Glyconutritionals - Made a difference!

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My daughter was told she would never outgrow her peanut allergy. She had high reactions in her skin and blood. She has been taking glyconutritionals for four months and her latest blood test (Rast) was NEGATIVE!!!! If you are open to trying these supplements I can inform you about them. My niece had asthma since birth and she is asthma free after taking this supplement for four months also. Our doctor at U. of M. is amazed. He is reading up on glyconutritionals!

On Apr 8, 2005

argh this again??

On Apr 8, 2005

gw_mom, i'm confused by your response to her. it appears to be more than rude. did you mean it that way? has this topic been raised before? i can't seem to find anything when i do a search. curious about the topic...

On Apr 8, 2005

shoshana18 - this particular *magic cure* may not have been mentioned before - but I think gw_mom is using her remark in general terms.

People who have NEVER been to this board before suddenly come with a *cure*. Don't get your hopes up - OK. And if you decide to try this - take it to a REAL DOCTOR and get their opinion on whether or not there is any danger/risk. And don't trust that you or your child is *cured* until a doctor confirms it.

This person is offering to *inform* you about these supplements. If that information comes with a price-tag - think twice about sending money. If this person sells the supplements - ask yourself why it was not posted openly that they were selling things - why lie? (I'm not saying this person is selling anything - just if you decide to contact him/her, keep these things in mind.)

And also, remember that allergies are a problem in the immune system. If these supplements do not have FDA approval (as many of these magic cures don't) do you want to risk taking it? And make sure you get a good list of ingredients. Medicines (and supplements) have food ingredients in them - you don't want to take something that has your allergen in it.

On Apr 9, 2005

thanks, annamarie. at this point, my dd is 2 years old, and i wouldn't consider giving her supplements (other than her multi-vitamin) for anything. but it did pique my curiosity. appreciate your input.

On Apr 10, 2005

Anna Marie, what a wonderful explanation of why Gale posted the way she did.

shoshana18, I think these types of posts are meant, in particular, to target people such as yourself - those who haven't been dealing with PA for a long time, etc. and yes, have your interest piqued and your hope raised.

If you do a search of the boards for NAET posters or there was another "miracle cure" just posted about within the last six months, you'll see why some of us get upset with this.

Now, if a long time member (not a first time poster) came on the board and posted the same information - people may find it more credible, but the warnings that Anna Marie spoke about still are in place.

My children take an Omega supplement each day. I just started this within the last year. All it is is tuna oil. But I've made sure their family doctor knows they take it and any other doctor who needs to know knows what they take. Now, that has nothing to do with PA and I'm not even sure if it is helping with what I had wanted it to help with, but I figure, it's tuna oil, my children don't eat fish, so it can't hurt them.

But no, I don't expect to find a holistic cure for my son's PA (or even my environmental allergies). I was very wary the last time I was in the health food store to buy the tuna oil supplement because they do have capsules there for both environmental allergies and asthma. I'm simply not willing to go that route with my children.

Again, great explanation Anna Marie.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 11, 2005

Sorry, I guess I tend to assume everyone here has been here forever. lol.

On Apr 15, 2005

I completely understand your feelings. It took me 1 1/2 years of researching this topic before I gave these supplements to my daughter. It has really boosted her immune system. I don't care who you get them from of how I just wanted people to know our success and to keep learning about this topic. Check out some science behind it at Glyconutritionals.org. We are so excited to share this because we have been through years of anxiety with school, social situations etc. The body was meant to heal itself and now I really believe it.

On Apr 16, 2005

Well, now we have one of the gangsters from The Jazz Age (in America) as a member. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

Anyone, please, if you are interested in trying the product, please speak with your family physician, allergist, and pediatrician (yes, I mean ALL of them) to see what they think.

As I posted above, my kids take a tuna oil supplement. But man, it's just tuna oil so it can't hurt them. And I have checked even with the pharmacist to make sure that there was no way the inactive ingredients could interact with their asthma meds.

Also, as I forgot to post to dschultz as I do to each person who posts in this way - why have you not *hit* the Off Topic section of the board where there are a litany of physical complaints posted about? Certainly your *cure* would help some of us with the problems we're discussing in Off Topic, not solely PA, wouldn't it?

I have yet to see one of "these people" *hit* Off Topic with their "cure-all". Even the NAET posters.

Pardoning the pun, but I do truly believe they're a bunch of nutters. Otherwise, if it was a "cure-all" and I, myself, was selling it, I'd be hitting Off Topic and re-raising every thread re every single physical ailment discussed (and there are a LOT - I should know, I posted most of them [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] ) to promote the greatness of my product.

But no, they only target the PA part of the board. [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 16, 2005

You have offered to *inform* people about these supplements. So inform HERE.

Did you spend 1 1/2 years researching through their own web-site? Or are there other (legitimate and non-associated) places to research.

Does it have FDA approval?

On Apr 16, 2005

Glyconutritionals.org is a website set up by Mannatech...which is the Multi-Level-Marketing Company that sells these suppliments.

I am not saying that people should not look into alternate forms of medicine...but just be aware HOW an MLM rep at this company makes money: it is NOT by selling their products, the big money/bonuses is made from building the sales force (ie, talking others into becoming representatives).

Maybe its just me, but when a company makes it profits from adding "consultants" as opposed to selling their products...it speaks volumes.

When someone shows me who they are, I believe them.

Kelly

On Apr 16, 2005

kelly01, are you the member who very clearly explained this type of company to us before in another one of "these" threads?

I'm not against someone posting this. I just strongly urge someone to get medical advice if they're going to try the product.

And again, the thing I can't figure out is why only the PA section of the board is targeted. I mean, if the supplements *cure* PA, certainly they *might* cure other ailments as well? And yet those threads are never hit, just the PA section of the board. That's what I particularly don't care for.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 16, 2005

Cindy (we seem to be in the same threads this morning!):

I am not sure about how clear I have been (LOL) but yes, I have mentioned this before because I think it is a very important point.

As I stated, many MLM organizations (but I am not saying all) make money from bringing in new "consultants"... not from selling the product (anyone see the "water filter" episode of King of Queens? ). I poked around on some websites for Mannatech, and the ones I found about how to make money selling Glyconutritionals talked about "building" the sales force", NOT about selling the products.

I had a friend back in the 80s that got sucked into one of these (only in her 20s, didn't know better) and I just want folks to have their eyes wide open before diving in.

Kelly

On Apr 16, 2005

I just want to say, NAET is not the same as these pyramid sales schemes, and it is not a magic pill. Just in case anyone does not understand the references. I do know someone IRL, whose dd's milk allergy went away after one session of NAET. It is a physical treatment, I might compare it to accupressure, chiropractic, and other manual therapies, though it is not exactly any of those.

I have not tried it, and I may not, but was very convinced by the very conservative and level-headed friend who brought her dd to do it. It just so happens the person is rather far for me to drive, and I thought dd too young to feel comfortable with the treatment techniques. I also do not believe in magic cures, but do believe in the power of manual therapies to treat problems in the body.

Anyways, I am not promoting it in any way, but it is not bunk, either. It is not a magic cure, but does address balance in the body. With my background in PT and being strong in manual therapies, I do believe it could be helpful for some, if not a cure for PA, specifically.

And I am no hit and run poster here! becca

[This message has been edited by becca (edited April 16, 2005).]

On Apr 16, 2005

I didn't know that glyconutrients could help with food allergies. I have been giving them to my dd for severe asthma and GERDS. My son takes them becasue sickle cell weakens his immune system and the glyconutrients build it and help protect his spleen. That would be great if they help with his allergies too. My dd's asthma is quite mild now, and her GERDS is gone. I don't know exactly what role the supplements played, but what we are doing is working, so I don't plan to change it!

Glyconutrients are the essential sugars that comprise our cell walls and aid in cell to cell communication. They are a nutritional supplement that can help in many areas but they don't claim to cure everything. They work best as a component in a lifestyle of wellness.

On Apr 16, 2005

becca, you make a very good point, differentiating between these types of posters and NAET posters.

Quite a few summers ago when the NAET posters hit the boards hard, Chris had me do some research. I think he was trying to determine if they should be even allowed to post on the board, and, in the end, despite them perhaps being "out there" compared to traditional medicine, obviously, their posts are still allowed and acceptable.

Having said that, I still thought they were a bunch of nutters as well. Now, if my PA child wants to try NAET (or even these supplements) when they are an adult, that's up to them.

I actually do believe in alternative medicine, therapies, and supplements, etc. But not when it comes to my kids (except for the tuna oil).

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 16, 2005

And no, becca, you're certainly no "hit and run" poster! [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 17, 2005

Yes, Cindy, exactly why I have been hesitant to bring dd. It involves muscle testing and touching, from what I read, and this friend saw a male practitioner. I just felt weird bringing dd to him, unless she fully understood and was comfortable with it all. She is very timid being touched by strangers(a good trait).

I too read it here(in my lurking days) and found it controversial, at best. It was quite interesting to me to meet someone IRL who tried it. I had not seen them(they are closer to dh through a sports team he plays on), and they were guests at my home for a party. I was catching up with the mom, and we realized we shared food allergy issues in our children. She was very careful to "feel me out" before telling me about this NAET. She was afraid I would think she was "out there" and she is anything but out there. Very healthy, highly educated, but also very open-monded.

She made it sound very reasonable. In fact, it was only 1 treatment in her case, but not all cases. SHe went on a reference, so the person who does it is out of our area. Though, if you look, there are many around(at least in my area) and the website will tell you just how many courses they have studied, and their other credentials. Most are RNs, massage therapists, chiropractors and accupuncturists. Fairly mainstream professionals.

Just my research. But, as you said, I am a bit leery, just the same, until dd is old enough to understand why we are trying this and comfortable to do so. I figure it cannot hurt and we have other, more sublte food issues I think it might help more. I really do not hold out hope of a PA cure, more of a realistic balancing treatment for our less serious issues. If the PA went away too, great! becca

[This message has been edited by becca (edited April 17, 2005).]

On Apr 17, 2005

Oh, and back on topic, I am skeptical of the claims of utter strangers coming and making such claims. I might look further into it if someone we all hear from regularly had some info on these supplements.

But, when it comes to supplements, geesh, how many pills can we all take?? There are so many out there making strong claims! becca

On Apr 17, 2005

You are all correct! Be skeptical, these are our kids we are talking about. I only researched the company on their web and through friends that took the supplements already. I could tell you miracle stories of people I talked with that got help for different ailments. But this still would not convince you. I took such a long time to try them because I hate with a passion MLM companies. That was a huge turn off for me. I currently haven't sold to anyone and I don't care to. I already have a job and don't need to add another one to my hectic life. I am a christian mom that just wants others to know that this is an option. These products are currently helping children with Aids, Malaria and HIV in Uganda. The President of Uganda was at their conference and praised the good work of the company. The products are supposed to be in the news in August of this year. Good Luck and God Bless.

On Apr 17, 2005

Just a guess here. Maybe the "new posters" you speak of coming here about these types of things, aren't actually new members. Maybe they are old members that see how ***** people get treated when they post the information, so they start a new username.

I know if I were to ever find a supplement that helped my kids, I would NEVER post it here. No way, no how.

As far as why the person didn't post in Off Topic, for other ailments, but only in the main part of the board about peanut allergy...Well this is PEANUTALLERGY.COM, correct.

I suppose now the uproar will be that she has posted in more than one forum. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

[This message has been edited by momma2boys (edited April 18, 2005).]

On Apr 17, 2005

momma2boys, no, I'm actually pleased that Off Topic was *hit* as well.

I certainly didn't mean to personally offend you.

As I asked in the other thread, I need to know what ingredients are in the supplements. I mean, probably all of our children take a multi-vitamin.

I am not not open to the discussion - it's just that I don't personally believe in a cure.

I also don't agree with homeopathic remedies for my children, but that's simply me.

Except for that tuna oil [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 18, 2005

The following is information on the FDA's attitude towards glyocnutritional supplements:

Recently, organizations exclusively promoting glyconutritional supplements have come into business and are widely publicizing their products. Glyconutritional supplements contain basic saccharides necessary for cell communication and formation of glycoproteins and glycolipids. These saccharides are glucose, galactose, mannose, N-acetylneuraminic acid, fucose, N-acetylgalactosamine, and xylose. Two small studies showed a reduction in inattention and hyperactivity symptoms after a program of glyconutritional supplements,6,7 but a third study found no impact of the supplements on symptoms.1

The following conclusions regarding various supplements are based on an extensive review of the scientific literature:1

Treatments with supplements that

On Apr 18, 2005

Adele, thank-you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

The information you posted was very much appreciated and quite informative. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 18, 2005

Quote:

Originally posted by momma2boys: [b]Just a guess here. Maybe the "new posters" you speak of coming here about these types of things, aren't actually new members. Maybe they are old members that see how ***** people get treated when they post the information, so they start a new username.

I know if I were to ever find a supplement that helped my kids, I would NEVER post it here. No way, no how. [/b]

In fact, there have been people who have returned to let us know that their children have now tested negative to pa. And I've never seen them treated badly. They offer HOPE and everyone is happy for them. Do they get questioned at all? Yes, they do. But the questions are along the lines of - what did you do that I could try? And if one of those long time members said they tried a magic cure - that one would probably get lots of use by people here. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Now, you've been on this board for 2 years. I don't know how long before that pa first entered your life. But, do you remember how you felt at first? Many people feel like they are drowning. And we all would do ANYTHING for our children. PA just multiplies that.

I understand how desperate for a cure some parents are. If they choose to spend every last dime on something unproven - that's their choice. BUT, I lived for years with the hope of this being cured. IT HURTS LIKE **** . I just want to make sure people look into this stuff. Don't get their hopes up. Because every time you come crashing down, it hurts a little bit more. And don't take unnecessary risks. Don't believe you/your child is cured without proof. Don't suddenly stop whatever meds your child takes (e.g. asthma meds) and don't stop carrying around life-saving meds. Go to a REAL DOCTOR. Check the ingredients and make sure this stuff is safe. (All pills have food products in them as binders. You need to verify what is in these and make sure none of your allergens are.)

Here is a *magic cure* for allergies, asthma, aids, hiv, malaria and adhd. But, it does NOT have FDA approval.

So, everytime one of these *magic cures* pops up on this board I will tell people - CHECK IT OUT. Talk to your doctor, get an ingredient list. CHECK IT OUT.

If I were a moderator - I would delete them - like they are deleted from other allergy boards. But, I'm not a moderator. So, instead I will make sure people (especially newbies) know not to trust everything you read on the internet.

I never said don't buy this stuff. I never said don't use this stuff. I said CHECK IT OUT.

And one other thing I'd like to point out. In this thread, becca chose to post about something many people consider a *magic cure*. I haven't seen anyone being nasty to her about it. (Although, I'd also like to point out that becca isn't jumping in without testing the water first. Sounds like she's checking things out, and waiting until her child can be involved in the decision.)

**********

If my doing this offends people - that's just to bad. No wooden stool for me this time. I will continue doing this. Again and again and again.

On Apr 18, 2005

AnnaMarie, the difference is, those that returned to say their children outgrew it, didn't say it was due to a supplement. What I am saying is, what if this was a member who was scared to use their name. What if they really believe it works? I don't have any problem with you advising people to check this out. None at all. In fact I think it is good advice.

What bothers me is the harassing of the poster. This person has not offered to sell anything to anyone. I consider myself intelligent enough to research something before I just start giving it to my kid.

I have been dealing with pa for 6 years. I never really had much hope for a cure. Yes, I remember what it felt like, and I don't think even then I would have done this without research.

I guess my feeling on this, is to give the warning, then let it be. Why the harping? Let others ask for information if they want it, and if you don't leave it be. (Not directed at you AnnaMarie)

Cindy, I'm not personally offended, but something rubs me the wrong way with the way they are treated. And maybe some people here think you are nuts for giving your kids tuna oil. Maybe there is some harm to giving it to them, maybe not, but that was your decision to make, and no one criticised you for doing it.

Whatever, I am just voicing my opinion.

On Apr 18, 2005

Anna Marie, very well said. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 18, 2005

The person who started the thread says in his/her profile that he/she works in sales. Hmmmm.(unless that has been edited out since this started). becca

On Apr 18, 2005

momma2boys, sorry, didn't see your post earlier when I responded to Anna Marie.

I see in the thread on supplements in Off Topic that perhaps tuna oil is NOT okay for my children to be taking. No, no one here has ever slammed me for posting that they take a tuna oil supplement (they find a multitude of other things to slam me about that are more hurtful), but perhaps because I've clearly said what my children are taking. Tuna oil. An Omega. Just as other members are buying milk and eggs enriched with Omegas and can now even purchase yoghurt with it. I would think that it would be pretty difficult to slam tuna oil.

I have asked the person posting what the ingredients are in the supplements and am waiting for an answer.

I mean, as I posted somewhere, probably all of our children are taking a multi-vitamin and as I posted in the vitamin/supplement thread, mine are currently taking one with extra iron and calcium because of deficiencies in their diet.

And, as with what Anna Marie posted, if someone like becca comes in and says hey, NAET worked for my child, I feel as though I have known becca for years from this board, I respect what she has to say (and always have) and I would finally not think that NAET people are also a bunch of nutters.

Also, as with Anna Marie, I believe I have simply cautioned new members (Anna Marie put it so much better - the stage you're at where you feel as though you would do anything to make PA go away) to please check (if we ever get an ingredient list) with your family doctor, allergist, pediatrician. I don't think that caution is extreme.

I have checked with the pharmacist and family doctor about the tuna oil supplement to make sure that it is okay for my children to take and also to make sure that it will not interact adversely with their allergy and asthma medications.

That's the only caution I would have.

And I do think these are new people that have hit the board. I don't think they are long time members who have suddenly found a PA cure or they would share it with their friends at PA.com openly.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Apr 20, 2005

I agree that the attitude at this website is a little harsh to people like me. But that is okay. I wouldn't of believed it either. As for the ingredients of these supplements they are dehydrated and/or freeze dried fruits and vegetables. I think that is great because they are non-toxic. The reason they don't have FDA approval is because every drug must have a toxicity level to be sold to the public and fruits and vegetables aren't toxic. You know drugs have to eventually kill mice or they can't be sold. Great huh? Don't rush into anything yet, just be open to learning about this as the opportunity arises. It is really fascinating. By the way I have posted here a couple years ago but I couldn't remember my username and had to get a new one. I was just too busy raising my three kids to be on the computer! Just think about the logic that so many of our chronic illnesses like fibromyalgia, asthma, allergies, ADD etc. could be nutritionally related. I will definitely let you know how our next blood test goes. It will be in August. Also there aren't any herbs in the things my daughter takes. I really liked that. By the way, I work in insurance just 15 hours a week to supplement our income! I don't do the sales part, just administrative work. Enjoy your day!

On Nov 1, 2005

Quote:

Originally posted by mamatomany: [b]I didn't know that glyconutrients could help with food allergies. I have been giving them to my dd for severe asthma and GERDS. My son takes them becasue sickle cell weakens his immune system and the glyconutrients build it and help protect his spleen. That would be great if they help with his allergies too. My dd's asthma is quite mild now, and her GERDS is gone. I don't know exactly what role the supplements played, but what we are doing is working, so I don't plan to change it!

Glyconutrients are the essential sugars that comprise our cell walls and aid in cell to cell communication. They are a nutritional supplement that can help in many areas but they don't claim to cure everything. They work best as a component in a lifestyle of wellness.[/b]

Hi, I just wanted to write back after many months. I am so glad to see that you also believe in the potential for glyconutrients to assist our immune systems. As of Halloween day my daughter is allergy free. She ate 2 tablespoons of peanut butter in her doctor's office and did not have any reactions. We are so pleased. I know I can't convince people to try glyconutrients. I just pray that maybe God will lead them there. I am feeling blessed. We began seeing her blood work change after she was on them for four months. Please pass this on to others so that they may benefit.

On Nov 2, 2005

When I hear that Dr. Robert Wood is taking glyconutritionals to cure his peanut allergy, then I'll look into it.

On Nov 2, 2005

Might as well re-raise the thread about how it's NOT okay for my kids to be getting the tuna oil supplement since this one is "up" again.

Glyconutritionals - Made a difference! Great. Not in my home.

Since this thread was originally started, we have had at least two members (I think it was three) come back and post that their children had outgrown their PA. Now, I can't speak on their behalf and I do stand to be corrected by the person I am about to mention (I will send her the link to this thread).

rilira wrote how her daughter was no longer PA. I believe that rilira is a strong enough woman that she would have mentioned had her daughter "outgrown" her allergy because of a supplement. I believe I know rilira that well. She would have told us. If she had told us, you know what? I might be investigating the situation further.

No ingredient list was ever provided. That is my continuing concern.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Nov 2, 2005

dschultz, how did the August month appointment go?

I am actually interested. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Nov 2, 2005

Quote:

Originally posted by dschultz: [b] Just think about the logic that so many of our chronic illnesses like fibromyalgia, asthma, allergies, ADD etc. could be nutritionally related. [/b]

I am able to think about the logic and I guess that's why I perhaps may have a difficult time. I can't think about the logic when it comes to my CHILDREN and when it comes to THEIR environmental allergies, asthma, or my son's PA.

However, if we're talking me, a "big person" and what supplements I am willing to try to potentially cure a whole litany of physical complaints that I do have, I am quite willing to explore different things and certainly did in the past.

Just not with my kids. I don't know why exactly.

And I don't have PA, so I'm not sure I'd be open to a supplement even for myself for PA. Oh, I do have environmental allergies and I am controlling those with antihistamines. As I said, the supplements I see in the health food store for asthma and allergies FRIGHTEN me. Even for me then.

But other "ailments" (if you will), I am certainly willing to explore alternatives, for myself, just not my children.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Nov 2, 2005

Quote:

Originally posted by csc: [b] I am able to think about the logic and I guess that's why I perhaps may have a difficult time. I can't think about the logic when it comes to my CHILDREN and when it comes to THEIR environmental allergies, asthma, or my son's PA.

However, if we're talking me, a "big person" and what supplements I am willing to try to potentially cure a whole litany of physical complaints that I do have, I am quite willing to explore different things and certainly did in the past.

Just not with my kids. I don't know why exactly.

And I don't have PA, so I'm not sure I'd be open to a supplement even for myself for PA. Oh, I do have environmental allergies and I am controlling those with antihistamines. As I said, the supplements I see in the health food store for asthma and allergies FRIGHTEN me. Even for me then.

But other "ailments" (if you will), I am certainly willing to explore alternatives, for myself, just not my children.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

[/b]

Hi, I think that the key to taking any supplement is educating yourself about it. I can start by telling you to do what I did. I did this until I felt truly comfortable and I also got permission from our allergist. Go to a few websites and read them. Go to [url="http://www.glycoscience.org"]www.glycoscience.org[/url] and then to mannatech.com I can answer any questions you have or find someone who can! I don't have all the answers but I can try. Glyconutritionals are non-insulin producing sugars that come from plants. The body needs eight sugars on every cell and the average person has 2. When we get all eight by taking these supplements our bodies can then heal themselves. They are not a cure but they do put your body's immune system at its optimal level. In my daughters case it worked great. I can't claim they cure but I know of many in my own family and community that have gotten help and dramatically improved lifestyles with M.S., ADD, Fibromyalgia, asthma, etc. All of these are immune problems and this company believes they are caused from nutritional deficiencies. The main product she takes contains aloe. The rest are 30 different fruits and vegetables like pineapple, broccoli, carrots, apples, etc. It is the sugars in these that form a sort of alphabet on our cells and when the alphabet is not missing any links or sugars the correct messages are then sent out to heal. This is new to me too and there is alot to learn. Take one step at a time but continue to learn. You can ask me questions. When we decided to try these supplements it was a leap of faith. I know it is hard to decide. I finally decided to give it four months and see if there would be any results. Well after four months her blood tests were negative. Please check it out. I don't care where you decide to get them just do! We really were not meant to be so sick with so many chronic illnesses.

On Nov 2, 2005

Quote:

Originally posted by Adele: [b]When I hear that Dr. Robert Wood is taking glyconutritionals to cure his peanut allergy, then I'll look into it. [/b]

Who is Dr. Robert Wood?

On Nov 2, 2005

But, ers, did you try them for yourself as well? Or your PA child's other parent?

I am not PA. I am certainly willing to explore holistic health things for myself. But again, I am not PA. I am also not willing to explore supplements when it comes to things such as environmental allergies. I am more willing with the host of other physical complaints I have - none of which are life threatening.

Thank-you for offering to answer any questions.

But again, this has NOTHING to do with my child's PA - never will. When he is a "big person", he can decide to think outside of the traditional medical box if he chooses to, but hopefully NOT with regard to his PA.

Are the fruits the only ingredients?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Nov 2, 2005

Quote:

Originally posted by csc: No, I did not try them myself. I don't have any health issues at this time. As far as the ingredients go each product is different. Ambrotose is aloe. It depends on what your health issues are. Each health issue would use a different product. Would you like to talk on the phone? I can look up ingredients etc. on the website while we talk. [b]But, ers, did you try them for yourself as well? Or your PA child's other parent?

I am not PA. I am certainly willing to explore holistic health things for myself. But again, I am not PA. I am also not willing to explore supplements when it comes to things such as environmental allergies. I am more willing with the host of other physical complaints I have - none of which are life threatening.

Thank-you for offering to answer any questions.

But again, this has NOTHING to do with my child's PA - never will. When he is a "big person", he can decide to think outside of the traditional medical box if he chooses to, but hopefully NOT with regard to his PA.

Are the fruits the only ingredients?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

[/b]

On Nov 3, 2005

Dr. Robert Wood is one of the country's peanut allergy experts. He is a pediatrician and allergy expert at the Johns Hopkins Children's Center in Baltimore. He heads a current research project on peanut allergy and is also peanut allergic.

On Nov 3, 2005

csc, Tuna oil is probably very safe. Just one thing to be careful of--some tuna oil may contain mercury. Make sure are careful with the brand. Otherwise, yes, I believe it is safe. Anything that is a "normal" food product, that the individual is not allergic to, and that is not contaminated with anything nasty would be safe. It would still be a matter of whether it is effective, though.

On Nov 3, 2005

Jimmy's Mom, thank-you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I really should e-mail the company and ask them about the tuna and mercury. Here's what I figured, but I got in doo doo here. It's tuna oil. It's something my children would get if they would eat a tuna sandwich. My children will not eat anything fish-y. The reason I explored them taking what I consider the Omegas is something I am no longer comfortable posting on this board. I really just figured that it was no different than me purchasing Omega enhanced juices, eggs, whatever or than me taking Cod Liver Oil when I was a child.

What I did do, however, when I originally was exploring the idea of them taking it, was check with the family doctor and pharmacist to make sure that it was okay - that it did not interact adversely with their daily antihistamine or their asthma meds. Or, that by chance, either one of them was allergic.

We have just started using it again within the last month, mostly due to financial constraints, but I do believe that the last time both of the children took it for a long period of time (say six months), I did see improvements in the areas that I wanted to see improvements in. KWIM?

As far as me and supplements, I have always been a firm believer in holistic things. However, with the number of medications that I take on a daily basis now, I had to give the pharmacist a list of the holistic things I was interested in taking and a lot of them I could NOT take because of my traditional medicine. I'm okay with that. I still believe in traditional medicine first and most particularly when it comes to my children.

Having said all that, I'm off to take more migraine meds and go back to bed, hoping this migraine will cease by the end of the day (school day).

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------ "That was Polanski. Nicholson got his nose cut."

On Nov 3, 2005

Quote:

Originally posted by Adele: [b]Dr. Robert Wood is one of the country's peanut allergy experts. He is a pediatrician and allergy expert at the Johns Hopkins Children's Center in Baltimore. He heads a current research project on peanut allergy and is also peanut allergic.

[/b]

On Nov 3, 2005

Thanks for the info. There is a doctor who is also at Johns Hopkins named Dr. Ben Carson and he is a pediatric neurosurgeon. You may have heard of him. He is on the cover of a brochure promoting glyconutritionals because his health was improved with them when he had prostate cancer. I think I will write a letter to both of them regarding my daughter. We need to talk with experts to learn more. Interesting!

Quote:

Originally posted by Adele: [b]Dr. Robert Wood is one of the country's peanut allergy experts. He is a pediatrician and allergy expert at the Johns Hopkins Children's Center in Baltimore. He heads a current research project on peanut allergy and is also peanut allergic.

[/b]

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