Going to Hospital for the 1st time...help

Posted on: Sat, 02/02/2008 - 1:56am
Ivycosmo's picture
Offline
Joined: 09/18/2007 - 09:00

We live in a very small community. In the 9 years we have been dealing with my sons PA/TNA, all of the info. I have has been from research I have done myself. Our PCP treats it DEfensively rather then OFFensively.
Finally we have an appointment for Monday at the Childrens hospital in Boston in the allergy dept. I have no idea of what I am supposed to say/ask/look for/do.
Any suggestions are very welcome. Thank you!!

Posted on: Sat, 02/02/2008 - 5:05am
Mrsdocrse's picture
Offline
Joined: 01/16/2007 - 09:00

Good Luck witht he Appointment. Let me know how it goes: I am in MA too. Did you make the appointment on your own or where you referred there? Not have you been to a local allergist?
My Ds sees his allergist a couple of times a year.
Therese

Posted on: Sat, 02/02/2008 - 5:45am
Ivycosmo's picture
Offline
Joined: 09/18/2007 - 09:00

HI,
Thank you. My son was referred by his PCP because I suggested it.
He saw an allergist a couple of times, but he was selling Reeses PB Cups in his office, so we never went back!!
I will let you know how it goes. Where are you in MA?
Jenn

Posted on: Sat, 02/02/2008 - 5:56am
gretchen098's picture
Offline
Joined: 02/02/2008 - 12:49

Hi
we also live in a small community near boston. my daughter is 15 and we go to childrens allergy clinic once a month, for her allergies, they are very helpful.
-gretchen
dd 15- pa,tna,ea,da,shellfish,soy allergy,wheat, strawberries, sesame,sunflower,poppy, garlic,peppers,lemon,grapes,melon,

Posted on: Sun, 02/03/2008 - 2:05am
Mrsdocrse's picture
Offline
Joined: 01/16/2007 - 09:00

Reese's PC cups? in the Office!!!! are you kidding? That is kind of laughable... (in a sad way). My allergist has a sign posted in his office " no food or drinks" please refrain from wearing purfume to the office as well.
I am in Salem
Therese

Posted on: Sun, 02/03/2008 - 5:02am
Ivycosmo's picture
Offline
Joined: 09/18/2007 - 09:00

We are on the Cape.
Yes, PB Cups in the office!! I said "I have a bone to pick with you...." and he said "I know, I know. It's for my daughters dance class!"
And, when he first diagnosed our son (who was less than a year old), he just showed us a movie and sent us on our way. My PCP asked if he showed me how to use the Epipen. I asked what that was. She was shocked and sent us back to him to get one. He gave us an Epipen b/c I told him our PCP said we needed it. He gave us an ADULT strength one. Months later at a well child visit, she again asked about the Epi. When I showed her, she freaked and said if we had used it on him, he would have had a heart attack. We never went back to that allergist!
Not many to choose from on the Cape unfortunately. Do you like yours?

Posted on: Sun, 02/03/2008 - 6:59am
gretchen098's picture
Offline
Joined: 02/02/2008 - 12:49

hi
we are also on the cape and use to see a doctot lowe who was awful. he too never showed us how to use an epipen,he just handed it to us and sent us on our way. we love our tema of doctors at childrens.i hope that they help you and your son out.

Posted on: Tue, 02/05/2008 - 5:06am
Ivycosmo's picture
Offline
Joined: 09/18/2007 - 09:00

Well, maybe you can give me their names? We had an awful visit yesterday at MGH. The allergist said I have probably done [i]more[/i] damage to him than his PA by being "over protective". (Meaning: him wearing a medic alert bracelet, having a peanut free classroom, etc.) I felt like the worlds worst mother when I left!
He said PA/TNA mothers over react, that we should stop ostracizing them and let them live normal lives, not "point out the obvious".
I am at my wits end. I am starting to [i]feel[/i] crazy!

Posted on: Tue, 02/05/2008 - 5:49am
SkyMom's picture
Offline
Joined: 10/27/2001 - 09:00

Sorry to hear about your awful experience. I can think of alot of things I would say to that dr. I'll tell you. No one has the right to make any mother feel like that. It just goes to show how any professional can be seriously misguided. What you are doing is being proactive not over-reactive. Please don't feel crazy, it is not your sanity that I would be concerned about. Please know that you are doing what many feel is best for your son and we are the people who live with it on a daily basis with our most precious gifts.

Posted on: Tue, 02/05/2008 - 7:17am
gretchen098's picture
Offline
Joined: 02/02/2008 - 12:49

hi
i am so sorry to hear that they were not helpful for you and it sounded like they were rude. our dr name is dr phintanpkul, and dr butte and then there are some student dr that she sees when she is admitted. dd never wore a medic alert braclet when she first developed these allergies (she had one for a heart murmer when she was younger, but stopped wearing it) but her team insisted that she wear one for her allergies, maybe because she is also allergic to bendryll? it would see strange to me that a doctor would not want your son to wear one, i would have asked him/her why, and how it is safer to not wear one. if it helps i would definately keep him wearing his, ours saved dds life at a gymnastic meet, she was about to do her floor routine and passed out and they thought it was nerves until they saw the bracelet and gave her her epipen. well i am sorry that things did not work out for you
gretchen

Posted on: Tue, 02/05/2008 - 10:39pm
Ivycosmo's picture
Offline
Joined: 09/18/2007 - 09:00

Well thank you all so much for the responses. It is comforting to know that other parents feel the same as I do.
Re: the bracelet issue: the doctor said "I think its absolutely unnecessary for allergy kids to wear them. Are they gonna show up in an ER somewhere and [i]no one[/i] will know whats wrong with them? [i]Everybody [/i]knows what they have. Now, diabetics, yes, [i]they [/i]need a bracelet!" I just sat there slack jawed and stunned.
Then before we left, he said, I'm gonna put a sign on my door for allergy parents: "Be cautious, not crazy".
I am more and more angry every time I go over it in my head!!!!

Pages

Peanut Free Store

More Articles

Are you looking for peanut-free candies as a special treat for a child with...

Do you have a child with peanut allergies and an upcoming birthday? Perhaps you'd like to bake a...

Most nut butters provide all the same benefits: an easy sandwich spread, a great dip for veggies, a fun addition to a smoothie. But not...

Do you have a sweet tooth and more specifically a chocolate craving? Those with peanut allergies must...

You already know that if you or your child has a peanut allergy you need to avoid peanut butter. Some...