How do you all deal with this?

Posted on: Sat, 08/16/2003 - 11:41pm
brimor's picture
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Joined: 06/09/2000 - 09:00

Our 2 dd's are entering 4th and 6th grade. Older dd has asthma for which the school nurse has an inhaler. Last school year she had lots of problems with her asthma, once needing her inhaler and the nurse wasn't there - they had to go find her.

Younger dd has peanut/ tree nut allergy and thankfully this past school year things went ok. Teachers, aides, classmates are all aware of her allergy and are very good about it.

My concern in that her Epi-pen is kept locked in the nurses office per school policy. To me, that does no good really. What if she has a reaction and the nurse is't right there? She may not have time to wait....

So what do you do? To keep it in the classroom still wouldn't work because at points thru the day they may be far away from there. Do you put it in a fanny pack (she would HATE that) or pass it on from teacher to teacher (I'd be worried it would be forgotten somewhere) or keep one in each room that tey go in? We live in NY and by law kids can carry their inhalers, but not Epi-pens.

I'm not sure what the answer is, only that I'm not comfortable with the current situation. I feel confident that the school would work with me on whatever we need to do to a certain extent(and if not I have the option of a 504 plan).

Any ideas, suggestions, opinions, etc would be GREATLY appreciated!!!!!!!!!!!!!!!

Liz

------------------
B: asthma, bee sting allergy, mild EA's and eczema

M: peanut & nut, severe EA's and eczema

A: asthma, peanut, nut, fish, penicillin, severe EA's and eczema

Posted on: Sun, 08/17/2003 - 12:14am
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I attended a food allergy seminar at the local Children's Hospital, given by a pediatrician who also has a food allergic child, and she said that the #1 thing about school to remember is NEVER LET THEM LOCK THE PEN AWAY. The preschool where my daughter is starting in one week (gulp) has boxes that are in each room. They are child-safe, but not by lock-n-key. My daughters Epi Pen will stay with her in her classroom, in that teacher's 'safe box.' I would push for something similar. As for what to do when the kids aren't in that room, I have heard of tag-team type of Epi Pen passing. Maybe someone else has insight on how that works...

Posted on: Sun, 08/17/2003 - 12:45am
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[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001066.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001066.html[/url]

Posted on: Sun, 08/17/2003 - 12:46am
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Joined: 09/23/2002 - 09:00

wrong thread [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
[This message has been edited by MommaBear (edited August 17, 2003).]

Posted on: Sun, 08/17/2003 - 6:41am
StaceyK's picture
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Joined: 05/06/2003 - 09:00

? I don't get it ~ what does Wrong Thread mean?

Posted on: Sun, 08/17/2003 - 8:37am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by StaceyK:
[b]? I don't get it ~ what does Wrong Thread mean?[/b]
I posted a link in this thread. I meant to post it in another thread. (Hazard of rapid posting.) I then edited it out and gave a reason for my edit. ie: [i]"wrong thread".[/i]
sometimes people say "edit for typo", "duplicate post", "post appeared", " [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]", etc. In this particular instance the link I was posting was meant to be posted in another thread. Although I find very little if any information on these boards not to be connected in some way. If pressed, it probably wouldn't have been hard to draw a connection.

Posted on: Sun, 08/17/2003 - 8:39am
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Joined: 05/06/2003 - 09:00

Ahhhhhhhh... I get it now. I am still (kinda)new here. Thanks for the explanation.

Posted on: Sun, 08/17/2003 - 8:40am
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Joined: 09/23/2002 - 09:00

posting again to clarify: link I posted above a post or two [i]was[/i] meant to be posted in this thread: ie: [i]"right thread".[/i] It was the one I posted immediately after and then edited out. ie: [i]"wrong thread"[/i]. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 08/17/2003 - 8:43am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by StaceyK:
[b]Ahhhhhhhh... I get it now. I am still (kinda)new here. Thanks for the explanation.[/b]
No prob. [i](Cupping hand over side of mouth and whispering.............[/i]
I'm kinda new here too. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
But more like an old soul.
MommaBear [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 08/17/2003 - 11:18am
CVRTBB's picture
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Joined: 11/23/2001 - 09:00

My pa kids are actually at both ends of the spectrum... My daughter's epi pen jr is locked up in the office (actually there are two of them there... one for her and a backup for brother) and my son carries his epi pen jr in a shot case attached to his belt everywhere he goes. His inhaler and spacer are kept in his book bag so there is immediate access to it also. I am comfortable with this because a: My daughter has never had a reaction. b: Should she have a reaction at lunch time her brother with the epi pen is seated just a table or two away. My son on the other hand has had five anaphalctic reactions in the past year, so under no circumstances would I want it to be anywhere but on him! He is contact, smell and taste sensitive. Two of his reactions were to trace amounts of residue (washed off table a day after it had been eaten on and a computer keyboard).
I guess mainly what I am trying to say is that as a mother you are your childs greatest advocate and you have to go by your gut feeling of what is best for your child based on what you know.
When my son started school I let them keep his Epi in the office till he had his first anaphalactic reaction, then I insisted he wear it. Circumstances do change and you just have to follow your best judgement and pray you made the right one. Difficult to do sometimes!
HTH,
Valerie

Posted on: Sun, 08/17/2003 - 3:06pm
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Joined: 05/28/2009 - 16:42

In what state are they allowing your son to wear the epipen?? I am in California and am sending my son off to to a private kindergarten in two weeks. I have been told that state law will not allow him to wear his epipen and that it must be kept locked up. Just curious. Cheryl

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