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Posted on: Tue, 08/29/2006 - 7:11am
anonymous's picture
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Joined: 05/28/2009 - 16:42

I agree with Corvallis mom. At first I wondering whether we had a troll, or this was just someone who is, for want of a better phrase, ill-informed. I used to have a neighbor who said her son was PA, but let him eat all kinds of "may contains" including plain M&Ms. He did just fine. I don't know how she knew about his allergy (reaction? test?), but I would guess that either he was very lucky so far, or he wasn't really allergic. But I think that BASP may have a child like that. And she either thinks her child is typical of PA children, or perhaps is afraid to find out it is more serious than she wants to know. If BASP is truly not a troll, I hope she sticks around awhile and learns from the many voices of experience here.

Posted on: Tue, 08/29/2006 - 7:24am
Gail W's picture
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Joined: 12/06/2001 - 09:00

Quote:Originally posted by Jimmy's mom:
[b]. . . I hope she sticks around awhile and learns from the many voices of experience here.[/b]
ditto here. I hope you stay around, BASP. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 08/29/2006 - 7:55am
TeddyAlly's picture
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Joined: 11/29/2005 - 09:00

BASP, all I have to say is I hope you realize these school procedures are in place now and WILL protect your nut allergic child when she is in school...if I were you, I would applaude your school rather than taking offense. They are helping SAVE the lives of children that attend that school, and the child they save next year might be your own!!! My daughter's nut allergies are LIFE-THREATENING and I take it Very seriously and I would take it just as serious if it were someone else's child and not my own at her school. I am very thankful that the parents of the kids in my daughter's class are very understanding and helpful with her serious allergies; not one has complained of the snack list, in fact a few have brought snacks from the list in for the whole class to keep in the classroom should a child bring a non-safe snack. I hope one day you are just as appreciative of others that help keep our children safe as we are.

Posted on: Tue, 08/29/2006 - 11:25am
ants mom's picture
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Joined: 01/23/2003 - 09:00

I think that you may be giving BASP a hard time. I have a 7 yo severely PA son, who a the young age of 4 was very capable of telling people about his allergy. He knew what he could and couldn't eat, he knew how to look for peanut words on the label, and he would ask adults to read the label. It is true that any accidents could happen, but unfortunately, our children do have to learn to live in a peanut laden world. I (in the case of my son) believe that I can't always provide a safe environment (outside of our home of course). He needs to learn to be extremely vigilant and "be afraid" of everything he puts in his mouth. This may mean to clean his table area prior to eating, or clean his seats and tables on an airplane, and even clean the seats around him at a baseball game (yes, I have taken him to MLB games...not comfortable with it, but I do take him). I believe this is the best lesson I can teach him. Yes, my son has had a severe contact reaction, and has tested in the very high ranges. I can't keep in him a bubble (though I would love to) and I can't treat him much differently than my other non allergic children. I believe that my son accepts his allergies for what they are and understands what can happen to him if an accident occurs. It's scary, it stinks, but it is reality.
I really didn't see anything wrong with what BSAP initially asked that required many of you to jump all over her!

Posted on: Tue, 08/29/2006 - 1:24pm
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

What was offensive?
1. Implying that measures taken to protect OTHER students at her older (non-PA) child's school were totally out of line. (Backed by her claim that she has a PA 4 yo and sees no reason to limit food in the school in [i]her own[/i] experience...)
2. Her irritation at ADA accommodation for... anything??
3. The notion that she must somehow be privy to these childrens' medical records so that she can "see for herself" that they "really need" these measures in place.
The last one in particular strikes me as deeply offensive-- doubly so if it comes from another PA parent.
Nobody questioned her comfort zone. What was questioned was her perspective and understanding of the school's obligation to all of its students. In addition, some things that she said (or didn't) told me that she may well be one of the unfortunate people who is told NOTHING about PA by a physician giving the diagnosis.
I don't think anyone "jumped all over" BASP. (Other than those who may have erroneously identified her as a troll... experience tells me she's not.)

Posted on: Tue, 08/29/2006 - 2:30pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

You say cake walks have been around forever, well, I believe at one time there was corporal punishment in school as well, times change.
I agree the focus should be on education in schools, there could be a lot of time saved by eliminating a lot of the birthday and holiday stuff in the school. What's so wrong with a couple parties per year? Perhaps with the focus on activities instead of food so everyone is included? Trust me, I wish my son's one month in public school had had the focus on education, instead everyday focused on food, what could they play with, how many unsafe birthday treats could they sneak in? My personal favorite was the crushed nut table they felt fit to display, my son didn't touch, but left school with red streaks on his face because people contaminated the entire environment. Did I mention that his lung function dropped to 68% of his norm in only one month of school? Are you going to tell me to homeschool? Then tell me why I should have to pay school taxes? I haven't gotten any refunds yet. Why are schools supposed to acccomodate these kids? Because the law says they must go to school, they're entitled to it. Unfortuately, I believe they will eventually kill my kid.
I really love view points like yours, you say the focus of the educators should be on education, yet your argument is for cupcakes, not extra teachers.
At our school, the kids in the area are SO POOR, all the parents can afford is peanut butter. Yet these same parents drop 20-25 bucks for the fanciest cupcakes for their kids to bring to school. Inconsistent wouldn't you say? Then all the treats for the back to school party, halloween party, thanksgiving party, christmas party, New Year party, Valentines party, St Patrick's day party, Easter/ Spring party, Memorial Day Party, end of school summer party, I think that's about one a month. Not counting B-day parties (at least two per month) and class parties of pizza and candy for being good.
I'm very glad your 4 yo is so good about her allergies, my son is too. He knew not to take food from anyone, in fact he was the only one allowed to open his snack bin, it made no difference because his entire environment was covered in residue. All he had to do is touch his eyes or nose because they itched from all the stuff in the environment, and boom- sick kid. I tried to keep him breathing, before school he had his antihistamine, we added an asthma med, he took two different nebulizer medicines (one was a steroid) and a steroid nose spray. No less than two hours later the school nurse was giving him his rescue inhaler. Load a 40 lb child with that much medicine, that still can't breathe, and then have the teacher tell you it's sheer defiance that keeps him from focusing on school work. Struggling to live will do that to a child.
Virtually the same routine before bed for medicines. Despite the plan of care the school wrote themselves and agreed to follow, they didn't bother. The best part is, there is noone to hold them accountable, the state pushes it on federal, the federal pushes it on state. But they sure didn't forget to collect their school taxes this year.
So forgive me if I seem less than moved by your canceled cake event. I'm more worried about how to pay for all the extra curriculars my child will miss because he can't go to school. We're not wealthy, despite that ever prevalant myth that allergic children are only born to the independently wealthy.

Posted on: Tue, 08/29/2006 - 2:45pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

I just don't understand why so much thought goes in to what we can't feed our kids at school. They are there for lunch--the parents have them for every other meal and treat and birthday party, etc... Are we sending our kids to culinary school or elementary school? Why is food associated with "reward" for every time something has to be recognized at school? I believe we all put too much emphasis on how many cupcakes we Can or Can't make. School is about the learning, and I personally don't want my children taught in a pavlovian manner. I am just as guilty as anyone else about making sure that my PA & TNA kids had special treats. I never wanted to make them feel left out, and I just always felt so sorry for them.
I happened to be the Fall Festival Chair(one and only) for the last two years. Including homeroom mom for 2 classes. Big Big carnival-cake walk and all. What does two hallways have to do with ANYTHING! They are just 2 hallways. Unbelievable to me after reading all of these replies. Corvallis mom is right on in my opinion. I think this person hasn't been educated and hasn't experienced an up close and personal view of an anaphylatic attack, happening to your child. Changes everything!!
And, I don't believe anyone was giving anyone a hard time, except for the one who started this post. She got very snitty half way through. Point is is that I am trying to change my children's view of foods. Foods are for nurishment-not for reward. And especially not an every week event in the classroom. This way of thinking is hard to get across,(especially when I want my deep fried cheese puffs! ha ha) but very necessary and our school is giving different kinds of rewards all the time. Not just because of the food allergies, but because of healthy reasons.
------------------
Stacie - Mother to:
10 yr. PA
8 yr. TNA
2.5 yr. PA&TNA

Posted on: Tue, 08/29/2006 - 3:06pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Sorry, I think I just had a Jerry Springer moment. Didn't mean to get all-all-evil! I just get frustrated like everyone else. Every FA child is different and every child with any disability is different. It is just not in my realm of understanding to not make every effort possible(especially if life or death) to make the school system a safe environment for all. I would and have done anything necessary for the safety and enrichment of every child. To even complain for one second about how this or that is such a pain or stupid--I don't get it! I have 3 children-2 are in school system-who are very anaphylatic and I could not bring myself to complain. There are so many things out there that could me EVEN WORSE. I have dealt with this allergy for 10 years. I just still think that I was given all three of my kids for a reason. Every day does not have to ALL consuming with fear-just remember the routine, and if the situation feels uncomfortable, don't do it. ie: basketball and baseball games--NO WAY! They serve shelled peanuts there--way too frightening. My kids don't live in a complete bubble, but I still have control at their ages.
------------------
Stacie - Mother to:
10 yr. PA
8 yr. TNA
2.5 yr. PA&TNA

Posted on: Tue, 08/29/2006 - 9:19pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Just my 2 cents...
BASP, your child is 4 and knows what to eat and what not to eat...IN YOUR OWN HOME. That's a point that must be made because when they go to school, it is an entirely different ball game. There will be snacks, there will be parties, there will be people that will say, "Oh, this is okay. I don't "see" any peanuts." There will be substitute teachers that may not understand much about food allergies, ditto with bus drivers, support staff, etc.
Are you truly sure your 4-year old can handle all these pressures that go with being in school? You will not be with your child at school.
There is so much that can go wrong. Luckily we have a solid 504 that covers the entire school day. Little room for error or misunderstanding IMO. Very similar to the situation you describe with the school going "overboard".
Personally speaking, I would never send my child (at age 5) to school with the notion that he knows what he can and can't eat. That is too great a margin of error for a child with a severe, life-threatening food allergy. Ryan is now a soon-to-be 10-year old in 4th grade, and he is starting to make his own decisions regarding food, the snack program at school, and the lunchroom setup. He is ready to face these issues with my assistance. His growing maturity level means growing responsibility, and IMO his strong foundation in the early years has greatly benefited him.
[This message has been edited by ryan's mom (edited August 30, 2006).]

Posted on: Tue, 08/29/2006 - 10:50pm
BASP's picture
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Joined: 08/29/2006 - 09:00

I have to say I have learned a lot reading the posts that have come in over the last 24 hours both positive and negative. Let me start out by setting the record straight on a couple of things. I am not a "troll" as that'smetrying stated and I'm not a bored college student waiting for school to start as Lindajo said. I'm a real parent with a real 4 year old daughter that has a PA. She has had reactions in the past and has been tested. Thankfully she doesn't seem to have the allergy as severe as some of your children do but as I've also learned through these postings, that can change. I really appreciate the information and point of view I received from a few of you who like ants mom who were able to actually answer the questions and provide information rather then attacking someone who, god-forbid might have a different opinion then some of you do. Most of you took off an a tangent assuming I was some sort of deviant that was only here to cause trouble because I don't agree with all of you. After all, how could someone NOT agree with us? The militant attitude I experienced from a portion of this group is exactly the same attitude I see from other parents of PA children in our own school. I can tell you that isn't helping your cause at all. The few of you who stated that you feel I'm being neglectful and endangering my own daughter based on a few lines on a posting board are just plain idiots. That's beyond insulating to state something like that based on what little information you have.
There is a common groud to be attained here as a few of you seem to have found in your own schools. I'm trying to find that in mine as well. Maqbe we're already there and I don't realize it. Remember what my initial question was. I was trying to compare what my school was doing to what other schools are doing. Most of you took it as an attack on PA children everywhere. Those who did that should be ashamed of yourselves. If you truely want this to be an information sharing site, try answering the questions posted rather then attacking the individual asking the questions. For the few of you who took the time to answer my questions and give your own feelings, I thank you very much for the information.

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