Got Epi today at ped office

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Our 15 mon old daughter was prescribed an Epi today for her peanut & fish allergy. Her ped is still not willing to send her to an allergist. Says that she's too young. The skin test can be innacurate. If it's a neg that's usually true, but you can get a lot of false pos and she doesn't want to put her thru that right now. Kind of frustrating not knowing what's around the corner. Guessing we're going to have to take her to an allergist w/o a referal.

Liz

On Jun 23, 2000

That's interesting--my son was diagnosed PA at 13mo (that's been 8 yrs now) and his doctor strongly encouraged me to take him to the allergist. I was a little resistant at first--wasn't sure that I wanted to put him through it. But I took him and it was not too traumatic (only a little) I think taking him when he was older would have been a lot worse--like taking him for his 5 yr shots was a lot harder than getting his shots when he was younger. I don't regret getting him tested then and am sort of debating having him retested.

On Jun 24, 2000

My daughter was diagnosed at 17 months and the skin prick test was not at all traumatic for her. Well, at least you've been prescribed the epi-pen.

On Jun 24, 2000

Your Doctor is wrong, you should definately have your child tested. It's not a big test. They put little drops of the allergen onto the skin and then prick the skin a little and wait 15 minutes and that's it, instant result and no more wondering. When I told Kasey's Dr. about the reaction she had made to peanut butter he said oh, yes she is in fact allergic and that she was too young to be tested - THATS IT!! He did not explain anything. It's only about a week later I saw something in a magazine and I called the Food Allergy Association about it and the girl talked to me for a long time and told me everything I needed to know and that's when she told me that her kid was first tested at 7 months old and that I should definately get the test. That's when I changed Dr. quickly and she referred me right away to an allergist. Sometimes I think we are more intelligent than some of the "Doctors" out there. Good Luck. Shirley

On Jun 24, 2000

My son has been shot three times with epi. this week.Going to an allergist is a must for your little one and they cannot be young enough.I had to push our Gp to refer my son who has multiple acute allergies.He didnt want to go over the Paediatrician's head.We never really got good advice until then.

On Jun 25, 2000

My son was 6 months old when he had his testing and everything he tested positive to then, he is still allergic to 6 years later. By the way, I never asked my doctor...I told him we were going.

On Jun 26, 2000

Hello Brimor/Liz,

I found out my son had a peanut allergy when he was about 6-7 months old. This coincided with his physical. Our pediatrician told us to book an appointment right away with an allergist. The allergist performed a skin prick test when J. O. was 11 months old. They put a drop of (peanut protein?) on his inner elbow and then pricked it with a needle. J.O didn't even flinch. They then checked his arm 15 minuts later to look for a welt/wheal and measured the diameter of it. That day the allergist prescribed two epi-pen jr.'s and we've been carrying them around ever since.

On Jun 26, 2000

I'm wondering if I'm doing another thing wrong here. My son has never seen an allergist re his PA or environmental allergies. I know that he is allergic to peanuts (3 reactions, each worse with less contact with peanut product, the last one, total anaphylactic shock and almost died) and I know that he suffers environmental allergies, i.e., dust, grass, pollen which I control with either Reactine or Claritin. Should I simply have him tested to see what other food allergies he may have (i.e., tree nuts?). It's just that the allergist who is considered the "best" in Toronto firmly believes in immunization therapy and I don't. I spoke with my family doctor re this and he thought that I shouldn't bother if I wasn't going to have Jesse have shots. What do you think? Is it important to know a # of how allergic, i.e., 4 out of whatever on a RAST test when I know that my son goes into anaphylactic shock if in contact with peanut products? Please anyone, let me know what you think? Brimor, regardless of your child not being tested yet, I am pleased that you were given the epipen. At least you didn't have to wait to see an allergist to get it. Neither did I.

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On Jun 26, 2000

My daughter had a rection to some peanut butter one day before her 12 month appointment. At the appointment, her pediatrician sent us to a lab to have a blood test done for numerous food allergies. The blood test is very simple, as they can do lots of tests with just one sample, very accurate regardless of age, and I didn't have to go to an allergist. Our pediatrician told us the results, what to do in case of a future reaction, put us in touch with FAN, etc. The younger the better, I think.

My BIL told me last weekend that he had skin tests done for lots of allergies when he was 12. It was so traumatic for him that he actually passed out! My DD, on the other hand, will have no memories of the testing.

Good luck!

Sarah

On Jun 26, 2000

After my son's first PA reaction which sent us to the ER his dr gave us the Epi Pen JR. Although she never told us when to use it. About a week or so after the PA incident I noticed hives on his legs, and I know he wasn't near a peanut. I called the doctor and she ran another blood test and came up with other foods that he is allergic to.

Kpohagan - you said that you used your Epi Pen 3 times this week. On another board topic you said for a swollen face.

When do you know when to use the pen, or just a little Benedryal will do? I thought you use the pen when breathing becomes labored or the kid is unconscience. I am also under the impression that use of the Epi Pen is just to hold the kid over long enough for the ambulance to get there? Am I overreacting to the potention situation?

On Jun 26, 2000

When you are preparing to send your PA child to school, I think it may be necessary to get the support of a good allergist.

On Jun 27, 2000

Stacey, you brought up a very good point. At what point are you supposed to administer the epipen? I'm sure that it is posted elsewhere here. We'll both have to check for it I guess. I would think though that a completely swollen face would mean giving a shot of the epipen only because I think that means the throat would be swelling too. My son has had 3 reactions and the epipen 2x. The 2nd reaction (his first epipen), his eyes were swelling shut and his lips were blue and swollen. He was also turning red in the facial area. I can't remember him having breathing difficulties start yet, etc., but I called the medical centre right next door to me and they told me to bring him in right away and they administered the epipen (I told them that I had one). I think with really severe swelling, it would progress to the throat maybe, and then you're running into difficulties that benadryl couldn't solve. Do you know what I mean? But again, I'm not clear. My son has been reaction free for 1 year and 3 months now, so I don't even know what I would look for the next time before giving him the shot. He was in full anaphylactic shock the last time - vomiting, coughing, not able to breathe, swollen up, turning red, etc. so it was pretty obvious he needed the shot. And, from experience, I now know that the epipen is only enough to hold the child over until the ambulance gets there. In fact, there is a 2nd one at Jesse's school to be administered if the ambulance has not arrived in 20 minutes. I learned this the hard way. We were not told by the doctor (nor did we ask, so he's not totally to blame, but I simply assumed). We administered the epipen during the 3rd reaction described above, only to have him start to "go" 20 minutes later. We then rushed him to hospital. Because of my error, I am very lucky that my son is alive to-day. The epipen just tides you over 'til you get to the hospital.

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On Jun 28, 2000

I would definitely go to the allergist without the GP referral. I think it's a must. The allergist probably won't test before 6 mos. but if there's an allergy there you need to be sure in case there something else there that you're not aware of. I'll tell you from reading all the messages everyone's posted, I'm very fortunate that Tyler hasn't had the type of reactions YET that you have all experienced with your children. Thank God we haven't had to use the Epi yet. My doctor was quite shocked as well. He said he's never had a patient that was able to avoid a reaction like we have.

On Jun 28, 2000

I would go to the allergist without a referral!!! A PED doctor is good but An allergist that is his field! ( allergies) My Epipen goes with me everywhere. I am getting ready to get a cell phone and beeper for his allergies and for my daughter ITP(blood disorder). I was told that In TN the cell phone and beeper can be written off on taxes for medical reasons. But back to the other question. Since your daughter is 15 months old I would take her know. The test that they do at the allergist is not really that bad, I have had them done and so has my two children, only a little discomfort is what we all felt. And so to that I would go. Better now to find if she is allergic to other food or has seasonal allergies. good luck Tina [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

On Jun 28, 2000

RE: when to give epi vs Benadryl. I've asked this question a hundred times and apparently the majority of people say to use the epi-pen on site of ANY reaction. Because if you're waiting for difficulty breathing, at that point it might be too late. Also, I've been told that Benadryl masks the symptoms and therefore you might not be prepared for a full blown anaphalactic reaction. To be honest, I don't know what I'd do in this situation.

On Jun 28, 2000

Cindy, I think you probably do want to see an allergist. If the one who has been labelled by some as "the best" has a philosophy that is at odds with yours then try someone elso who might be the best for you. The Canadian Medical Directory, 2000 edition, lists the following as currently registered specialists in Clinical Immunology and Allergy closest to Stayner: in Ajax, Kenneth Butto, in Barrie, David Fischer; in Toronto, Karen Binkley, Douglas MacFadden, Gordon Sussman, Jamie Tepper and Peter Vadas; in North York, David Hummel and Elizabeth Weber. If you want more information on them then call your local library and ask them to read the listings for each of these doctors to you over the telephone. It is important for your child to have the services of a well-informed, currently registered allergist for today, tomorrow and the rest of the child's life. Hope this helps.

On Jun 28, 2000

I have been told this week by my family doctor to give my son the epipen if his face is swelling and marked swelling of the lips,or hives in or arround the mouth.He was not keen that I wait until there were respiratory symptoms or collapse.I find that every Doctor differs.

The school Medical Officer is contacting the Allergist about exactly when to use the Epi. and when the antihistime.She needs it exactly right for his careplan. I was very interested in the second Epi. plan in school.My Allergist was also asked about this .I shall post you hopefully tomorrow about what they decide.

On Jun 28, 2000

My allergist said he didn't want to test my daughter(18 months at the time now 4 years old)because it would send her into shock. I had to use the epi pen for the first time lastnight, I would definetly go over you peds head though, you shouldn't need a referral, I didn't.

On Jun 29, 2000

vanessa, Why did you have to use the Epi last night? Can you tell us what happened?

On Jun 29, 2000

Quote:

Originally posted by momof1: I don't regret getting him tested then and am sort of debating having him retested.[/B]

I'm toying around with the same idea. There was an article in FAN newsletter, maybe a year or so ago, about studies done in Europe where children who were allergic to peanuts but had avoided any reactions for a period of several (I don't remember how many) years, were shown to outgrow their sensitivity when re-tested. I had a blood test done, but was in the midst of an insurance snafu, so my pediatrician read the results instead of the allergist. She said my daugher hadn't shown any appreciable change, but now I'm wondering what the means. Even if she tested FINE, it wouldn't change any precautions that we take, but it would make me rest just a little bit easier. Has your son had any reactions within recent years?

On Jun 29, 2000

PeanutKate, thank-you for the information you provided me with above. You have an excellent source of information. I really appreciate it. Also, re the benadryl vs epipen debate, when I asked the family doctor if I should supply the school with benadryl along with the 2 epipens, he said no. I'm not entirely clear but I believe it's because Jesse's allergy is so severe that the epipen is a must and then the hospital would deal with the administration of benadryl. What meds do others provide for their children at school? He also has his 2 asthma puffers (ventolin and flovent) and is to be given two puffs of ventolin after the epipen shot (touch wood, if ever). Vanessa, I'm also concerned about what happened that you had to use your epipen. I hope everything is okay.

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On Jun 30, 2000

From what I understand, the RAST test is the most accurate for diagnosing peanut and other food anaphylactic allergies. Blood is drawn for this test rather than using the pin-prick method. For us, drawing the blood was so much quicker and less traumatic than the prick test, but everyone had different experiences.

If you do consider allergy testing, ask the doctor's office to describe the WHOLE procedure. We were told about the initial prick test, but no one ever mentioned the individual injections that we had to go back for regarding the allergens for which the prick test was negative. These were the worst.

Good luck, whatever you decide to do.

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