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Posted on: Tue, 06/27/2000 - 2:00pm
Anonymous's picture
Anonymous (not verified)

pStacey, you brought up a very good point. At what point are you supposed to administer the epipen? I'm sure that it is posted elsewhere here. We'll both have to check for it I guess. I would think though that a completely swollen face would mean giving a shot of the epipen only because I think that means the throat would be swelling too. My son has had 3 reactions and the epipen 2x. The 2nd reaction (his first epipen), his eyes were swelling shut and his lips were blue and swollen. He was also turning red in the facial area. I can't remember him having breathing difficulties start yet, etc., but I called the medical centre right next door to me and they told me to bring him in right away and they administered the epipen (I told them that I had one). I think with really severe swelling, it would progress to the throat maybe, and then you're running into difficulties that benadryl couldn't solve. Do you know what I mean? But again, I'm not clear. My son has been reaction free for 1 year and 3 months now, so I don't even know what I would look for the next time before giving him the shot. He was in full anaphylactic shock the last time - vomiting, coughing, not able to breathe, swollen up, turning red, etc. so it was pretty obvious he needed the shot. And, from experience, I now know that the epipen is only enough to hold the child over until the ambulance gets there. In fact, there is a 2nd one at Jesse's school to be administered if the ambulance has not arrived in 20 minutes. I learned this the hard way. We were not told by the doctor (nor did we ask, so he's not totally to blame, but I simply assumed). We administered the epipen during the 3rd reaction described above, only to have him start to "go" 20 minutes later. We then rushed him to hospital. Because of my error, I am very lucky that my son is alive to-day. The epipen just tides you over 'til you get to the hospital./p

Posted on: Tue, 06/27/2000 - 10:22pm
staceygoad's picture
Joined: 06/13/2000 - 09:00

pI would definitely go to the allergist without the GP referral. I think it's a must. The allergist probably won't test before 6 mos. but if there's an allergy there you need to be sure in case there something else there that you're not aware of. I'll tell you from reading all the messages everyone's posted, I'm very fortunate that Tyler hasn't had the type of reactions YET that you have all experienced with your children. Thank God we haven't had to use the Epi yet. My doctor was quite shocked as well. He said he's never had a patient that was able to avoid a reaction like we have./p

Posted on: Wed, 06/28/2000 - 1:59am
TDJEVA's picture
Joined: 06/20/2000 - 09:00

pI would go to the allergist without a referral!!! A PED doctor is good but An allergist that is his field! ( allergies)br /
My Epipen goes with me everywhere. I am getting ready to get a cell phone and beeper for his allergies and for my daughter ITP(blood disorder). I was told that In TN the cell phone and beeper can be written off on taxes for medical reasons.br /
But back to the other question. Since your daughter is 15 months old I would take her know. The test that they do at the allergist is not really that bad, I have had them done and so has my two children, only a little discomfort is what we all felt. And so to that I would go. Better now to find if she is allergic to other food or has seasonal allergies. good luck Tina [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]/p

Posted on: Wed, 06/28/2000 - 7:21am
latymom's picture
Joined: 05/21/2000 - 09:00

pRE: when to give epi vs Benadryl. I've asked this question a hundred times and apparently the majority of people say to use the epi-pen on site of ANY reaction. Because if you're waiting for difficulty breathing, at that point it might be too late. Also, I've been told that Benadryl masks the symptoms and therefore you might not be prepared for a full blown anaphalactic reaction. To be honest, I don't know what I'd do in this situation./p

Posted on: Wed, 06/28/2000 - 7:24am
PeanutKate's picture
Joined: 05/24/2000 - 09:00

pCindy, I think you probably do want to see an allergist. If the one who has been labelled by some as "the best" has a philosophy that is at odds with yours then try someone elso who might be the best for you. The Canadian Medical Directory, 2000 edition, lists the following as currently registered specialists in Clinical Immunology and Allergy closest to Stayner: in Ajax, Kenneth Butto, in Barrie, David Fischer; in Toronto, Karen Binkley, Douglas MacFadden, Gordon Sussman, Jamie Tepper and Peter Vadas; in North York, David Hummel and Elizabeth Weber. If you want more information on them then call your local library and ask them to read the listings for each of these doctors to you over the telephone. It is important for your child to have the services of a well-informed, currently registered allergist for today, tomorrow and the rest of the child's life. Hope this helps./p

Posted on: Wed, 06/28/2000 - 8:15am
KPOHAGAN's picture
Joined: 06/24/2000 - 09:00

pI have been told this week by my family doctor to give my son the epipen if his face is swelling and marked swelling of the lips,or hives in or arround the mouth.He was not keen that I wait until there were respiratory symptoms or collapse.I find that every Doctor differs./p
pThe school Medical Officer is contacting the Allergist about exactly when to use the Epi. and when the antihistime.She needs it exactly right for his careplan.br /
I was very interested in the second Epi. plan in school.My Allergist was also asked about this .I shall post you hopefully tomorrow about what they decide./p

Posted on: Wed, 06/28/2000 - 1:33pm
Vanessa's picture
Joined: 06/28/2000 - 09:00

pMy allergist said he didn't want to test my daughter(18 months at the time now 4 years old)because it would send her into shock. I had to use the epi pen for the first time lastnight, I would definetly go over you peds head though, you shouldn't need a referral, I didn't./p

Posted on: Thu, 06/29/2000 - 12:06am
Anonymous's picture
Anonymous (not verified)

pvanessa,br /
Why did you have to use the Epi last night? Can you tell us what happened?/p

Posted on: Thu, 06/29/2000 - 12:55am
nonuts4us's picture
Joined: 06/05/2000 - 09:00

pQuote:Originally posted by momof1:br /
I don't regret getting him tested then and am sort of debating having him retested.[/B]br /
I'm toying around with the same idea. There was an article in FAN newsletter, maybe a year or so ago, about studies done in Europe where children who were allergic to peanuts but had avoided any reactions for a period of several (I don't remember how many) years, were shown to outgrow their sensitivity when re-tested. I had a blood test done, but was in the midst of an insurance snafu, so my pediatrician read the results instead of the allergist. She said my daugher hadn't shown any appreciable change, but now I'm wondering what the means. Even if she tested FINE, it wouldn't change any precautions that we take, but it would make me rest just a little bit easier. Has your son had any reactions within recent years?/p

Posted on: Thu, 06/29/2000 - 2:36am
Anonymous's picture
Anonymous (not verified)

pPeanutKate, thank-you for the information you provided me with above. You have an excellent source of information. I really appreciate it. Also, re the benadryl vs epipen debate, when I asked the family doctor if I should supply the school with benadryl along with the 2 epipens, he said no. I'm not entirely clear but I believe it's because Jesse's allergy is so severe that the epipen is a must and then the hospital would deal with the administration of benadryl. What meds do others provide for their children at school? He also has his 2 asthma puffers (ventolin and flovent) and is to be given two puffs of ventolin after the epipen shot (touch wood, if ever). Vanessa, I'm also concerned about what happened that you had to use your epipen. I hope everything is okay./p



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