Hello!!

Posted on: Wed, 11/19/2003 - 2:41pm
Scrippsie's picture
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Joined: 11/20/2003 - 09:00

Hello everyone!

There seem to be a lot of parents on this board, so I guess I have a slightly different perspective...

I'm an eighteen year old college student--just left the nest a couple of months ago! I've dealt with allergies to peanuts, soy, and artificial food dyes for my whole life. I'm also allergic to all legumes and avoid all nuts out of principle. I was diagnosed fairly young, I think I was around 18 or 24 months, when I threw up red kool-aid in front of an RN and she suggested to my mom that I have allergy tests. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Fortunately, I have had it beat into my head to check the labels of everything I eat and I have not had a reaction since I was five years old.

It is always an entertaining experience for me to explain my allergies to new people--for some reason the first thing they always ask me is if I can drink Coke!

I'll probably have a lot of questions since I'm on my own now and I've run into more problems than I expected with the dining hall at my school. I've never found anyone who has the same problem with soy; is there anyone out there on the board who has a soy allergy or who has a child with a soy allergy? It's such a big health craze right now that it seems like it gets harder every day to avoid it.

Well I'm off to check the main board! I'm glad I found this website. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Wed, 11/19/2003 - 11:29pm
Anonymous's picture
Anonymous (not verified)

Hi Scrippsie.
I'm also an adult with pa (and sesame seed allergy).
There are several people on this board dealing with soy allergy, either themselves or their children. If you do a search you may find specific information.
My sister has adult onset allergies, and one of them is to soy. When we plan a dinner together it's quite an experience avoiding my allergens, her allergens, and her dh's allergens. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Thu, 11/20/2003 - 12:47am
Peg541's picture
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Joined: 12/29/2002 - 09:00

Hi Scrippsie,
My son is a 19 year old college freshman and also away from home for the first time.
He is allergic to peanut, tree nuts, soy, oats, milk, tomatoes, and fish.
Fortunately his only anaphylactic allergy is peanut but he has been told that any of the other allergies could turn serious at any time.
We spent a lot of time helping his college get educated about his allergies and what he needs to keep himself safe.
He attends a small university so it was easier for him to accomplish, plus he is their first PA student ever.
The first person I would suggest you contact at your college is the disabilities coordinator, that's their job. I'll bet you already have.
Good luck and use my email any time if you need help. There is another PA college student active here on the list, I'll bet she chimes in soon.
Peggy

Posted on: Thu, 11/20/2003 - 12:56am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by Scrippsie:
[b]Hello everyone!
There seem to be a lot of parents on this board, so I guess I have a slightly different perspective... [/b]
Having two children myself, one officially "diagnosed" with PA, the other having a "low" positive rast, and no observable reaction (subclinical not monitored aside from a "low" positive rast).......... I absolutely am thrilled to have another person with your perspective posting.
Quote:Originally posted by Scrippsie:
[b]I was diagnosed fairly young, I think I was around 18 or 24 months, when I threw up red kool-aid in front of an RN and she suggested to my mom that I have allergy tests. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img][/b]
Multidisciplinary Collaberation. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] Thank you for an excellent example of early intervention.
Quote:Originally posted by Scrippsie:
[b]Fortunately, I have had it beat into my head to check the labels of everything I eat and I have not had a reaction since I was five years old. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img][/b]
Education related to food allergies. Thank for an excellent example of what such may achieve. (Although not always a guarantee, IMPHO, but "Risk Reducing"?
Quote:Originally posted by Scrippsie:
[b]It is always an entertaining experience for me to explain my allergies to new people--for some reason the first thing they always ask me is if I can drink Coke![/b]
NOT PEPSI??? [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
Quote:Originally posted by Scrippsie:
[b]I'll probably have a lot of questions since I'm on my own now and I've run into more problems than I expected with the dining hall at my school. I've never found anyone who has the same problem with soy; is there anyone out there on the board who has a soy allergy or who has a child with a soy allergy? It's such a big health craze right now that it seems like it gets harder every day to avoid it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img][/b]
I often found such topics (Food Allergies) to be very connected. You might want to try a search. I remember the topic comming up before.
Quote:Originally posted by Scrippsie:
[b]Well I'm off to check the main board! I'm glad I found this website. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img][/b]
Welcome. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
edit to correct quotes.
[This message has been edited by MommaBear (edited November 20, 2003).]

Posted on: Thu, 11/20/2003 - 6:02am
ajinnj's picture
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Joined: 05/13/2003 - 09:00

Welcome Scrippsie!
Quote:Originally posted by Peg541:
[b]
There is another PA college student active here on the list, I'll bet she chimes in soon.
Peggy[/b]
Well, I'm the other PA college student Peggy was referring to. I'm also 18 and am freshman this year. I am anaphylactic to peanuts, tree nuts and sesame and also have severe asthma. I know what you mean about making decisions on your own and the difficulty navigating through the school cafaterias. It's nice to have another teen PA on the boards. Hope you find the boards helpful and if you want to chat off boards feel free to email me.
Allison

Posted on: Fri, 11/21/2003 - 1:37pm
nancy023's picture
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Joined: 12/12/2002 - 09:00

Welcome and thanks for posting.
My six year old son is allergic to soy as well as peanuts, tree nuts, etc.
How bad is your soy allergy? Can you eat soy oils and lecithin or not? I know there is another adult who posts on these boards who cannot eat soy in any form.

Posted on: Sun, 11/23/2003 - 6:16pm
Scrippsie's picture
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Joined: 11/20/2003 - 09:00

Thanks to everyone for the nice replies!
AnnaMarie--Wow, that's a lot of allergies in one place! At least you all understand each other. I'm sure we've all experienced someone who just doesn't get the whole food allergy thing.
Allison and Peggy--I'm glad to see there are others out there in the same boat. I've gotten in the habit of checking the menus online before I go to the dining hall. I'm lucky enough to attend a consortium, with four other colleges surrounding me, and we can all eat at every dining hall on the five college campus. So if I pull up my college's menu and see nothing but Asian stir-frys and tofu, I make my dinner plans at another college. Unfortunately I have still been running into problems, but going to a small college is definitely an advantage. The food service people are very nice and try to be accomodating. However there are far more vegans than people with PA so I'm afraid my food choices will always be slightly limited. I think I may work on getting my school to be peanut free though!!
MommaBear--Haha, no, oddly enough they usually say Coke and not Pepsi, although I have had people offer me Pepsi and then say "Oh, no, you can't drink it because it's colored, right?" And then the slower thinkers who think that I can't eat any food that is naturally tinted...
nancy023--Fortunately my soy allergy is not too bad, I'm not anaphylactic. I've never had a problem with soybean oil or lethicin, although if I have a choice I do avoid soybean oil. I've had mild reactions from soy protein and soy flour--headaches, sore throats, stomachaches. My bigger problem with soy is that it limits me. Soooo many times my friends have suggested getting teriyaki and all I can say is "Sorry guys, we have to go somewhere else."
When I was a little older than your son, I wrote a letter to Kellog's asking about their soybean warning on Frosted Flakes. They sent me back a very nice letter with some allergen information. I think it was a good experience and it taught me early on that I could take my safety into my own hands.

Posted on: Mon, 11/24/2003 - 1:26am
Peg541's picture
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Joined: 12/29/2002 - 09:00

Oh Scrippsie,
I know where you go to college. My son is just about another 30 miles East on the 10 from you.
Your consortium was his other big choice. He chose a specialized learning community at his college. Good for you, that is a great place.
My son also reads the menus online every day and avoids certain meals. So far it's worked out fine.
He is also allergic to soy but not that we would notice. Probably will some day though.
Good luck to you at college.
Peg

Posted on: Mon, 11/08/2004 - 8:42am
mommyofmatt's picture
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Joined: 03/12/2004 - 09:00

Welcome Q's Mommy!
Glad you came out of lurk mode to say hello [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] And, I'm glad you've found useful information on this site. I've learned SO much since I started coming here.
Good luck, and feel free to post any questions you have.
------------------
***[b] ALLERGY ELIMINATOR*** [/b]
Meg, mom to:
Matt 2 yrs. PA,MA,EA
Sean 2 yrs. NKA

Posted on: Tue, 11/09/2004 - 8:09am
anonymous's picture
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Joined: 05/28/2009 - 16:42

hi-
my 10mos old was dx with PA and EA a week ago & i am consumed with guilt over eating eggs and nuts during pregnancy and breastfeeding (allergies dont run in our families). did you go through the same feelings when you first found out?
michele

Posted on: Sat, 11/13/2004 - 7:40am
Darkmage's picture
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Joined: 10/01/2004 - 09:00

Welcome!
I'm glad I found this place too. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] It helps to know we are not alone.
------------------
[i][b]Allergy Patrol Novice[/b][/i]

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