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Posted on: Wed, 12/27/2000 - 6:19am
Anonymous's picture
Anonymous (not verified)

Today we saw a childrens' play called Little House of Cookies. At the conclusion, all the kids were invited up on stage to sample Mrs. O'Brien's famous cookies. While everyone else dashed up to the stage to sample them, I sat there with my son (eyes brimming over with tears - I'm sure you can picture it), explaining to him (even though he really knew) why he couldn't have them. Then the overwhelming smell of PB started circulating - most of the cookies were PB cookies - so we high-tailed it out of the theater. All it took to really put a damper on the outing was the 2 minutes it took to distribute the cookies.

Posted on: Wed, 12/27/2000 - 6:40am
PattyR's picture
Joined: 04/12/2002 - 09:00

Amy, I am so sorry that happened! I know the heartbreak that you must have felt for your child. We have all been there and understand. I think it is a bad idea for them to give out food like that. The same effect could be gotten from giving out a paper cut-out of a cookie or just allowing the kids to come up on the stage.

Posted on: Wed, 12/27/2000 - 8:40am
Anonymous's picture
Anonymous (not verified)

Amy, wow, this was really hard to read. I'm so sorry for both you and your son. I'm not sure, but I think that what's equally frustrating is that we all seem to be trying so hard to make sure our children enjoy and lead "normal" lives. And then something like this creeps in and that's it.
I guess my point is that you tried and that you and you and your son did have a good time until the last two minutes. I don't understand why food has to be a part of absolutely EVERYTHING, but I have lately begun to question my sanity to begin with anyway.
Last year, the circus (if you could call it that) decided to come to our small town and I was bound and determined that we were going.
I had actually never been to a conventional circus as a child and when I saw one as an adult, it was Archaos (or something, about 10-15 years ago, can't remember) and of course, then, I wasn't thinking about peanuts. So, I didn't even realize that there would be peanuts anywhere or I thought if there were they would be sold outside like all the other food/drinks - big DUH to Cindy.
Anyway, you know the rest - peanuts everywhere. And not 'til we got inside and seated and they began bloody flogging them.
The other thing that irritates me about any special thing that comes to town or towns nearby is that the children are automatically given a free ticket/pass in their knapsacks.
So, of course, all of the children want to go. My girlfriend is having a heck of a time explaining to her three why they're not going to each and every little thing that happens to hit this small area. Her reasons are different.
Again, my point would be, at least I tried.
I tried to take Jesse to the circus and he did enjoy it. It was his father and I that were doing major freak-outs inside because there were peanut shells everywhere, peanuts everywhere and the whole place smelled of peanuts. We ended up leaving at intermission. I also came in here and posted and I got a lot of great advice about how to take your PA child safely to a circus.
Amy, you tried. You and your son did have a good time except for at the end. Maybe you could write to the people who put on this production and explain how it was for you and your son at the end. Maybe they could re-think handing out cookies as the other person posted above - hand out something else not food related. But, they won't know that anyone had any problem or not even a problem, but an upset with it if someone doesn't bring it to their attention. You could simply write and tell them what happened and give them simple alternatives to the cookies. That's what I would do.
You're a good Mom, Amy. You tried to-day. You explained very well to your son why he couldn't go on stage, and you know what, I bet he "got it" better than you did. That's what always happens with Jesse and I. I'm crying or about to cry and he's like "it's okay Mommy" or "next time Mommy". They seem to have an almost inherent understanding of it, or Jess does at this age anyway.
Season's Greetings and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 12/27/2000 - 8:44am
Anonymous's picture
Anonymous (not verified)

I had this really weird blip of PA cross my mind yesterday. Our power went out for about an hour. It was okay. My husband had JUST bought a mini flashlight for such occasions and I always have a candle hanging around.
However, I decided to eat some new Tostitos I had bought yesterday, the Quesadilla flavour.
I had checked the label in the store thoroughly of course when I purchased them.
Then, in the dark, or mostly dark, I realized that we were eating something totally new that Jesse had never tried before and what if? What if?
Would I be able to see a reaction well enough in the near dark? Would I be able to follow through with all the other steps should one occur?
My advice here - never try a new food product, despite having read the label before purchasing it, during a power outage. It was not a pleasant thing to start worrying about when you're already worried about how long is the power going to be off, how long will we be without heat, etc.?
Season's Greetings and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 12/27/2000 - 9:20am
davidsmom's picture
Joined: 12/02/2000 - 09:00

There isn't a day that goes by that I don't think about this allergy.
Every day my family is affected by it. I had to quit work at the place I had been for 15 years because I was afraid that it was too far away from my son. For the past year I have stayed at home (which affects us financially) so that I could be assured that he is safe. I feel guilty when I think about returning to work, and I feel increasingly out of touch with my profession the more I am away from it.

Posted on: Thu, 12/28/2000 - 1:04am
Anonymous's picture
Anonymous (not verified)

Davidsmom, Oh how I can relate to your feelings! I, too, quit work after being with the company 14 years. I was an executive secretary and the last call I received from daycare that Rescue was on it's way because my son had been *touched* by another child with peanut butter on their hands and his eye was swelling out of his head and covered with hives, I was in the middle of typing board reports. The stress was overwhelming and every time my phone rang at my desk, I would jump thinking it was daycare.
I can certainly relate! (I don't miss a thing about *rush hour* traffic though) LOL!
Hang in there!
Stay Safe.

Posted on: Thu, 12/28/2000 - 1:50am
Anonymous's picture
Anonymous (not verified)

Thanks for all the sympathy (sniff, sniff!). He seems to have forgotten all about it today, and even said that going to the play was the best thing he did yesterday.
Cindy, BTW, I did mention our problem to the house manager as we were leaving the theater. Maybe they'll rethink their position, but, I doubt it.

Posted on: Thu, 12/28/2000 - 2:30am
Anonymous's picture
Anonymous (not verified)

See, Amy, your son was fine! I have had this happen on more than one occasion with Jesse. I'll be the one that is upset and he is absolutely fine.
However, having said that, I'm not saying that you don't have a right to cry when something like this happens or to feel the way that you do about the situation. You do.
I think it would be pretty hard to toughen up that much whereby things that we consider hurtful don't hurt us when it happens to our child (even if our child isn't hurt).
I do think it's something that they grasp really easily and I'm not sure if it's an age thing - how old is your son? Jesse just turned 5. He has been like this for awhile.
Things that bug me re his PA that he learns about (which are rare) don't bug him. I'm not sure if this changes when he gets older and it does start to bug him as much as it bugs me, especially because he does seem to have the same sensitive nature that both his father and I have.
Also, that's why we can type and come in here and post and our children aren't in here yet!
We feel things that they don't and we need to get them out and get rid of them to carry on.
There are so many things that I find absolutely heartbreaking and yet they aren't heartbreaking to Jesse yet. When I posted about disappointment at the treats at his Hallowe'en party, one person did ask me if Jesse had had a good time at the party. Yes, he had. It was me that was upset.
I think it's okay for us to get upset on behalf of our children and how they may (or may not) react to a particular situation re PA.
And again, you're a good Mom, Amy. You are trying. You haven't automatically isolated your son because of his PA. You're trying to get out there and do things and you are able to explain when a situation arises that he can't participate in. I think that's wonderful and also probably why your son is able to take it in stride.
Season's Greetings and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 12/28/2000 - 2:39am
Anonymous's picture
Anonymous (not verified)

Amy, I must have scrolled down one too far because I totally missed your post about your son. I think this is one of the hardest parts about this allergy. My son (age 6), who in the past has been VERY good about coping, is now in the *well that's not fair* stage and *can I please just try it* phase. I hope everything we have taught him thus far will not go out the window!
Your son sounds like a trooper! It sure does tug at your heart though! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
Stay Safe.

Posted on: Thu, 12/28/2000 - 9:25am
WoozerMom's picture
Joined: 12/28/2000 - 09:00

My hat is off to all of you parents of PA kids. I am a 61 year old with PA who has probably had this allergy forever. I did not start having reactions until I was about five. I am also allergic to several types of tree nuts. In addition, I am mildly allergic to many, many foods and to a large range of environmentals. These include trees, dust mites, some shrubs and most weeds, etc.
I want to tell you that your kids will be fine Things that you think will scar them for life will in the long run just be a blip on the screen for them.
The older their friends become, the more they will try to accommodate your children because they will understand the allergies better. In fact, your children will be moved to tears by the many kindnesses they will experience.
Keep educating the schools. Keep educating your families and friends. Start making your kids responsible for themselves at an early age -- hard to do, but absolutely essential.
In some cases, it could be helpful to have an allergist speak at a school staff meeting or a PTA meeting. Possibly getting the media to feature the allergies in some of their publications.
So how did PA affect my life today? It didn't and seldom does. I have avoidance down to a science and it works. My neighbor brought some rolls containing walnuts over tday and left them on the porch with a warning note. (I am in a new neighborhod and already have them all trained. LOL) When I go to a potluck, I take something I can eat. Doing without is not so bad, especially when you know the results of eating the wrong things. I have explained the use of the EpiPen to all my friends and relatives.
Anyway, take a deep breath and remember that things will be easier down the line. At least there is more awareness now than when I was a child.


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