For my2girls

Posted on: Fri, 05/04/2007 - 12:14am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

1) Hi! Glad you're here. Really.
2) I am having a tough time reading your posts right now, as you are scatterred all over. (Of COURSE you are. The beginning of the FA journey SUCKS)

But listen. I don't know if I am the only one having problems. Maybe I am. But perhaps you could have 1 thread on the main board, and just keep asking questions on the one thread? If others agree, maybe they'll post here.

But listen carefully - We are here to help you. And you do sound quite frantic. We UNDERSTAND your concerns. Listen, we've done exactly what you're doing RIGHT now.

You're all over the place. Asking all the necessary questions. Congratulations. Truly.

This will pass, and it will get easier.

If I'm the only one, then let no one else respond to this thread, and let it fall off.

I'm just looking for the best way to help you and answer your questions in a quick turnaround, and in the best way I can, kwim?

Again, we know the pain and frustration you are feeling. And how scared you are. And how nervous you are to walk out of the house.

The whole world has just flip-flopped on you. And everytime you put the spoon to a food for your daughters, you freak out and cry. WE GET IT.

Do your best to relax. Difficult? Yes. But eventually you DO relax.

I hope it helps.

And in case, you think we do NOT get how you feel... you're wrong. We're the best you have ever talked to. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Jason
Caitlin 4-17-00 Allergic to Dairy, Egg, Wheat, Bananas, Grapes, Rye, Sesame, Beef, Garlic, Mustard, Onion, Peas and Avoiding Latex and all Nuts
Sara 2-13-98 NKA (Avoiding Nuts)
Meghan 2-28-03 NKA (Avoiding Nuts)
[url="http://community.webshots.com/user/jtolpin"]http://community.webshots.com/user/jtolpin[/url]

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[b]* Beyond Obsessed * [/b]

Posted on: Fri, 05/04/2007 - 12:43am
McCobbre's picture
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Joined: 04/16/2005 - 09:00

With love and hugs--I think Jason has a good idea. There are so many questions that come up, and one thread might be a useful place for all of them.
But don't feel bad in any way for starting lots of new threads. In the future, others will find them, and they will be of benefit.
I heartily recommend a visit to the vacation thread this evening. Heartily. Could help you to relax a bit. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] (and we [i]all need that[/i].)

Posted on: Fri, 05/04/2007 - 12:59am
niche's picture
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Joined: 02/05/2007 - 09:00

My2Girls, I have too been thinking of the best way to help you. I agree one thread might make it easier. You are on info overload - be glad you are getting it so fast - maybe there is a reason - maybe it will save your dd from future reactions. We have all freaked out about this I have cried and cried. Been so mad I can't see straight. I have been in denial (that didn't last long) I have been completely OBSESSED - still am. Right after I read one of my First food allergy books I took a big garbage bag and trashed half the stuff in my kitchen - crying the entire time. I truely believe everyone should leave the allergist with a book not 2 sheets of paper. Keep asking - I still am. It will get easier.
Nichele
DS PA TNA
DD 10 mos ???

Posted on: Fri, 05/04/2007 - 1:09am
saknjmom's picture
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Joined: 04/02/2003 - 09:00

Maybe doing searches before starting a new topic would be better. (medic alert question is answered in other threads, etc.)
I think that she's doing great. Much better than I was less than a week after diagnosis.

Posted on: Fri, 05/04/2007 - 4:38am
My2girls's picture
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Joined: 04/12/2007 - 09:00

ugh....ok....it sounds like this borad is different than the other boards i have been on for other things..people post all day long and the board moves lightening fast. Thanks for the heads up on how to post here.
of course, now i'm nervous about posting anything!!!! maybe i'll just take a break.
sorry i didn't know the protocol and thanks for trying to explain it to me

Posted on: Fri, 05/04/2007 - 4:43am
My2girls's picture
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Joined: 04/12/2007 - 09:00

ALso-if i respond to a thread i didn't start-how do i subscribe to it? ie, how do i keep getting responses emailed to me-there is nothing to click UNLESSi am the one who started the post.

Posted on: Fri, 05/04/2007 - 4:50am
Peg541's picture
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Joined: 12/29/2002 - 09:00

If you look at the top of the main page there is a place to click to see the active topics for that day. There is no place to subscribe to a thread unless you started it yourself.
Don't apologize you are doing fine. Just take a nice deep breath. You'll be fine.
Peg

Posted on: Fri, 05/04/2007 - 5:13am
jtolpin's picture
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Joined: 05/28/2003 - 09:00

There IS no protocol.
I figured I would speak up, and state [I] was having a problem keeping up with all your questions, and which ones [I] answered.
And maybe others felt the same way. If they don't, they don't.
I get confused easily though.
And yes, you're doing fine and dandy.
Jason
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[b]* Beyond Obsessed * [/b]

Posted on: Fri, 05/04/2007 - 5:19am
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

You're doing fine. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Here are a few things that might be unfamiliar about the PA.com BB system, however.
1. This entire board is [i]public.[/i] Anyone with an internet connection can see anything that is posted by simply clicking on the links. There are many, many 'lurkers' and a fair number of others who read a lot but only post once in a great while.
2. The search feature (in the top right corner of your screen when you are looking at the listing of forums) can help if you have an idea what you want to know and if anyone has asked it before... You don't [i]have[/i] to restrict yourself to only posting 'new' questions in 'new threads' by the way-- there is no rule. Generally, it is better to pose the question anew if the older thread is [i]very[/i] old (more than two years) or if the old thread has 'gone bad....' or just badly off-topic.
3. Threads aren't arranged by 'threaded responses' on the board. They are entered as their own permanent entries, and a thread gets pulled to the top any time a new response is added to it. You can find threads that are five, six, seven years old this way. Watch DATES... [i]particularly in in the manufacturer's forum.[/i]
4. To check what's happening with any thread (even those you didn't begin), just find it in its forum and click on it, then scroll down to the bottom.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Fri, 05/04/2007 - 6:19am
Anonymous's picture
Anonymous (not verified)

Jason, I think you have a great idea for My2girls.
My2girls, as I posted to you in another thread, I understand that you're overwhelmed right now and it's okay.
How I visit the board is click on Daily Topics and even after all these years, if there are too many (depends on the day what amount that is [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ), I, myself, get overwhelmed and leave without saying anything.
Now, this comes from someone who has raised ? after ? on this board (a lot of them were survey kinda ones under Living with PA). Personally, what I would do, if I were you (I didn't find PA.com until we were well into the PA journey), is I would sit and make up a list of each and every questions that flits through your head. No question is too stupid or silly (I think you used the word silly yesterday).
Then, I'd start a thread something like - Here Are My Questions for To-Day - and then just keep adding to that thread when you have a new question or set of questions pop up.
The thing I think *might* be *good* about that is that you'll have all the information in one thread, instead of all over the place - people can answer say 10 questions of your's without having to visit 10 different threads, only one and you can just keep it going forever and a day, IMPHO.
I know this is hard. But, I do have to say that I think by finding PA.com, you have found the best place for information, support, encouragement, caring and advice. I firmly believe that and have for 7 years.
But, no, Jason, I do like your idea. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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There but for the Grace of God, go I.

Posted on: Fri, 05/04/2007 - 12:13pm
maddiesmom's picture
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Joined: 12/20/1999 - 09:00

I also find it is helpful if I have a specific question about a safe product or how someone has dealt with an issue is to use the "SEARCH" button and just type in a key word.
For example I was searching for a safe deodorant for pre-teen daughter a month ago,and I just typed the word "deodorant" and up came 10 topics. I read a few of them and within minutes I had 3-4 brands that others have used and posted-wrote them down and headed to the store! VERY HANDY!! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] If it wasn't for all of these smart, helpful people on PA.com , I would be a MESS!
You are really doing a great job and your questions are amazing for being so new to this. Pat yourself on the back-you are a good mom. Have a nice glass of wine and try using the SEARCH button and see if it helps a little. You can always post on an old topic to bring it to the DAILY page and then we all can give you updated info on it.
We all know how you are feeling, it is overwhelming and scary, but this board is a GODSEND! (I also have a safe snack list I can email to you if you would like-we use it for her school/dance/etc)
Shandra (mom to Madeline almost 9-allergic to peanuts/tree nuts/soy and Grant-5 with no allergies

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