Has Your Child Ever Heard From Another Child That Their PA Was Less Severe?

Posted on: Wed, 09/08/2004 - 3:00pm
Anonymous's picture
Anonymous (not verified)

Stemming from a comment Jesse heard while eating at the "peanut free" table yesterday at school (first day of school). Another PA child told Jesse that he (the child) couldn't die from his PA.

I asked Jesse to-day if all of the PA children at the table wore Epi-belts and he said no.

I have always been honest and open with Jesse about the severity of his allergy and I certainly don't want him to begin preaching to other children, who believe otherwise, that yes, there is the possibility that they *could* DIE from their PA.

But what must my guy feel?

Should I explore it more with him in conversation or just leave it be?

Has this happened to anyone else (age appropriate of course)?

Many thanks and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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Posted on: Wed, 09/08/2004 - 3:25pm
California Mom's picture
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Joined: 07/14/2000 - 09:00

I seem to think that this has happened to Leah. Strangely enough, I can't even remember when or where.
I do remember that I felt very uncomfortable about it. I am pretty sure that I told her that one never knows how severe a reaction could be and that is why we always need to be prepared.
My niece, who is pa and the same age as my dd, is allowed to eat baked goods that we don't allow our dd to eat. This has been hard for my dd to understand. In this case I do think part of it is that my dd is also tna while her cousin is not.
It must be hard for our kids when they encounter this. Heck, it's been hard enough for many of us, as adults, to encounter adults who don't take their children's pa as "seriously" as we may feel they should.
Miriam

Posted on: Thu, 09/09/2004 - 3:44am
Anonymous's picture
Anonymous (not verified)

One of my son's friends has multiple food allergies, but has never had life threatening reactions.
He is not allowed to eat peanuts, but he can eat trace amounts. (Not possible to avoid trace amounts of all of his allergens and peanuts haven't caused serious reactions in him.)
Anyway, what was said last year to my son (by this other boy) is that he is out-growing some of his allergies. Maybe you will too.
I've spoken to this boys mother about it, and apparently there are many foods he reacts less severely to, and some he doesn't react at all any more. He is going to be retested, but, yes, it does appear he might be outgrowing some of his allergies.
DS didn't seem to take it to heart though. He said he wouldn't outgrow his, because his mom's got them to. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] Different logic then mine, but, we both think he's not going to outgrow it.
*********
As for Jesse, well, he remembers having an ana. reaction doesn't he? I'd suggest explaining that not everyone has such severe reactions. I wouldn't stress about the fact that they *could* and they *should be prepared*. All that would do is either stress him out worrying about his friends, or maybe get him preaching at his friends.

Posted on: Thu, 09/09/2004 - 6:16am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

Quote:Originally posted by AnnaMarie:
DS didn't seem to take it to heart though. He said he wouldn't outgrow his, because his mom's got them to. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] [/B]
And thats what we will tell Caitlin at some point in the future.
Jason

Posted on: Mon, 09/13/2004 - 3:41pm
ElleMo's picture
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Joined: 06/19/2003 - 09:00

This hasn't happened to us yet because Jessy is only 3.
But I have had moms tell ME that their kids allergies are not too bad ("all he does is throw up.") So since they believe what they want to believe, I talk about Jessy's allergies as the "severe type" -- it doesn't put the person on the defensive in terms of defending her child's diagnosis but gives credibility & conviction to mine. No one is going to admit that her belief is wrong, that her child may have a more serious illness than she wants to admit, but she can allow herself to believe that her kids are different than my child & my child is the unlucky one with the severe allergy.
I plan to talk to Jessy about this one day & phrase it in the same way; I don't want her telling kids that their mom is wrong or anything like that.
I would say something like "Jane's mom says that Jane won't have a severe reaction; but your allergy is more severe than Jane's. You could have a very severe reaction if you eat unsafe foods. You may end up in the hospital or worse. So you have to listen to me about what you can & can't eat. You cannot do what jane does, because she may eat something that might not make her sick but could make you sick."
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Ellen
Allergic to Shellfish/ Mom to Jesse 9/01 who has PA

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