hello

Posted on: Fri, 06/02/2000 - 10:09am
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hello everyone! i first want to say how great this site is...i just found it the other day and i just keep coming back for more great information! i can't tell you all what a relief it is to know that there really are other people out there with the allergy! (not that I would want anyone to have it, but. . .it's nice to know i'm not alone in it!)

just a little bit about me--i'm 23 and have known about my peanut allergy since i was 5. my first reaction was with the pine cone-peanut butter bird feeders kids make in elementary school --not a fun experience! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] fortunate for me that my parents didn't keep nuts or peanut butter around the house before that! i had my first severe reaction (epi-pen and in the hospital) when I was 19. (side-note: i ate an egg-roll at a chinese restaurant--they used peanut butter to enhance the flavoring!so watch out!) after that experience, i found that not a lot people are informed about this allergy--it's really frustrating when people say things like "well, just don't eat them!" do people say that you guys, too? anyway, just a big hello and thanks to all of you for all of input!

Posted on: Tue, 06/13/2000 - 12:00pm
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Hi Jess3311
Welcome , it is a great site isn't. I found it a couple of months ago and can't help but to "check in" very 2 days!
You asked if people's replies were ever" well just don't eat them".
We went to a dinner at a friend of the families house, on top of the jello was a nut, the hostest removed it in my presence and said "okay it's safe now". [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
To bad some people jusy don't get it!
Take care Kristy

Posted on: Tue, 08/13/2002 - 7:30am
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Hi & sorry to hear about your son's PA.
This link looks like it may answer some of your questions. You'll want to scroll down to find what you are looking for. To be safe, I believe you would want to read the ingredients, and not only look for an allergy warning. I've seen peanut oil listed in the ingredients of a product that had no allergy warning in bold print.
[url="http://www.calgaryallergy.ca/Articles/peanutsoyahp.htm#peanut%20oil"]http://www.calgaryallergy.ca/Articles/peanutsoyahp.htm#peanut%20oil[/url]
I hope this helps to answer some questions for you [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Thu, 05/23/2002 - 4:54am
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LJG,
I am not aware of a TNA site however if there is one you'll find out since a lot of kids here are PA & TNA.
So welcome and stay!
Everyone here is avoiding all nuts anyway even if there not tree-nut allergic [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Posted on: Thu, 05/23/2002 - 10:40am
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LJG
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Thank you! We have been told by our allergist to avoid whole peanuts as well due to concerns about tree nut cross-contamination during manufacturing, but he says Kylie can eat peanut butter, as long as it is made in a peanut only factory. I have a lot of admiration for all you PA Moms out there...I can only imagine how I'd be feeling if cashews and pistachios were as prevalent. Thanks again for welcoming me into the group. I'll enjoy having some email friends to talk with.
Lori

Posted on: Tue, 03/05/2002 - 1:13pm
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Welcome.
I'm still new at this too. I just received my copy of his book from FAAN. Please let us know what you find out after your appt.

Posted on: Wed, 11/05/2003 - 8:15am
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Bienvenue Marie-France,
Glad you found us. Il y'a pas mal de canadiens ici!!!!
My now 6 yr old son's first reaction was to a peanut butter cookie too. In his case he vomited.
Search and post. It's the best way to get info.

Posted on: Wed, 11/05/2003 - 11:55am
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Joined: 03/15/1999 - 09:00

Hello and welcome!
I also live in Ottawa, as do katiee and mattchrismom. I am out in Nepean, near Greenbank and HuntClub.
My son is allergic to eggs and tree nuts and is also sick and in the Catholic School Board. My PA daughter is nine and also in the OCCSDB.
Feel free to contact me through the boards or through my email (it is in my profile).
take care
deb

Posted on: Thu, 11/06/2003 - 1:36am
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Dear MF,
I too am new to this site. I posted for the first time yesterday - "new - can't believe the studpity of the school" - please read this.
I firmly believe that no one understands these allergies cause they can't see them. You can see a child in a wheelchair. Unles they see them go into shock they have no idea.
We have been working with our school for 3 long hard years now and it is a constant battle.
I have made a lot of mistakes in the past but also learned from them.
I too became involved with the school as a noon hour supervisor and this helps somewhat.
At first we were never that worried - we were very stupid ourselves - we placed a lot of trust in other people. Don't ever do that.
Look at all the schools in your area - I am working on getting into the private school here. Their dilegence is unbelieveable!!!! One of the moms from our school switched over and is very happy. Being a private school they can say this is our policy and if you don't like it don't come here. They have zero tolerance for anyone bringing unsafe food to the school. It is very expensive but I am looking at all options to get my 2 children in the school. No school can gaurantee 100% safety, but their attitude towards the whole issue is what is important. Please read my posting - the little girl that brought in the unsafe snack - her parents & grandparent were never contacted to rectify this situation!!!! Instead he will put a news letter out in 10 days reminding people to not bring unsafe foods to school. They did not understand why I wanted these people contacted?????? Be very careful of anything you say or do at the school cause it can come back to haunt you. I am labelled any mistakes I or my children make are brought up. Make sure everyone in that school is trained in epi-pen procedure - everyone.
Vacations: we do tons of camping and always have, we share the whole work load, remember it is a small area to clean for the safety of your child.
We went to Hawaii - how? Well we got a condo, bought groceries and cooked 90% of our meals.
We carry wipes with us at all times and are constantly making her aware of situations. Of touching things that perhaps she shouldn't touch. Contamination is everywhere but I personally feel you can't keep them in a bubble. This has gotten me in a lot of trouble when I vocalize this so be careful also. I have met another mother here that is just as passionate and worried as you are - they go camping, he goes to tae kondo (spelling???), beavers, field trips. how does she do this - either her or her husband always goes along. We have to try to give them as normal of a life as we can. This all starts with us educating our children, they constantly have to be aware. This is hard to do and my little one scares me sometimes but we learn from every moment.
Sleep overs - we do them - how? - only certain homes. And these parents are very dilegent. they are all trained in the epi-pen procedure and usually my older daughter goes a long. I also try to have it at my house. So far she has only been to one house. You will find a comfort zone with certain parents and you will go from there.
Play dates - she hardly ever gets invited over to other peoples houses. They are always at mine - fine - make it special - these are few so we make sure we do fun things - also then the kids want to come to your house.
I hope this helps some, please contact me if you need to vent.
Gizmo (Dorothy)

Posted on: Thu, 11/06/2003 - 4:24am
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Joined: 11/05/2003 - 09:00

Thanks everyone for your replies.
I know it's a clich

Posted on: Thu, 11/06/2003 - 6:21am
Anonymous's picture
Anonymous (not verified)

Marie-France, Kellogg's Canada and Quaker (in Canada) both label for *may contain* on their packaging.
I know Kellogg's has a bar, but I'm not sure if it's granola. Have you checked the Quaker ones? If neither of them have what you're looking for do a search of the Manufacturer's Forum.
And, when you have a minute, (if you want to share [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) you could post your recipe for granola bars unders Snacks and Recipes. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Welcome to the boards.

Posted on: Tue, 11/11/2003 - 12:34am
Marb's picture
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AnnaMarie:
I'm not sure if I should post the granola bar recipe because it contains nuts. Jeremy is only allergic to peanuts. There are a lots of people on this board with children with nut allergies. Is it okay to post the recipe do you think?
Anaphalaxis Canada suggests buying nuts in the shell and shelling them yourself to guarantee a peanut-free product. I'm happy about this because it means that I can make our traditional Christmas cookies (which my son won't eat anyway, but at least our house remains "peanut-free").
Quote:Originally posted by AnnaMarie:
[b]Marie-France, Kellogg's Canada and Quaker (in Canada) both label for *may contain* on their packaging.
I know Kellogg's has a bar, but I'm not sure if it's granola. Have you checked the Quaker ones? If neither of them have what you're looking for do a search of the Manufacturer's Forum.
And, when you have a minute, (if you want to share [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) you could post your recipe for granola bars unders Snacks and Recipes. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Welcome to the boards. [/b]

Posted on: Sat, 07/12/2003 - 8:54am
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Welcome Kaye!
You will find that there are several people on this board dealing with multiple allergy problems. So sorry to hear your son tested so allergic, too. I know that must be hard!
Hope that we can be of help or offer support or just a place to vent. We'll help any way we can...
Again.. welcome.
~Melanie

Posted on: Sat, 07/12/2003 - 8:59am
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Thanks for your support! It's nice to meet you.
My allergist recommended a rotation diet, so I'm looking for some good recipes.
Thanks for your encouragement
------------------
Kaye

Posted on: Sat, 07/12/2003 - 11:51am
researching mom's picture
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Hi!I have a 1 yr old son with severe food allergies.I just posted about it on this board this past week , read under Severe food allergies and eczema posting by researching mom.How old is your son? Did you recognize before your son was tested that he was reacting to all or most of those foods that he tested positive to?

Posted on: Sat, 07/12/2003 - 9:22pm
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G'day Kaye (and reseacher!)
I'm writing from Australia - my wife is PA and we obviously have to watch everythng we eat, but I can;t imagine how hard it is for you, wit multiple allergies for you and your son.
Welcome - its nice to meet you [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Geoff (Helen's hubby)
PS don't forget to use the search feature on the site - you can find lots of advice and recies that way!

Posted on: Sun, 07/13/2003 - 9:19am
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Thank you both for your reply's. My son is six years old. Fortunately, I've dealt with allergies for myself for a really long time. But, even with everything I "thought" I knew, I'm learning a lot on this site. I've realized that I've been putting my life at risk by assuming that companies are accurate in their labeling, but now realizing that they're not.
My son has been losing weight and cries a lot. Doesn't take much to upset him. He also complains of his stomach cramping and not feeling well. He coughs a lot and his voice is always horse (sp?). His blood sugars are abnormal but not in the diabetic range, which lead my allergist to suspect food allergies. I should have seen it, but didn't. Should have realized when he was an infant and projectile vomiting (symptom of food allergy).
I also stopped vaccines because they made him so ill.
I thought a rotation diet would be easy but I no longer think that.
------------------
Kaye
[This message has been edited by Kaye92 (edited July 13, 2003).]
[This message has been edited by Kaye92 (edited July 13, 2003).]

Posted on: Wed, 07/02/2003 - 3:22am
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I, too, have a Tyler - he's 8 months. He's not PA that I know of yet. My 3 year-old is PA - we have a history of milk allergy, eczema, asthma so I was told to wait until he was 2 to try peanuts. I waited until he was almost 2 1/2. His lip swelled right after he took a bite of the cookie - he never swallowed anything. He immediately started crying to get it out of his mouth. Then he lost his voice. We ended up in the ER that night with severe breathing problems.
It's been almost a year now and I'm still learning! This site is great. I'm sure you'll find lots of information and support - I have. His allergist said eating products containing peanut oil or cooked in peanut oil was up to me and my comfort level. If it's heat-refined, it's not supposed to contain any of the reaction-provoking protein. But it could still possibly contain protein and I think most people treat it as a "may contain traces" and not eat it. We have stopped going to Chick-Fil-A for that reason. My son has never had a reaction there as far as I know but sometimes it's hard to tell with him. He has asthma that can be brought on by a cold or triggered by allergies. He had a case of the worst croup I've ever heard the night after he had a granola bar (that was just after he was diagnosed and before I was fully educated).
I'm just now getting him a Medic-Alert bracelet - didn't have one before since he was with me all the time or at church. But after reading lots of input on these boards I realize I should have had one lots earlier. He's going to preschool in the fall so we're preparing on that front. The school has had PA kids before so it'll be a refresher for them.
Welcome - sorry you have to be here but it's a great resource and you're not alone!

Posted on: Wed, 07/02/2003 - 7:16am
Mom to Tyler's picture
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Thanks so much for sharing your experiences! We consider ourselves extremely blessed that Tyler's allergy was initially found via a scratch test rather than from a reaction. He has had eczema, reflux, and a wheat sensitivity. Luckily he has outgrown all but the eczema and the PA (and of course we are holding out hope there too).
Ty is in a home daycare part time and that is working pretty well but I fear for the day he goes to school. Am strongly considering the Medic Alert bracelet but he is not past the putting-everything-in-his-mouth phase yet.
Best wishes that your younger child will avoid the PA!
Karen
PS. We are in NC, too, in the Raleigh area.

Posted on: Wed, 07/02/2003 - 11:29pm
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Mom to Tyler:
Welcome to the board. This is a great place for advice and support.
In my opinion, peanut oil is not safe. There has been a lot written about peanut oils and their processes (there is hot pressed and cold pressed, one is 'supposedly' safe and the other is not). Personally, I do not feel comfortable letting either of my PA children eat anything that has peanut oil, or is labeled "may contain" or "processed in a facility that.." If it says "peanut" anywhere on the package, we don't buy it. Also, beware of non-food items which could also cause reactions, such as sunscreens and lotions! (My DD reacted to Banana Boat - peanut oil in the lotion).
PA is a very unpredictable allergy. A person may react strongly to it at one point and barely react at all at another point. Full avoidance is your best route.
As for the Medic Alert bracelets, I just recently got them for both my 7 year old PA son and my 2 year old PA daughter. We got the 'sport band' kind. So far, so good. My 2 year old didn't want to wear it at first and cried, but luckily my best friend (who she LOVES) wears all these punk bracelets, so we could say to her... "Look, your bracelet is like Jeremy's!" Now she pays no attention to it and we NEVER take it off.
Because she is both so young and has such sensitive skin, I didn't want to risk getting the metal band Medic Alert, as I am allergic to many metals myself. I will have to buy her a few more bands as she grows (I cut this one small enough to fit her wrist and burned the end with a lighter so it wouldn't fray, but it won't fit her forever!)
Take a look at the sport band kind. Personally, I think they are better than the metal ones for little, active ones.
Good luck, and again.. welcome!
~Melanie

Posted on: Tue, 10/12/2004 - 4:34am
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Welcome! Glad you found this site. Lots of useful information here.
------------------
Jodi mom to:
Dominic 5/22/01 NKA
Zachary 3/18/03 Peanuts, Dairy, Eggs, Avoiding all TN, Fish, Shellfish...

Posted on: Tue, 10/12/2004 - 11:39am
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Hi! My son's first exposure was also to breast milk "laced" with peanuts. Just when you think you are doing what is best - - sometimes there is no winning, it seems. This board has been an enormous help for our family. Glad you found it! Welcome.
Lisa
P.S. My son is now 3 as well
[This message has been edited by Lisa V (edited October 12, 2004).]

Posted on: Wed, 10/13/2004 - 6:57am
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Hello and welcome!
I can't remember if I ate peanuts while nursing my now 4 year old PA son, but I know I ate tons of peanuts while pregnant with him.
I am strictly avoiding peanuts now since I am still nursing my 13 month old daughter. I did have a few PB&J sandwiches while pregnant with her because I had not heard to avoid peanuts during pregnancy. I'm praying that she does not have a PA. We'll see...
------------------
[i][b]Allergy Patrol Novice[/b][/i]

Posted on: Fri, 10/01/2004 - 9:52am
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Hi Darkmage, welcome!
Glad you found the site--we're always getting new people so the site is always evolving and growing. Great to have you here!
I have an 8 year old son with peanut allergy and sesame allergy. Everyone here is dealing with peanut allergy, but lots of us have other food allergies as well. I think you'll find many others with the same allergy concerns you have.

Posted on: Fri, 10/01/2004 - 1:06pm
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Welcome Darkmage, it's nice to have you on board!
My nine year old daughter is allergic to peanuts and tree nuts. She was allergic to both milk and eggs as a baby but outgrew both by age three.
My four year old doesn't seem to have any allergies, although he has never been exposed to peanuts or tree nuts, and we haven't had him tested yet.
Welcome!
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

Posted on: Sat, 10/02/2004 - 7:53am
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Thanks for the welcome!
I'm sure to stop in often. It looks like I have a lot of reading to catch up on first.
------------------
Leann, Mom to:
Shane, 4yrs, PA & DA
Brenna, 1 yr, NKA

Posted on: Sun, 10/03/2004 - 9:15am
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Darkmage,
Welcome aboard! As I'm sure you are noticing there is a ton of information at your finger tips on this board.
My oldest (Ethan) is 5 1/2 and is only allergic to peanuts--so far. (keeping fingers crossed!)
I quickly checked out your board you posted a link to. Very cool!
Any question, please ask [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Mon, 10/04/2004 - 12:58am
Anonymous's picture
Anonymous (not verified)

[img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img] I am such a bb junkie [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] I need to be leashed.
No. 6 is Rush. (Can't remember the song, but it's Rush, right?)
[i]I know, I know. wooden chair. corner. I'm going, I'm going.[/i]
------------------
[b]***ADDICTED***[/b]

Posted on: Mon, 10/04/2004 - 6:29am
Darkmage's picture
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[img]http://home.earthlink.net/~lmcmonigal/emoticons/LOL.gif[/img]
That's right!
------------------
[b]CURIOUS[/b]

Posted on: Sun, 04/18/2004 - 12:03pm
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Hi Daniel,
Welcome, and I hope your skin tests go well, with only good news [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Whatever you find out, someone on this board will be able to answer your questions.
I have a 17 year old son with PA, and also a 20 year old with multiple allergies. My aunt lives in your town, so if we ever visit her again(we are in Canada) we'll send you an e-mail.
[This message has been edited by KateB (edited April 18, 2004).]

Posted on: Thu, 04/22/2004 - 1:58am
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Hi Daniel and welcome
I think it is really kind of you to be supportive of our problems even though you are not sure of your own allergy status!
There are several threads buried in here somewhere (probably under Main Discussion or Off Topic) about eczema where lots of suggestions have been made about dealing with itches and rashes. Hope you can find something useful there!
take care
deb

Posted on: Wed, 05/31/2006 - 8:39am
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Hello and welcome,
How fortunate that your DD is ok. So glad you found on with tests, and not and ER visit. And good that your Doc explained the Epi! Looks like you're on the right track.
Did you rid your home of peanuts yet? Through away the old jelly jar (x-contam)? Many people enjoy Sunbutter or Peabutter as a substitute.
And keep a supply of liquid Benadryl on hand for hives, and mild mystery reactions.
Daisy

Posted on: Wed, 05/31/2006 - 10:21am
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Hi I'm new and my 6 year old is a Lily too! Hopefully Lilly's asthma will improve and your other two will have no allergies. It's scary stuff this peanut allergy business but from what I've been reading I think we found a great place to get information and support.

Posted on: Wed, 05/31/2006 - 12:22pm
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Thanks for the welcome Daisy and Milosmom!
Yes, we've gotten rid of our peanut butter (I was the only one who ate it in the house anyway) and the jelly (kids wouldn't touch that either, thankfully!), as well as the few other nut products (walnuts/pecans for baking) I had in the house, just to be on the safe side. The pediatrician said he wouldn't rule out potential issues with tree nuts.
I do feel really lucky that we've never had a major reaction. Especially all that I've been reading about hidden sources of peanuts. The more I read, the more nervous I get.
For the more experienced -- what are common symptoms of a reaction. Hives, I understand, but what else? There are times that she's been inexplicably flushed and really grouchy, and that has me wondering if that is some sort of reaction. Her asthma episodes have generally occurred shortly after she comes down with a cold. A week ago, she developed croup totally out of the blue (we'd been at the doctor's office eight hours earlier and he'd declared her healthy, after a previous pneumonia diagnosis -- her second since the first of the year). It was very severe -- we ended up in the ER via ambulance.
The past three weeks have not been dull around here. My head is swimming trying to get around all of this.

Posted on: Wed, 05/31/2006 - 12:34pm
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Hello Kelley,
Just bumped up the "Anaphylaxis Symptoms and Grading Chart" on the Main Discussion board.
Really spells it out. DH laminated a small copy for my purse. I have atypical reactions and some ER Docs appear to be moonlighting. Just backs up my symptoms when they say, "I've never heard of vomiting as a symptom of allergies."
UGGGH>???
Daisy

Posted on: Sun, 06/18/2006 - 12:56pm
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Thanks Daisy, I saw that chart...and I appreciate you resurecting it for me and the other new folks.
Lilly has her appointment with the allergist tomorrow. Brendan goes on Tuesday. I have a list of questions....and just a few raw nerves over it all.

Posted on: Wed, 05/10/2006 - 2:35am
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Hello and welcome! Sorry to hear about your ER visits. This can be really scary until you get it under control. There are several of us adults here with shellfish allergy, and many more with nut allergies.
The ICap is the latest instrument for doing RAST bloodwork. This will give your allergist an idea of what to look for...sounds like he's starting with the 2 most prevalent types of allergy first.
Do you have an Epipen? Do you carry Benadryl? And of course, your inhaler? Keep these with you at all times.
Always read food labels. After you have a more certain food diagnosis, you will be more comfortable eating out, but for now be very careful. Stay completely away from seafood restaurants; even if you don't get the seafood...too much cross-contamination risk. Stay away from desserts and icecream when eating out...too much nut risk.
Good luck, and keep posting on your progress. I'm waiting on a peanut RAST result myself, now.
Daisy

Posted on: Wed, 05/10/2006 - 5:38am
bell123's picture
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I certainly am learning how hard it is to avoid peanuts- there is definitely a learning curve and I am now on the fast track. I do have a epi- and have had to use it- last month after the last bad attack. It was a good thing my allergist prescribed one for me as I believe it probably saved my life that night. I also do not go anywhere without my nebulizer. My airways shut done so quickly I usually cannot use my rescue inhaler. My allergist is quite sure it is peanuts that are the problem, but I ate fish/shellfish the night of the last bad attack. I did find out later that there was peanut flour in the breading on the clams- so this may well be the common factor.

Posted on: Wed, 05/10/2006 - 8:32am
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Hi...
sorry to hear about all ER visits...my daughter is PA and has asthma...several years ago we also made alot of scary trips to the ER...what has really helped her is Pulmicort. She takes two puffs a day and has not had an attack for 2 or 3 years nows. I do feel the (then undiagnosed) PA was a factor in all the attacks, but we reduced the medicine and she experienced a decrease in her lung function...We have greatly benefited from going to the allergy specialist rather than the regular doctor...Joy goes in every 6 monthes and they test her lungs and monitor the medication...if you haven't already done so, I would definatly recommend finding a qualified specialist...

Posted on: Wed, 05/10/2006 - 8:35am
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Just wanted to add...there have been some interesting discussions on this board regarding different asthma medications...you can find them by running a search...

Posted on: Tue, 01/24/2006 - 9:58am
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Hello Wendi,
You have your hands full. How do you do it?
There are lots of moms here on PA.com that are dealing with kids with multiple allergies. I think there might even be a few with multiple kids like you!
This is the greatest website to learn how to deal with PA.
Read all you can - ask questions....someone will be here to help you out.
cheers,
Adele

Posted on: Tue, 01/24/2006 - 10:52am
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Wendy,
You'll find so much wonderful information here! Just read a bit each day, when you can find the time.
As a child, I had all of the classic food allergy GI symptoms, without anaphylaxis.
I now have GI reactions that have progressed into more serious reactions.
For all parents out there...trust your instincts! You are with your children many hours a day. Some Docs are wonderful partners; other Docs need to return to school, or spend a day with a food allergy.
My old allergist said if I had been tested as a child, and put on the elimination diet, I *may* have outgrown many of my allergies.
You're doing a great job!
Daisy

Posted on: Tue, 01/24/2006 - 8:55pm
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Joined: 01/19/2006 - 09:00

Thanks Adele and Daisy,
Yes I see there is a lot of great info here! I don't want to stop reading, I'm afraid I will miss something lol.
I don't know how I do it... just do what needs to be done as best I can.
All three kids are on the autism spectrum too, high functioning now but wow a couple of years ago the situation was much different! Thank goodness for early intervention! I did tons of research and followed my gut.
Now I have people telling me they don't see autism... even my son's autism consultant at school says he seems like a typical kid in most ways... great news. A LOT of work here though.
Wendi

Posted on: Tue, 01/24/2006 - 10:30pm
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Joined: 03/12/2004 - 09:00

Wow, Wendi you've got alot going on. With all that I wouldn't mind having an epipen in the house. It sounds like you've pulled through some really difficult early years with your kids, and hopefully it will get easier.
This site is a tremendous resource, if you haven't already, check out kidswithfoodallergies.org too. Also, the Parent's Guide to Food Allergies by Marianne Barber is a great book. It deals with environmental allergies as well (nothing about the sun though...) And it addresses some of the emotional aspects of this little journey.
Just wanted to say welcome, we have a few things in common. We have twin boys, one with allergies to peanuts, dairy, and eggs.
Good luck and ask away if you need to! Meg

Posted on: Fri, 01/06/2006 - 11:27pm
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Hi Sandy...If you have any questions dont hesitate to ask.

Posted on: Wed, 05/31/2006 - 8:39am
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Joined: 01/16/2006 - 09:00

Hello and welcome,
How fortunate that your DD is ok. So glad you found on with tests, and not and ER visit. And good that your Doc explained the Epi! Looks like you're on the right track.
Did you rid your home of peanuts yet? Through away the old jelly jar (x-contam)? Many people enjoy Sunbutter or Peabutter as a substitute.
And keep a supply of liquid Benadryl on hand for hives, and mild mystery reactions.
Daisy

Posted on: Wed, 05/31/2006 - 10:21am
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Joined: 05/30/2006 - 09:00

Hi I'm new and my 6 year old is a Lily too! Hopefully Lilly's asthma will improve and your other two will have no allergies. It's scary stuff this peanut allergy business but from what I've been reading I think we found a great place to get information and support.

Posted on: Wed, 05/31/2006 - 12:22pm
Kelley's picture
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Joined: 05/31/2006 - 09:00

Thanks for the welcome Daisy and Milosmom!
Yes, we've gotten rid of our peanut butter (I was the only one who ate it in the house anyway) and the jelly (kids wouldn't touch that either, thankfully!), as well as the few other nut products (walnuts/pecans for baking) I had in the house, just to be on the safe side. The pediatrician said he wouldn't rule out potential issues with tree nuts.
I do feel really lucky that we've never had a major reaction. Especially all that I've been reading about hidden sources of peanuts. The more I read, the more nervous I get.
For the more experienced -- what are common symptoms of a reaction. Hives, I understand, but what else? There are times that she's been inexplicably flushed and really grouchy, and that has me wondering if that is some sort of reaction. Her asthma episodes have generally occurred shortly after she comes down with a cold. A week ago, she developed croup totally out of the blue (we'd been at the doctor's office eight hours earlier and he'd declared her healthy, after a previous pneumonia diagnosis -- her second since the first of the year). It was very severe -- we ended up in the ER via ambulance.
The past three weeks have not been dull around here. My head is swimming trying to get around all of this.

Posted on: Wed, 05/31/2006 - 12:34pm
Daisy's picture
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Joined: 01/16/2006 - 09:00

Hello Kelley,
Just bumped up the "Anaphylaxis Symptoms and Grading Chart" on the Main Discussion board.
Really spells it out. DH laminated a small copy for my purse. I have atypical reactions and some ER Docs appear to be moonlighting. Just backs up my symptoms when they say, "I've never heard of vomiting as a symptom of allergies."
UGGGH>???
Daisy

Posted on: Sun, 06/18/2006 - 12:56pm
Kelley's picture
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Joined: 05/31/2006 - 09:00

Thanks Daisy, I saw that chart...and I appreciate you resurecting it for me and the other new folks.
Lilly has her appointment with the allergist tomorrow. Brendan goes on Tuesday. I have a list of questions....and just a few raw nerves over it all.

Posted on: Wed, 05/10/2006 - 2:35am
Daisy's picture
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Joined: 01/16/2006 - 09:00

Hello and welcome! Sorry to hear about your ER visits. This can be really scary until you get it under control. There are several of us adults here with shellfish allergy, and many more with nut allergies.
The ICap is the latest instrument for doing RAST bloodwork. This will give your allergist an idea of what to look for...sounds like he's starting with the 2 most prevalent types of allergy first.
Do you have an Epipen? Do you carry Benadryl? And of course, your inhaler? Keep these with you at all times.
Always read food labels. After you have a more certain food diagnosis, you will be more comfortable eating out, but for now be very careful. Stay completely away from seafood restaurants; even if you don't get the seafood...too much cross-contamination risk. Stay away from desserts and icecream when eating out...too much nut risk.
Good luck, and keep posting on your progress. I'm waiting on a peanut RAST result myself, now.
Daisy

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