My son was diagnosed with a peanut allergy and some tree nuts about nine months ago when he was 19 months old. I did a crazy amount of research when he was first diagnosed and found Dr. Xui-Min Li at Mount Sinai in NYC. She is doing a human trial on a nine herbal formula (FAHF-2) that blocks the Anaphylactic shock from accidental exposure. My son was too young for the study, but she agreed to see him in her clinic - traditional Chinese clinic.
We saw her in July. She started JoJo on a three-fold herbal treatment. An herbal bath for skin (he also has lots of airborne allergies), a capsule to decrease his allergy level and a tea to increase his immune system to help with possible reactions.
We just got our blood work back. His allergies levels have been cut in half. We are so happy. In fact, Brazil Nut and coconut dropped off completely. Sesame seed dropped to .39. Peanut went from 3.61 to 1.34. Cashew went from 3.00 to 1.31. We are headed back to see Dr. Li in NYC this Saturday. She was excited when I told her the news. We hope to see a continual drop.
I wanted to share this with everyone. I am hopeful. It was huge blow when JoJo was diagnosed with the allergy. I cried for two days. Now, we are hopeful.
By doofusclo on Feb 5, 2009
Good for you and your son. I have looked up to Dr. Xui-Min Li for awhile. God bless her and her work. I think her work really has the potential to help people with multiple food allergies.
By ShannonB on Feb 25, 2009
I am really wondering if Herbs/Nutrition are playing a huge part in this all. My daughter was diagnosed with a Peanut and Egg Allergy when she was 5 months. Fast forward to now (she just turned three). She has been taking a Nutritional Supplement for 1 Yr (Almost to date) and her numbers are both cut in half. Are the herbs/nutrition really doing this for her? Is this true? I am wondering if I was to stop the herbs/nutrition would the allergies start to climb up in number again? How can I find these answers out?
By Newallergymom on Feb 25, 2009
ShannonB- what is the name of the supplement you have been giving your child...very interested! thanks!
By Pamela525 on Mar 10, 2009
My son is severely allergic to peanuts and Im very intrigued by your story. I am considering trying to set something up with Dr. Li but would love to talk to you more about your experience if that's possible.
We live in San Francisco and would definitely have no problem visiting her 2x/year. Can we get in touch?
Thank you so much!
By lavoras on Dec 17, 2010
How do I get her number
By actonshanks on Feb 27, 2009
The herbs Dr. Li gives us are directly from China. It's her formula. I tried to research them, but everything comes up in Chinese. Dr. Li is still taking patients. She sees patients twice a month, I think. The rest of the time she is doing research at Mt. Sinai. She has a human trial going on right now. She is located in mid-town New York. We travel from Austin Texas to see her twice a year. We speak on the phone or email once a month. She orders us new herbs when we talk.
By Pamela525 on Mar 25, 2009
Thanks. I've tried emailing you at jbud27@yahoo but I'm not sure if you've been getting them. Feel free to email me at: Pamela525@yahoo.com if I have the wrong address. Thank you!
By AKing on Apr 6, 2009
My daughter who has severe PA and egg allergy is also seeing Dr. Li. I was actually inspired by your post and took her to the NYC clinic last week. I am very happy for you and your son of the successful result. I hope it works on my daughter too since she will be going to preschool this Sept.
We also have the bath, tea and cream prescribed. I would like to know if how you mix your drinks coz it has a very strong taste to it. I just started her with the drink so I am only using half the pill from each medication (3 together). I mixed the 3 half pills in 6 oz of water and 6 oz of cranberry juice. It still taste very strong. How do you mix yours? Does your son like it? I am so concern with a higher dosage later on and the taste will be even stronger.
It is also very hard to dissolve the herbal powder. Lots of residual. Does that happen to you too?
I don't see you mention the cream after the bath? Maybe my daughter is very severe that she needs more medication. Not sure if you also use it. It has a greyish tone to it and I am afraid it will have a effect on my daughter skin tone. Hope to hear from you soon. Thanks!
By actonshanks on Mar 12, 2009
Pamela. I would be happy to talk with you about Dr. Li. My email is email@example.com. Feel free to email me. If it's easier you can email me your phone number and I can give you a call. Whatever is easier for you. I really love Dr. Li, and you can read quite a bit about her on the web.
By shtwin on Nov 28, 2010
I am debating going to see Dr. Li. Can you tell me how its going?
By actonshanks on Apr 6, 2009
Feel free to email me directly - firstname.lastname@example.org.
I understand the problem with the tea. We mixed it with everything in the beginning and my stubborn little guy would hand the cup back to me and say, "poopy." Eventually, after two weeks of total frustration, we just started mixing honey with the tea. We fed it to him in a medicine dropper. We started with just a little. It worked. Now, he takes it without any fight. We still use a medicine dropper, but a big one. He takes about 10 tsp a night. We make the tea very strong - three different types of tea (16 different pills) and one tsp of honey with about a half a cup of water. It takes him two nights to take the tea. In fact, in February Dr. Li added a new tea (used to only do two teas) and JoJo didn't notice at all. He's gotten used the tea. Dr. Li promised me that would happen if we kept at it. I wasn't so sure in the beginning.
We use hot water for the tea and then let it cool for JoJo. Then, we just stir before serving.
The tea bath doesn't dissolve unless you swish it around a lot. We make a game of it. :>
We don't use the cream. Sorry. I can't help there. But I can tell you that Joey has not had a single negative effect from any of the herbs. In fact, last winter we saw our regular doctor about every other week for various illnesses (mostly associated with wheezing and coughing). We've been to our doctor once this year. :> YIPPEEE.
Please let me know if you have any other questions. The tea is a struggle, I know. Are you using capsules, too? We have one (Gandomera, I think). We don't make tea of that one. We take it to our local pharmacy and have them recapsulate the pills into tiny ones. Joey's only two but he can swallow them easily.
Hope this helps.