Help getting in to see allergist

Posted on: Fri, 05/05/2000 - 7:07am
Helen's picture
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Joined: 05/05/2000 - 09:00

I just found out today that my son is peanut and other nut-allergic, based on blood testing by the pediatrician. (Glad I found this internet site.) They've given me a referral to the allergist but the allergist's office won't prioritize the appt. and I'm looking at 6 weeks. Any ideas what I can say to convince them I need to get in earlier? I need help managing the allergy - how severe is it? what precautions to take, etc. (I did go get the epi-pens and take one to school.)

P.S. - My son simply complained that his throat felt funny after eating peanuts - no other symptoms - and I took him in thinking "maternal paranoia" - turned out it was an allergic reaction! I really praised my kid for telling me about the "funny" feeling.

Thanks for any help.

Helen

Posted on: Fri, 05/05/2000 - 11:27am
momma2rac's picture
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Joined: 03/03/2000 - 09:00

pMy advice is to get as educated as quickly as you can. You need to take control of the situation the best that you can. The reason why I say this is that we have gone to 2 allergists in the last few months. We just found out my son is PA in Feb. I had to wait a bit to get in as well. Call them and ask them to put you on a cancellation list.br /
The first one I went to I expected her to tell me how to handle the PA. She said yes it sounds like he is PA and took blood. It took her staff 3 tries for that. She said you need to keep him on a peanut free diet (no kidding?) The staff couldnt find the information to give me on reading labels. She did give us an epi pen trainer tho.br /
Bottom line was that I didnt feel like I learned anything at that visit except it was later confirmed that he was allergic.br /
When the nurse called me to give me the test results she said it was moderate. I said I wanted written instructions on what needed to be done when and never got them. She kept saying it was moderate like i was only suppose to worry moderatly!br /
The next allergist visit was about a month laster.br /
I said to the Dr. this is what I understand:br /
1. Pa is normally lifelongbr /
2. Each exposure has the potential to be worse that the next.br /
3. I have learned how to read labelsbr /
4. I have ordered a medic alert braceletbr /
5. There is no way to determine by the RAST scores what kind of reaction he will have, hives alone or an anaphylactic shock.br /
6. That it is better to error on the side of caution and give the epi pen than not.br /
7. I made emergency procedures posters for his school, what to look for, what to do, how to do it. Exactly what to say when calling 911./p
pI started reading everything I could and it scared the hell out of me. The only way I could feel better was thru educating myself, family and caretakers.br /
I am afraid if you are expecting the allergist to give you all the answers you will be dissapointed. I hope that isnt true and that you have a wonderful Dr.br /
The 2nd one was really great and spent a lot longer talking to us..but still like I said I didnt learn anything much new from the Dr's./p
pI would take a list of everything you want to know with you./p
pI finally got in earlier on the first appointment from a cancellation. I couldnt believe it either that I had to wait over a month to get in!!/p
pgood luck sorry if this is too long. Julie/p

Posted on: Fri, 05/05/2000 - 11:30am
momma2rac's picture
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Joined: 03/03/2000 - 09:00

pCaring for your child with severe food allergies by lisa collins is really good. i think there is a product link to this board for it./p

Posted on: Fri, 05/05/2000 - 11:35am
Anonymous's picture
Anonymous (not verified)

pI, too, was supposed to wait six weeks to see the allergist. My son experienced the same reaction that your son had, funny feeling in throat constantly making noises like he was trying to clear his throat, after just taking a bite and spitting out peanut products for 3 years. Our pediatrician kept telling us to not let him eat it. Then came my big scare, he had hives, coughing, inability to swallow, vomitting, diarhea, etc. after eating 3 pieces of cashews. When I called the doctor's office they scheduled an appointment with the allergist 6 weeks away. However when I called myself and had them put me on the cancelation list I was seen within 5 days. Try it and you should be able to be seen sooner. Good luck and let us know what you find out./p

Posted on: Wed, 05/17/2000 - 2:11am
Helen's picture
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Joined: 05/05/2000 - 09:00

pThank you for your quick responses./p
pI became very assertive and now have an appt. with the allergist next week. It's amazing, though, what I've been told through this ordeal. At one point while I was checking on the status of the "specialist request" a nurse told me the allergist had reviewed the chart but wanted my son to have another reaction before he was seen (WHAT???????) I expressed total disbelief and the nurse said she didn't understand it either./p

Posted on: Wed, 05/17/2000 - 5:19am
DavisGal's picture
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Joined: 07/12/1999 - 09:00

pIt was months after I found out that my son was allergic to peanuts that I took him to an allergist. And the only reason I did that is because I realized he was allergic to other legumes as well and I wanted to get educated. Well, found out quickly that the key is to educate yourself BEFORE the allergy appointment. The first woman I saw was horrible horrible horrible!!! After I learned more, I knew more what to expect and was able to ask about conflicting information. We've got an appt May 24 with a newer doctor and thanks to this site, I am armed with many questions!!!/p
pThe best advice I can give is educate yourself, trust your instincts and avoid avoid avoid! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]/p

Posted on: Wed, 05/17/2000 - 5:24am
DavisGal's picture
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Joined: 07/12/1999 - 09:00

pOne more thing... do NOT be intimidated by doctors. I always find saying OK to the doc and then thinking about it after and realizing something doesn't make sense, or I have more questions. (I am mostly making a reminder note here for my own appt coming up! lol)/p

Posted on: Sat, 05/20/2000 - 1:01pm
ohayonj's picture
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Joined: 05/20/2000 - 09:00

pLet me know what city you're in I'll try to give you other names of Allergists to see.br /
Dr. Ohayon/p

Peanut Free Store

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