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Posted on: Fri, 10/06/2006 - 1:39pm
Corvallis Mom's picture
Joined: 05/22/2001 - 09:00

There's always 4-H. An organization with many of the same goals-- so we're planning on doing 4-H instead of scouting. And part of it is my experiences as a GS which lead me to understand that (airquotes) 'inclusion' is only as good as the leader running the local show. It seems little has really changed. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] NO thanks.

Posted on: Fri, 10/06/2006 - 1:43pm
becca's picture
Joined: 05/22/2001 - 09:00

Thanks Daisy. I cannot lead(or assist) because of a disruptive 2yo who also naps at meeting time. My one closer friend is the assistant, and I know the other. Dd has played at both homes and I like them both alot. I am the "snack coordinator", lol. So, I can handle that. I drop it off or dd brings it in to school that day with her.
My leaders are on board with accomodating allergies in the troop. Not sure that they are on board for a bigger issue at council levels! I need to be careful not to bring greief down on those I lean on heavily in many venues in my community for help with dd.
Assistant leader is also wife of dd's soccer coach, and dh is the assistant there! I am snack coordinator in that venue as well, lol.
Good friend and connection. I do not want to involve her ian battle she is not ready for. I need to think it through. I just do not trust the politics of the organization locally to not give her grief if I make waves. I would certainly say how wonderful she is, but I still have no trust, based on the stories I have heard here. It all boils down to community cliquiness, IMO. I am not hip to the cliques, so I tread very carefully in this community! becca

Posted on: Fri, 10/06/2006 - 1:48pm
Daisy's picture
Joined: 01/16/2006 - 09:00

Bingo! Found the references I had seen earlier. Always browsing for allergy issues...
From the National website May 2005, here is a link to the Directory of Disabilities Organizations and Agencies. It says it is a guide for council and staff for "inclusion" of girls with disabilities. BTW, the Allergy and Asthma Foundation of America is on the list, page 11. It also mentions the contact information for a disabilities consultant on the Introduction page.

Posted on: Fri, 10/06/2006 - 1:58pm
Daisy's picture
Joined: 01/16/2006 - 09:00

I understand about your being busy with your son. But as I understand it, any assistant or Cookie Mom, etc... can attend the Service Unit meetings held monthly.
I am enjoying being the squeaky wheel, as I get older. [i]Sort of lets loose of some of my tension and keeps me from taking everything out on DH. LOL[/i] My new mission in life is currently as Allergy Ambassador!
We are fortunate to meet in our church preschool rooms. They have several allergic kids, so we have to keep our snacks safe, too. Good for me!
Take care,
And BTW, only one or two JR Badges even involve food. One of our girls was interested in a cooking badge. I have had a hard time really finding anything suitable, so we're going to have to wing-it.

Posted on: Sat, 10/07/2006 - 1:12am
Carefulmom's picture
Joined: 01/03/2002 - 09:00

When I had all the problems with Girl Scouts a few years ago, people also suggested that I be a leader. But I shouldn`t have to be a leader in order for the pa to be accomodated. That is really the point. If they truly believe in accomodating disabilities, they should be accomodating a disability without requiring the parent to be a leader.
And for dd there were way more than two patches involving food. It was about half of them.

Posted on: Sat, 10/07/2006 - 3:14am
Jana R's picture
Joined: 02/09/1999 - 09:00

Girl Scouts is run by volunteers at the local level. They have a lot of demands put on them and spend a lot of time training and preparing for the program and I can't imagine just expecting them to accommodate food allergies just because 'they should'. I always expected to be heavily involved in any organization run by volunteers since my child has special needs. Maybe it's not fair but that is just the way it is. And if I didn't have time or energy to devote to something for my child then I wouldn't sign him up. Yes, he missed out on some activities but it was very important to teach him that he will face disappointments due to his "disability" - that he couldn't dwell on everything the others were doing that he couldn't. It's great preparation for real life.
And yes, I can see for instance, where a hike might be scheduled for scouts that a scout in a wheelchair might have to forego. Certainly this should not happen regularly and there should be plenty of other ways for all scouts to participate in most activities. But to expect all special needs to be accomodated at every event is virtually impossible.
Flame away . . .

Posted on: Sat, 10/07/2006 - 8:59am
becca's picture
Joined: 05/22/2001 - 09:00

ROTFL, flaming?!?
Simply thinking they omit nuts in a trail mix when asked about it, and saying no they won't, and at the same time there is a "Be a Pal Badge" and a publication this fall stating to omit nuts if any girls are allergic.
How is this flaming?
I am involved. I coordinate all the snacks for out troop, accomodating the needs of 3 children with 5 combined food allergies, plus the desires of the others, as it is only fair they have a say in the process as well. I will bake on my time, for those that asked(non-allergic children, in fact) safely for all at times, do the shopping, and all at my own expense. I will also be consulted on any food project/badge whatever at the troop level, shop, whatever, also at my own expense. I am more than pleased to do this for my very kind and careful leaders, to give them peace of mind caring for these girls. They want to be safe with the food.
How am I flaming and not putting forth any volunteer time and effort? Have I not complemented my leaders several times in this very thread.
I am also room mom for both of my children, and do other special projects at the school for PTO fundraising, including auctions at both schools.
I think you are the one flaming and not reading the real issue. The attitude was "we will not make any effort on this peanut allergy issue" with a blanket statement that "we cannot accomodate everyone." Then they banned Santa(which is fine with me) but not *life-threatening* to anyone. I am sure we wouldn't be able to go to that either, because they would have some sort of unsafe food. Not particular to Girl Scouts, we just always end up skipping those sorts of things because of the food, and dd accepts it and is being taught that is just how it is. Sometimes it stings, and sometimes the glass is just full from all of these things...
So, I am may be right, that that is just how it is for Brownies, as I had thought/feared. At the larger level, that is. Similar to what Carefulmom said, one should not have to become president of the organization to have it be fair for your child. becca
[This message has been edited by becca (edited October 07, 2006).]

Posted on: Sat, 10/07/2006 - 9:17am
joeybeth's picture
Joined: 09/01/2006 - 09:00

i think she meant she was prepared to be "flamed" for her comments; like she was aware others would disagree. i wasn't sure if you understood her intention when she said "flame away." if you did, sorry. just wanted to clarify what i think she meant.
also, we do not do girlscouts because of the food issues....too many food activities and sales for my tastes....and because we are already so busy with other activities. but, i do think it would be nice if they'd be as accommodating as possible (and removing nuts from trail mix is not a tough thing to do).

Posted on: Sat, 10/07/2006 - 9:54am
Jana R's picture
Joined: 02/09/1999 - 09:00

Becca - No I wasn't intending to flame you - as joeybeth said, I expected to be flamed (not that I feel I have to give permission to anyone to flame me but really, that's what my ending comment was).
I wasn't intending insult to your situation. And it wasn't your posts that got me the most upset about how some think Girl Scouts should be run. I think you are doing lots for your troop (and other activities) and I agree you were very supportive of your volunteer leaders. My concern is that we don't take all the activities that are not safe for our children as personal attacks on fairness to our children. Life is not fair and sometimes that hurts more than others.
I rolled my eyes like you about removing Santa but not the nuts and don't really get why they can't do that but then I don't know what else they've been asked to do. I really don't believe all activities can be made suitable for all Scouts. But certainly most should be suitable for each scout.
It always seems like kids are way more easy to persuade inclusivity than adults and with the last GS law reading "Be a sister to every other Girl Scout", maybe enlisting the girls themselves to make changes would be better than talking to deaf ears.

Posted on: Sat, 10/07/2006 - 11:14am
Carefulmom's picture
Joined: 01/03/2002 - 09:00

I think the issue really is that they are very two faced. If you don`t want to accomodate my child, fine, just come out and say it and I won`t put her in. But to claim that you accomodate disabilites, so I put dd in, then watch her be excluded from activity after acitivity, it would have been better if I had never put her in at all.
And as moms of pa or MFA kids, we are already spread thin. We are already at school events, field trips, class parties, various other outside events such as sports, ballet, or whatever. Sometimes it just isn`t possible to be the head person for every activity. That doesn`t mean our child should be unable to participate.
I think all or almost all of us who had to pull our kids out of Girl Scouts due to the food allergies, we were all involved in the snacks like Becca. I volunteered to bring all snacks to all meetings (but they would not let me, but they did pass out a safe snack list). Yet there were a ton of activities dd could not do. I remember some big Girl Scout event for the whole city, it was the cookie kickoff event and they served peanut products. This was discussed at several meetings both before and after. Each time it was discussed at the meetings, it was yet another reminder to dd that she missed it due to the pa.


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