Hello All-New Member

Posted on: Thu, 05/16/2002 - 11:48pm
Nicksmom's picture
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Joined: 05/17/2002 - 09:00

pHello everyone!/p
pMy son has just been diagnosed with a peanut allergy. He is 33 mos. I was surfing the net and found this site. I am so glad that I did because I really enjoy reading all of your stories and like many of you, have a lot of questions. I guess my biggest fear is having to use the epi-pen. Also, another is when he is older and won't be by me as much as he is now. I know I will not be able to keep him in a bubble for his whole life, nor would I want to do that. /p
pThe cross-contamination subject a lot of you talk about....Have a lot of you had this reaction? Does that mean when we go out for ice cream and they use the same scooper, he can't have any? Also, Dairy Queen must be an out right? /p
pI would also like some advice if you have any about what foods contain peanuts that I wouldn't normally think do? If you have any advice, I would appreciate it greatly./p
pThanks!/p

Posted on: Fri, 05/17/2002 - 8:20am
B G L's picture
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Joined: 06/03/2001 - 09:00

Hi Nicksmom,
Our son was 14mon. when he had his first reaction. He is now 14 yrs. old.
Did he have a reaction or did he test positive? If he has had a reaction then you know just how scary this allergy is. If he has tested positive then you might not know what the allergy will look like for your son.
I suggest that if you don't have pediatric allergist, that you find one. They will give you great information and remind you that you always carry his epi. Don't get it too hot or too cold. (We've done this and had the injection fail to conteract the pa reaction.) we can't even count how many times that we had to go back home to get the epi before it became second nature to carry it everywhere. (We were young.)
As for cross contamination. Your allergist will prob. ask that all pa product be removed from the house. Only makes sense to me. Baskins and Robins is out. DQ is out. McDonalds is out. I've heard on this web that Burger King may have pa in their buns? But, I have called the regional office and they say no. But, they do carry prepackaged deserts with pa at times and in some areas. We have had hambergers there with no problem.
Wendy's, and Taco Bell.
Ask the Q's.
May we talk to the manager? (resturant)Or call the regional office.
May we look at/read the box?
Does this have pa in it? (can I trust this person to tell me the truth?)
Have you washed your hands? (if they have just eaten something with pa in it.)
Have you just eaten something with pa in it?
(Relative at potluck getting ready to kiss your child.)
Will you be serving anything with pa? (Childrens bd party, church social, family getogether, etc.)
Please don't feed my son anything. If he is hungry I have brought some safe snacks. There is enough to share.
Read, read, read the lable. Even if you have read it before, read the lable of a new box. I have sent my own son to the hospital because an item was safe before and I assumed that it was safe this time to!
No you can't, for your sanity or the sanity of your child, keep him in a bubble or as we say, locked in the house. He needs to go out and watch you interact with the world about his pa allergy. You will be his teacher! How you respond to his allergy will be how he responds to his allergy. When he reacts again, and he will, calm yourself so that he knows that he will be allright. Then he will be calm and level headed when he has a reaction (older) and you are not there. Teach him that this epi is not something to be afraid of, but that it will help him live his life as "nomally" as possible.
Good Luck, Brenda
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by B G L (edited May 18, 2002).]

Posted on: Fri, 05/17/2002 - 8:36am
momjd's picture
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Joined: 02/24/2002 - 09:00

Our son isn't old enough fo ice cream yet, but it's been my impression from various books and posts that eating ice cream from a shop is a bad idea. I'm not sure about soft serve. Personally, I don't think it's worth the risk. It takes awhile to adjust your mind to the idea that those fun family outings/traditions are over, but when you realize the cost in terms of stress- I think it's worth it. Check the Reactions/Stories section and do a search using the term "ice cream" to get a better idea about this specific issue. I'm sure you'll get a lot more information from those who have been here longer and have older children. If you don't find what you are looking for check out some of the responses to other 'new here' posts. I found this book to be helpful Marianne Barber's - The Parents Guide to Food Allergies, but it covers more than peanuts. The Peanut Allergy Answer book is also a good starter.
Welcome!

Posted on: Wed, 05/22/2002 - 11:14am
Nicksmom's picture
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Joined: 05/17/2002 - 09:00

Thank you very much for your suggestions and comments.
I do have an allergist for my son. He has had slight reactions to pa in the past. That is why I have had him tested for the allergy. We weren't sure if it was an allergic reaction to amoxicillin or pa (he woke from a nap all swollen eyed),then we had an episode of vomitting. That is when I decided to bring him in. My allergist told me that the more exposures he has to pa, the more severe his reactions will be. I am just doing my best to keep him away totally, in order to not see the more drastic reactions. He was diagnosed with Level 6 diagnosis of pa.
The nurse at our clinic told me that if his reaction isn't very severe, and he only has hives, or minor reactions, that I don't need to use his epipen. How do I know what is severe and what isn't? Having never been around anyone that has life threatening allergies, I am not sure what is severe enough to cause me to use the epinephrine. I know the allergy can close up the airway, and they have trouble breathing, but am I supposed to wait until I see that to use the epipen? If anyone has any stories that they would like to share about any episodes that their kid/kids have had, go for it!
Thanks again for your responses!
Nick's Mom

Posted on: Wed, 05/22/2002 - 11:50pm
Anonymous's picture
Anonymous (not verified)

Hi Nick's Mom.
How do I know what is severe and what isn't? Unfortunately, like almost everything to do with PA this is probably a little different for everybody. As an adult living with PA I often *feel* a reaction before there's actually any sign. I get sort of antsy, and feel like there's something under my skin. I used to wait when that happened, but now I take antihistamine right away. For me, taking benedryl usually stops any reaction, or at least slows it, and prevents anaphylaxis. Any swelling in my mouth, or shortness of breath, and I literally sit with a phone and epi-pen within reach. So far I've only had one anaphylactic reaction that required epi.
Also, wanted to mention, ask dr. if you should take him to hospital if you use the epi-pen. My dr. instructed me to head directly to ER (which makes sense to me), but maybe it's different for others, I'm not sure.
Good luck. And it does actually get easier to live with. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
TTFN
Anna

Posted on: Thu, 05/23/2002 - 12:12am
BS312's picture
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Joined: 09/05/2001 - 09:00

It is important to know that Benadryl does NOT prevent anaphylaxis. If you take Benadryl and anaphylaxis does not happen, it was not going to happen anyway. You can ask your doctor about this or read about anaphylaxis at FAAN's web site, [url="http://www.foodallergy.org."]www.foodallergy.org.[/url]

Posted on: Thu, 05/23/2002 - 2:19am
Anonymous's picture
Anonymous (not verified)

Following is the info I found at FAAN.
Antihistamines, such as Benadryl

Posted on: Thu, 05/23/2002 - 8:02am
momjd's picture
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Joined: 02/24/2002 - 09:00

I've read (maybe in J. Brostoff's book) that antihistamies must be in your system prior to the release of the histamines to have an effect on them. So if a reaction has already started and you take an antihistamine, it will help reduce the impact of any additional histamines being released rather than stopping the reaction that they've already started.
I've always read/been told that you should immediately go to the ER if Epi has to be administered and to wait at the ER for at least 4 hours whether they discharge you or not.

Posted on: Thu, 05/23/2002 - 11:23pm
Anonymous's picture
Anonymous (not verified)

I usually take antihistamine every day (I've gone from 5 down to one by diligently reading labels and making phone calls) I'm now trying to give up the one, but I worry about the hidden sesame seeds.
I once went to the ER because I was having a bad reaction, no difficulty breathing, but it seemed to be heading there. I stopped at triage, told the nurse my condition but that I did not need a doctor yet. Just wanted her to know, in case it hit fast. The nurse wasn't to happy, but a doctor actually stopped by between patients just to see if I was OK. He then told nurse to get him immediately if I looked like I was in distress. I was very impressed that he at least understood, though the nurse seemed upset with a patient not following the "rules".

Posted on: Thu, 06/06/2002 - 11:05am
Nicksmom's picture
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Joined: 05/17/2002 - 09:00

Thank you AnnaMarie for your story. My doctor did tell me to bring him straight the emergency room if I ever have to use his epi-pen. Or for me to call 911 seeing as I am 40 minutes from a hospital.
As for the sesame seeds, I wasn't quite sure if they were considered a nut. Call me a nut, I had to ask.
Thank you again!
Nick's Mom

Posted on: Fri, 06/07/2002 - 10:47am
BMcKay's picture
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Joined: 05/21/2002 - 09:00

Hello everyone. It's comforting to see that so many other parents are dealing with a PA child. Our son was diagnosed (after a sever reaction) in May 2002. To protect him, we have found that you have to do so much more than merely read labels. He had a reaction when bathing with our 6 year old that had been eating peanuts at a baseball game. Apparently the residue and "dust" from the nuts were on his skin and in his hair. As soon as he starting washing little brother immediatly started to wheeze and breakout in hives. This site offers a lot of information and support from other families. We're glad we foud it.

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