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Posted on: Fri, 12/29/2000 - 1:52am
mamagaona's picture
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Joined: 12/29/2000 - 09:00

I am new to this wonderful website, but not that new to PA, my 6 yr old was diagnosed over a year ago. I read labels like crazy. Luckily, Rebecca's reactions are all gut, SO FAR. We do expect them to get worse, but always have trusty epi-pen available. Rebecca was looking over my shoulder as I am online and she would love to have a penpal online who has the same issues. Any takers out there? Since she is a 1st grader there would be a lot of coaching on my part [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Also, do any of you have a 504 plan in place for your children? I plan on implementing one as soon as we get back to school. She has a wonderful teacher this year, but I think things need to be more formal since she is leaving on Maternity leave at the end of March [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Arlene

Posted on: Fri, 12/29/2000 - 3:23am
PattyR's picture
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Joined: 04/12/2002 - 09:00

Welcome to the board mamagaona! There is a thread on the board entitled PA Penpals. There are many kids hooked up at the site. I believe you can find it on the main discussion board. If not, just do a search for PA Penpals.

Posted on: Fri, 12/29/2000 - 10:33am
Anonymous's picture
Anonymous (not verified)

Here's a postscript to the children's theater story. My friend (whose son was in the play) just called me to tell me that at the performance we saw, a 3 year old from a day care group had run up on stage to grab a cookie before the group leaders could stop him. He got pretty sick, and the group leaders let the theater management have it for giving out cookies without adequate warning, and advising people of what was in the cookies. The theater is now giving plenty of advance warning as well as telling people what the cookies contain, but as of now is still giving out the cookies. I guess it is some small progress.
When stuff like this happens, I sympathize with my son, and explain to him that other people can't have them for all sorts of reasons, ie, diabetes, keeping kosher, etc. I hate to rain on anyone elses parade, but I just wish food didn't keep cropping up in unexpected places!
BTW Cindy, you asked how old Kevin is - he is almost 7, and vacillates between being wise beyond his years (with regard to PA) and being a kid who wants life to be fair. Don't we all! [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

Posted on: Fri, 12/29/2000 - 11:56am
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Anonymous (not verified)

Connie and Amy, now I'm beginning to wonder if my just turned 5 year old who is handling PA well with begin to feel differently within a couple of years.
I had a very small thing re PA to-day. I had to take my daughter to the hospital because she has pink eye. Turns out Jesse does too, but anyway. It wasn't a big deal, but it sorta raised the stress level for awhile because we were in there for four hours waiting (the doctor's office is closed and the message actually advises going to emerg),
everyone, I guess started to get hungry and buying snacks from the vending machines. I eyed the machines and I saw a Snickers bar and some M & M's. There were some potato chips that I'm pretty sure are made with peanut oil.
They also have Nintendo 64's in the waiting room for the kids to play with. This other little guy that was playing with Jesse had been eating cheesies and thereby leaving cheesie dust (or whatever) on the gamepad.
I was just thinking, what if it wasn't cheesies but something peanut product related?
I just made sure that I kept my eyes open if someone was eating near my kids and I. It's just something that other people don't have to do when they go to emerg.
Season's Greetings and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Sun, 12/31/2000 - 8:37am
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Joined: 11/16/2000 - 09:00

Hi All
I just had to share this with you all ....don't know if you will find this as funny as I did but I just roared until my sides hurt!!!!
There is a fantastic seat sale from Air Canada right now and I decided to surprise my parents and book a visit with them ....After spending a great deal of time on the line with the agent, we found flights that didn't leave me starving to death with long layovers etc. Before the final booking was done, I asked the attendant to mark on my file that I am highly allergic to peanuts and to please ensure that no peanuts were served on the flight as the smell gets me sick. She was wonderful and made the note but reminded me that the food cannot be guarenteed because of it coming from outside suppliers. I told her that this is not a problem as I don't eat for 2 hours before a flight and won't eat while on a plane just to ensure that I don't have a reaction while in flight. (see you guys have taught me something *smile*)
She was so helpful and caring but reminded me that I should please not forget to bring my [b]Insulin[/b] in case of an emergengy!!!!!
I hardly could suppress my laughter!!!
Sharon
[This message has been edited by SharonA (edited December 31, 2000).]

Posted on: Sun, 12/31/2000 - 9:53am
Anonymous's picture
Anonymous (not verified)

SharonA., yes, well, remember your insulin when travelling with Air Canada! LOL! That is actually cute.
I had a minor little thing yesterday. I'm wondering if I come in and post in this particular thread every time PA does affect me in some way, it could almost be a diary, and, in effect, remind me how often PA actually does affect me when I think it's not.
Last night, Jesse had some puffed wheat cereal for his snack. He had never had this before. We checked the label and it appeared to be okay (or obviously, I wouldn't have let him have it). However, I have also noticed that his father is having some difficulty recognizing that manufacturers are not legally required to label properly and store brands are definitely not okay. Case in point, my IGA brand scotch mints have recently been labeled "may contain". Well, yesterday, when we picked a few things up to get us through the week-end, they had the IGA store brand scotch mints, no warning. I went on to tell him that this was probably an old batch before they started warning. I'm not clear. Perhaps they're even diligent enough to mark only when the product actually "may contain" and if they know the product is "safe" they don't. I will have to contact them to find out what their practices are.
Then, we were buying waffles and again, there were the store brand ones that were considerably less expensive than the Eggo ones. I had to remind my husband again why I couldn't purchase them. Now, he gave me no argument whatsoever regarding this because he recognizes that Jesse's safety is more important than a few dollars saved. However, I can see that he is thinking perhaps I'm becoming a bit fanatical about it.
So, Jesse had the puffed wheat last night.
Then, about half an hour later, we were all playing a racing game on the computer and he started crying and crying because we hadn't let him win. Let's just say he was a very poor loser and he's also such a sensitive little soul. At any rate, it was at that point that I began to worry because when he had his 2nd reaction (1st anaphylactic one), he got extremely cranky and started crying.
His one eye was a tiny tiny bit swollen but he also has pink eye right now which rather explains that. But, it still made me sit up and pay attention. I was so worried that he was having a reaction to the puffed wheat.
I checked on him I don't know how many times after he went to bed and actually tried to wake him up when I went to bed last night. I put my head on his chest so I could hear his heart beat which was as hard and strong as all of ours. I was just so uncertain. And, the thing that I thought would be in the indicator for me, swollen lips, well, I'm looking at his lips last night and they appeared a little bit swollen on the top lip.
But, I think that's actually just the way his mouth is to begin with.
At any rate, I've started to question if I even know what to look for in a reaction with him. As I have said, each of his reactions happened quickly and all three involved his lips swelling and turning blue. I think I can still go with that, but, as I said, last night made me unsure of myself again. I didn't like the feeling and I didn't like having my head on his chest hearing his heart beat last night either.
Oh, the guys have a train game downloading and it's at 98%, so I have to get going.
Season's Greetings and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 01/01/2001 - 1:08am
Anonymous's picture
Anonymous (not verified)

Hi Cindy,
I think children will go through different phases in their lives regarding this allergy.
At 4-5 years of age, my son was what I consider the "baby" stage still and what I said goes. Now at 6 1/2, he is getting more independent and bold and is trying to expand his wings, so to speak, regarding other areas of his life, i.e. his parameter has increased for riding his bike or scooter. He has more input in things he does but he doesn't understand that it does not carry over into his peanut allergy. Whereas he has more say-so in other areas, peanut allergy is non-negotiable and he has got to stay within the boundaries we have set for him. He is having a hard time separating the two. Am I making sense?
I just keep in mind that boundaries are like a rubberband. Once you extend or "stretch" the boundaries, the rubberband will never go back to it's original shape.
At this point, I have no idea if I have helped or not. (This is why I personally try to avoid long posts...I confuse myself)! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I know what I'm trying to say but I just have a hard time expressing my thoughts!
I think my biggest worry will be when he hits his teen years. I'm hoping for little rebellion there but that goes without saying.
To sum it up, try not to worry about Jesse. (Easier said than done, I know). [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] Communication is the key with anything and with you as Jesse's mom, he is off to a good start with the communication factor! [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
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Stay Safe.
[This message has been edited by Connie (edited January 01, 2001).]

Posted on: Mon, 01/01/2001 - 1:20am
adamsmom's picture
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Joined: 02/09/2000 - 09:00

Cindy,
When you mentioned going in and looking at your child while he was sleeping ... watching for any signs ... Wow ... I can't tell you how many times I have done that too. Plus, when we are eating I am very aware of his mouth ... Is it turning red? Does it look puffy? Why is he itching his lips and what has caused it this time?
I would say that PA is with our family every day. Not to say that we are stressed out all the time ... only sometimes! (smile) Even our youngest, Sam, who is not allergic, is affected ... makes sure he washes his hands and rinses his mouth after drinking milk or eating other foods that might be sensitive to his brother. On Halloween night he asked EVERY person handing out candy if the candy contained peanuts ... Adam, who is allergic, told him that he didn't need to ask ... Sam said that yes he did ... he didn't want to eat anything that would hurt his bother. He was our own little Food Allergy Spokesman that night ... it was amazing and wonderful.
I just asked Adam if he thought PA affects him every day ... he said he thinks about it if we go to the library, the park, the grocery store ... he said he doesn't WORRY about it ... just thinks about it.
Halloween obviously was not "today" ... just was an example of how our day sometimes is ... usually involves someone asking, "Does this have peanuts?"
Have a great day!
Susan and Adam

Posted on: Mon, 01/01/2001 - 4:12am
Anonymous's picture
Anonymous (not verified)

Connie, your post made perfect sense to me.
Now, I do make long winded posts but I also think anyone reading them can see when my brain synapses have stopped firing completely! I just read, what I consider your compliment, to my husband and he said that that is very true. I actually do talk things out with my children and definitely don't avoid talking about PA. One of the things that has consistently ticked both my husband and his mother off was how I spoke with my children, like mini-adults rather than babies, even when they were babies.
However, I believe I did the right thing. They are both able to verbalize really well
(not always stuff I want to hear, though!).
adamsmom, I'm fortunate in that I haven't had to check on Jesse like I did the other night before. Not to do with his PA anyway. Now, the asthma, that's another story. Last night, it was actually my daughter, and I was quite surprised as she is less prone, and she had to have puffers in the middle of the night. I was really surprised. Sometimes I find the asthma more frightening because I can control PA as best as I can, I think, but asthma I can only control some of the triggers. I can't control viral infections which trigger their asthma.
Also, for me, I find it more difficult to recognize the signs of distress with asthma.
I know the ones for PA. But, I think I also proved to myself the other night that I'm not as clear as I thought I was or feel I should be. At any rate, I simply know he's not having any more of the puffed wheat. I don't know if you could simply have a reaction that consisted of crankiness only. I know it sounds really weird, but I am definitely unclear about that food. Now, Jesse will be cranky if he has a cold and stuff and I expect that, but the other night, it was just weird. So, definitely, no more puffed wheat so I don't have to worry like that.
Happy New Year and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Mon, 01/01/2001 - 7:10am
Anonymous's picture
Anonymous (not verified)

Now, this didn't happen to-day, but I did think about it to-day when I was actually out of the house, for a whole one hour alone, without the kids. I had been in a similar situation just last week.
Jesse had seen the commercials on TV for Terry's chocolate oranges and I guess the idea of smashing a chocolate bar to have it come apart in pieces that he could eat appealed to him. So, I told him that I would check the label. Well, I did, and of course, they are not safe. I came home from that excursion and told him that I had checked the chocolate orange and that it was not safe for him. He was okay with it.
That's the thing that really bugs me the most. I'm the one that feels badly and I'm glad that he is as accepting as he is, and now recognize that he might not always be. I just find it so disappointing when your finicky eater child does want to try something new (even if it was a seasonal chocolate product) and it's something they can't have, yet again.
As I say, Jesse seemed okay with it but me, I was heartbroken that I had to say no again.
And I know there will be so many things to say no to over the years. It just seems like the list keeps growing though, although I'm sure that's not true. Anyway, I did think about that to-day when I passed by a store window with one of them in it.
Happy New Year and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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