New here and wanted to introduce myself. I'm Wendi, mom to 5.5 yr old triplets. All 4 of us have allergies and eczema and are in the middle of changing allergists at the moment.
Katie has had a mouth/throat reaction several times to Yoo Hoo, but we cannot figure out what it is that is causing it. She eats all the ingredients listed without problems. It has to be cross contamination, but I did not know enough about allergies at the time to know to call the manufacturer.
Shouldn't she have an epi-jr 'just in case' even though we don't know what is causing this?
Katie is also allergic to the sun and gets a horrid rash and quite lethargic even with the smallest amount of sun exposure in the spring, summer and fall... seems to be ok this winter though! I worry this will end up in an anaphylactic reaction.
Luke had a rash reaction 3 years ago and is allergic to eggs. It is possible there were internal reactions as well (based on the way he was acting) but he was non-verbal at the time and could not tell us. His latest skin testing came out looking the same to both eggs and peanuts, but for some reason the old allergist said he was allergic to eggs and not peanuts. Huh? He had a RAST done recently for eggs right after the skin testing was positive (she refused to do a RAST for peanuts) and that came out negative, but I am not exposing him to eggs! He also had the worst case of hives I have ever seen to some medications, but unfortunatley we are not sure which one since it was a combo cold/cough med I gave him. It has to be the active ingredients, I have ruled out all the inactive ingredients.
Maddie had the same reaction as Luke did to eggs on the same day 3 yrs ago (non-verbal at that time, but again I suspect an internal reaction). We did another skin test for egg and peanut recently, both positive, and then RASTs for both also came back positive. She did have what I now think was a GI and heart reaction to something about 2 years ago (based on the symptoms listed here: [url="http://www.foodallergy.org/actionplan.pdf)"]http://www.foodallergy.org/actionplan.pdf)[/url] must have been cross contamination because all the foods she had that day were egg and peanut free... but when it happened I called the pediatrician she said it must be a virus and not to bring her to ER, and I was stupid enough to listen (we were VERY lucky). Of course nobody else ever got sick, it was NOT a virus, but I don't know what it was an allergic reaction to!
I am not really sure where the peanut exposure came from, I have been avoiding peanuts since birth due to family anaphylactic responses and they were in a peanut free preschool... though now looking at your manufacturer's forum I am surprised to see I really have not been avoiding them! I did not know about all those products, like shampoos, etc.
I have asthma and am allergic to tons of foods... too many to list here...mostly GI reactions, some asthma, skin testing positive but RAST negative to most. Not allgeric peanuts surprisingly! Most scents cause asthma. Lots of chemicals cause ashtma and eczema for me too. I am allergic to lots of medications too, which seems to be getting worse with time. I now have an epi for myself after the last reaction to a trace of my daughter's antibiotics.
I am trying to find all new products to use that don't have any chance of cross-contamination but also do not cause me to have asthma attacks or anyone to have eczema! This is difficult! I thought I finally had the right combo before reading your forums!
Sorry so long! Wendi
On Jan 24, 2006
Hello Wendi, You have your hands full. How do you do it? There are lots of moms here on PA.com that are dealing with kids with multiple allergies. I think there might even be a few with multiple kids like you!
This is the greatest website to learn how to deal with PA. Read all you can - ask questions....someone will be here to help you out. cheers, Adele
On Jan 24, 2006
You'll find so much wonderful information here! Just read a bit each day, when you can find the time.
As a child, I had all of the classic food allergy GI symptoms, without anaphylaxis. I now have GI reactions that have progressed into more serious reactions.
For all parents out there...trust your instincts! You are with your children many hours a day. Some Docs are wonderful partners; other Docs need to return to school, or spend a day with a food allergy. My old allergist said if I had been tested as a child, and put on the elimination diet, I *may* have outgrown many of my allergies.
You're doing a great job! Daisy
On Jan 25, 2006
Thanks Adele and Daisy,
Yes I see there is a lot of great info here! I don't want to stop reading, I'm afraid I will miss something lol.
I don't know how I do it... just do what needs to be done as best I can.
All three kids are on the autism spectrum too, high functioning now but wow a couple of years ago the situation was much different! Thank goodness for early intervention! I did tons of research and followed my gut.
Now I have people telling me they don't see autism... even my son's autism consultant at school says he seems like a typical kid in most ways... great news. A LOT of work here though.
On Jan 25, 2006
Wow, Wendi you've got alot going on. With all that I wouldn't mind having an epipen in the house. It sounds like you've pulled through some really difficult early years with your kids, and hopefully it will get easier.
This site is a tremendous resource, if you haven't already, check out kidswithfoodallergies.org too. Also, the Parent's Guide to Food Allergies by Marianne Barber is a great book. It deals with environmental allergies as well (nothing about the sun though...) And it addresses some of the emotional aspects of this little journey.
Just wanted to say welcome, we have a few things in common. We have twin boys, one with allergies to peanuts, dairy, and eggs.
Good luck and ask away if you need to! Meg