pratt's picture

Hi Everyone. Hope all had a nice holiday. Sean, our peanut/egg allergic 16 month old, spent Easter in the ER and then was admitted for pneumonia and severe asthma. They tell me asthma is common with children who have allergy. Anyway, when he was sent up to Pediatrics, I kept stressing the fact the he was peanut/egg anaphylaxis. I told my husband to keep the EpiPen next to his bed in case of reaction. The nurse informed us that we could not use it, they would have to order one and they would use theirs. She asked to see his to get the info off the script. While looking at it she explained that her husband had one. I showed her the EpiPen trainer that I got from FAN. She was so excited to see this because, and I quote, "Wow, can I try that. My husband has one but I don't even know how to use it" "What do you do, pull this black end off?" My husband and I were in shock. This is a high risk childrens hospital. I told my husband that I don't care what they said, he is to administer Sean his EpiPen if it is necessary. The whole key to success is in your quick response to administer the EpiPen. I don't think we should risk taking the chance that they have to read directions. They also gave me the menu to fill out. It had pb&j sandwiches on it and many other contaminated food. No I am scared whether or not the child next to him is going to order pb&j. I would like some opinions whether or not, and how, I should contact the patient advocate and discuss the severity of peanut allergy, staff training, and the possibility of special menu. Also, is it a good idea if peanut allergic children are in a room where the possibility of the person rooming with them ordering pb&j or any other peanut contaminated food can not happen? Right now I feel so uneasy because I know that Sean is at their mercy. Thanks Lynda

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