Here we go again

Posted on: Tue, 07/02/2002 - 5:52am
5boysrus's picture
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Joined: 06/06/2002 - 09:00

pYou all are probably tired of me. here I am with this great 14 yo boy who has NOT had a life threatening reaction to peanut. He skin tests 5+ to peanut. He RAST tests NEGATIVE (.05). The pedi said bring him in for food challenge (his symptoms are c/o tight chest, occasionally stomache). Also, if you put PB on his skin he does NOT like it and says it "burns." NO hives, no marks. NOW the peds office calls and says "sorry , no way can we do that food challenge here. You have to see an allergy specialist." Call the allergy specialist. You will have to have your tests faxed to us. We will probably have to do them over again depending on what method is used in their office. We keep going from one extreme to the other. First our doc is very nonchalant and says it might just be emotional response of my son, another pedi in the practice says "no chances, take epipen to scout camp" (which we did follow). Then they say we'll watch him after he eats PB, listen for wheezing , check his BP, etc. We have epi on hand, no problem. NOW now way, we can not do that he has to go to allergist. Talked to a PA clinic manager in the peds office. She in past two years says she is peanut (seriously) allergic. Never has had hives. Meanwhile the pedi always told me little chance of serious reaction if josh doesn't even get hives. So, here i sit. I have to drive to the peds office tomorrow and sign a paper so I can get their allergy test results faxed to the allergist office. Then I have to see what they say and want to do. I just want to know if he IS or IS NOT allergic to peanut. I just want a plan in hands if he is, and want him to stop being afraid if he isn't.....sorry for bugging ya'll I just need to vent..../p

Posted on: Tue, 07/02/2002 - 6:56am
Love my C's picture
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Joined: 04/03/2002 - 09:00

Wow. What an emotional rollercoaster you must be on! Sorry I don't have any words of wisdom for you. Just know you're not alone. Please keep us informed of what happens.

Posted on: Tue, 03/20/2007 - 8:06am
joeybeth's picture
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Joined: 09/01/2006 - 09:00

food allergies never make any sense. who would have thought it would take your less reactive child so long to become more reactive??? i can't explain it either. i have two PA girls and one who is not. the PA child who "tests" higher has had no anaphylactic reactions (mostly because we are very strict about her environment, i suspect) but the sister with the lower (though not a lot) test scores for PA has had several very serious reactions in the past. i suspect both my girls have the potential for big reactions, based on their sensitivity to peanut protein anywhere in their environment. i don't want to find out though. i would just avoid peanuts like the plague from now on, if i were you....just to be on the safe side. i hope it's not too hard on your child to give up the things he's been used to having every now and then. your other child will be a big help in making the adjustment. that's the great thing about having two PA kids (if there is anything great at all about it...) - they at least always have each other for support and understanding. my girls never go it alone. what one misses out on, the other does too. and, what one has to worry about, so does the other. it helps.

Posted on: Tue, 03/20/2007 - 8:13am
niche's picture
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Joined: 02/05/2007 - 09:00

Hi, I am so sorry to hear about your son may be developing what could be a peanut allergy. I have a DS almost 5 who is PA and TNA his last caprast to peanut was 87. I also have a 9 mo old DD and I worry all the time that she will develop some food allergy. It is so hard that no amount of testing can really tell us what is going on. It is also hard that I live in a place where there is not a specialist in food allergies - we have an allergist but he does not specialize in food allergies. I think you mentioned traveling to see a specialist - do you find this to be worth while? I really hope that it turns out that he isn't allergic.
Nichele

Posted on: Thu, 03/22/2007 - 3:14am
SpudBerry's picture
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Joined: 07/23/2002 - 09:00

Yes, I do think it is worth it to see the pediatric food allergist we go to. For this particular time, I had called my regular doctor to see if they could give him the spt in their office. They informed me that they didn't do any allergy testing. So I called a couple of other doctors in the area to get the same answer. So I forced myself to call the Asthma & Allergy center here in town. They wanted $182 just to walk in the door - "new patient fee" - then I would have to go to at least 2 doctors appointments to get testing done - and she wouldn't tell me how much the testing would cost - just gave me a ball park that it might go clear up to $800.00
We can't stand the A&A Center for other reasons - we tried to take known PA son there several years ago. But I thought it might be worth a try just to get the spt done on the other kid. After my brief conversation with them - I decided I'd rather spend the money on a trip to SLC, and have some fun (and get to see our doctor that we love & trust) instead of giving over 1k to the A&A center here in town.
I think it just boils down to what you have available to you. Our town has 1 A&A type place. They don't have any one certified in pediatrics. And they don't know much about food allergies. They give allergy tests & then give allergy shots to people that have EA's. And that's about all they do there - they looked at us like we were from Mars when we started talking about peanut allergy.
I like our GP - fellow PA person herself [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] But she doesn't have any of the specific equipment & testing facilities to keep up with PA son's asthma & allergies - so she referred us to the doc in SLC. And we've loved her every time we go there.
------------------
Sherlyn
Mom to 7 year old twins Ben & Mike - one PA & the other not.
Stay Informed And Peanut Free!

Posted on: Thu, 03/22/2007 - 5:16am
chanda4's picture
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Joined: 12/14/2006 - 09:00

You know, I have a friend who has many food allergies herself. And up until last summer(her twin boys are in 2nd grade) but they just *became* allergic to peanuts...after eating them for years! That's why, since 1 of my kids is allergic, I don't think we are out of the woods for the others(although the other 3 tested negative so far)....I'm just not convinced they are yet. We'll see as time goes on, but I will always tell them to be so very careful and trust their body's. Sorry and many HUGS
------------------
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Fri, 03/23/2007 - 12:58am
niche's picture
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Joined: 02/05/2007 - 09:00

Thanks for the info. We only have a A&A place as well. I may look into going to a specialist in either Salt Lake or maybe Portland or Medford.
Nichele

Posted on: Wed, 04/23/2008 - 11:54am
SkyMom's picture
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Joined: 10/27/2001 - 09:00

I'm so sorry to hear what a hard day she's had and continues to have. Vent all you need to. This must be so difficult to watch your daughter go through all this. My thoughts are with your family. :(

Posted on: Wed, 04/23/2008 - 12:35pm
MommyOfTwo's picture
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Joined: 11/08/2007 - 09:44

That is just so heartbreaking! My thoughts and prayers are with you and your family. I know as a parent you do what you have to do, but you must be so strong and obviously have such a strong little girl. Keep us posted if you can on how she is doing. {{{{{{HUGS}}}}}

Posted on: Wed, 04/23/2008 - 11:44pm
LaurensMom's picture
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Joined: 05/23/2001 - 09:00

Hi,
I used to post relatively often but as my daughter has grown and we've developed our "wall of protection", I find myself becoming a bit of a lurker now and again.
But I saw your post and I had to respond. If your screen name is any indication, your Gretchen and my Abbey are about the same age. I felt a tug on my heart as I read the post.
Please don't apologize for venting. You, and Gretchen, quite obviously have quite a lot on your plate. My thoughts & prayers will be with you today hoping she is feeling better. Please keep us posted.
I hope she is doing better today.

Posted on: Thu, 04/24/2008 - 1:21am
Newallergymom's picture
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Joined: 03/09/2008 - 15:23

Please feel free to vent anytime!!! Its what makes us all stronger.
I will continue to pray for you and your wonderful family!

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