hi - new here

Posted on: Fri, 05/09/2008 - 1:16am
oompa_loompa's picture
Offline
Joined: 05/09/2008 - 07:52

Hi! I'm new here. DS, 3, has a PA -- which we found out the hard way, after watching him cough, wheeze and claw at his throat after eating a tiny bit of a product w/peanuts :( So, I'm here to learn more and connect w/other parents of PA kids.

Posted on: Fri, 05/09/2008 - 1:25am
SkyMom's picture
Offline
Joined: 10/27/2001 - 09:00

oompa_loompa, welcome to the board. Have you already been given an epipen, do you know about cross contamination? Did your allergist give you an action plan on when to use epi? Many of us were not given thorough info. at the beginning and it is so much more than just don't eat peanuts. I'm hoping your allergist filled you in om more than that. Ask any questions you need, and remember your son can live a normal life with added measures when necessary.

Posted on: Mon, 05/12/2008 - 9:08am
Mrsdocrse's picture
Offline
Joined: 01/16/2007 - 09:00

Hi
Keep Benadryl on hand and epi- pen with you at all times. Teach your child not to take food from anyone but you or someone who you trust to read a label. e have a rule.. If I didn't make it and it doesn't have a label, he can't have it. I try to keep a treat in my purse that is safe ( dum dum pop) or something un case he has to refuse a treat I will have something for him . If we go to anyone house I have a " safe snack" bag that I bring that has enough for him and who ever might want something.. that way he can have a safe treat and share a safe one with a friend.
good luck!
Therese

Posted on: Mon, 05/12/2008 - 10:33am
michellerene's picture
Offline
Joined: 05/12/2008 - 16:48

Hello friends! I am new to this site. I have a daughter who is 8 yrs old and has a PA. We found out she was allergic at 1.5yrs old. I came across this web site during my many long hours of researching. When my daughter first started school 4 years ago; I sat down with the principle and explained my daughters PA. Every year I provide the school with her allergy and med form from the doctor. Every year the school ensures me they have trained teachers on site to administer the Epi-pen when the nurse is not in school.( the nurse is there 2 days out of a 5 day week) The teachers know the signs and symptoms to look for. This past St. Patty's day my daughter was sharing her markers after lunch with one of her classmates. She started to feel itchy and went up to the teacher to tell her. The teacher than proceeded to tell her to sit back down so she could finish talking to the class. My daughter sat back down. After the teacher stopped talking my daughter went back up and told her she needed to go to the office now! The teacher sent her to the office..Without her Epi-pen and without a buddy. The school secretary noticed some hives and called my husband at home. Still no Epi-pen! Mind you; I have provided the school with 3 Epi-pens. Needless to say we administered the Epi-pen ourselves. So much for them implimenting the allergy plan they told me they had! Since then I have made 3 Food Allergy Action Plan binders for them. In them is an Epi-pen DVD and trainer, The Allergy Actin Plan steps with her picture, a pocket with another Epi-pen and Benedryl, a school allergy booklet, and the 72 page Mass. Education Guidelines for schools. I have asked the school to acknowledge FAAW and I have purchased posters for the school, made copies of FAAN's brocures,coloring pages for the class. I have purchased pencils and stickers for the class. And I have printed out PAL certificates for her classmates for the end of the week. The posters are not up yet, the flyers never went out in the communicator, the teachers are not carrying her Epi-pen out at recess or gym when I have requested it. I would like them to be proactive instead of reactive. And most of all since my daughters reaction she feels very unsafe at school because even she knows they did not react to her reaction appropriately. Sorry this is so winded but I don't know what else to do to. I need some advice. I feel like I,m fighting a battle that no one is listening to. Please if anyone can help me I would love it. I feel so helpless! Thanks for listening! A mom in Mass.

Posted on: Mon, 05/12/2008 - 10:39am
SkyMom's picture
Offline
Joined: 10/27/2001 - 09:00

Welcome to the board michellerene. I'm sorry I can't help with the American school issues as I'm Canadian but I still can see that you have done an excellent job in advocating for your daughter thus far. It is terribly dangerous what the teacher did for so many reasons. I'm sorry to hear your daughter doesn't feel safe anymore.

Posted on: Mon, 05/12/2008 - 10:45am
michellerene's picture
Offline
Joined: 05/12/2008 - 16:48

Thank you SkyMom. It is nice to hear that I'm a good advocate. I just wish the school could understand the severity of the situation. The teacher herself has told me she too has a peanut allergy. It's hard for me to believe that by her reaction in class. Thanks again for the positive feedback!

Posted on: Mon, 05/12/2008 - 12:56pm
Newallergymom's picture
Offline
Joined: 03/09/2008 - 15:23

michellerene-where in MA are you located? is it a public or private school?
I would suggest if its a public school to maybe contact your local state reps office or superintendant of schools to inform them of the gross ignorace afforded to your child-that upsets me so much!
what you are doing is amazing for education of this allergy. It is unforutante that the school is not appreciative!
good luck!

Posted on: Mon, 05/12/2008 - 11:56pm
MommyOfTwo's picture
Offline
Joined: 11/08/2007 - 09:44

WELCOME oompa_loompa. That must have just been so scary seeing your son react like that. What a horrible way, but I'm sure all too common way, to find the allergy.
This is a great board full of great information! The "Search" area is great for looking up past threads on any questions you might have. It can be so extremely overwhelming at first.
michellerene - What a wonderful job you have done!!! You certainly are inspiring to say the least! I hope that if my little one hasn't outgrown his pna by the time he goes to school I can put something together like you have. AMAZING JOB!!

Peanut Free Store

More Articles

There are many reasons why you may want to substitute almond flour for wheat flour in recipes. Of course, if you have a...

Are you looking for peanut-free candies as a special treat for a child with...

Do you have a child with peanut allergies and an upcoming birthday? Perhaps you'd like to bake a...

Most nut butters provide all the same benefits: an easy sandwich spread, a great dip for veggies, a fun addition to a smoothie. But not...

Do you have a sweet tooth and more specifically a chocolate craving? Those with peanut allergies must...