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Posted on: Sun, 02/11/2001 - 2:27pm
Imalulu's picture
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Joined: 02/11/2001 - 09:00

Today I read the article out of Johns Hopkins so for an odd reason, PA has brought me from a constant state of nagging worry (pushed back, lived with, but still there) to a sense that sometimes there MAY be light at the end of the tunnel.
My son VISITED a chess club when he was about six. At the time, there were many, many peanut candy items sold each week at the club, to raise money. I discussed this with the woman who bought the candy. Can you imagine facing someone across a chess board, eating PN stuff, and touching all the pieces to boot? Anyway, we did not go back for about a year. And this SAME lady said "Where were you? I quit buying peanut stuff since I figured, if your kid had it, others might." All the peanut stuff has been gone, and he has been in the club for two years.
Yesterday he went to a tournament. No issues!
This does not affect us everyday, except that nagging worry stuff. My philosophy is, and please read this all you young moms because I lost way too much sleep when we were newly diagnosed: If nothing is wrong right this minute, then I have no reason to be unhappy. My son is sleeping upstairs. Tomorrow he will eat HoneyCombs. He will go to school, drink milk and eat some awful rigatoni, then go to gym, get on the bus, and come home.
Normal life goes on, we are just careful, and it is better than having something truly awful going on.
By the way, for all those people worrying about parties and stuff, please, go out with your kid, get a big plastic box, fill it with safe treats, and stash it in his/her classroom. He can eat all year worry free, and you can tell the teacher, if she pays close attention and practices with the epi-pen trainer, she gets free snacks.
It is funny, the reverse effect is, other kids become jealous of your kid's treats! Life is weird, and aren't we the proof?!

Posted on: Mon, 02/12/2001 - 3:23am
Diane's picture
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Joined: 12/15/1999 - 09:00

Imalulu; I was discussing my DD PA last week with her Pre-K teacher. I asked if my DD feels left out or bothered by the fact that she brings in her snack and doesn't get what the other kids get. (they don't have PB snacks in class but I still have her eat only what she brings from home, usually pretzels, just to make it easier on all) Her teacher told me that, on the conrtary, her and another boy who has milk allergies, feel *very special* from the others because of their allergies. And another girl complained that she wanted to eat pretzels too like my DD.
Good idea with the box of treats...
And if I may, ask is your username like I'm a lulu?! LOL!

Posted on: Thu, 02/15/2001 - 1:40am
Anonymous's picture
Anonymous (not verified)

PA is not really affecting my day so far to-day. But, Jesse's teacher, who he has had since he entered JK at age 3-3/4 up until now, in SK, just over 5 years old - well, it's her last day with him to-day. He had been home sick on Tuesday and the teacher told my girlfriend to tell me to make sure Jesse got to school to-day even if he was sick because it is her last day. She is going on maternity leave for the new extended one year. And, by the time she's finished, Jesse will be almost through Grade 1! Also, my daughter, Ember, won't have her because she'll be on maternity leave.
I feel it has been this woman that has kept my son "safe" for the last almost two years at school. When she was originally faced with having to deal with PA, she was scared to death and she told a friend of mine who told me. But, she has also educated herself really well re PA and sometimes knows stuff before I do.
In the mean-time, he will be having one teacher for the next two weeks and then another one starting after March break until he finishes the school year at the end of June. I do know that I am supposed to meet with the new teacher (I think the after March break one) re Jesse and his PA.
I'll just really miss her. I think she was wonderful with Jesse and I think she considered Jesse special and that's why she wanted him there to-day. It wasn't like his PA was a pain in the a** to her, it made him special to her.
Wow, I don't know if I'll ever feel as safe as I have up until this point with him in school again, but I'm sure I will. I'm just not looking forward to the transition.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Thu, 02/15/2001 - 5:57am
WoozerMom's picture
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Joined: 12/28/2000 - 09:00

I haven't stopped in at this topic for a while, and it's so interesting to see what all of you parents do. In fact, I sometimes wonder how I grew up because, other than at home, I had to face nuts on my own every day as a child. I guess the good Lord was with me.
Anyway, I have a couple of suggestions which might help.
For Girl Scouts -- Request an appointment in person with the area Executive Director. Take PA/TNA information. Explain the situations that arrive for your kids. Suggest that a peanut policy for meetings be implemented. Suggest training for leaders about allergies. You might even get them to do a "patch" in Allergies. I know that I participated in a special patch on literacy a few years ago. (I was working in an adult literacy program.)
For pot lucks -- I love to go to them, but am afraid of the food. So we always take a casserole or pasta salad which I can eat. Sometimes that is all I have, but I can participate socially which is all I want to do. The food is unimportant compared to the socialization. As I get to know people, they start pointing out things they have brought which I can eat. For bake sales, I always label my donation as totally peanut and tree nut free. It is an opportunity to educate, without the stress of "speech making." Invariably, someone asks me about the label and another person learns.
I am in a service club and eat each week at a local restaurant. I befriend the server and explain my restrictions. I have always been accommodated. Recently, I went back to my former town and visited my old club. The server recognized me and made a point to tell me the food was safe.
It will take you time and a great deal of effort to make changes but it can be done.
May you and all your kids be safe.
WoozerMom

Posted on: Sun, 02/18/2001 - 6:01am
Mir's picture
Mir
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Joined: 02/12/2001 - 09:00

Very sobering for me to read through this thread.
This morning was our first at church since getting the WHOLE scoop on the severity of Isaac's peanut allergy, as well as finding out that he is perhaps allergic to eggs. So I very carefully packed extra snacks in the diaper bag knowing that most likely there wouldn't be any snacks afterwards that he could have.
I thought I was doing okay until I took my daughter up to the table afterwards to get a snack for her. Maybe I never noticed before--or maybe today was particularly peanut butterish--but the spread BOGGLED MY MIND. Brownies with peanut butter chips. Peanut butter cookies. Home-baked muffins and cookies that we'd have to avoid. Etc. It just looked like a peanut butter feast topped off with egg products! LOL! The only thing on the entire table that I could've given Isaac were some plain graham crackers and they were IN A BASKET WITH PEANUT BUTTER RITZ SANDWICH CRACKERS!!! They don't have another basket? I was really stunned. I'm still deciding what--if anything--I should say to the powers that be about this.
It made me sad all over again.
Miriam

Posted on: Sun, 02/18/2001 - 6:55am
Gennie's picture
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Joined: 12/21/2000 - 09:00

It keeps on happening to me too. I have educated and educated but I still have trouble with the ones who say they get it. One Mom at church promised me that she checked all ingredients and passed out Bit of Honey's anyway DUH! I asked her again why she just can't stick with Starbursts? I am bringing the treats from now on. Another lady called and asked nicely if my family was coming to the potluck. I said no and she said good because now she can bring her peanut butter dessert. I said NO! For one thing it is setting an example for others at church that peanut products are okay when they are not and two because it is putting peanuts in my sons environment. We all know how peanut butter spreads to more places than just the bread. It is constant & ongoing for us mothers. We have to be hyper-vigilant. I will say again that we are not overprotective. We are appropriately protective. Gennie

Posted on: Sun, 02/18/2001 - 3:41pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

My son and I attend a Mommy and Me preschool program. The teacher made an announcement early on in the class about a child in the class being peanut allergic and briefly told the parents how serious a reaction can be. I have been very pleased that parents have been sensitive about this when it is their turn to bring snack for the entire class (I always bring Joshua his own snack anyway). Well, this last Wednesday during opening circle, I saw a mother walk in with a rubbermaid container of peanut butter and jelly sandwiches for the class. I went into panic mode, grabbed my son, and took him out screaming and kicking because he didn't want to leave. Later that day I received a call from the teacher inquiring why I had left and if everything was okay. When I told her why she said the sandwiches were actually just jelly. BOY... do I feel embarrassed. The teacher told me not to worry or be embarrassed and she understands that I have to do what I feel comfortable with in order to protect my son!!

Posted on: Mon, 02/19/2001 - 3:29am
PattyR's picture
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Joined: 04/12/2002 - 09:00

Joshua's Mom,
Even though you were mistaken about the peanut butter it still could have been a bad situation for your child. Unless the mother had used a new jar of jelly, chances are that the jelly she used was contaminated with peanutbutter. Just about anyone who has peanutbutter in their house contaminates their jelly with it. We have to teach our kids not to eat jelly at someone else's house. Too risky! Anyway, you weren't too far off base. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Posted on: Mon, 02/19/2001 - 2:31pm
Anonymous's picture
Anonymous (not verified)

Joshua'sMomma, if it makes you feel any better, I probably would have taken my screaming child out of the room too, based on what I thought I had seen, BUT, I would have been screaming like a banshee too!
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Thu, 03/01/2001 - 3:17am
Anonymous's picture
Anonymous (not verified)

This happened last night and it isn't necessarily how PA affected my day, but how PA affected my way of thinking about what happened, which you will see was no big deal.
We had dinner last night. Right after dinner Jesse immediately started to cough. Not violently, but persistently. He was at the computer. I immediately went over to him and asked him if I could please see his face. It was fine. Now, Jesse is asthmatic but asthma isn't the first thing that popped into my head. I started to go through the foods we had had for dinner and if any of them possibly could have been cross-contaminated.
There was some deli meat which I think there may be a very remote possibility of cross-contamination of, but I don't think so.
Jesse continued to cough off and on but nothing else was wrong with him at all. I finally decided to give him his asthma puffers and lo and behold, his cough stopped.
What I find interesting about all of this is that, and I see it very often on this site, we have PA children and PA is forefront in some of our minds even when we are dealing with other medical conditions such as asthma.
Why would PA cross my mind when he starting coughing? Why wasn't it instantly his asthma?
I'm not saying that this way of thinking is incorrect. Because of the remote possibility of cross-contamination, it probably was good that PA popped into my head and I was watching Jesse. Last night, even when I went to bed, I could hear little sleep noises from him and I had to go in and check to make sure he was okay. I don't want to change my way of thinking. I want PA to pop there first. It may save his life at some point. But, I also find it interesting that the OBVIOUS reason for his coughing, his asthma, wasn't the first thing I looked at.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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