Have things changed?

Posted on: Mon, 08/19/2002 - 11:23pm
river's picture
Joined: 07/15/1999 - 09:00

pI've noticed that over the last few months FAAN is no longer going around saying, "Don't ban peanuts in schools", every chance they get. Also the peanut butter companies have softened their approach and are no longer making big bold statements. Even Skippy peanut butter changed the information on their site. /p
pAre people finally getting smart and realizing that peanut allergies are real, increasing and serious especially for children and also if children are having reactions, (perhaps fatal), at school, it's not going to do much for the general sale of peanuts anyway?/p
pExcept for the odd big mouthed media personality in the US, I've not heard any comments about denying the safety of PA children at school. /p
pWhat do ya think? Could we really be evolving?/p

Posted on: Tue, 08/20/2002 - 1:28am
Gail W's picture
Joined: 12/06/2001 - 09:00

Interesting observation. My dd is very contact sensitive and I've always felt a little betrayed by FAAN because they've positioned themselves as "the" spokes organization for food allergies yet don't represent our needs very well re: school issues. I love their school materials, but I just feel they fall short supporting the needs of contact-sensitive children who experienced reactions at school. I've even called and written on this topic and never even receive a response ((FYI, we have a "partial ban" where no food is allowed in our dd's classroom. Food is only allowed in the cafeteria.)
Perhaps their strategy has been to slowly gain strength and alliances to establish their credibility? I hope your observation is true, river, and that they are positioning themselves to take stronger, less popular stances. Lord knows we all need that.

Posted on: Tue, 08/20/2002 - 3:21pm
Anonymous's picture
Anonymous (not verified)

river, this has really given me something to think about. I never check out the pb websites so I would never have been aware of any change in how they're advertising or portraying themselves.
As far as FAAN, well, you know that I was so ticked off with them that I don't really have much to do with them except, as Gail W. posted, for their EXCELLENT school information - I'm mostly interested in the BE A PAL Program. I should explain. I was ticked off because FAAN doesn't promote peanut free classrooms and I think Gail W.'s post confirmed that I am still correct in what I had heard at the time. I started a thread here and had he** to pay for it, so I shouldn't even go there.....
However, if YOU'VE noticed a lightening up of things, I'm wondering if it could be true.
Look at how Nestle Canada has basically parlayed (spelling?) their peanut/nut-free line of products into a super positive thing for back-to-school (see my thread under Manufacturers). What they're actually saying in their ad is enlightening for other non-PA parents/people. I think certainly that Nestle Canada, who less than 18 months ago were thinking of discontinuing their line of "safe" products has certainly evolved.
Perhaps other manufacturers will as well. I don't see how it can harm their business. Not if they look at the actual numbers involved. Think about you and your family and then extended family and friends who all choose not to buy peanut products or at least when your PA child is around (the extended ones). That's a heckuva lot of people for some of us (not me [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ) You see my point.
How did this evolution occur?
Do you think it might have something to do with us being heard? How we've taken on manufacturers, actually had them post here on this website in answer to our concerns? Written them en masse when we've been troubled by what they're doing?
I also think, of course, it has to do with the growing numbers of PA people and allergy awareness.
Yes, I believe there is some evolution going on. Hopefully it will continue.
Great thinking question! I LOVE it!
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Sun, 03/04/2007 - 9:10pm
BS312's picture
Joined: 09/05/2001 - 09:00

The only thing that has changed in our food allergic reaction plan over the past five years is that we went from the Epipen Junior to the Epipen. We still see the allergist yearly for a blood test to see how the RAST levels are, because lowering of the levels could indicate that it is time for a challenge (dairy or egg challenge...not expecting to outgrow peanut or tree nut).

Posted on: Sun, 03/04/2007 - 11:13pm
saknjmom's picture
Joined: 04/02/2003 - 09:00

I have wondered the same thing after seeing people post their directions from doctors, especially newer members.
The two things I have taken note of that have not been discussed with me by the doctor that I will adhere to are positioning during ana. and giving the epi pen pretty quickly after reaction starts. If in doubt, EPI...
I am surprised that benadryl is left out of many people's protocol lately?
I don't see the allergist all that much anymore because DS's asthma and allergies are in a good controlled state. He still gets allergy shots, but we see the nurse for that. I'm going to take him in for a check up soon and ask for a review of emergency procedures.
I am also going to request a new RAST for peanuts. I will probably have to wait until summer for the rast unless we can do it soon, allergy season is kicking in!

Posted on: Sun, 03/04/2007 - 11:21pm
Anonymous's picture
Anonymous (not verified)

Quote:What is Alevert and Singular and should I have these?
I think these are asthma meds. Possibly the posts you have been reading are parents of kids with food allergies and asthma.

Posted on: Mon, 03/05/2007 - 12:01am
chanda4's picture
Joined: 12/14/2006 - 09:00

Always check with your doctor. I know it's hard not to wonder if your child needs the meds some here have...but your doctor knows best. The 2 meds listed help asthmatics that are triggered by allergies, so they wouldn't help food allergies(if that's all your child deals with). But it is worth checking with your doc. I always touch base with our allergist once a year just to dicuss anything new etc...but if everything is fine, no new symptoms or reactions, the game plan usually stays the same.
My view on Bendryl, I still use it, very often. It's a personal decision(best discussed with your doc) but I always give Bendryl during an reaction. Unless it is VERY obvious I am dealing with something very serious. But if Jake's eyes, nose are itchy, runny, I give it first. If just hives have developed, I give it first. I think it is Careful Mom, I use that chart to determine when to use epipen.
If his breathing is effective, I will give the epi, but if symptoms are developing I will give Bendryl until 2 of the body systems are effected. Each reaction is so different(for us anyways) so it's really a case by case decision. My son has had at least 15+ reactions(some very minor and some borderline Epi) I've always used Benedryl and always gotten it under control. So I do think it is an important factor in each situation.
What's helped me on this board is to not rely on just Bendryl(like I had been doing) it is important to administer that Epi if his reactions are involving more then one body system.
Anyways, this was a bit long...good luck, if you child is doing fine, controllign reactions(or not having any) I think you are doing things perfect, so try not to stress and worry about what you *should* be doing...it sounds like you are doing great! One thing to discuss...if your reaction plan isn't clear to you, if you don't know when to use Benedrl, when to use the Epip...then I think that warrents a follow up with the allergist. You need ot be clear in your decisions and clear on when to use what. Good luck!!!
Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)
[This message has been edited by chanda4 (edited March 05, 2007).]

Posted on: Mon, 03/05/2007 - 12:01am
bethc's picture
Joined: 04/18/2005 - 09:00

We go to the allergist frequently, and I have never heard of using Alavert or Singulair for a reaction. Alavert is an allergy medicine like Claritin; it's loratadine. Singulair is for allergies and asthma. My DD takes it daily as a maintenance med for asthma. They advertise it as a prescription allergy med now, too; it works in a different way than antihistamines. I don't get the impression that either of these is a fast-acting medication. I know from experience and from talking to the Dr. that Claritin is not quick to stop an allergic reaction of any kind (cat or dust exposure in my case); it works best when taken daily. I really think that's how Singulair works, too, but I have no medical training. I don't think it's a question of what the up-to-date treatment is. It's more about what your Dr. says is the right treatment for you or your child. Benadryl is fast-acting, especially in liquid form.

Posted on: Mon, 03/05/2007 - 1:07am
Carefulmom's picture
Joined: 01/03/2002 - 09:00

Dd`s allergist has us using Zyrtec instead of Bendadryl. He says it works faster. However, Zyrtec is not a replacement for epi or to be used as a "wait and see". It is to be used after Epi. Alavert is also an antihistamine and is not an asthma med any more than any other antihistamine. Singular is an interesting thought, since it blocks part of the allergic mechanism.

Posted on: Mon, 03/05/2007 - 1:21am
brown1442's picture
Joined: 06/20/2006 - 09:00

Our allergist recommends Zyrtec over Benedryl for exposures. He said it works better and lasts longer. He said give Zyrtec for ANY suspected exposure and Epi for ANY signs of systemic reaction (anything more than just rash... vomiting, coughing, drooling, trouble breathing... anything like that).

Posted on: Mon, 03/05/2007 - 1:28am
Corvallis Mom's picture
Joined: 05/22/2001 - 09:00

Singulair is a luekotriene inhibitor. It stops the allergic cascade at a different molecular "target" than antihistamines.
Even though it isn't terribly effective all on its own, it [i]does[/i] work well for some people who can't control things very well with only antihistamines. It works very well for some people on asthma symptoms-- presumably because allergic asthma has leukotrienes as a key player in the cascade.
I suspect that Alavert (loratidine) is encouraged because, like Benadryl, it is OTC, and like diphenhydramine, it is available in rapidly dissolving strips and tablets (no measuring, no water), but [i]unlike[/i] diphenhydramine, it doesn't make you drowsy. (Being a second generation antihistamine, it doesn't target both H1 and H2 receptors as diphenhydramine does.)
FWIW, I still think that the fastest antihistamine is liquid diphenhydramine. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] But Zyrtec is superb for skin symptoms.
ETA: it may also be that Zyrtec is preferred over diphenhydramine because it has a slightly broader dosing window... because of its selectivity, it doesn't cause CNS depression. (Which of course, is a dangerous side-effect of overdosage with diphenhydramine.) It definitely lasts longer-- in very little kids, though, it isn't even close to 24 hr. More like 8-12 until they are around 5yo. FYI. I dislike the variable rate of metabolism, however, because when to redose and "loading" both become problems when you have to piggyback doses of it. That's why (pharmacologically) [i]I[/i] prefer diphenhydramine-- it has a very predictable time-course, even in most little kids.
[This message has been edited by Corvallis Mom (edited March 05, 2007).]

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