HELP

Posted on: Tue, 04/18/2000 - 3:19pm
Anonymous's picture
Anonymous (not verified)

My husband and I have suspected that my oldest son may be allergic to peanuts for almost 2 years now but we have never had him tested. He has never liked peanuts or peanut butter so it is not difficult to avoid him from eating them. He knows often by the smell if something has peanuts in it. However there have been several instances where he has tasted a peanut and his reactions are becoming worse each time. A typical reaction for him would be to complain of his throat (even after smelling it). The last time was when he was at a friends house down the street and he came home, grasping his throat with saliva pouring out of his mouth and he said that his throat hurt. Still we put off calling the doctor not realizing how serious things could become. However today he tasted, to the fault of myself, cashews. He ate three small pieces and then I put them away to lay my youngest boy down for a nap. Within 15 seconds he had hives all around the outside of his mouth, 2 on his chest and one on his neck. Again saliva was pouring from his mouth, he was grabbing at his throat complaining of it hurting, he ended up vomiting, and having diarhea one time. I never realized how dangerous this could be. The nurse that I spoke to on the phone did not think that it was necessary for him to be tested however. She did call back several minutes later after talking to the doctor and she decided to prescribe a shot of epinephrine because of the speed of the reaction. She is also setting up an appt. for him to be tested. I feel scared, uninformed, and STUPID for putting this off. Is it normal for an allergic reaction to become worse? I believe this is the first time he actually ingested a nut and it does list on the can Peanut and/or Cottonseed Oil. Is this referring to the refined or unrefined? I never knew there was a difference until tonight when I started searching for information.

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Posted on: Tue, 04/18/2000 - 4:44pm
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pNaomi,br /
Let me tell you about my son. He never liked the smell or taste of peanuts. At the age of 3, I got him to taste pb. His complaints were the same as you described for your son. But after a few hours, he was okay. I told his pediatrician of the reaction. He wasn't concerned (I know a whole lot better now). His only advice to us was that if it happened again make sure he didn't asperate on the vomit, that was the only serious side affect he could foresee. So, with this advice from the pediatrician, we weren't too concerned. Just made sure he didn't eat nuts. Last November, however, at age 7, his class did a party with nuts. The teacher had given prior notice to us about it, but no one was too concerned. Alex did not eat the nuts, only handled them. He had a MAJOR reaction. Swelling (that took 4 days to go down) and hives. His new doctor, treated him and gave us EPI pens. Three weeks later, he sat near kids eating PB and reacted again. After that reaction, his dr. set up an appt. with a great allergist. /p
pSo, Naomi, yes these allergies can and do get worse. I'm glad your son will see an allergist. I just hate that it takes so long for the general medical personel to send a child in the right direction when it comes to PA. I'm glad you have found this site. I've appreciated all of the information and support here. Continue to look around.br /
Thanks everyone.br /
Michelle/p

Posted on: Wed, 09/05/2001 - 10:54pm
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Irwin,
I am so sorry that you son had to have such a inconsiderate teacher. You think after talking to her before school started that she would have informed you that she will be cooking and using peanut butter throughout the school year.
You need to write letters to your superintendent and to your Coordinator of Special Education.
I had a meeting for my 504 plan. I live in Pennsylvania and in our school district all of the personnel were fantastic trying to cover every base to protect my child.
NO his classroom is not peanut free. Drew does not react unless he touches peanuts etc.
But he does have an enabler who sits in his classroom because of his allergies.
She wipes down the tables and DD's chair and any toys that he wants to play with before he touches them. When he has to go to speech or computer class she goes right before him to clean those chairs and tables also. Drew has his own keyboard so that they do not have to wash that. Only the first time.
I have other things in my 504 plan.
I have other posts here under schools if you look. I know that they pertain to Penna Schools but maybe if you copy them and take them to your schools Special Education Coordinator this may help you in your fight to keep all of your children peanut free.
Best wishes to you,
Renee

Posted on: Wed, 09/05/2001 - 11:36pm
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Joined: 08/28/2001 - 09:00

Renee,
Thank for responding, I did write a letter to the superintendentlast friday today it thursday morning hopefully ill here from her today.
I'm glad your school is working for your child safty.
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Posted on: Tue, 09/04/2001 - 7:23am
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Joined: 04/21/2001 - 09:00

Lots of stuff! Cheese crackers, potato chips, Nutri Grain bars, yogurt (like Go-Gurt that you can freeze ahead of time and easily pack in a lunch), string cheese sticks, fruit leather and pretzels are my daughter's favorites. Her fave sandwich is jelly and cream cheese, but she also eats all types of cheese sandwiches, hard boiled eggs, lunch meat and those cracker snack pack Lunchables (although sometimes we need to swap the desert for a non peanut candy). There is also soy nut butter which is peanut free, perhaps your child would find that to be an acceptable sub.
Good luck and thnaks for being concerned about your child's classmate!

Posted on: Tue, 09/04/2001 - 11:05am
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Joined: 07/05/2000 - 09:00

Donna-I would also like to express my thanks for you caring enough to find this website for suggestions for a safe lunch for your non-allergic child. Peanut allergies are deadly and it is sometimes very difficult for us who have to deal with this to get other people to take it seriously.

Posted on: Tue, 09/04/2001 - 12:09pm
Sandra Y's picture
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Joined: 08/22/2000 - 09:00

My son also takes bagels with cream cheese, baby carrots and ranch dressing dip, leftover pasta, pasta salad, leftover pizza, and English muffin pizzas. He's not crazy about sandwiches, but likes bread and butter with whatever else he's having. Rice cakes with cream cheese, muffins, leftover pancakes or waffles with syrup for dipping, and cheese and crackers. Roll-ups made with tortillas, meat, and cheese. If you send meat, use blue ice or a frozen juice box to keep it cool.
It seems hard at first, but in the end I think it helps lead to a more varied diet, and he's learning an important lesson about helping other people. And he can still enjoy peanut butter at home! Good luck.

Posted on: Tue, 09/04/2001 - 2:41pm
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Joined: 10/15/1999 - 09:00

I also send single serve packs of applesauce or fruits like peaches, pears, mandarin oranges, etc. In season my child also likes any type of cut up melon like watermelon or cantalope which keeps well with a blue ice pack. I use the semi disposable brand of plastic containers in case it doesn't make it back home. Cottage cheese, breadsticks, various stuffed dough things like mini calzones and believe it or not, homemade sushi rolls with cucumber, avocado, carrot or egg. Canned tuna or chicken, cinnamon bread, raisins, marshmallow anything.
Thank you for checking out the website and posting. It is really hard to change your diet, but the other child will be much safer w/o peanut and peanut residue around. The immune system will react to really minute amounts of allergen, and peanut butter is very persistant as the oil content and "stickiness" make it hard to clean completely with the casual wipe up most likely used in the classroom or lunchroom.
When people are skeptical about how little peanut is needed to trigger an allergic reaction, I try to remind them that the body doesn't need visible quantities of germs to get a cold or other disease. The immune system responds to germs we can't see, and it will respond to allergens we can't always see, like dust or pollen. If there is more pollen in the air, hay fever gets worse. Hay fever sufferers don't have to see the pollen to know it's a heavy pollen day, they KNOW they feel rotten when there is more in the air.
The peanut allergic can react to quantities of peanut that also can't be seen with a special sort of quick, violent and potentially deadly reaction triggered in the immune system.
Most schools simply request no peanuts w/o a lot of explanation. It takes some effort to understand this type of allergy and all the foods and other products with overt and hidden peanut. It's more than most people want to read about.
Please save the peanut butter for before or after school. You could actually be saving a child's life as dramatic and overwrought as it might sound. If you are a mom at my child's school, thank you for making the effort. It means a lot to my child's health. If you are at another school, thank you anyway, for there is probably a worried mom just like myself there.

Posted on: Wed, 09/05/2001 - 1:43am
river's picture
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Joined: 07/15/1999 - 09:00

The thermos is a great invention...with it you can send:
soups
stews
chef boy ardee like canned stuff
kraft dinner
chicken nuggets
beans
hot dog weiners, (put the bun separate)
french fries
and just about anything else they like to eat warm.

Posted on: Sat, 10/28/2006 - 3:30pm
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Joined: 03/15/2005 - 09:00

If it was a reaction to peanuts, it certainly could continue for several days. Did you have other symptoms besides breathing trouble?
Can you make an appointment with an allergist? Do you have an Epipen?
If you still don't feel right, I would urge you to seek a second opinion.
Do you think you know the source of your exposure to peanuts? Are you still being exposed to whatever caused your initial symptoms?
I think you definitely need to talk to an allergist who can help you create an allergy action plan. Sometimes, it is hard to decide if you need to use epinephrine and/or go to the hospital. A plan of action will help you make the right decision in an emergency.
I hope this helps you and that you are feeling better soon!
Cathy

Posted on: Sat, 10/28/2006 - 11:33pm
McCobbre's picture
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Joined: 04/16/2005 - 09:00

I would second the action plan.
I've had a reaction that lasted four days, and that's after using the Epi and Benadryl.
Do you feel better after having some benadryl? That may help determine whether this is a reaction. If so, then you may feel bad again after the benadryl wears off.
I would make an appointment to see an allergist to deal with this reaction if you can and get an Epi prescription if you don't have one for the next reaction.
There's lots of great info of these boards. Welcome.

Posted on: Sat, 10/28/2006 - 3:30pm
Momcat's picture
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Joined: 03/15/2005 - 09:00

If it was a reaction to peanuts, it certainly could continue for several days. Did you have other symptoms besides breathing trouble?
Can you make an appointment with an allergist? Do you have an Epipen?
If you still don't feel right, I would urge you to seek a second opinion.
Do you think you know the source of your exposure to peanuts? Are you still being exposed to whatever caused your initial symptoms?
I think you definitely need to talk to an allergist who can help you create an allergy action plan. Sometimes, it is hard to decide if you need to use epinephrine and/or go to the hospital. A plan of action will help you make the right decision in an emergency.
I hope this helps you and that you are feeling better soon!
Cathy

Posted on: Sat, 10/28/2006 - 11:33pm
McCobbre's picture
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Joined: 04/16/2005 - 09:00

I would second the action plan.
I've had a reaction that lasted four days, and that's after using the Epi and Benadryl.
Do you feel better after having some benadryl? That may help determine whether this is a reaction. If so, then you may feel bad again after the benadryl wears off.
I would make an appointment to see an allergist to deal with this reaction if you can and get an Epi prescription if you don't have one for the next reaction.
There's lots of great info of these boards. Welcome.

Posted on: Sat, 05/12/2007 - 11:47am
KaitlinsMom's picture
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Joined: 09/25/2005 - 09:00

I just realized that I cant spell [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Sorry

Posted on: Sun, 05/13/2007 - 5:26am
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How big is the school? I'm ok with one Epipen in the nurses office and one in the classroom. It's not in the specials rooms, but the nurse is never far. I don't want my child carrying it until he is comfortable, and until he can self-administer.
I personally think the bathroom thing is going a little too far.
I've thought about the water fountains myself and I kind of like the idea of bringing in a water bottle. I am curious whether others allow the fountain, or not? IS it a real risk? Enough to do the water bottle?

Posted on: Sun, 05/13/2007 - 6:48am
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Joined: 04/21/2001 - 09:00

I agree with the above poster that the bathroom thing is going too far. The danger is that if she has a reaction and "hides" or become ill in the bathroom, but at her young age and in a school someone would notice IMHO.

Posted on: Sun, 05/13/2007 - 10:31am
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Joined: 01/28/2006 - 09:00

Hi!
I don't know how old your DD is.
A different way to look at this suggestion is as an opportunity for your DD to learn to be responsible for her own meds while under the care and guidance of adults at an age when she still listens to adults [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]. If it were clearly stated that she would not self administer - a responsible adult must - then it could be a good life lesson experience for her and a next step in "owning her allergies".

Posted on: Sun, 05/13/2007 - 11:05am
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Joined: 05/28/2009 - 16:42

My dd is 9 yrs old, in grade 4. She has been wearing her epi pen since she was 4 years old. I want her to be prepared for real life (and that includes an epi pen)...the other day she took it off at home, and she said she felt like something was missing.
Think about this.......almost all deaths due to anaphylaxis has happened when the epi pen was locked away somewhere else.
As an adult, our kids will need to have this life saving contraption with them. I don't care if it matches an outfit, or doesn't look good. It's the ONLY thing that will give her a chance of living in case of accidental ingestion.
I NEED her to be aware of this fact.
(sorry for sounding so harsh)
I cannot understand why anyone with an anaphylactic condition to ANY food does not carry one ON THEIR PERSON.
For that reason, my dd will always carry one, there is one in an unlocked drawer in the office, and I have one in my purse.....
FOR MY PEACE OF MIND!
As for the water fountain..we came from a school where PB was allowed and kids would walk down the halls with their PB sandwiches taking them outside for recess or lunch, stopping to get a drink along the way.
I would never let her drink from the fountains there.
Now that we are in a PEANUT SAFE school, I still don't want her to drink from a public fountain because once she is in the "real" world, there's no such thing as PEANUT SAFE anything.
If she happens to forget I will remind her, but it's not life threatening. I still send a water bottle to school everyday. I even go so far as to have her take it to gym class 'cause it gets pretty hot when you're excercising etc.
I think it's wonderful that they thinking of all scenarios for you. It's too much to think of all at once, and it's only good practice for "real" world stuff.
Sorry this is so long, but of course we all take things personal here.
Good luck, and be thankful they're going to the extreme in the "right" direction.

Posted on: Sun, 05/13/2007 - 12:10pm
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Joined: 05/28/2009 - 16:42

They are being fantastically proactive. I would give a kidney (or two!) to be in your shoes. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
She *should* have an Epi on her person whenever she is out of the house. In the event of a swift reaction, you will not always have the luxury of even a minute or two. She may not even be able to self-administer - but the person doing so will have instant access to the pen. *Moments* count.
They are being brilliant on all counts. If she at 30 is alive to grump about how she felt "different" in grade school, you have all done your jobs very, very well. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Most sincerely,
Sue

Posted on: Sun, 05/20/2007 - 4:35am
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Thank You all for your comments and suggestions. I have given them alot of thought. I also would like to say I am very thankful the school is being so helpful and feel blessed didnt mean to seem as if I werent, I was just trying to figure out the best way to handle the issue. As of right now we will be going with the original plan to have dds epi-bag travel with her as she moves to different classes and such. There will be a designated place in each room where she will put it each time. While I agree that it will be good practice for her to get in the habbit of having at all times ( she already gets her bag when we are walking out the door so is already in a habbit of doing so) We do have a certain spot at home that the bag stays in so we always know where it is at and no we dont carry it from room to room or even outside to play when we are at home.... That is why I still do not think having epi-bags in a few different areas of the school (which is small) would be a bad idea..
My four year old is very mature for her age but she will not be wearing her epi-pen on her person anytime soon. While I understand why some of you feel strongly about this I do not feel like it is the only option, and I believe that most food allergy deaths that I have read about happening in schools werent because meds were locked up some where but because people didnt reconize symptoms or waited for reaction to progress to far before giving...
In addition to my concern about dd carrying epi she also has in her bag her inhaler and benadryl. I have thought about how my daughter will handle this when she is older and how to instill in her the importance of carrying her epi-pen. I dont think I have to strap it to her to do that and what is the likely hood that when she is a teenager and I cant watch her every move that she is going to wear this epi-pen even if she thinks it is messing up her new outfit.... I think she will come alot more likely to carry it in a cute little matching pocket book and what is wrong with that? Sorry to ramble on but like d's mom said we all take things personal here.
[This message has been edited by KaitlinsMom (edited May 20, 2007).]

Posted on: Sun, 05/20/2007 - 5:47am
Chicago's picture
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There are many different "comfort levels" here, so please understand that people are trying to give you their best advice and then you can do what is best for you.
My dd is almost 13 and cares her Epi and a cell phone in a purse. She has for several years and has been very responsible with it. I think having a boy with FA would be harder - at the FAAN conference they said lots of the boys carry their meds in cargo pant pockets.
Our school actually (when dd was your dd's age)asked that they not self carry, due to the tempation to experienment with it - it had happened before on the playground. Now in my state it is a law that the children are able to carry such meds, but our school still discourages it. Things are not locked, the school is small and those things also need to be considered in your overall plan (which you have already done).
But I also agree with the above poster who said something like - so what if she feels different? She is different is many special and wonderful ways! And she will probably be taking her own food to parties, on school trips, on planes, to sleepovers etc... and she needs to get comfy with that. DD's friends are so used to it is is not even an issue now.
Hope that I helped.

Posted on: Sun, 05/20/2007 - 8:45am
mcmom's picture
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I saw you mentioned that her school is small - ds is in a small school also, so we have always been comfortable with his meds in the nurse's office. he is seven, but I just do not feel he is mature enough to carry his Epi on his person. When he is old enough to self administer, then yes. Right now, I think there would be way too much temptation to take it out and show it around 9he's that type.)
The bathroom thing is overboard, IMO. In ds's school, the kids all take a water bottle in for snack (only water is allowed for classroom snack, no juice), so it's no big deal to have one. I have told ds for years NOT to drink out of the water fountain at school, but he has admitted to doing it a few times anyway (sigh!) Your dd having a water bottle is probably a good idea.
You are lucky to have such a proactive school!

Posted on: Tue, 04/28/2015 - 6:38am
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Question of the Week: Answered!
Every week, PeanutAllergy.com answers one of the questions posted in our community.
Our Answer:
Thank you for reaching out in our community boards. We understand how upsetting this is, especially since it’s a school’s responsibility to protect all of its students.
It may be helpful to discuss the matter with your son’s teacher and the school principal. They could investigate the incident, discipline the student(s) responsible if they haven’t already, and devise a plan to prevent it from occurring again. We also suggest informing them that you want to be notified if something like this ever happens again.
We think it’s important that you and your son know that he’s not alone. According to Food Allergy Research and Education, more than one-third of children bullied in school may be targeted because of food allergies. Here’s a previous discussion among our members about how they dealt with bullying at school.
Unfortunately, food allergy bullying often goes unreported. Learn how to prevent and address food allergy bullying here.
Due to embarrassment or fear that bullying can generate in victims, some children may not feel comfortable talking about it. Here are six ways to get your son to talk about it.
Some food allergic individuals have shared their stories as well as advice for others. In this helpful video, a teen offers tips for avoiding peanut-allergy bullying.
We asked our Facebook community for their advice on helping children deal with bullies, and here’s what they had to say.

Posted on: Sun, 05/03/2015 - 9:40am
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Joined: 12/21/2010 - 02:42

Tanya,
This is obviously outrageous. I feel exactly as you do about peanuts being a weapon against my child.
It is so frustrating that schools are so afraid of backlash from the ignorant community you probably live in as far as food allergies are concerned that they do nothing !
I was forced to homeschool my child because despite the countless meetings and plans I would always catch the school leaving my child in harms way or segregating him. It was awful ! And the homeschooling is not so easy. I feel my child has become depressed over not being able to attend school and is losing his social skills.
I can tell you this for certain, if I was in your shoes, i would call police immediately!!
That Is intent to harm ! And these ignorant fools need to realize they are going to kill someone innocent and undeserving if such " pranks"
I also feel its your duty to do so. If not you than who. We all need to step up in these moments and scream ! ALL OF US !
My very best to you and your child!
God Bless

Posted on: Sun, 05/03/2015 - 11:41am
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First of all I am so sorry to hear that this has happened to you an your family. It is scarry to send our children to school then to add an allergy that can be life threatening on top of it all. WOW! We still send them and hope that they are well taken care of.
I have a 15 year old freshman that has had to deal with the same type of bullying. In 4th grade 2 students threw penuts accross the lunch table to see what would happen. In 5th grade the students would make verbal threats and do silly preteen comments.But 6th grade was the one that set us overboard! There were 6 children that brought bags of peanuts to class to have a good laugh as they controlled his every movement. They would threaten to open up the bags if he got too close to them when they did not want him around.
When I went to the principal he wanted to do nothing at all. I forced his hand to have meting with the class and to make them aware that this is no different than bringing a weapon to school. If the students did not change thier behavior and the school allowed it to happen I would call the Police and I have the right to press charges.
That is exactly what we had to do at the end of 6th grade. It didnot change anything but there was a recorded account of these actions. We did decide to change from the private christian school to a smaller public school. That has been the best life changing force in our family.
Do some kids still bully him? YES!!! kids are kids and teens are teens but we have the school backing us 100% of the time. In high school we hae had teachers that have never dealt with this allergy and ask for silly notes from Doctors or a contact from mom and dad. We choose when itis a battle worth fighting for.
It has gotten easier but it is never perfect since there is such a lack of knowledge out there.
Best of luck to you and you family. Most of all keep the comunication window always open!

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