For those also dealing with sesame seed allergy I have a question.

Posted on: Fri, 02/02/2001 - 9:41am
punkinsmom's picture
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Joined: 12/07/2000 - 09:00

pHave you been told to stay away from any other seeds? Specifically, I want to make bread that has caraway and fennel seeds and if it will be a problem I will stay away from them also. Thanks - Peggy/p

Posted on: Fri, 02/02/2001 - 1:06pm
California Mom's picture
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Joined: 07/14/2000 - 09:00

My daughter has possibly reacted to sesame seeds. Her RAST test came back questionable; so we are totally avoiding them. Our allergist said that we don't have to worry about other seeds. We are being cautious, however, and trying to avoid poppy seeds as much as possible. Leah has never reacted to any other seeds, but she had also had sesame seeds (probably) hundreds of times before she began to possibly react to them.
An adult PA sufferer who is also allergic to sesame seeds did tell me to be careful of all seeds.
Good luck! Miriam

Posted on: Fri, 02/02/2001 - 2:26pm
rebekahc's picture
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Joined: 12/02/1999 - 09:00

I really think it's kind of a comfort zone type thing. I don't believe all seeds are related, heck, most plants have seeds! I would assume some plants are related to the same plant that produces sesame seeds, but I don't know which ones.
With Logan we don't consiously avoid seeds, but I believe I would feel nervous if he ate something loaded with seeds. He had had sesame seeds on buns, etc. lots of times and then we gave him 2 bites of a sesame seed pretzel and he had an anaphylactic reaction.
Rebekah

Posted on: Sat, 02/03/2001 - 3:32am
Anonymous's picture
Anonymous (not verified)

My son is also allergic to sesame, and although he has never reacted to any other seeds, we were told to "be cautious" with them.
Essentially, we try to avoid them where possible (except mustard, which he loves!), but aren't as vigilant as with PN/TN/Sesame.
Good luck.
Amy

Posted on: Sat, 02/03/2001 - 7:07am
dakota3030's picture
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Joined: 09/10/2000 - 09:00

Hi,
I am allergic to sesame seeds and I know that caraway seeds bother me as well, so I just stay away from all seeds to be safe.

Posted on: Sun, 02/04/2001 - 10:51pm
Anonymous's picture
Anonymous (not verified)

Well, about your question, yes we are careful to keep other seeds away from him. First, because places that use sesame seeds probably aren't careful about cross-contamination. Let's face it sesame seeds aren't one of the top 10 most commen allergies, even Food Allergy Network is clearly choosing to keep their focus and not add any help for sesame seed allergic individuals. I've tried to get information from several food companies but they don't keep track of other foods run on commen lines with seame seed and I've been told why(not focused on by Food Allergy Network.) Occasionally I call Food Allergy Network and try to feel them out to see if their focus may change-but I get the cold shoulder. I've been to several of their conferences and learned much I have their cookbook and add dairy back into reciepes as my son's not allergic to that. It doesn't seem to matter that there is documentation of just as severe reactions to sesame as there is to peanuts. It can be just as deadly.
I can't find safe bread crumbs- some have sesame seeds but just list spices.
Secondly, my son is in the high risk catagories being multiply food allergic and having asthma.
Thirdly, my allergist wants me to be very careful even of the spices-I'm using certain type of vanilla etc.
We rarely have breads with sesame seeds in the house though my Non-food allergic child loves them and I no longer have sesame seeds on my spice rack.
Anyone interested in trying to bring awareness to Food Allergy Network or asking if their allergists would be willing to help??
JanBP

Posted on: Sun, 02/04/2001 - 11:19pm
California Mom's picture
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Joined: 07/14/2000 - 09:00

When we first suspected that Leah had reacted to sesame seeds I called FAN for guidance. I agree: they were not much help. My allergist wasn't all that much help at the time, either, and I don't think she was even aware that sesame seed reactions could be anaphylactic. Since then, I noticed (on a link that I could never find again even if you paid me) that in the U.K. they do list sesame seeds as one of the top allergic foods. I will contact FAAN and urge them to look into the matter further. Thank you for bringing it up. Miriam

Posted on: Mon, 02/05/2001 - 2:50am
carrie's picture
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Joined: 05/15/1999 - 09:00

Please see my post on Food Alerts forum. Today I found sesame seeds all over the bottom of a Wonder Potato Bread loaf. No seeds on the label--is there a safe bread out there with no chance of cross-contamination???? I am scared now and don't know what to do!!!

Posted on: Mon, 02/05/2001 - 3:05am
Merri - Kim's picture
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Joined: 01/31/2001 - 09:00

This may be a lot for some people, but we have a bread maker and we use it at least twice a week. It takes five minutes to make a loaf - then you just let it bake. The hard part is remembering to do it. We love our breadmaker and we can put whatever we want in our bread and most important - we can leave out whatever we want! Hope this is helpful. Kim

Posted on: Mon, 02/05/2001 - 3:10am
Merri - Kim's picture
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Joined: 01/31/2001 - 09:00

So, somehow I stuck the same post in twice - sorry! Kim
[This message has been edited by Merri - Kim (edited February 06, 2001).]

Posted on: Tue, 02/06/2001 - 12:26am
punkinsmom's picture
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Joined: 12/07/2000 - 09:00

Thanks for the input. I recently purchased a breadmaker and that is why I asked the question. I wanted to make pumpernickel bread with caraway seeds. In the end I made it without seeds just to be safe. Peggy

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