years that people are becoming more aware of PA and in having this new found knowledge are asking more challenging questions. How do you respond to:

*I saw you eating a Butterfinger at the park (my PA dd was at school - 5 miles away)

*How allergic is your child?

*Can we eat PB/J next to her or do we have to be a certain amount of feet away?

*You know she could outgrow it at any time.

*How do you know at this moment that she is still allergic to peanuts/nuts?

*You know there is a vaccine, and why isn't is your child using it. I know it costs alot of money, but I'd do anything for my child.

Posted on: Mon, 04/24/2006 - 2:17am
LaurensMom's picture
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Joined: 05/23/2001 - 09:00

1) N/A - Though many PA parents do eat PB (and nothing wrong with it), I don't eat PB by choice to support DD emotionally.
2) Since reactions are immune system based, her reaction would be based on her immune system at the time of exposure. That said, she is as allergic as any woman can be a little bit pregnant.
3) Depends on the environment. If at the park, only a few feet would do - prefer her to be up-wind. In a closed environment, the further the better.
4) Though we pray for that, the odds are against her.
5) Definitively? I don't but she is CAP RAST tested every 2 years.
6) We are doing everything we can to keep her healthy, including refraining from the vaccine because at the moment, I'm not convinced there are no unknown risks. I know her PA and we can live with it. We've built our "circle of safety" and know what products and people we trust and don't. We keep a safety net of medications, plans, produres, etc, that will catch her if she falls. She isn't limited in her ambitions because we've already decided she can do anything she wants to do, we just have to find a safe way to do it.

Posted on: Mon, 04/24/2006 - 3:35am
becca's picture
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Joined: 05/22/2001 - 09:00

I do not know of an *available* vaccine for PA. Am I missing something? becca

Posted on: Mon, 04/24/2006 - 3:42am
becca's picture
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Joined: 05/22/2001 - 09:00

To answer the post,
*I do not eat PB. But I see no need to explain my eating habits to others!!!
*I would say my child has a life-threatening allergy to peanuts. Any peanut allergy is severe because any reaction could turn into "the big one".
*I prefer people not eat PB anywhere near her, but certainly at a seperate table and please clean up hands completey if the children will interact. (this would be if there were no other option at the time). Most folks I know would never have pb around dd.
*current stats suggest maybe 18% can outgrow, and she seems to fit the *most likely* profile for that, but it is still onyl an 18% chance. We hope.
*I know she is still allergic to peanuts because every year she is tested and is still allergic. She would have to test negative and then be challenged in a medical setting to know for sure. Even then, since she ate it for a bit before being allergic, she could get the allergy back again too.
*There is no current vaccine available is how I would answer that last one. Because I do not know of one. becca
[This message has been edited by becca (edited April 24, 2006).]

Posted on: Mon, 04/24/2006 - 4:27am
starlight's picture
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Joined: 01/16/2004 - 09:00

I'm sure this "vaccine" they're talking about is Xolair. For that one, you can inform them that it has not been approved for peanut allergy yet, it's still in trial stages. So you can only get it if you have asthma. Insurance will not cover it because it is around $10,000 a shot (which is given every three months or so, it's not a one-time thing, and would cost more each year than 3-4 years of college), and it does NOT CURE the peanut allergy, it just raises someone's tolerance. If a PA person taking xolair ate a bag of peanuts, I'm pretty sure they'd still stop breathing.
[This message has been edited by starlight (edited April 24, 2006).]

Posted on: Mon, 04/24/2006 - 6:07am
samirosenjacken's picture
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Joined: 09/30/2002 - 09:00

Quote:Originally posted by RastaPasta:
[b]I've noticed in the past couple of years that people are becoming more aware of PA and in having this new found knowledge are asking more challenging questions. How do you respond to:
*I saw you eating a Butterfinger at the park (my PA dd was at school - 5 miles away)
Ok, I am probably one of the few on the board who still does enjoy pb. I eat it VERY rarely and I mean rarely. If someone saw me eating something, it would depend on who asked me. A nosy busy body would get.. "and my eating habits are your business because??" If it were a friend or someone who understands the allery, I'd make a joke of how much I missed pb and how I just had to indulge myself. Then again, a true friend knows this about me and would never question it.
*How allergic is your child? Very.. next question?
*Can we eat PB/J next to her or do we have to be a certain amount of feet away? I'd prefer you go eat some place else and wash your hands thoroughly with soap and water before you return.
*You know she could outgrow it at any time. Really? You know something my allergist doesn't?
*How do you know at this moment that she is still allergic to peanuts/nuts? Because I am a clairvoyant you freaking idiot. That question really doesn't even deserve a response.
*You know there is a vaccine, and why isn't is your child using it. I know it costs alot of money, but I'd do anything for my child. Not me, I prefer to see my suffer and potentially die.
[/b]
For real, that's how I answer those questions if they were posed to me.

Posted on: Mon, 04/24/2006 - 4:03pm
RastaPasta's picture
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Joined: 04/05/2006 - 09:00

Samirosenjacken...I like your attitude!
Becca, you didn't miss anything about the vaccine or outgrowing the allergy, they are actually irrelevant. My curiosity is more in the way of detecting whether or not the question or statement made was maliciously intended or in other words, "is this just another a**h**e trying to minimalize FAs".
Naturally, I'd have to first size up this person before responding. School officials, etc ... well, their position says it all, legalities.
Regarding the Butterfinger & my PA dd being 5 miles away; the parent that made that statement has had a very difficult life, and has spent years in a state of perplexity. I later learned that she is the mother of a former classmate of my dd's 3 years in a row. This poor mother had been continually inconvenienced on a yearly basis by being asked, just like the other parents, to not send in any food items for sharing purposes that contained peanuts & nuts. She obviously could not understand why the parent of a PA child (dd was at school 5 miles away!) could eat a Butterfinger at the park, and for 3 entire years she had to refrain from sending poison into my dd's classroom.
That poor woman ... I just think its better for her to work out the answer for herself even though the reason was clearly explained in every school party announcement.
How many announcements is that per year? Let's see: birthday parties x's maybe 24 kids plus 3 teachers w/b-days, Halloween, Thanksgiving, Christmas, V-Day, Easter, etc x's 3 = plenty enough times for the dumb a** to know the answer!
Again about the Butterfinger. From the time my dd began asking every question under the sun, she always asked her dad & myself if we liked PB. We always responded with a "yes", and explained that we chose not to eat it or have PB in the house because her safety was more important. Here we are 9 years later, she asks, we give same answers, and she tells us that its okay to eat PB. So now, I go to the park or just outside to stuff my face with Butterfingers.

Posted on: Mon, 04/24/2006 - 8:58pm
Renee111064's picture
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Joined: 07/05/2001 - 09:00

Here would be my response to questions:
*I saw you eating a Butterfinger ( I prefer Take5 by Hershey's [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]) at the park (my PA dd was at school - 5 miles away)
[b]Although my child is peanut allergic, I still enjoy peanut flavored products and make sure that all the residue is gone before I will even think of touching my child.[/b]
*How allergic is your child?
[b]DEADLY ALLERGIC[/b]
*Can we eat PB/J next to her or do we have to be a certain amount of feet away?
[b]I'd prefer that you do not sit next to my child, we wouldn't want accidentally expose to him or accidentally touch him with your peanut product.[/b]
*You know she could outgrow it at any time.
[b]Yes, I have heard of these reports as well, but according to our doctor it is highly unlikely that my child will ever out grow this particular allergy.[/b]
*How do you know at this moment that she is still allergic to peanuts/nuts?
[b] Again, according to our doctor the probability of my son outgrowing this allergy if very slim. The exposure of testing him again is not something that we want him to have to go through with the probability of a severe reaction.[/b]
*You know there is a vaccine, and why isn't is your child using it. I know it costs alot of money, but I'd do anything for my child.
[b]If I knew that this vaccine was a miracle and my son would never be allergic he'd take the vaccine in a heart beat, but our doctors have not discussed this with us, I'm sure if she ever feels that the vaccine would cure my ds from being allergic, he'd be the first in line. As it is we go for allergy shots for everything else he is allergic to.[/b]
best wishes,
Renee
[This message has been edited by Renee111064 (edited April 25, 2006).]

Posted on: Mon, 04/24/2006 - 2:17am
LaurensMom's picture
Offline
Joined: 05/23/2001 - 09:00

1) N/A - Though many PA parents do eat PB (and nothing wrong with it), I don't eat PB by choice to support DD emotionally.
2) Since reactions are immune system based, her reaction would be based on her immune system at the time of exposure. That said, she is as allergic as any woman can be a little bit pregnant.
3) Depends on the environment. If at the park, only a few feet would do - prefer her to be up-wind. In a closed environment, the further the better.
4) Though we pray for that, the odds are against her.
5) Definitively? I don't but she is CAP RAST tested every 2 years.
6) We are doing everything we can to keep her healthy, including refraining from the vaccine because at the moment, I'm not convinced there are no unknown risks. I know her PA and we can live with it. We've built our "circle of safety" and know what products and people we trust and don't. We keep a safety net of medications, plans, produres, etc, that will catch her if she falls. She isn't limited in her ambitions because we've already decided she can do anything she wants to do, we just have to find a safe way to do it.

Posted on: Mon, 04/24/2006 - 3:35am
becca's picture
Offline
Joined: 05/22/2001 - 09:00

I do not know of an *available* vaccine for PA. Am I missing something? becca

Posted on: Mon, 04/24/2006 - 3:42am
becca's picture
Offline
Joined: 05/22/2001 - 09:00

To answer the post,
*I do not eat PB. But I see no need to explain my eating habits to others!!!
*I would say my child has a life-threatening allergy to peanuts. Any peanut allergy is severe because any reaction could turn into "the big one".
*I prefer people not eat PB anywhere near her, but certainly at a seperate table and please clean up hands completey if the children will interact. (this would be if there were no other option at the time). Most folks I know would never have pb around dd.
*current stats suggest maybe 18% can outgrow, and she seems to fit the *most likely* profile for that, but it is still onyl an 18% chance. We hope.
*I know she is still allergic to peanuts because every year she is tested and is still allergic. She would have to test negative and then be challenged in a medical setting to know for sure. Even then, since she ate it for a bit before being allergic, she could get the allergy back again too.
*There is no current vaccine available is how I would answer that last one. Because I do not know of one. becca
[This message has been edited by becca (edited April 24, 2006).]

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