hello possible PA new here...

Posted on: Tue, 11/27/2007 - 10:41am
lulu's picture
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Joined: 11/26/2007 - 12:37

today my daughter and i visited the allergist for the first time this evening. she had a milk allergy at birth (blood in her stool) later she tolerated milk - she never had any breathing or vomiting - she would get hives on her mouth where the milk had touched but eventually that went away. at 2 she tried peanut butter and got hives localized but no other symptoms. she had had peanut butter covered pretzels prior (with my husband not ME) and had no issues. she had a bit of a peanut butter cookie no issue. she has had chocolate almost daily (bittersweet chips about 10) made in a peanut facility again no issue. i was told to avoid peanut butter after the hives and did so... it was not until i smeared some on her face and she got hives that i started researching and realized the terrible possibilities. later she had peanut butter on her face with no hives and drank a glass of mine i had been eating peanut butter... no reaction. but because of the hives i wanted to know for sure before she started preschool....soooo today she had a blood test. the dr thinks her sounds topical and a skin sensitivity issue. i asked her if she had ever heard of a child being sensitive to peanut butter and not so much the peanut protein. she said yes... we will find out the blood test results friday and if negative we go back for a skin test if the skin test is positive she said strict avoidance for a year and retest if low again and small wheal then challenge before school. so i just wanted to share my story and see if anyone has had an experience like mine... with the sensitivity being with the peanut butter and no problems with the protein when ingested...

one more thing.. i was crying before my daughter went in for her blood test. she is three... i gave her my ipod and her favorite song told her to be brave and daddy would hold her... she held her arm out and did not cry! i was so proud of her i was bawling... she kept saying why are you crying??? i hate that she has to go through this and resent it... the emotion all came out!!!

Posted on: Tue, 11/27/2007 - 11:03pm
MommyOfTwo's picture
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Joined: 11/08/2007 - 09:44

Awwww what a brave little sweetie!!! I am fairly new to the PA so I don't have any experience with skin sensitivites to peanut butter vs. the protein. I hope the blood test can give you a better idea of what might be going on. It seems as though avoidance is certainly the best way to go and certainly couldn't do any harm.
Let us know what the blood test says. It all seems a bit scary at first but staying updated and reading any/all info you can, can really help.

Posted on: Wed, 11/28/2007 - 7:11am
CKH's picture
CKH
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Joined: 10/15/2007 - 11:15

Hi. I cry too when my kids have to go through tests. I think sometimes its more painful for Mommy than kiddos - at least emotionally!
I don't know about pb vs. protein sensitivity. My DS has only had hives around his mouth the one time he ate pb. But both skin and blood tests have shown positive, so we believe (and allergist does too) that he is allergic, so we do strict avoidance, carry epipen at all times, etc -even though before his diagnosis he ate lots of "may contain" and "processed in a plant that..." I'm sorry you're going through this!

Posted on: Thu, 11/29/2007 - 4:35am
lulu's picture
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Joined: 11/26/2007 - 12:37

well her rast results came back. 7.67. i have been a mess... she is napping and i want to throw up. i cannot stop crying. can others here give me an idea of your kids rast results. i was told by my doctor that the # makes sense because of her reaction (bad hives but no breathing problems) but that it is too high for a challenge ( i would not even do a challenge before 6 years old). i am frustrated by what i am reading about rast results and how they are not all that reliable. i guess i just start living differently and retest in a year.

Posted on: Thu, 11/29/2007 - 7:28am
niche's picture
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Joined: 02/05/2007 - 09:00

Hello,
I am sorry when you first find out it is so hard but things will get better.
As far as the scores - scores do not necessarily = severity of reaction someone with a low score can still go into ana.
Our history, my son had never had Peanuts at all we completely avoided until he was 3 - when i gave him the tiniest bit on the end of a baby spoon he was coughing and projectile vomiting with in 1 minute. We had him tested, his rast score was 24, when we retested him a year later it was 87.
I would highly recommend Understanding and managing your childs food allergies by Scott Sicherer. He is one of the leading allergists and the book has a lot of great information.
another book from a moms perspective that can help with like cleaning out your kitchen etc is The parents guide to food allergies by marianne barber.
I wanted to add that we completely avoid may contains and try to be very careful about cross contamination. When we were first diag that was one thing we didn't think we would change - within a month my son had his second reaction to bakery bread - with no nuts or nut warning on the label since then I have learned about the level of cross contam in bakeries and he does not eat bakery times any longer we only buy sandwich bread from big manufactures. I also read a study on may contains and items processed in a facitily - it was between 7 and 17% o f the items did contain the peanut protien. Of course there are other high risk items like oriental places and icecream shops.

Posted on: Thu, 11/29/2007 - 10:46pm
lulu's picture
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Joined: 11/26/2007 - 12:37

i really appreciate the replies.... i was a complete mess yesterday. i think i cried for 4 hours straight. after i talked to the doctors i did feel better. they both gave me hope but also made me realize it is not a disease and totally manageable. and i am not alone... my ped said it keeps going up and up the amount of kids he has with this allergy. i am happy that she has outgrown her allergy to milk 100% and my allergist said because she outgrew the milk so quickly and has no other allergies she could outgrow. i am not going to focus on that though as i did before. i am going to focus on being a good parent and avoiding all these foods and if it happens that is lowers and eventually goes away it will be a blessing... a welcomed one of course. she will be retested in 6 months to see if it is going up or down or staying the same. she did say she sees children with sky high levels that never have reactions... and then others with low can react she said it is so frustrating to have some much gray area. hopefully they will make some advances soon for our little ones. :) thanks again... it truly helps coming here.

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